Where are you at in your journey?

Jeanette Terry
By Jeanette TerryPA Latest Reply 2012-09-16 13:25:37 -0500
Started 2012-08-02 10:08:22 -0500

Living with diabetes can be a journey. We are all at different places in our journey and needing different things to help us make our way through it. Some may have just been diagnosed, others may have been living with diabetes for years and are comfortable with where they are at. And yet others may be stuck in the middle somewhere still trying to figure out what works for them.

Where are you at in your journey?


61 replies

Ernest S
Ernest S 2012-09-01 11:51:39 -0500 Report

I was diagnosed with Type II when I was about 45 years old, when I went into diabetic shock with my glucose level at 1068!! This was a life changing moment for me.

The first thing I did was go on an immediate diet besides being prescribed medication for my disease. I lost 47 lbs is a very short period of time, not exaggerating the time frame of 3-4 months; and I began to feel much better although the life style change was difficult!

Well that was almost 9 years ago. I stayed on the medication for about 2 years and then made the decision I could control it better with diet and exercise.
About 10 days ago, my doctor said my labs have consistently been great and I show no signs of being diabetic anymore, I look fit, and he took the diagnosis off of my chart. That is a fantastic feeling.

Although he took the diagnosis off my chart, I still have to live my life with a certain amount of caution. Living in Texas makes it difficult because of the way people eat down here. I have been here for 10 years now, but still not used to the food fare here, being from the west coast….I miss real seafood from the Pacific Ocean.
Recently my weight has begun to creep up over the years 5 lbs here, 5 lbs there, and it gets more difficult to control my weight the older I get.

I want to pass on something that I believe will help. I found an app on my phone called LOOSE IT; and it is fantastic. I have lose 14 lbs in the last month, and have only 10 lbs to go before hitting my goal weight of 185 lbs, which is significantly less than I weighed in high school.

The app is one where you set your weight loss goals, your height, and weight and so on. I know how difficult it is to write down everything you put in your mouth, but this app makes it easy since we all have our phones with us at all times. It even has foods in there from various restaurants, and you can also scan the bar codes of food and it automatically enters it in for you. It calculates you daily budget caloric intake, and can also monitor carbs, proteins etc. You also input your exercise etc, and it provides you calories you have available for the day.

I highly recommend this application as a supplement to what everyone is doing, I helps me tremendously.

Just remember that DIABETES WILL CHANGE YOUR LIFE BUT IT DOESN’T HAVE TO RUIN IT!

lewiston262
lewiston262 2012-09-01 11:43:01 -0500 Report

I was diagnosed in 1952. I could sure tell some stories!(don't worry, I'll keep this brief)
I was nine years of age when diagnosed and it was far more difficult in those days. Older folks either believed I would not live long (i LEARNED TO DISPISE SYMPATHY) or that because of insulin, diabetes was cured. The wide belief that insulin was a cure almost stopped research for a cure for 20 years.
Although I always took my shot in the early days (1), I did not follow a diet procedure much. I was lucky to stay very healthy.
Teen years were filled with beer drinking partys and pizza. Very lucky!
It was not until some time after getting married (now 45 years) that I began to work seriously on glucose levels. This was immediately followed by hypoglycemic events to frequent to remember. My wife learned how to inject me with Glucagon shots when necessary and I'd be long dead without her.
I finally found an Ins. Co. about three years ago that would cover CGM's. I have not had even one severely low sugar since the day I started with the CGM.
I believe this is the best diabetic helper since retail insulin.
God bless all my diabetic brothers and sisters.

Jccandals
Jccandals 2012-08-13 02:01:32 -0500 Report

labs look great lately, been picking up more on the exercise, feel better, the area of improvement would be getting more sleep, working nights is difficult when you are a diabetic. I now exercise at night while I work. I would say I am doing well though.

jsimms435
jsimms435 2012-08-08 08:56:24 -0500 Report

I've been Type 2 diabetic for 12 years. I take insulin and pills. I try to manage my diabetes with exercise, mainly running 3-4 times a week and some strength training.

DeanaG
DeanaG 2012-08-08 00:47:01 -0500 Report

1 year 2 weeks into my journey!!
My blood glucose was hitting close to 500 regularly and now is averaging 112.
I have completely changed my lifestyle. I used to eat 1 meal a day, dinner and got no exercise.
Now I am eating 3 small meals a day and exercising over 300 minutes a week.
I have lost over 25 pounds since being diagnosed and want to lose about another 25 pounds. It is slowly coming off. ;-)
I am pretty happy where I am right now. ;-)

MAYS
MAYS 2012-08-08 00:01:01 -0500 Report

Short of where I know that I can be!
But never giving up, staying focused and moving forward!

tabby9146
tabby9146 2012-08-06 09:37:18 -0500 Report

It will be 4 years in a few months, since my diagnosis. got on Metformin for a few months, then was able to get off, after losing all the weight. it was caught early, (I know that doesn't mean I won't have problems later) so I am thankful every day for that. I got back to exercising and I try to do it daily, for a minimum of half hour. Some days when I have time, I might do 30 mins., of one type, and later in the day 30 min. of another kind of exercise. I do eat too much processed food, can't find enough of the opposite most of the time, but I do have fresh fruit and veggies everyday too.I eat whole what pasta when I have it, much smaller portions of the bad things, all moderation except for the veggies. hard to stay on track sometimes with the eating, but have kept the weight off .

lacat87
lacat87 2012-08-04 13:28:11 -0500 Report

Right now I'm pretty happy with my numbers. NP changed my ratio from 1:12 to 1:15 at lunch time. And so far so good. Wish I could change ratio to 1:15 for all meals, but will settle for one little victory! My A!C at last visit (July) was 6.1. Still working on gaining, yes people some of us are under weight, but continue to struggle. Oh yeah, starting taking Chantix to quit smoking. Need all the support from my friends here that I can get!! Send the love to me, ha ha.

lewiston262
lewiston262 2012-09-12 11:11:28 -0500 Report

Years ago I came up with my own (?) system to quit smoking. It is so simple and I suffered no withdrawl symptoms.
Here it is: Begin simply by writing down the number of cigs you smoked on a your start day. Then subtract one each following day until your number is zero.
Very important to actually write the number every day. This will keep you focused. It worked for me and two of my friends who also badly wanted to quit (important).
Almost immediately after my last cig I noticed having much more stamina. The reason for this is again quite simple. You will have more room for oxygen in your lungs.
Jim

lacat87
lacat87 2012-09-16 13:07:42 -0500 Report

thanks lewiston! sounds like a good idea. many times i forget how many cigs i've had in just a short period of time.

lewiston262
lewiston262 2012-09-16 13:17:33 -0500 Report

Give it a shot. Once I decided to try this method I didn't begin the next day. I chose a day about five days later. Thought about it each of these days while counting down. This was helpful, too.
I look forward to hearing of your success.
Jim

jigsaw
jigsaw 2012-08-04 14:41:18 -0500 Report

WOW!!! 6.1, sounds like your acing it ! Your obviously doing better than you think.
Now as far as the smoking is concerned, you have to quit so that when I encourage you to keep your bg under control, you'll be around to hear me. I hate talking to myself!!! (-;

lacat87
lacat87 2012-08-05 12:03:42 -0500 Report

and besides if you talk to yourself, we can't hear you and your words of wisdom and other funny stuff!! look forward to hearing from you, al! will only accept encouragement in the caring form from you!! ha ha jk! don't forget you can also call to find out how i'm doing. last week to smoke so maybe wait a week or so. thanks again, al!

lacat87
lacat87 2012-08-04 13:29:29 -0500 Report

Will also accept any calls, texts, messages on fb. if you wish to do that als. Give me a message if you want my number, email, etc. I'm looking for an occas. encouragement/support.

Brighè
Brighè 2012-08-04 12:33:55 -0500 Report

In the past 2 yrs since I was diagnosed (although they say I have been diabetic for over 36 yrs) I have yet to be able to get control, my maps are mot working and my compass seems broken. I am a medical professional and can't get this right. We are all different with the way our body deals with physiological stress and disease. But what is nice, something someone may have experienced just might be the answer or path someone else needs to take. Thanks to the group.

herigoagain1
herigoagain1 2012-08-04 12:10:30 -0500 Report

I'm under the newly diagnosed. I have a family history but only aunts, uncles, and cousins. None of my siblings or parents were diabetic. It is taking me forever to get in line with this. I guess becuase I have had such a rough time with my health in other areas. It seems like I am at a different doctor every time I turn around.

mystikfairy61
mystikfairy61 2012-08-11 15:12:11 -0500 Report

I am newly diagnosed as well, April 2012, along with my husband who found out the same day. 4 generations of family history, including dad T1, mom, maternal grandmother, both siblings T2. Am working daily toward the goal of keeping BS in line with where they need to be. herigoagain, I sympathize with other problems and deal with those daily as well, stay strong and know there are those of us that share that with you.

MoeGig
MoeGig 2012-08-03 17:00:58 -0500 Report

I know many people on this site struggle…it can be tough. After almost 50 years of T1, I am in "cruise control". You have to adopt "Fear of failure" as your motivator because if you do fail and complications set in, then you really have a miserable, expensive, depressing project on your hands…which will not be fun. Low carb-it, measure often and exercise…A1c in the 6"—no higher or lower. Follow this and if you're over weight, you'll lose it over time. (Hit 199 recently from 240 a couple years ago). As the Nike ad says: Just do it!

TsalagiLenape
TsalagiLenape 2012-08-03 13:33:23 -0500 Report

Right now I am sick sickest I have ever been since being diagnosed with Diabetes. So right now just resting and healing. Hugs

KG66
KG66 2012-08-03 10:16:30 -0500 Report

I'm 18 and was diagnosed almost a year ago! I had lost 80 pounds before I finally got tested for diabetes, I actually looked like I was dying. My mom bought a glucometer and it read 33.0 (I'm from Canada) No wondering I looked and felt so awful! My number was so high when I went to the hospital that it didn't even read on the A1C test. I felt like my life was over but luckily my mom, dad, brother, his girlfriend and my best friend were there for me the whole time I was getting used to it. When I left the hospital my number was about 13.0, still high but a lot better! After about 9 months of getting my numbers down I finally got an insulin pump and I love it! I still have my days that I just feel lousy and don't want to have diabetes but I'm feeling so much better. I have my high days and I have my low days. Even with all the stress I have in my life right now I know I can't blame it all on diabetes and even though sometimes I want to cheat and not worry about testing and taking insulin I have so many people making sure I take care of myself! I'm am so thankful for them and thankful for the life I have! Even if I have diabetes!

lacat87
lacat87 2012-08-04 13:19:35 -0500 Report

How does your reading for American bg numbers relate to your Canadian number of 33.0?

KG66
KG66 2012-08-04 17:50:13 -0500 Report

I believe if in Canada my bg is 33.0 then in the states it would be 594… not 100% sure but I read online that you take your number (33.0) and multiply it by 18 :P OR if you're from the states divide your number by 18 :P

Young1s
Young1s 2012-08-03 08:43:37 -0500 Report

This is a question I asked myself after my last doc visit…honestly I'd say I'm in the all three catergory.

Feel like I'm at the beginning because circumstances in my life lately have thrown me off my game. I gues you could say I'm in a phase of don't know, don't care. Forgive me for that. Not trying to deminish the importance of being vigilant but my mind is elsewhere right now.

I'm also hyper aware of this ever existing annoyance. Aware that every bit of food I put in my mouth and what it may do to me. Aware of the last time I bothered to test (a while). Aware that this has got to be the lasiest summer I've had in ages (even since pre-diagnosis). Aware that being mad quite frankly and stewing over the fact that my numbers, weight, A1c, etc, aren't changing much and my doing nothing about it…isn't helping.

But despite all that, I know that this is just another phase that I must power through. Life is sucking for me right now, inside out and upside down, but what doesn't kill me makes me stronger. I've always beleived that and will continue to do so til I die. So screw it…I'm doing me right now but will get back on track eventually. No worries guys!

jigsaw
jigsaw 2012-08-05 17:37:07 -0500 Report

Sorry, you can hate me, kick me, call me a pain, but there is one part of this that I simply can't accept. I can't accept you hurting yourself!!! Sure, I understand, and life can turn the odds against us, but stand up and kick some butt !!! Don't fall down and cry, at least not for to long. After all, your intelligent, your tough, even though your sweet, and your beautiful !!! Anything else you need to know as a motivator to get out of a funk! You know it, and I know it, so DO IT !!! That's all I have to say! (-:

wilma flintstone
wilma flintstone 2012-08-05 07:06:59 -0500 Report

Hello Young1s

I can completely understand the "don't care" feeling all to well. But, ya know other people care about you and me, that keeps me going. I have been a type 2 diabetic for almost two years. Apparently I have been for some time per my doctor. It took a heart attack 2 years ago and a recently installed defibrilator to actually prove I was diabetic. This has been an expensive disease. Not just monetarily but with the loss of some freinds. Sinse I can't do what I used to be able to do I have been left behind.That has been the hardest issue for me to handle. And some I had in my life for many years. Believe me at times I felt as though I was finished. My wife of 34 years keeps me moving forward.

Despite all that I was able to get off insulin. My A1C is in the mid 6 range and have been keeping it under control. I am a 52 year old male, and my life is not over by any means. I still want to own my own business and have a happy life. It has not been easy for us or for any one with diabetes. Lot's of people (who don't have it) just don't understand how it really changes a life. Sometimes it takes a life changing experience to really begin to figure out what it is all about. I have turned things around and still continue to do so. After all, I am still walking on this planet.

Good Luck to you

Nick1962
Nick1962 2012-08-05 16:12:32 -0500 Report

Many congratulations on your hard work! Even more on the great attitude. I'm about your age and have been dealing with it 5 years now. Although I didn't have the trauma to wake me up, it was only a matter of months before I did.
I can't say that I've lost anyone in my social circle either because of it, but there is a great strain on my relationship with one good T2 friend because he just isn't making any effort at all.
High five to you buddy, life sure is what you chose to make of it, no matter what part of the journey you're on.

lacat87
lacat87 2012-08-04 13:22:09 -0500 Report

Aww sweetie…you're one of the most positive with a fantastic attitude people I've met here. I'm glad you recognize that your life right now is not going your way and that you know this too will pass. Praying for brighter days for you!

Lizardfan
Lizardfan 2012-08-03 08:42:24 -0500 Report

Well…after the wonderful experience of diabetes progression again and a treatment change once more in February I have made wonderful progress! My sugars are wonderful, my A1C was 5.4 and life is good but ever watchful and very mindful of my blessings of good health again!

Set apart
Set apart 2012-08-03 05:51:48 -0500 Report

Going to be a year now in August 17th. So much has happened this last year. I've worked hard at taking care of myself! It's been a journey of learning and coping with living life differently. I've had a lot of support to include this wonderful site. These last few weeks I've really reflected on my life and what living with D has done for me! I am in the beginning of writing a reflection of my life and my new beginning with D!

Lelebell82
Lelebell82 2012-08-03 00:57:55 -0500 Report

I was diagnosed a few months ago. Im taking 500mg a day if Metformin along with some vitamins. I just joined a gym…I need some exercise in my life. I need to work on my carb intake and get rid of diet drinks…one step at a time. I cry still here and there but I try to stay positive. Thank you all for the support on here. It helps :)

techguy87114
techguy87114 2012-08-04 11:29:29 -0500 Report

As I said before..when you first joined here.. stay positive.. attitude is everything.. one step at a time. no one ( I hope you feel the same) expects you to make all the changes you need to make to be healthy overnight.. its a work in progress! You will get there.

roshy
roshy 2012-08-02 23:06:40 -0500 Report

nice post, as i was reading it i realised i begun my journey 8 years ago and i feel like im only starting it now.
i was dx when i was 16 and taking care of something as demanding as type one diabetes was not the first thing on my priority list. after a number of wake up calls such as collapes or dka's i felt like i have no choice but take control and make things easier so i guess i stopped denying it and tried hard just to accept and adapt it into my life ( not like it was going anywhere else)

So i guess things are very different now. I turned over to a pump and i never had an a1c as good as i do now. I know my journey isnt over as im only 24 and life still has a lot to offer but i hope i can walk with it instead of against it.

CJ55
CJ55 2012-08-03 02:14:10 -0500 Report

Congrats femaletrucker, that is awesome!! Keep doing what your doing because it is obviously working for you. Any advice you can spare on loosing weight? I cannot really exercise due to several problems and most days I can barely walk. I am in a wheelchair more than I want to be. I am T2 and still have a hard time with food intake of carbs & sugar. Not much sugar, that is easy to give up, it is the carbs and portions. I never think to measure my food. I look and say, that is ok. I have only been eating 2 xs a day with 1 snack in the evening. Usually a fruit. Some days I may only eat 1 time a day with a fruit in the evening. I have pretty much given up rice & pasta (I may have it once a month). As for breads I will have an occasional bagel, or a whole wheat/grain bread or a wheat wrap. My Dr. Said I wasn't eating enough and my body is holding onto most everything I eat. I Still gain weight and my BS are so so. If I go below 90 I get all the bad effects of low BS. For others, that is great. If I stay between 100 & 150 I feel ok. Now for most people that is high. Thanks for listening. Have a blessed friday. Hugs. CJ

Big Daddy Bowler
Big Daddy Bowler 2012-08-02 21:38:33 -0500 Report

I just found out in June that I was type 2 diabetic during my pre-op appointment for back surgery. The hospital and surgeon would not perform the surgery with my glucose levels being over 260. I thought to myself, really? Diabetes? But my family has no diabetic history…no one. My doctor started me off on Metformin, but realized it would take too long to get my levels in control, and I needed to have my surgery. So, my doctor put me on Levimer and Novolog, and within no time, my glucose levels were staying between 85 and 110. I had my surgery on July 20, and my recovery is going great. I miss my large meals, and some of the junk food, but I've lost 28 pounds (was 236) and I feel great. My diet is so much different now, and my wife is a wonderful at helping me with my meal plan.

Here's to staying healthy, as we make the journey!

femaletrucker
femaletrucker 2012-08-02 20:15:23 -0500 Report

Lost 24 lbs, walk 5 to 6 miles every other day…manage my food intake. Lowered my blood sugar without meds. Still feeling great!! Thank God!!

flipmom
flipmom 2012-08-02 19:47:49 -0500 Report

one step forward and two steps back! its frustrating sometimes but still need to focus ahead!

Graylin Bee
Graylin Bee 2012-08-02 19:37:51 -0500 Report

I want ruby slippers that will take me back to before this journey began and …

jayabee52
jayabee52 2012-08-02 20:01:19 -0500 Report

there's no place like home! there's no place like home! there's no place like home! there's no place like home! there's no place like home!

Gabby
GabbyPA 2012-08-02 18:51:54 -0500 Report

My journey started off great with good maps and a compass. Of late, I feel a bit lost in the woods. I can see the meadow through the trees, but have not gotten back into the light yet.

KEC1257
KEC1257 2012-08-02 18:08:37 -0500 Report

I'm still trying to figure it out! Losing weight & had my 1st follow up with my dr. last week. A1C is down & BP is down & he is pleased but says I must do better. Still struggling with giving up foods that I love & figuring out how to fit exercise into my day. But it's a journey, right? I will prevail over my diabetes and every step forward, every pound lost, every donut refused is a victory.

JSJB
JSJB 2012-08-02 17:34:37 -0500 Report

Just starting the journey but doing ok with this condition. I enjoy every day and when tomorrow comes I will enjoy that day. Life is too short to worry about it especially at my age.

old biker
old biker 2012-08-02 15:44:11 -0500 Report

Right now I am very comfortable with my life..I learned a long time ago if I worry about what might happen tomorrow there is no way I can enjoy whats happening today :-)

forsakes alive
forsakes alive 2012-08-02 13:53:25 -0500 Report

I havent ever thought about your question, I have to say that no matter what happens do to the fact of having diabetes,it is what it is… I always thought of myself as being a healthy individual,yet when the 35 year mark came , I started to have complications. during my 38 yr.mark,I felt something was going to happen,just didnt know what until 1 day it did,though the happening was almost 8 months after the notion. it is said that knowledge is power, (not very true,if you ask me). I have to say the Gut Feeling is always the best knowledge to follow,regarding intuition and know how to overcome the obstacle(s) of healths and lifes concern. Thats all I have to say about that. Stay focused.

Just Joyce
Just Joyce 2012-08-02 13:17:22 -0500 Report

At this junction in my journey, I have preferred to not focus on being diabetic. Testing, meds, eating healthy and exercise are just routine. Instead I focus on other things I could be doing or things I need to do.

I do not have time to be angry, depressed or feeling sorry for myself. That is a waste of good energy and causes stress. I don't concern myself with being liked or loved, I simply don't care. I do not worry about spikes or lows, I roll with it and keep going.

If I spend nearly every waking hour focused on being a diabetic and what I should or should not be doing, I am missing out on other things. There is a big world outside my door and I intend to be a part of it. I am not sitting in my house saying I can't do this or that because I am diabetic or complaining about every little ache or pain. I actually get out and do something. You can sit on the porch with the puppies or run with the big dogs. I run with the big dogs.

Nick1962
Nick1962 2012-08-02 11:19:44 -0500 Report

Ooohh good one there Jeanette. I guess I’ll jump in first.
I’d say I’m at the point where I’m happy, I’m angry, and I’m a little scared all at the same time.
Happy about what I’ve been able to accomplish – getting my weight way down, getting good control of my condition, and seeing very positive results from my work. Happy that my turn-around has allowed me to live a better life, one that I never thought I’d be entitled to at this point really. Angry at myself for letting things get that bad in the first place, and a little scared right now wondering if I hit the brakes in time. I’m at that age where I’m going to start paying for the sins of my youth. Is that tingling in my fingers the start of something I could have prevented? Am I going to get another 30 years out of my pancreas? Seems like every little thing now has me a little paranoid.

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