new here,a little about myself.

By Cowboy68 Latest Reply 2012-09-20 22:45:03 -0500
Started 2012-09-17 00:33:54 -0500

Hi new here,was diagnosed as a type 1 this past Feb at the age of 43, i was admitted to the er with a glucose level off 722,I had to spend 5 days in the icu with them taking blood every 2 hours, it did not hit me just how close i came to dying or coma till i got home, than I broke down and cried for a couple of hours,I was mad,scared and wanted to know why me,since than I have developed peripheral neuropathy in both my arms and have experinced some loss of vision ,I have been labeled as brittle which is a word i have come to hate,my family has had a difficult time dealing with it also , more from a financial stand point than anything else.
Hope to make some new friends here ones that understand what I am dealing with day to day beacuse sometimes it just feels like i am the only one dealing with this moster called diabetes.

15 replies

2manypricks 2012-09-20 22:45:03 -0500 Report

Welcome your are not alone in this trust me. Type 1 or type 2 its very difficult to accept. Lots of up and downs. Be patient and glad you make it. Any question you ask on here will be answered. If i can help in any way let me know and if i can i will…

genniedevera 2012-09-18 06:48:38 -0500 Report

Hi! You're not alone…I was diagnosed almost 4 months ago… and yes, change in lifestyle was/is quite a challenge for me, but I'm learning especially from everyone here…you're in the right place… as far as interviewing for a new job, I am a manager and I never ask about medical conditions, not even part of our application… as that would be considered discrimination. However, if considered for the job, we do require a physical from the company clinic. I think it really depends on the position you are applying for… I think accepting being diabetic is the first step to controlling your BS and everything else will follow, such as change in lifestyle and eating healthier…it becomes easier and a part of you…I'm not saying I'm an expert now like I said its only been 4 months with me…and trust me, I've gibe through an emotional roller coaster… from anger, anxiety, vertigo, etc… I am learning a lot here…everyone is soooo kind, understanding and very quick to help when you post questions! Whether it be diabetic or non diabetic related questions…

genniedevera 2012-09-18 08:06:14 -0500 Report

As for food shopping, I started off with buying a bunch of diabetic snacks since I'm not quite familiar with portions and label readings yet. I also search for diabetic foods that are recommended… as you go along, you'll learn how your body reacts to these food… I've always been told I don't have to atop eating the foods I like, its about learning how much of it you can eat…although, my cravings for sweets have decreased… you might also want to Google your list of groceries before shopping and read the labels from there… and last but not least, exercise! It doesn't have to be an extensive one either, I get on my elliptical every morning for 20 minutes… hope this helps a little… and like I said, you're not alone…

Set apart
Set apart 2012-09-18 06:11:37 -0500 Report

Oh you are not alone, I am now 49 and was diagnosed with T1 a little over a year now! I asked why me also, and then I realized that in order to live I was going to have to learn how to take care of ME with D! This site will provide you with great insight on ow to take care of YOU! Oh and there's also a fringe benefit, you'll make new friends!

samantha.d 2012-09-18 05:44:43 -0500 Report

Im 16 and just got diagnosed … I really understand what you are going through it hit me like a tone of bricks when i got home and its still sinking in! Ever need to chat about things i am all ears!

Type1Lou 2012-09-17 10:07:42 -0500 Report

I was 27 when diagnosed Type 1 but had grown up with a diabetic Dad who was a great diabetes role model for me. Your being a chef with a passion for food makes dealing with diabetes that much more difficult for you since diabetes requires a total reorientation in our approach to foods and eating if we are to manage it properly. I wholeheartedly subscribe to a low-carb diet approach. (Reading Dr. Richard Bernstein's "Diabetes Solution" was a turning point for me.) I have developed some complications (neuropathy and retinopathy) in my 36+ years with diabetes.. By tightening my control by lowering my carb intake in the past 8 years, I have prevented the complications from getting any worse and may have actually reversed some of the neuropathy in my feet. There is hope! Learn as much as you can so you can make the right decisions in managing this beast. Lean on us when you need to…Welcome to DC!

Cowboy68 2012-09-17 16:18:19 -0500 Report

changing the way I had eaten and cooked for so long has been quite the challenge,what used to be a 30 min trip to the grocery store is now a 2 hour trip, I read everything that we buy,how many carbs,how many grams of sugar.
I miss fried foods and deserts the most ,have not had anything fried in months and have only had cake once and that was a mistake blew my numbers through the roof so want be doing that again anytime soon.It is nice to find a place where others like myself can share what they have learned and what works and what does not work.

Nick1962 2012-09-17 16:31:21 -0500 Report

I'm with you there. While I'm not a brittle, I was a professional cook for many years so nothing was off limits. Re-learning to feed myself took a lot of doing, but has paid off in the end. It may just be wishful thinking on my part, but I tend to respond better now to foods that previously spiked me bad. Maybe there is some possibility of rehabilitation.

annesmith 2012-09-17 00:51:17 -0500 Report

Hi. I too am brittle, but I still produce according to a c-peptide test 5%-10% of my own insulin. I am very fortunate. I am doing everything I can to preserve the beta cell function I have. I have had slow acting insulin, and it worked really really good on me. They say down the road I will need a pump, but not right now. My highest blood sugar was a fasting of 701, and I went into a comatose state. This happened in 2005, and I had a light heart attack afterwards. They had to shock my heart back, and I literally saw white angels above my gurney. It happened so fast, I had little time to think. I know how you feel on the brittle terminology…most people don't know what it means, and the few times I discussed it at work, my co-workers ( most of them very well meaning) did not understand exactly what brittle means. My blood sugars are extremely changeable, and it really can be a pain, no doubt. I basically over the last 2 months have zeroed in on trying to avoid keytones..once I get keytones, which I have many times over the last 8 years, I start urinating all night long, then I lose at least 24 hours of sleep, then, if I am not careful, I start shaking terribly, and I can't see straight, from all the urinating and severe loss of sleep. ANNE

Cowboy68 2012-09-17 01:58:24 -0500 Report

one of the most frustrating things is I can do everything right one day and things are great but the next day it goes all wrong and my vision has been affected to the point I can no longer drive at night.A few weeks back I had a sever spike, it shot up almost 200 points in a hour I started shaking so bad I thought I would not stop,it finely started coming down after a few hours,but like you where talking about I was unable to sleep for almost 2 days.The neuropathy has caused me to have to find a different line of work, I have been a chef/cook for for most of my life but the loss of feeling in my finger tips is a real issue because in that line of work your are using knife's and dealing with hot stoves and ovens,I burned one of my fingers pretty bad at work and did not even know it till I got home.I get so frustrated by it all that some days I just want to curl up in a ball and cry.

annesmith 2012-09-17 03:16:02 -0500 Report

Oh, I feel sorry for you. I cried real hard this morning, as, last night, I was up the entire night from constant urinating. I was wide awake the entire night, and had to be to work at 10:45am this morning. I ended up having to call work at 9:30 this morning, explained to them why I wouldn't be in. We are not supposed to ever ever miss a Sunday, period…attendance is extremely strict. If I had tried to drive after being up 24 hours, I'd have gotten into an accident. I hopefully tonight will sleep—I ended up sleeping 6 hours after I left my workplace the message. Thank God I work with 2 outstanding managers, who I also get along with really well, because otherwise basically I'd be strongly written up for it..I love my job, but to be honest, diabetes is NOT something they want to hear about, at all, period. They have gotten better about it, as half our store is diabetic now, but, seriously, a year ago, I missed 3 days in 2 months from the same exact thing, and I got the most cruel treatment —-I even went down to the hospital after leaving work that day, I won't go into details, but, the hospital said I was seriously being discriminated against because I am diabetic—-I love my workplace, I love all of my co workers, but, it's the general store policy on diabetes that is seriously seriously not good—that is why anytime we miss even ONE day, we get written up 99% of the time, which is even more stress, the write up itself, which in turn can drive the blood sugars back up—-OH, boy, the stress—-I just thank God I don't have cancer—-as stressful as diabetes is, I strongly believe cancer would be worse, because of the finality of it. ANNE

Cowboy68 2012-09-17 16:40:29 -0500 Report

My last job it became a real issue and I believe it was the cause of my hours getting cut back to almost nothing, forcing me to look for something else ,they did not have the guts to just fire me for fear of a discrimination law suit so they forced me out by not getting more than one shift a week.
Have had a hard time finding a job lately,it seems that when I inform them of my diabetes you can almost see there eyes kind of glaze over , but I feel that I have to tell'em for my own safety,I can't hide it from a potential employer, because sooner or later there will be a problem and hiding it would be considered lying about a medical condition that might prevent me from preforming my job, feels like a big catch 22,damned if I do damned if I don't,it is also frustrating .

annesmith 2012-09-18 01:27:05 -0500 Report

Yes, I know how you feel. It's not fair in my opinion. I feel all employers should never force a diabetic out. That's terrible that your last job they did that to you. No doubt, most places, if not all, will find a way to get rid of diabetics if they feel the need to, without "breaking the law", as in, they always find a way to quickly and rapidly cut the hours, and then the employee leaves. How STRESSFUL! I mean, the blood sugars then go haywire once one finds out they are basically done. Then, to have to start all over again, as a new person , somewhere else, again, very very stressful. ANNE