This is the biggest challange I have ever faced...

By mznesha06 Latest Reply 2012-08-03 00:50:01 -0500
Started 2012-07-30 14:26:34 -0500

Hey yall, I have never been to a site like this I found this trough a social network. I am 24 I have had diabetes since I was 18 and had to come home from collage because I was sick and didn't know why, sleeping all day drinking gallons of water at a time, losing weight like it came in style by doing NOTHING, my parents both have diabetes but it is under control, my mom caught on 6 months later that maybe I may have it, she tested my sugars the monitor wouldnt even read it, she brought me to the er and my blood test confirmed my sugars were in the 800's. I was hospitalized for a week and sent home with pills and that was it, to end up back in the er 6 months later to find out I should have been on insalin. I have been discouraged, in denial and not taking care of myself at all. I dont really care how my parents feel about it, I know its important to tend to but it is still a shock to me and still effects me that I even have it. I try to keep up with it but when I do take my meds and check my sugars the numbers are discouraging and I then feel like no matter what I do I am never going to have my sugars right. So now at 24, my sugars are not under control, ive been in the er 2 times this month and wasnt treated the way I believe I should have been so I said the hell with them I will continue to treat myself. I was refered to a primaary care doctor that is supposed to be great with diabetes. We will see, i have lost hope for the doctors offices since I left home in RI where I actually felt they cared about me. I believe I am also suffering from depression and anxiety but being "superwomen" I refuse to come to grips with it. I just deal with it and hope it just goes away. I am currently stuck in the 400's with my sugars even after ive been taking my meds all week and eating decent foods. I now get numbness in my legs and arms, frequent yeast infections, moody, migraines, my vision goes in and out and just overall not feeling good at all I cant even go to work like this, I tried to keep it from management but my symptoms had effected me so bad I ended up having to tell them and no I am out on FMLA. I am sseeking help yet again and pray for better results. I feel comfortable now talking about it because I recently met a girl my same age and we are the exact same type down to the symtoms, our feelings, emotions, everything so I figured, we cant be the only 2 young women going through this, so I would love to meet people that are in similar situations and or even can help and give feedback.

9 replies

Lelebell82 2012-08-03 00:50:01 -0500 Report

Im sorry you are feeking this way :( I think its just scary in general and anxiety just comes along with it but I do believe you can get better. Pray and surround yourself with positive people. The best you can do is educate yourself and find a doctor that is good for you. Good luck. Dont give up :)

Set apart
Set apart 2012-08-01 06:11:26 -0500 Report

Hello, and welcome to DC! I am 49 years old and was diagnosed with T1 - D almost a year ago. Like you I was in denial initially, but I've always been proactive towards my health so I decided I wanted to continue to live life to the fullest. The way I've done this is through a very strict diet, a lot of individuals here helped with that! I decided I didn't need 45 g of carbs per meal as recommended bt D educator! I have read and learned about what I could face if I didn't take care of this, so along with my diet, I exercise 5 days a week, which I did before this anyway, i find time for me! I love to read, sew, etc. I try to sleep at least 7 hours a night, can't always since D has changed thAt for me. Most of all when I feel discouraged I get on DC, and read and learn, along with trying to support others. DC has helped me so much it has been my go to support group! You are not alone, take one step at a time and take control of your D! I say YOUR D because it is yours, the outcome of D is what we do for ourselves! Good luck!

Harlen 2012-07-31 20:15:02 -0500 Report

Hello and welcome
Yep it is a hard thing to work with but can be done
We are here for you .
Best wishes

GabbyPA 2012-07-31 13:24:03 -0500 Report

I really hope that you find the support and encouragement here to help you through that bump in the road. Lots of us, me included, go through times where we just can't seem to get a grip on our lives even when we think we are doing the right things.

One thing that helps me a lot is keeping a journal. When I see in writing what is actually going in my mouth and how much I am (or am not) exercising, it gives me a place to start to make some new goals.

Your new friend can also be a huge help as you both find ways that work to get you back on top of things. Having a walking buddy or an extra pair of eyes keeping track of things really does help. You can be an inspiration to her as she can be for you as well.

kylaburton 2012-07-31 04:12:05 -0500 Report

Hi Mznesha, when I was first diagnosed with diabetes, I am really shocked because I was still to young to have one. It is a total adjustment and I never thought that it will be a big lifestyle change for me. It is hard but I know I can stand and fight it all the way.

Just Joyce
Just Joyce 2012-07-30 19:07:33 -0500 Report

Hi Mz, Welcome to DC. You will find people here are willing to help and have tons of information and are supportive. In reading your post about being in denial. I think all of us were at some point. Denial for me lasted 24 hours before I dove in head first.

I know that if I don't control my diabetes, I could lose limbs, have problems with my organs, lose my sight and eventually die from not controlling it. Was it easy for me at first? No. Did I have an immediate support system? Yes from the day I was diagnosed. Two of my coworkers were diagnosed the same day through a health screening. We supported each other. I have friends with diabetes who helped me a lot.

I bought books about diabetes, books on meal planning and subscribe to Diabetic Living Magazine. I went to a diabetic health fair and got tons of free information, talked to pharmacists about medications and a nutritionist.

You have to control your diabetes, not your parents, your friends or your family members. You can not care about your parents feelings, but you should be grateful to your mother for the rest of your life and hers for catching on when she did. Uncontrolled diabetes will kill you.

You are 24 years old with your entire life ahead of you. You can finish college, get a job, travel and do all that you want to do as long as you control your disease.

You met 2 people with the same problem as yours. The 3 of you can support each other, do buddy testing, walk together, share the joys of new lower numbers, cry on each others shoulders when you have a spike and share meal plans and many other things. You can also discuss what is working and what isn't working. My mantra is I control my diabetes, it does not control me. Enjoy life and get in control. You can do it, I know you can.

forsakes alive
forsakes alive 2012-07-30 17:42:02 -0500 Report

from reading your post, I feel like you've actually had the diabetes for a little while,though you didnt recognize the symptoms ,until your parents had actually tested your BS. having the diabetes just isnt about taking meds,you have to stay active to keep under better control. It certainly will take some getting used to,when it does you'll be doing whats necessary like its 2nd nature for you. You actually have had the know how to care for diabetes through watching your parents take care of themselves. As you have already done the reaching out to others,head some of the advice given,just remember though we here have the diabetes,not all will suffice for your control of it. Stay focused.

MyMamakat 2012-07-30 15:20:40 -0500 Report

My Dear Nesha,please don't give up hope.I was relieved to read that you have found a friend that shares your symptoms down to the headaches.It will help you both to have a 'Buddy' to talk to when you are not feeling that great about yourself or how well you are addressing the diabetes.
I am 60 and was diagnosed at age 40 with type two.I had been sure that I had it for years but was in denial for TO LONG.It took me hitting the ground last summer and waking up in the hospital two weeks later.I still have total amnesia about what happened that made me hit the ground.From the few things I did learn,I think I may have attempted suicide for the third time.Well,it shows to go ya,the third time is not always THE CHARM.I was so hostile to the hospital staff that now I am ashamed of myself.This morning I wrote a very long letter to the doctors and staff that took care of me at Oregon Health Sciences Univercity Hospital in Portland ,Oregon .I was in a deep coma when I was life flighted to them from a tiny hospital in Washington state.I was not expected to live.SCARY!!!!!!!!!!!!!!! All because I did not care enough to take better care of my diabetes.
I have lost nearly 200 lbs in the last 10yrs and that has helped my symptoms a lot.My A1c is around 7 which is pretty good compared to where it has been in my past.
I also have the added challange of having HepC from a blood transfusion at age 29 when I lost a baby.I am in excellant health now ,even with these two problems.I would like to go on the Interferon+ treatments to clear my body of the virus,but I may be too old in the minds of the specialists to be a candidate.No one believes me that I am 60.I do not look it,feel it,or even act like it.Now and then all my memories start dropping by to remind me,but I tell them TO GET SOMEWHERE!!!For the first time in my life I AM HAPPY.WOW ,it feels so good to say that.I have fought depression my whole life.Guess what,TODAY I WON!!I will never feel worthless again, I am an exceptional person.SO ARE YOU!!!You took your first baby step towards conquering your disease.KEEP UP THE GOOD WORK.YOU DESERVE IT.YOU GO ,BABY GURL.
if you would like to keep in touch with me outside of DC my email address is: small.

Nick1962 2012-07-30 15:07:16 -0500 Report

Welcome to the family mznesha. Sorry you qualify for our little party but glad you came! You’re going to get a lot of responses and advice, but I can tell you for sure it can and will get better. The trick is to decide for yourself “today I’m going to make a plan and stick to it”.

Getting control (even for T1) usually means getting a good handle on how and when you eat, and getting into a routine with food and your medications. You have to take the control that your body can’t anymore.

Your sentence “I am currently stuck in the 400's with my sugars even after I’ve been taking my meds all week and eating decent foods.” tells me you don’t have that discipline yet. One week alone is not going to change those numbers significantly, so I can see how someone would get depressed and give up.

It’s going to take some serious work on your part – almost a second job – but you can do it. I think by coming here you’ve shown you’re ready to take that step!

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