Later in life type 1?

By ChrissyRI Latest Reply 2012-08-08 09:42:22 -0500
Started 2012-08-05 00:41:12 -0500

I have seen on the american diabetes association's Facebook page that more and more people are being mistakenly diagnosed with type 2 when they're really type 1. This concerns me because it shows me that there still isn't enough knowledge out there in the medical community, and more research needs to be done. Thoughts?

12 replies

mama dunf
mama dunf 2012-08-08 08:23:05 -0500 Report

I was 51 years old when I was diagnosed as T1. I even had a doctor tell me that is very unusual to become a T1 at 51. We found out that I have an autoimmine disease that basically killed my pancreas. I get checked for other autio diseases at least once a year. These can include lupus, thryoid, MS and others. I currently have a pump and a sensor.That was 7 years ago. I had been treated for T2 for about 4 years before. I have a GREAT primary doctor that checks my blood for the other autio diseased at least once a year. I agree there needs to be more info in the medical community. I recently went for Diabetic Education. Both the educator and nurse told me that I know more than they do about the pump and the autio disease. That to me is really scarey!!! We also need better education about our disease, not just with the general public but with health care professionals as well.

kristwn 2012-08-07 16:59:26 -0500 Report

I was diagnosed as a type one at 26 with no link at all in my family!

ChrissyRI 2012-08-07 17:15:11 -0500 Report

Wow. See? There is so much research that still needs to be done. I wonder what the ADA does with the money they get donated and from memberships and such? This is crazy.

Set apart
Set apart 2012-08-06 17:12:48 -0500 Report

I am 49 years old and was mistakenly diagnosed with T2 inthe emergency room almost one year ago. After numerous tests I was told I had T1. I was told that this is considered Latent Autoimmune Diabetes Adults, (LADA) or Type 1.5. The Endo at the Mayo Clinic told me that sometimes when you have one autoimmune disease another may accompany it. I have hypothyroid. I was told that my body may have detected a foreign virus; therefore, attacking my pancreas. After more tests at the Mayo Clinic with specific antibodies showing definitely that I was a T1, I am now an adult living with D. I consider myself fortunate, I guess, because I had a lot of years without the shots, or the meter. I now consider myself a person with D, living life a bit differently!

ChrissyRI 2012-08-07 17:18:23 -0500 Report

First of all you don't look 49 in your pic so kudos to you for that alone :) secondly, you seem very optimistic. I try to be. Try to educate. I went to nutritionist today and am now 212 rather than 255 I was a year ago when it started. Im making progress but its a process and I do feel discouraged sometimes, but you're right, we just live a little differently. Thanks for that outlook!

ChrissyRI 2012-08-05 00:43:22 -0500 Report

also, type 1 is no longer the leading type for children. My little one was just tested and I was told more and more kids are diagnosed with 2 now than ever before. Just what is in our food supply…

dietcherry 2012-08-05 12:15:52 -0500 Report

I shared the same thing here recently that there are now more childhood cases of T2 than there are of T1; among other things our Franken-food supply is causing metabolic syndrome at warp speed——-scary !!!

red flower lady
red flower lady 2012-08-05 13:21:07 -0500 Report

You are so right, I sometimes wish we could go back to the 70's when microwaves were not the norm to have in the home and fastfood places were not as abundent and we didn't have as much junk food in the store, no super sizing, etc. Most people were not huge like they are today. We didn't have all the technology then, so we had to actually work to get things done. Just goes to show how good things don't always have good results.

ChrissyRI 2012-08-05 12:44:53 -0500 Report

The diabetic link to me in my family is far from me. I think a 2nd and 3rd cousin and a great aunt. Sure I am overweight. I am not grotesquely obese though, and there are immediate family members MUCH heavier than I that have no issues whatsoever. In fact, im the only one. I do not think this is coincidental.

dietcherry 2012-08-05 13:03:28 -0500 Report

Yes I think we can all agree that the gene is triggered by other influences, both internal and external, than just dietary choices. T1 is a disease of the immune system and it is believed T2 has numerous causative factors.

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