Diabetic Retinopathy

By norcal4 Latest Reply 2012-08-28 02:10:59 -0500
Started 2012-07-20 18:51:20 -0500

Hey everyone. I just joined this site because I'd really like to talk to other people experiencing the same thing as me. My friends and family are supportive but none of them are diabetic and can truly understand.

I'm 25 years old and have been Type 1 Diabetic for 18 years. I never had any complications due to my diabetes until December 23, 2010. I was driving home from work and noticed the road looked different. When I closed my left eye, I couldn't see anything but a bloody/filmy swirl. I went to the emergency room and was told I had a vitreous hemorrhage aka "a bleed". This persisted for 6 months not being able to see anything out of my right eye. I couldn't drive myself most places anymore because it was dangerous. Reading, which I love to do, became a frustration because it took me so long. I had countless doctor appointments. After 6 months the bleed finally cleared and I had my old vision back for 3 months until more bleeds occurred. None have been as bad as the first, but they block my vision considerably. I've had laser and injections (last Jan 2012) and last I saw my doctor he said my aggressive blood vessels look much calmer and the pulling on the retina has subsided but I'm still having these bleeds and I don't know if it will ever stop or if I will ever regain my old vision.
I'm currently getting my master's degree in criminal justice. My whole life I've wanted to be a field agent for some kind of law enforcement agency because I like to talk to people and I can't stand being at a desk all day. However, going into the field requires driving which is a major impairment of mine. I am scared my dreams will never be achieved now that my bleeds seem to be continuous.

If anyone else has experienced this or know of someone going through this, I'd really like to talk. I could use the support and maybe some answers. Thanks for reading.

9 replies

nikeone 2012-08-28 02:10:59 -0500 Report

Hi there, this must be a unsettling time, but please remain focused and hopeful of a solution. I believe the best way to solve this problem is to deal with the situation from its prime source - the diabetes. Have a look on here, do some independent research, contact them and speak to them, they MAY be able to help in the long run to prevent further bleeds. They have a track record of helping others with diabetes:


forsakes alive
forsakes alive 2012-07-27 12:52:01 -0500 Report

Actually having the laser treatment is good for this,Ive had a few over 15 year period. It does help.yet doesnt stop other vessels from leaking blood. When it 1st started, i would actually swat the air thinking small flies were near.

Setzer 2012-07-21 17:55:21 -0500 Report

I know where you're coming from. had my first bleed in March of last year, had laser treatment. It drained and I was good until December. Bled again, and then again in february and then again just a few days ago. Didn't have insurance to pay for another laser treatment so I just let them drain on thier own and hope for the best. This most recent one I am going to get fixed but I couldn't get an appointment until 8/16 so I've still got just under a month left that I am stuck living with it. All of these have been in my left eye.

blakeashton 2012-07-21 16:23:10 -0500 Report

Bleeding in the eye can happen along with a black eye or other injury to the eye, like cuts to the cornea.

If you see blood pooling in the white part of your eye, this might indicate a subconjunctival hemorrhage, also called red eye, which is a broken blood vessel. This small hemorrhage can occur after an injury or be caused by the sudden pressure created by violent sneezing or coughing. People with high blood pressure or who take blood thinners may be more prone to subconjunctival hemorrhages. Subconjunctival hemorrhages are common, almost always harmless, and usually goes away on their own in about 7 days.

Blood that pools in front part of the eye, including the pupil or the iris - the coloured portion of the eye - is called hyphema. Hyphema most commonly forms after trauma, but can also be indicative of a blood vessel abnormality, eye infections caused by herpes virus, inflammation of the iris, or possibly cancer in the eye. I hope this will help

norcal4 2012-07-21 12:13:49 -0500 Report

Thanks guys I appreciate the responses. My big bleed did clear but it took 6 months so hopefully yours will eventually too. The hardest part is I'm the waiting I guess.

Graylin Bee
Graylin Bee 2012-07-21 08:14:20 -0500 Report

Sorry you are having to go through this. I have only had one major vitreous hemorage. My father had many.
Mine was because I had an eye pressure test the old fashioned way, they blew air into my eyes. One eye bruised inside and I saw yellow through it instead of white and all the colors were off for a week or so. Then suddenly flashing light in my left eye followed by a bleed that obstructed most of my field of vision in that eye. No hole ever completely occured so no lasar repair. My eye doc says my brain has learned to see around the blot. It is still there and still big. My biggest gripe about the darn thing is I can see double with only the left eye open. Since I saw double often enough when using both eyes before it makes reading and typing difficult at times.
Since my Dad had such a history of holes I am jumpy about it happening again.

samiks82 2012-07-21 10:27:12 -0500 Report

I also have had a hemmorige but in the back of my left eye. It has sent me to the operating room 6 times and injections once a month. I cant have lazer any more. My eye kept re bleeding but it has recently stoped or slowed down. Ive also had my lense replaced and i have oil in my eye to keep it stable so my retna wont detach. I hope they can remove the oil soon. Im anxious to find out if i have any vision.

dietcherry 2012-07-20 23:58:25 -0500 Report

Ive been T1 for 32 years; I havent had any eye problems thus far (knock on wood!) so I cant be of help to you—sorry! There will be more members around tomorrow, Friday nights are usually pretty slow here, and Im sure youll get some responses!! ttyl

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