"Am I Cured of Diabetes?"

jayabee52
By jayabee52 Latest Reply 2012-07-23 16:57:18 -0500
Started 2012-07-18 16:12:02 -0500

From Diabetes Daily newsletter: By Kate Cornell

http://www.diabetesdaily.com/voices/2012/07/a...

I am very vocal here on DC about this subject when someone comes on DC claiming "cure". I agree with Kate's assessment and her irritation when someone claims their book or product will cure Type 2.

What do you think?


46 replies

Nonna2Three
Nonna2Three 2012-07-23 16:57:18 -0500 Report

Just saw my doctor for my 6 mo. follow up today. I have had A1c in the non-diabetic range and have been off all diabetes meds for over a year now. And, even with my numbers being as well controlled as they are one of the things my doctor said today was ". . . and considering that you are a Diabetic . . ." So yeah, even with 4 A1c in a row over the last 18 months my doctor takes Diabetes into consideration for anything he treats me for or instructs me on.

And I realize that as time passes the Diabetes will not be as easy for me to control as it is at this time. I also realize that if I go back to eating like I did before my diagnosis that my BG and A1C will both shoot right on up there.

No cure, just control.

CJ55
CJ55 2012-07-19 22:32:13 -0500 Report

Hello everyone. I was diagnosed with T2 by having a Gloucose Tolerance Test. I was hypoglycemic for years . My father passed away & we were told he had diabetes. No one including himself ever knew this. Several family members were tested, including myself. There are 8 of us on my fathers side who have diabetes. My A1C test a couple of weeks ago was 5.2. Down from 10.6 in 3 mths. Yes, it would look like I didn't have diabetes if a new doctor was going by the test results. However, unfortunatey, for all of us, it is here to stay until a cure is found. Have a wonderful day !!! :-)

Nick1962
Nick1962 2012-07-21 19:34:28 -0500 Report

5.2 is a great number. Especially in 3 months! i think it took me 3 years to hit that. Maybe folks like you and me are just real life guinea pigs trying to see if the word "cured" might actually become part of the diabetic vocabulary. Here's hoping!

Type1Lou
Type1Lou 2012-07-21 09:48:58 -0500 Report

Congrats on the great results! I don't think I'll ever see an A1c of 5.2! You've obviously taken the steps needed to manage your diabetes and that serves as an example to others in your family. What an inspiration!
Hugs,
Lou

CJ55
CJ55 2012-07-21 10:06:04 -0500 Report

Thank you Lou.. It was tough but I managed to do it. My Dr. keeps toying with my insulin doses up and down and also I have been taking major steroids for the last 6 weeks due to my asthma. I'm sure my A1C may be up a bit now, but It will go back down. Have a wonderful day!! :-)

jayabee52
jayabee52 2012-07-21 10:21:40 -0500 Report

With my 2nd wife Jem, (she was also T2 and had passed away in July 2010) she had to be on prednisone and cortisone shots whenever she would have a Lupis or a RA flare (she also had COPD) we had to work with her rhumetologist and wean her off the steroids ASAP, and then work with her endo (who gave us sliding scales for 2 of her 3 insulins) to get her BG normalized. I had to be involved since she was totally blind and couldn't see to draw up her insulins.

During one of those times when she had cortisone in her her A1c was 6.0 yet her fasting BGs were consistently in the upper 200s. When asked about it Endo said that she must have been having some pretty low lows due to the A1c being an average of her BGs.

Lizardfan
Lizardfan 2012-07-19 22:13:51 -0500 Report

Well, according to my endo this week at Joslin: My A1C was 5.4, and he said now of course this is a non-diabetic number. But…you still have diabetes! Whatever you are doing, keep on doing it. Some people who are not diabetic have these numbers but unfortunately you still have the issue and must keep on dealing with it aggressively. So there you have it, straight from my doc's mouth! This is the lowest A1C I have ever had, once I had an 5.6 when first diagnosed. Would be nice to have a cure wouldn't it?

Nick1962
Nick1962 2012-07-19 09:09:28 -0500 Report

For my own education, and the sake of discussion, I’m going to stir the pot a bit (didn’t expect that from me huh?). So I have some questions for y'all.
Let’s say I’ve been controlled for a while now, and through testing have discovered that normal, appropriate meals for my age and size no longer (or rarely) spike me outside the “normal” ranges.
My numbers are in the normal range, and the glucose uptake test I take yearly is normal as well. If I see a different doctor who has no access to my previous history, what would tell him I’m diabetic? I ask this in all sincerity (and at the risk of showing my ignorance) because I don’t really know. Is there some marker? I mean I do know pancreatic function is a big indicator, but if it were just judged by BG levels alone, I would think there are millions of undiagnosed diabetics out there. I know I can easily eat my way back into the diabetic range, but is this something like lung cancer? Even if you quit smoking the damage is still done, but what visible signs are there for a diabetic?

jigsaw
jigsaw 2012-07-19 10:14:42 -0500 Report

Hey Nick, if anyone can put a spin on things its you! You should have been a politician. On second thought, I take that back, that would be worse than diabetes! I definitely love your way of rationalizing. If you were here right now, I would give you a big bear hug and tell you the plain, simple truth of it: You my friend have diabetes, even though it is well controlled. Unless a cure is found in our life time, I'm sorry to say it's here to stay!
Now, I'm going to tell you something that I have never told anybody! There is a marker or a visible sign that all PWD can check to confirm their diabetes. If you look on your left butt cheek, you will see a large 4" diameter green furry disc!! Only PWD have it. If you don't see it initially, that's because it becomes temporarily invisible from time to time. Keep looking! (-;

Nick1962
Nick1962 2012-07-19 10:39:37 -0500 Report

Is that what that is? I thought that was from that one night back in college I had too much and some girl talked me into getting a tattoo.
But I guess my question is a serious one. Is there something, even if I do everything right, that’s shows I’m diabetic? Again, I might be showing extreme ignorance, but is it a failed biochemical process that shows up in PWD’s that doesn’t in non-PWD’s? Is it like herpes or a cancer, once you get it you have it for life and can be tested for it? I just don’t know and figured somebody might.

jigsaw
jigsaw 2012-07-19 11:20:36 -0500 Report

Seriously, there are usually a few things going on since diabetes frequently involves the liver, the intestines and in fact the whole metabolic process. As far as I know, A glucose tolerance test is a sure method of determining diabetes. If you can pass a glucose tolerance test, then I would say you are not a diabetic. Aside from symptoms, I have never heard of any other markers. If your diabetes is well controlled, then for all intents and purposes, I would say it is either sleeping or in a state of remission to an extent. For the most part you have probably learned to maintain carb levels that don't overload your pancreas. Over a period of years, it will progress regardless of one taking good care of themselves. Since the medical science has many gaps when it comes to the cause of diabetes, there probably is no better answer to your question. It is a known fact that you can slow the progression with good mgmt, but you can't stop it. So on a good note, if you take good care, you can possibly have better health and live longer than many people that DON'T have diabetes. I know you knew this, but it doesn't hurt to hear it from time to time.

Nick1962
Nick1962 2012-07-19 11:55:30 -0500 Report

No, I know you're right jigsaw, but I guess i tend to question everything. It just seems to me that everytime I ask why I'm not "cured", the only answer I seem to get is "because I said so" with no offering of what makes me "not cured".
Maybe there is no answer, and maybe that's why it's considered uncurable.
Maybe I'm just a hopeless optimist.

Gabby
GabbyPA 2012-07-19 17:16:17 -0500 Report

I guess this is what helps me understand the difference between cure and control. My husband eats horribly. He eats junk, carb heavy, sweets and on and on...his levels never get close to 100. He is always below 100 no mater what he eats. I am not. So if I eat like he does, I would surely loose my eyes, kidneys and feet. If I eat well and have numbers like his with hard work and eating right, exercising and all that and that is my lifestyle, then I am in good control.

My diabetes educator said that a normal person can eat a bag of jelly beans and never rise above 140, no mater how many they eat. We could never do that. At least not yet.

jigsaw
jigsaw 2012-07-20 05:40:00 -0500 Report

Your husband is like my wife! She can eat all the garbage that she wants and have consistently good blood tests! Really ticks me off. (-; She'll stuff her face with a bowl of butternut, or pistachio ice cream, a pack of gummy worms etc. while I munch on a stalk of celery and peanut butter.
Well Gabby, at least we can give each other a hug from time to time and a compliment on how well we're doing by not eating that slice of pizza, and that bowl of ice cream that everyone else had. Good thing that hugs don't raise ones bg !!! (-;

Nick1962
Nick1962 2012-07-19 19:43:57 -0500 Report

Yeah, same here, except it goes to the wife's waist. Our diet is primarily for weight control, but it controls my D as well. I guess that's what I'm after in my mind, if we ever, through our own efforts, can get our bodies to perform like that of a non-D, would we be willing to call it a cure? I know it's really semantics, but maybe, just maybe all that's going on now with new diets and such may prove to be promising.

Type1Lou
Type1Lou 2012-07-21 09:57:51 -0500 Report

I agree that the "cures" touted today are mostly semantics for excellent control and management. If you went to a new MD and disclosed nothing about your diabetes history they would probably have no indication that you had diabetes since there would be no need to administer a glucose tolerance test. I know for Type 1's, there is a C-peptide test that determines whether one is producing any insulin at all but I don't think a similar test exists for Type 2's…interesting slant to this discussion Nick!

Nick1962
Nick1962 2012-07-21 19:31:16 -0500 Report

James had mentioned the c-peptide, and I suppose that would be an indicator because it doesn't measure just all or nothing. The OGTT test i took recently still showed that i handle sugars poorly, but 1000% times better than i did 5 years ago. I guess I just have a negative reaction when people say "can't" or "won't" when no one is willing to tell me "why not".

jigsaw
jigsaw 2012-07-20 17:30:30 -0500 Report

Don't get me wrong, I don't knock your optimism! Keep trying, it certainly can't hurt, and you just might hit on something. It's a very slim chance, but it's a chance! So, and I am being serious, go for it cause I support you 99.9%.

Nick1962
Nick1962 2012-07-21 19:08:03 -0500 Report

Well, I can't help but think as fast as the world has changed in just the last 30 years, and the new healthier programs folks seem to be adopting, that there is at least the possibility. Heck, in 1982 my "new" computer was "green screen" and the data was stored on a casette tape. Now I have over 1 billion times the computing capacity of that which sent Apollo 11 to the moon. If something doesn't happen real quick in the line of cures for T2, then i may just have to start becoming a conspiracy theorist.

jigsaw
jigsaw 2012-07-21 21:38:58 -0500 Report

You want to laugh, I use to work for Doubleday, the book publisher while I was in school. I was a computer operator and a computer weighed a few hundred pounds, was about 5 feet or so in length and had tubes. They also used gigantic collators in those days. A couple of computers and a collator filled up an entire room.
Then evenentually I got myself a Commodore computer. Most people at that time didn't take personal computers seriously. Then the big times came along and Atari computers hit the market. Absolutely, technology took off at the speed of light Maybe there really is something to Area 51 and aliens passing info to the govt. There has never been a technology boom like the last 30 years in the history of mankind.
Personally, I have a tough time believing in a conspiracy theory. Certainly it's a possibility, but I think it has to do with lack of incentive! There is tons of money to be had in the developement of pharmaceuticals that treat and control diseases. Also funds to research better and improved treatments have a greater chance of success then funding research for a cure in most cases. Funding for a cure is often a shot in the dark, and can fail and cost money. Very few businesses are here to lose money. They certainly produce enough medications that don't cure anything, and regardless of the reason, it's definitely easier then finding a cure!

Nick1962
Nick1962 2012-07-22 15:47:03 -0500 Report

That sounds alot like the hospital I worked at in the 70's. Their patient coding system was a large room with 2 terminals and about 10 grocery store shelves of "servers" called IGOR. Both my mother and wife workrd in that department (not at the same time) coding bills sometimes up to weeks after the patient was discharged. Now my wife does real-time trouble shooting on patient programs (works for evil big pharma) around the world. She can be literally fixing a patient file while he's still on the table, in Ireland, from our kitchen table.
This is one reason I'm so touchy about conspiracy theorists spouting off about big pharma and medical in general. No one sees the billions spent in better /faster quality care delivery and malpractice avoidance. People demand stuff/treatment when they need it, but don't want to pay for the efforts to bring it to them.
But i do agree, the incentive for most companies to research a cure is not there simply by your example. But I can say, if diabetes were cured, my wife wouldn't even notice on her end, so i doubt taking ONLY 28 million folks out of the meical system will make any kind of dent in big pharma's wallet.

Graylin Bee
Graylin Bee 2012-07-19 14:58:58 -0500 Report

My uneducated guess would be the glucose tolerance test or some other test to show how much insulin you produce. Maybe you have managed to not stress your system long enough for the malfunctioning parts to recover. Again uneducated, but like adrenal exhaustion. If you overstress it again it can go out o' whack another time.

Nick1962
Nick1962 2012-07-19 15:25:41 -0500 Report

Well, that may be one of the more educated gueses I've heard. So kinda like a "bad" heart, it may be just how much stress my pancreas is able to absorb maybe? I do a stress test regularly, so i know what my heart can take. But you can't really do that on a pancreas can you?

jigsaw
jigsaw 2012-07-18 19:54:11 -0500 Report

Tell it like it is, face it head on and anyone that does will probably live a longer and a healthier life then going into denial. Believing there is a cure is simply a form of denial because the writing is on the wall! I agree, don't be duped, get educated it's a much healthier route in the long run.

red flower lady
red flower lady 2012-07-18 19:49:02 -0500 Report

Well, you would have to be a moron if you believe the claim of being "cured" If it could be done then the medical community would be buzzing with the news! Now having it under control is a different story, as you can have your bg numbers within normal range and not need any meds any more, but that doesn't mean you will never get pre-diabetes/diabetes again if you go back to your old ways.

It is frustrating when people say that.

Irish1951
Irish1951 2012-07-18 19:33:29 -0500 Report

It is almost criminal how these people claim to have the miracle cure for a price. We all have feelings about the often outrageous costs from the drug companies. At least there is true help from them and not false promises. These people with their "cures" are true parasites. There is no cure only control and management. I also agree with Graylin Bee- we do not cause ourselves to become diabetic. That is part of their argument that if you caused it you can cure it.

Graylin Bee
Graylin Bee 2012-07-18 19:11:16 -0500 Report

Irked to the max. No cures, yet.
Also on my Irks me list is when they claim we cause ourself to become diabetic. Hope newbies don't buy into that lie either.

jigsaw
jigsaw 2012-07-20 06:00:42 -0500 Report

It's amazing how these pharmaceutical companies produce dozens of meds to control it, but NONE ( 0 ) to cure it. Insulin production, insulin resistance, blood glucose, etc. are all controllable with meds. Hmmmm, I wonder where the research funds are mostly invested?

Graylin Bee
Graylin Bee 2012-07-20 06:37:25 -0500 Report

Sounds like a subject to research. My Hematologist is researching a cure for for a paticular type of lung cancer, so I do know they do search for cures and not just ''band aids''. My former PCP told a friend once ''Too bad you don't have Diabetes, I am doing a test study on it.'' Never learned what his study was all about.
According to the Alzheimer's Association a whole lot more money goes to searching for cancer cures than Alzheimer's, forgot the percentages and dollar amounts.
But I have not investigated the cure researching of . Heck I don't even now ifthere is a cure to keep anymore of my leg veins from going bad. I'm hoping they all got the message to behave our else after the four bad behavors got ablated.

jayabee52
jayabee52 2012-07-18 19:35:09 -0500 Report

I have "intensely discussed" people who came on this site who have either said or implied just that! I will "take them on" again when someone else does (And I am quite sure it will eventually happen).

Graylin Bee
Graylin Bee 2012-07-18 19:43:04 -0500 Report

I am thankful you fight that battle, James. Whenever I try to respond I often have to cancel my response. It seems I might violate a few terms of use with a term or two I wish to use.

jayabee52
jayabee52 2012-07-18 20:04:11 -0500 Report

You may not really have any idea how many responses I have had to cancel or make major changes to them or I would run afoul of the TOU also. Even in non controversial discussions I make major changes to discussion replies frequently. The ones which "make the grade" with me come out vastly different than when I started on the reply. With my impulsiveness due to my ADHD, it is a miracle I don't have to change more responses.

DeanaG
DeanaG 2012-07-18 18:25:39 -0500 Report

I agree it irritates me to no end when some headline or person claims diabetes can be cured or reversed. Managed or controlled yes these are possible. Once a diabetic or PWD always a diabetic or PWD.

MAYS
MAYS 2012-07-18 16:21:52 -0500 Report

Can I join the club?
I really do not like it when someone says that diabetes can be cured.
I know that it can't be, and because of that I am not trying to do so, all I want to do is to manage it.

People let it go…don't fall for it, it cannot be cured, don't get suckered into the abyss, take your time and learn how to manage your diabetes, you will be glad that you did!

IronOre
IronOre 2012-07-18 22:21:01 -0500 Report

Why are you implying all the time that people who come in here don't manage diabetes well ?

jayabee52
jayabee52 2012-07-20 22:22:18 -0500 Report

I didn't get that from Mays in this response nor from most of his many excellent responses and/or new discussions. Here he was responding to my original post and was agreeing with my dislike of folks who claim a book, procedure, or product will cure diabetes.

What he said "People let it go…don't fall for it, it cannot be cured, don't get suckered into the abyss, take your time and learn how to manage your diabetes, you will be glad that you did!" was urging all here to learn how to manage their diabetes rather than waste time and money on those elusive and illusory cures.

Mays has been posting here for at least 2 years (apologies Mays if I got that wrong) and he has been a voice of encouragement and help ever since then.

If that makes a member of a "cult" IMHO it is a pretty good cult of which to be a member. I'd love for you to become a member of such a cult!

jayabee52
jayabee52 2012-07-18 16:26:03 -0500 Report

You already have Mays!

My real reason for posting this was for those who are newer here and may have not thought much about it. Plus it just came to my Yahoo inbox this afternoon.