Confused about Diabetes....

By Stephigirl Latest Reply 2012-06-24 19:47:04 -0500
Started 2012-06-22 11:43:15 -0500

I'm 37. A little over a year ago started going to the doctor, and I found out I have diabetes and I was put on Metformin 500mg. It wasn't helping, so she put me on Janumet 1000 mg twice daily… Still not helping at all. Okay, I've lost 95 pounds, started eating right, doing good stuff. My sugar is still crazy high. My glucose runs about 300 (and even up to 400 at times). It rarely goes below 250, and it has NEVER gone below 200.

I visit the doctor every month (sometimes more..for other reasons), every single visit, I express my concern that my sugar is insanely high (at least I think it's insane to be that high), and she orders blood tests, next visit she says "Yeah, your numbers are high… so see you in 4 weeks?" (that has happened MORE than a few times.)

Am I wrong in being confused that my doctor has absolutely no answer for me and no resolution? She has used the "well you need to eat right and exercise" thing, but I don't sit around and eat junk food all day! I've lost 95 pounds! You'd think my sugar would have gone down even just a little bit with that and taking 2000 mg of medicine. :( My mom has diabetes, she doesn't always eat right, and she doesn't exercise… her glucose runs about 130-150. (and she says that's high)

I'm in the process of changing family doctors, but seriously am I crazy for feeling neglected by my doctor, or should I anticipate my sugar going down sometime before I have some sort of diabetic episode, or just keel over? :( Maybe I'm over-reacting, I just need some feedback to know if I should just stop whining about it.

16 replies

Chris2617 2012-06-24 19:47:04 -0500 Report

I hear you. I was diagnosed in 05 and my BS was always high. I was very frustrated no matter what i did or what i ate my BS was high. I decided to take it on myself. I am on insulin and test 6 times a day. I take both basal and novolog to control my bs and finally went to the doctor last month and my A1C was down almost 2 points. I would say you should find a dr that is concerned and gives you some help. Find a local Diabetes education center. They can be very helpful to give you some education on meal planning and insulin help. I got to the point where i needed to be in charge of my health and didn't think my dr was. I did find an excellent doctor and feel finally under somewhat control. Stay with it ande don't get discouraged.

mclikin 2012-06-23 19:31:04 -0500 Report

U may have type 1 i had the same issue where meds didnt hlp now i know.its type one and use insulin and i have much better control over it

Nick1962 2012-06-23 15:40:44 -0500 Report

Can't really add to what's been said already. Kirla has steered you in the right direction food wise. just want to say congrats on that 95 lbs lost and could you share your secret?

mariantlibrarian 2012-06-23 07:49:54 -0500 Report

Don't be afraid to change doctors and change again if necessary. I had 3 different doctors in one year before i found a good one. You have to get one that is ready to listen and act upon what you are saying. And the really good doctors not only ask why you are there to see them that day, but what else is going on. Now I have a great personal physician as well as a great endocrinologist. Good luck to you!

old biker
old biker 2012-06-22 15:09:07 -0500 Report

Hi Stephigirl and welcome to Diabetic Connect..If you weren't in the process of changing doctors..I would say that doctor has to go..With the amount of visits you have taken to the doctor over the past year and to be where you still are after losing 95lbs..You have every right to be concerned..This is your body and your health we are taking about..Diabetes is not something to take lightly and you need to get your BGL down before some damage is done to you.
And yes you need to stop whining:-) and start complaining, very loudly to your doctor anytime you feel your questions are being blown off..With your new doctor take with you, BGL log so he can see your numbers, a list of past and current medication and a list of questions..Remember you never get a second chance at a first impression..You set the tone of the first visit,,Trust me a little attitude when it's called for goes along way…Good luck and clear skies on your journey through life

Kirla 2012-06-22 13:33:27 -0500 Report

Thanks for reading my post.

Stephigirl 2012-06-22 13:47:11 -0500 Report

I guess that's part of my confusion. I eat everything from a diabetic cook book. Everything I make is "diabetic friendly". My numbers don't change. :( What else is there to do? Pray my numbers go down? :(

Kirla 2012-06-22 14:39:06 -0500 Report

Diabetic cook books are based on the 45-60 carbs per meal and 15-30 per snack. I found I cannot eat a diet that high in carbs. I kind of follow the Atkins diet way of eating. I just don’t believe in eating lots of saturated fat. Otherwise cutting lots of carbs is what I believe will help lots of people.

Soon after being diagnosed I stopped eating high carb foods. Anything that had more then 5-6 net carbs per serving. For several months I ate mostly low carb protein shake with lots of low carb green vegetables. Broccoli, coleslaw made with no sugar at first and later added splenda. Pickles buy the quart. Started eating salad with a low carb Italian type of dressing with added red wine vinegar. I also was eating chicken and fish most days at supper and for lunch ate tuna fish without any bread along with the morning star vegetable patties on a plate with some mustard mayonnaise and some pickles.

At first I was eating about 30-40 net carbs per day. Only took about 4-6 weeks for my numbers to get close to normal numbers.

Like the Atkins diet I soon started to add other low carb foods like nuts and seeds. I now eat a diet with about 70-80 net carbs per day. Blood sugar still doing pretty good. Even now if I eat a food high in carbs my blood sugar will spike 50-60 points or more.

Atkins is just one low carb diet. Most have you start with a very low amount of carbs and when your weight drops a lot you start adding carbs in small amounts until you weight starts to go up and then you reduce it again to help stabilize your weight. I believe instead of watching your weight you need to test your blood sugar before and after you eat and when you add small amounts of carbs you can see if that foods is ok for you. Kind of follow the same plain but instead of watching your weight you watch your blood sugar.

I believe if you use cookbooks made for low carb diets you should do better than the diabetic cookbooks, which for me I believe your wasting your money on them because they don’t work for everyone. Certainly not working for you. I read somewhere that if you decide to follow a low carb diet just follow one written by a medical doctor. Do some research and you will find plenty of them. Most are real similar to Atkins.

Heres some websites that might help get you started.

Good luck

Graylin Bee
Graylin Bee 2012-06-22 13:01:10 -0500 Report

You are working hard. So should your Dr. Hope you can get one who will, because it sure sounds like your current one isn't. As Mays urges, 'never stop doing the things that are necessary for YOUR survival'.

MAYS 2012-06-22 12:50:11 -0500 Report

Welcome to the family!

Never stop complaining, and never stop doing the things that are necessary for your survival!
The one thing to always remember about diabetes is this, it is an individuals disease, whatever methods and medication works for one individual may not work for another.

Always voice your concern, although it may seem somewhat annoying to your physician, it isn't, it shows that you are concerned about your health.
Choosing a doctor can be hard sometimes, it's not like we have a list of questions to throw at them and then we can evaluate their credentials as though they were being considered for employment with us (although they technically are).

As with any chronic disease you must see a specialist.
There is a multitude of test that are mandatory for diabetics to have done since diabetes can have a negative affect on every single organ within your body.

Losing weight can happen to diabetics, most people believe that body types define the type of diabetes that you have (thin-type 1, heavy-type 2) that has proven to be false.

Having blood glucose numbers in the range that you specified that there is something wrong somewhere, it may be the medications (types), the way that your body (liver) is responding to them, your additional methods of managing your diabetes (diet, exercise, stress coping abilities).
Only your medical team can make the proper analysis after carefully evaluating both you and your individual case of diabetes.

Here is a very helpful site that may answer some of your questions pertaining to diabetes:

Talk to your doctor, help them to earn their money!


Stephigirl 2012-06-22 13:56:53 -0500 Report

Yeah, I've read so much about diabetes, but nothing seems to help me :( I drink so much water that I actually have a water cooler right beside my desk. I eat only what I'm supposed to eat, according to diabetic cookbooks, and diabetic websites, I exercise like I should, I take my medication morning and night… I check my sugar - it's through the roof. I once asked about being referred to an endocrinologist (I believe that's the specialist), and it was brushed off because I have Type 2, NOT Type 1, she very clearly let me know. Of course, my insurance requires a referral. God, I just hope I can get into another doctor.. Else, I'm stuck begging a doctor for help who feels I don't need it

MAYS 2012-06-22 14:50:09 -0500 Report

It's strange that they won't recommend you to see an Endocrinologist since diabetes is a by product of the improper working of an organ (the pancreas) within our Endocrine system, doesn't really matter if you are a type 1 or type 2!

My numbers were peaking for months due to a conflict between my liver and some of my medications, my liver was releasing sugar into my bloodstream to deal with the stress that was being sensed by my body, modifications in my meds helped to resolve the spikes.

Push for seeing a speacialist, go over their head if necessary.
High concentrations of glucose in your bloodstream not only damages your organs, it puts demands on your pancreas to produce insulin non stop, destroying the Beta cells inside of your pancreas (How I became a diabetic).

Gain the upper hand with control while you still can!


ShellyLargent 2012-06-22 12:35:45 -0500 Report

Hi Steph - and welcome to the "family"… I think getting another doctor is a step in the right direction! She might be thinking that you're doing something to sabotage your blood sugars, so if you're not willing to help yourself, why should she? - I went through something very similar with a doctor about 10 years ago - he actually even said that to me: why should he help me if I wasn't helping myself… It sounds like you might need stronger medications, different medications, or go on multiple insulin injections. Congrats by the way on losing weight, eating right and exercising! If only our doctors could spend just one day at home with usto see that we are trying to do what's right, maybe they wouldn't be so quick to write us off! Good luck in your hunt for a new doctor.

Stephigirl 2012-06-22 12:47:55 -0500 Report

Thanks for the welcome, and for the confirmation that I'm not completely crazy. It has just been getting more and more frustrating… I thought maybe I was just expecting more than I should have from her. Oddly enough, I was out of state, and I had to go to a doctor there, he did bloodwork, and told me that I should be on insulin shots, and that was just from looking at my bloodwork. My doctor said that's not necessary. ? What do I do if diet, exercise and Janumet doesn't work? So yeah, I pray I can get into another doctor sometime soon. :(