What's your Biggest Gripe about being a diabetic?

By re1ndeer Latest Reply 2013-06-03 11:24:13 -0500
Started 2012-06-08 18:56:07 -0500

What is your biggest gripe about being a diabetic.

It can be almost anything.

Is it waiting to see your doctor?

Is constantly poking your fingers?

Is it taking insulin? or pills?

Is it because diabetes brought on other illness's that you would not have had?

Is it counting carbs?

Eating different foods? or giving up your favorite foods?

Is it someone always nagging you about your health?

Is it the cost of the medicines? or supplies?

Is it taking your supplies with you every where you go?

Is it not being able to control your diabetes? or your A1c?

My biggest gripe is the cost of the insulin and the supplies. I wish they could find a generic insulin, or come up with a better way to disperse it.

What's your gripe? Is it one of the above? or do you have a different one?

150 replies

Impish Angel
Impish Angel 2013-06-03 10:55:01 -0500 Report

My biggest gripe is when I hear these words come out of a persons mouth… "YOU SHOULDNT EAT THAT, YOURE DIABETIC".. grumble grumble. I hate that more than anything. Especially when it is something off my cheat sheet. People who do not have diabetes, or had any experience with diabetics (I usually ask them) shouldnt assume they know everything about the disease. Hell, we are diabetic and dont know everything!

hairbear68 2013-06-03 11:24:13 -0500 Report

trying too keep fresh veggies when everone finds them in the frig…and eats them so it get costly too get fresh veggies once a week. 20.00 mth just in gas too get too the store 5.00 each time someone goes . and grape celery lettuce cucumbers only goo side everyones eating fresh veggies which is better then candy

cyberbri 2012-10-09 00:46:37 -0500 Report

My biggest gripe is my now former endocrinologist. At first he seemed like he was going to be ok. He started out being better than my 1st endo. He quickly helped me figure out how much insulin I should take. My first endo did not have a clue. So everything seemed like it was going well until I went to medco.com to re-new my prescriptions. A week past and so I checked the status at medco.com and they were still waiting on my endo to ok it. So I called my endo's number left a message and they would not return my calls. Another week past. nothing… I called my endo's office everyday. What the F@#$. This went on for weeks, meanwhile I was running out of insulin. So almost a month of calling my endo without them getting back to me, I drove to his office and asked why they weren't getting back to me and told them I hardly had any humalog left. My endo's assistant looked at me like I was some bum that just walked in. She was not even listening to what I was saying. She asked me well why didn't you go to medco's website and request a re-newal, so I told her the whole story again and finally it looked like she understood but she said that she didn't remember hearing any messages from me on her voice mail. I told her that I called more than 50 times and left voice mails and never heard a peep. So anyway after almost an hour of me asking for a few vials of humalog while they get in contact with medco and ok the prescription, they said ok, we'll give you a few vials so you have enough while your humalog is sent to you. What a freakin pain!!!

So guess what? The last time I tried to renew my prescriptions he did get back with medco but rejected my prescription. I am a month over due for blood work but I can not afford the deductible because my business has been down lately and I just don't have the money. So I called his office to see why he just can't ok it. Didn't get anywhere. I just don't get it. I have my blood sugar under control about 90% of the time. I workout and I am 44 but I beat 20 year olds in bike races, so I take care of myself.

So now I'm going to a family practice doctor and he had no problem with ok'ing my prescriptions. However, due to my endo not ok'ing my prescription in the 1st place, now I have to pay retail for a vial of humalog while I'm waiting for medco to ship my meds.

Sorry for the long story but I just needed to vent. These people just don't know how hard it is to keep diabetes under control while wondering "am I going to have my humalog and other supplies so I can eat so I can live."

And to let ya all know I was diagnosed with type 1 April of last year at the age of 43.

mystikfairy61 2012-07-31 23:45:43 -0500 Report

My biggest beef with only 3 months under my belt is getting doctors to listen to what you say to them about how you feel, instead of just chalking it all up as being "part of being a diabetic" .

shortysmalls 2012-06-20 22:31:58 -0500 Report

for me, almost everything, taking meds, test sugar, taking supplies where ever you go, including work and vacations, cost of drs and meds, even with insurance is expensive, just dealing with the everyday stuff of being a diabetic and it changes everyday. and new issues and problems come up sometimes

kmk1968 2012-06-20 07:03:19 -0500 Report

good morning , my biggest gripe is the whole package !! it is a 24 hour, 7 days a week, 365 days a year job !! it is something we always have to be thinking about. the numbers , the cost ,the food and the excersise . im exhausted after almost 34 years of type 1 diabetes !!

Jade R
Jade R 2012-06-18 16:09:15 -0500 Report

1) People who don't understand there is a difference between Type 1 and Type 2
2) Type 2's who think they understand what Type 1's go through.
3) Counting carbs.

cyberbri 2012-10-09 00:58:33 -0500 Report

The other day a co-worker came up to me and asked me why I was eating so much for lunch and said all that fruit is going to make your blood sugar go up. And continued to say there was a low carb veggie diet that he heard of that cures type 1. I tried to tell him there's no cure and he just kept blabbing.

While all this he was smoking and drinking a large coke and I was choking on his smoke trying to hint to him I didn't like his smoke in my face. I finally asked him to leave.

mystikfairy61 2012-07-31 23:44:18 -0500 Report

I am a T2 and have 4 generations of diabetics in my family, including my dad who was T1. So some of us do understand…Just letting you know Jade… HUGS

Pharmacist George
Pharmacist George 2012-06-15 00:05:55 -0500 Report

I think what summarizes all of the above is not having that sense of normalcy any longer. That’s the main complaint I get from my patients. After diagnosis people feel that life as they knew it changed for good. Now you have to be on medication or inject insulin several times daily and prick your fingers to test your blood sugar, you also worry about diabetes complications medication side effects and cost.

All those factors may become overwhelming at times and you wish that you didn’t have to worry about all this and just want be “normal” again.
On the bright side diabetes is a controllable disease and you can expect a natural lifespan if you can keep it under control. With regard to food recommendations they are the same for people with diabetes and without. The American Diabetes Association recommends 50 – 55% of calories would come from carbs (mostly complex), 30% from fat and about 20% from protein.

Those are the same recommendations for people without diabetics. Increasing Physical activity is a must for all humans adult and young alike. The advancement in medications available to treat all diseases and especially diabetes is truly amazing and proven to have saved the lives of tens of millions around the world. We are truly lucky to be living in this era and you must think of your medications as lifesavers. Don’t feel stigmatized by the drugs you take but think of them as vitamins that really save your life.

There’s more even good news, very soon you may not have to prick your fingers any longer to test your blood sugar. A couple of brands will hit the market within a couple years where one brand would measure your blood sugar from a beam reflection into your eye. The other brand that’s already in use in Europe is a specialized band that fits snug around your finger and measures blood sugar on a continuous basis.

So there’s more reason to celebrate than to gripe and always look on the bright side because life is so beautiful and we want to make the best of it. When we improve our lifestyle choices then we would be benefiting to the fullest extent from what science can offer us.

cyberbri 2012-10-09 01:06:40 -0500 Report

Nice… thanks for the info on the new glucose meter and also about the diet. My diet is pretty close to what you listed.

jigsaw 2012-06-20 07:13:35 -0500 Report

Great info, a very uplifting and positive point of view! One can manage their diabetes and still focus on all the wonderful things that life has to offer!!!

Pharmacist George
Pharmacist George 2012-06-21 00:10:06 -0500 Report

Of course we have to focus on the great things life offers us. It's not only about living it's about the quality of our life and minimizing or neutralizing any threats that come between us and that quality of life we desire. Day in and day out during my pharmacy practice I witnessed a majority of people with chronic diseases and diabetes miss out on the opportunity to be well. People with diabetes must feel as normal as others.

All it takes to avoiding diabetes complications and truly enjoying the best quality of life and expect a natural llifespan is making balanced food and snack choices, making physical activity part of your daily life, monitor your blood sugar and take medications as prescribed. That's it. Every person with diabetes can do this.

kmrha@hotmail.com 2012-06-14 19:51:25 -0500 Report

I like to drink beer and theres limitations on when and how much. Most of the time one or two is ok but when I feel like having more then I feel guilty about what its doing to me. Having to explain to people why I cant drink another one or why I cant have pizza or nachoes in large quanities. At fisrt answeing questions was no big deal now that ive been dealing with this for a while it gets old. I have had type 2 for 2 years and have been able to control with diet and exercise. but now you always have someone saying is that ok if you eat that??? just a little irratating from time to time.and when I do spike my blood sugar then waiting for it to return to normal can be frusterating too. Been out of town on business for a couple weeks been a little challenging and frusterating. Cant wait to go home and get back to normal routine. Just needed to vent!!!

old biker
old biker 2012-06-15 07:08:46 -0500 Report

Go on and vent..I was on the road working construction for years… I know where you are coming from

red flower lady
red flower lady 2012-06-14 21:50:05 -0500 Report

This is why I limit who knows about my diabetes, I have been type 1 since childhood and have 4 grown kids now.

Jade R
Jade R 2012-06-18 16:22:45 -0500 Report

See, I like telling anyone who will listen, not because I like the attention, but because I enjoy educating people who are otherwise so completely stupid when it comes to diabetes related things.

Nichole07 2012-06-17 02:49:47 -0500 Report

Wow I thought by me finding out I'm diabetic ment I can't have any more kids my mom became diabetic when she was pregnant with me she said she hated it so it kinda scared me .hearing that you are diabetic and have four kids it makes me feel like everything is gonna be ok thanks for sharing

kmrha@hotmail.com 2012-06-14 19:51:22 -0500 Report

ITS ALOT OF WORK!!!!!!!!!!!!!!!!

kmrha@hotmail.com 2012-06-14 20:06:59 -0500 Report

And since Im venting being in the line of work im in and everybody always want to go out for lunch, always the buffet, eating saldads and veggies and watching other people load up gets aliitle old too.Sometimetimes I just say what thye hell and eat whatever but I know thats going to catch up with me eventually!!!! Thats all

Nana_anna 2012-06-14 15:31:26 -0500 Report

My blood sugar being out of control. Even when I am on meds/shots, exercising, and eating healthier foods. I cannot eat bad foods now. It messes me up.

re1ndeer 2012-06-14 16:00:47 -0500 Report

I don't know how long you've been a diabetic. But, it does take a lot of time and a lot of patience, to be in control. Some of the people are still not in control, after many years of being a diabetic. All you can do is do what your doing, take your meds, exercise, eat healthier foods, and check with your doctor.
If your really having a hard time, see if you can see a certified diabetes educator, to help you with your foods, and life style.
Thanks for responding.

Armourer 2012-06-13 15:52:26 -0500 Report

Cost of meds & supplies is a REAL BUMMER! Would be doing okay but thank goodness for health insurance. But the real drag is attending extended family functions that have food and there's nothing I can eat, NOTHING! It is also at the point that I no longer afford to fix something for myself to take to these functions like I use to.

re1ndeer 2012-06-13 15:56:53 -0500 Report

Meds are the biggest bummer for me, Insulin especially at over $100.00 per month. Yes, foods can be a bummer when you have nothing to eat at family fuctions.
Thanks for responding.

old biker
old biker 2012-06-13 15:15:12 -0500 Report

Some days I have big gripes and other days small ones..It changes from day to day..Like right now I really hate not being able to call pizza hut and ordering the special of the week( which should be called the diabetic disaster) and sitting down with some cold beer and a guilt free conscience and have at it…

alanab 2012-06-12 13:13:11 -0500 Report

I hate to complain…though we all do, sometimes, and it's good to have people here who understand when it all gets overwhelming. There are a lot of things we have some control of, but I have to agree with several here…the cost of medication in general, and diabetes meds and testing supplies in particular…it's just out of hand. It's been recommended that I get a pump…which would be spectacular, but for the cost. And it's not just the cost of the pump that's a concern. The ongoing expenses for the supplies for the pump are more expensive than regular insulin, syringes, etc., which are already highway robbery. The cost of my insulins each month would cover a nice car payment…and that's not including the rest of the meds. I think about all this for a while, and I get pretty upset about it.

And then I think about people who are on anti-rejection meds or some other thing that costs thousands of dollars a month. Doesn't make me happy, of course…just a little thankful that we're managing to get by for now.

Hope everyone's having a day with at least a little sunshine in it.

Caroltoo 2012-06-12 13:18:07 -0500 Report

My hubby's Alzheimer's medications exceed a $1,000/month. This is a general problem throughout our medical system, not just an issue for diabetics. If the BIG issue were dealt with, none of us would be having these problems with the specifics of D care.

MAYS 2012-06-12 12:58:12 -0500 Report

My biggest gripe is the routine of it all…a stick or two here, medications there, carb counting, can't say that I love it, but it all goes with the territory.
At least diabetes is a chronic disease that can be managed by the individual.
As I always say, "It could always be worse!"

herigoagain1 2012-06-12 12:30:11 -0500 Report

today it would be the frustration over what to do. I have to have a colonoscopy as a cancer follow up on next Tuesday. They are trying to figure out what exactly to do since I am now diabetic. They are afraid of what my sugars will do while I am on clear liguids since I have just got my glucose under control. It makes me feel helpless not knowing what to do or eat. I feel helpless and stupid…stupid that a diet can make me feel this way. I am on a 1200 cal right now. I am constantly second guessing myself. Sorry to go on but as you can see I am just frustrated…tomorrow will be better.

Graylin Bee
Graylin Bee 2012-06-12 15:24:58 -0500 Report

The prep liguid diet is tough, but not impossible. Faced it for a colonscopy and three surgeries in a 6 month period. This was within the first 9 months of being diagnosed with diabetes. Helpless and stupid feeling covers it well. Whether you tend to go high, low, or ping pong between the two you should be able to manage. I worried my poor fingers would run out of places to poke before each procedure I was testing so often. Just the stress alone of wondering what they'll find can make your numbers go wacky. Since you have your BG under control, you really shouldn't be to hard on 2nd quessing yourself, it proves you're pretty smart at making the right choices.
The biggest plus for me during the clear liquid diet day - Pineapple Jell-O and not the sugar-free version either. A treat not to be indulged in under normal diabetes days for me.
Most fervent best wishes that the results come back all clear for you.

Setzer 2012-06-11 20:08:58 -0500 Report

It's the cost of my supplies, it's how I don't have my license because of it, it's having to explain it to other people, it's having never met another diabetic in real life despite how I hear there's 10's of millions of us, it's counting carbs, it's trying and still not getting the results you want, it's the complications that come with it, it's your doctor writing off other conditions you might have as something related to being diabetic because it's easier than him doing his monkey flipping job and actually finding out what's wrong, lastly it was ages 13-26. To anyone who is in that age range, it's hard as all hell to deal with but it gets better I promise. It might not even last as long for you as it did for me.

*long sigh*

re1ndeer 2012-06-11 21:09:45 -0500 Report

Supplies are a great cost. Along with the counting carbs, foods you can and can not eat. Some other illness's are contributed to being a diabetic. And yes, you have a whole life ahead for you, being in the under 30 age group. Hopefully, some day soon there will be a cure.
Thanks for responding.

jamieanne 2012-06-11 17:50:20 -0500 Report

I just got diagnosed with diabetes on Friday and I can already tell I am struggling with giving up my favorite foods… Changing up my diet so drastically will have to be one of the hardest things I do.

jayabee52 2012-06-11 18:33:52 -0500 Report

yes, it is difficult but not all is lost. One can live a relatively long and complication free life with diabetes! And the benefits are worth it. What is more, once you get your Blood Glucose (BG) levels in a normal range for a while, you could introduce some of your favorite foods back into your menu plan on a limited basis.

BTW are you type 1 or type 2?

jamieanne 2012-06-11 19:54:11 -0500 Report

That is true :) I've been having a hard time geeing my BG down, but I am told that is relatively normal for new diabetics until they find a good insulin dosage which today was just changed from 10 units a day to 20.
And I am type 2, I am also disabled to a wheelchair do excercise and mobility are an issue. :(

old biker
old biker 2012-06-13 16:42:06 -0500 Report

Hang in there it will get better..take on one thing at a time and pieces will fall into place..Welcome to DC

TOO_SWEET1977 2012-06-11 20:13:28 -0500 Report

I was put on 2 types od insuline 3x a day and restricted of all the foods i tipically have. since ive gaines so much weight with this pregnancy alone my spinal canal stenosis and my pinched sciatica are killing me! :'( I know I'll make it, for my unborn baby's sake and for mine…

jayabee52 2012-06-11 20:12:17 -0500 Report

WELCOME to DiabeticConnect Jamieanne! Sorry you qualify for inclusion in this little "party" but since you do I am glad you're here. There are a lot of good apples here and just about 3 or 4 "worms" here.

You may want to check out a way to manage your Blood Glucose (BG) which minimizes or may even eliminate your diabetes meds. Check it out here ~ http://www.diabeticconnect.com/discussions/14...

Praying for your improving health!

James Baker

ANYSA728 2012-06-11 13:21:07 -0500 Report

I was a super healthy marathon runner a year ago. After a year of overlooking skin infections, crazy thirst, and blurry vision…I was finally diagnosed as TYpe 1 after a 24 hour flu (not the flu!). That was March 2012. SO!…I think the worst thing about this whole thing is that you remind yourself that it could be worse. You don't have cancer, you have all your body parts, no need for surgery, etc… but because you're healthy in that respect, no one really perceives diabetes to be in the same class as cancer,ms or parkinson's or whatever. AND…this is a disease where your fate in is in your own hands. I know that would sound good to people with cancer, ms, parkinson's etc…but yall know…it doesn't make it any easier.

old biker
old biker 2012-06-13 14:04:17 -0500 Report

Yes you are right..It dosen't make it any easier..But you have that marathon runner mentality and thats a plus. You know how to dig in and push yourself and never quit..You are just in a different kind of long distance race..And it's a race you can win..And welcome to DC

Just Joyce
Just Joyce 2012-06-10 17:46:09 -0500 Report

We can all gripe, complain, whine, cry, commiserate,vent and stand on the roof tops and shout if we choose to do so. I think with all the people in DC, we should be writing our congressman and senators about the high cost of diabetic supplies. Flood them with letters, emails and telephone calls and try to get just one to stand up with us. People will fight to save every living creature on earth, they fight for and against pro life, taxes, jobs, and civil marriage but I have yet to see a fight for making diabetic supplies cost effective.

Insurance companies only allow for a 30 day supply of test strips which means if you test periodically throughout the day, you have to have money to pay for additional test strips. There is no way meters should be cheaper than test strips. Pharmaceutical companies have lobbyist on Capital Hill. Diabetics should have them also.

jimmuel 2012-06-10 13:26:47 -0500 Report

Im having pain from neurophy an not being able to take the medication prescibed for treating it,becuese im bipolar an you cant take antidepresant for it has side affects to people with bipolar,an my all the meds theyve tried to treat my bipolar with raises my BS an I have my BS undercontrol an will not take anything that will keep my BS high,an all the medication they have me on or have me try is way to costly for me,an they want way to much for insurance since Ive never had insurance before being diagnoised with diabetis,but I keep a positive attitude an take life as its handed to me,an I control my life not a disease an its hard at times

re1ndeer 2012-06-10 14:14:22 -0500 Report

Thank you for answering. That's hard when you can't take a drug because it interacts with other medications you are taking, and making your BS rise. Costs of any kind of medication is just to expensive, and insurance is outragous.
Good for you, a positive attitude is what we all need.

frog1951 2012-06-10 08:16:31 -0500 Report

I hate the fact that researchers are bought out by pharmaceuticals prevention a cure from ever happening. I have been diabetic for 35+ years and very little has been done toward a cure. Lots of treatments but no one works on a cure for TYPE 2. They say this is a lifestyle disease. I was not over weight when diagnosed. I hate the ones that spend research money on other things than a cure.

Jade R
Jade R 2012-06-18 16:17:37 -0500 Report

YES FINALLY SOMEONE WHO IS A CONSPIRACY THEORIST LIKE ME. Haha. I completely 100% believe that as much as they talk about a cure, they don't really want to find one. Really think about how much money there is in the diabetes supply market. In America alone there are 18.8 million diagnosed diabetics. All the testers and test strips and lancets and pumps and CGMs and pills for Type 2's. Its an enormous market, and just like any other, it only survives on the market. Think about how many people who be out of a job, manufacturing the supplies and at the corporate level.

jayabee52 2012-06-18 16:23:15 -0500 Report

if you are here with us longer and the deeper you dig, you will find varying degrees of conspiracy theorists here on DC. After just all being paranoid does NOT mean that some one is NOT out to get'cha!

re1ndeer 2012-06-10 08:50:51 -0500 Report

I so agree with you, it seems all we get is new drugs, year after year. And A different way to do things, but no cure. I know this as my father had diabetes, way back in 1947, and he was willing way back then to have a transplant of a pancreas, so he would not have to take shots anymore.
Thank you for your insight.

alanbossman 2012-06-10 08:11:08 -0500 Report

Some how I got ringing in my ears that I don't like, most of the time its at night when things are quite.

re1ndeer 2012-06-10 08:47:27 -0500 Report

I never heard of ringing in the ears. Maybe, there is something else going on. I would go and have that checked out. Thanks for responding.