By dhopfer Latest Reply 2012-04-30 13:42:53 -0500
Started 2012-04-28 20:29:02 -0500

Hey Yall, neropathy is very painful. Not having fun. Doctor says I have to wear diabetic shoes. or at least give up my western boots and wear a supportive sneaker that breaths and has a wide toe. I have pain, pins and needles, burning and cramping in my feet and legs. I am taking nerotin for it but it is not helping. I guess my dancing days are over. My horse back riding is in question. I see an acual neo-(cant spell) diabetic doctor next week. Wish me luck. Also still droping low. Droped five times yesterday and have droped three times today. We are not having fun yet!! Praying!!!!

10 replies

Controlled 2012-04-30 13:42:53 -0500 Report

I understand that I am preaching to the choir here, but I can't help but add information that I hope will help you. I was also on Gabapentin and it was only modestly helpful. I managed to get to a "pain doctor" and I was switched to Lyrica. I also take a pain pill once a day.

In addition to this, I take Benfothiamine which is a fat soluble B1. As you may know, B1 is normally water soluble and of limited use. Benfothiamine is available online inexpensively or marketed aggressively under brand names for a lot of money. I just use the generic.

I was in pain night and day for almost two years. Today I have only occasional pain on one spot on my leg. I do go to yoga once a week, Tai Chi once a week and stretch once or twice a week.

The only other thing that I did was add orthotics to my shoes (that my insurance company covered). Long story short, absolutely no pain. None. Zero.

I really hope that you will consider talking to your healthcare provider regarding any of these suggestions. I was distracted by pain night and day and I wouldn't wish it on anyone.

I hope this helps you.

Plara31480 2012-04-30 08:03:14 -0500 Report

I hear ya dhopfer, I cant seem to find any good information out there on real successful treatment. Im up half the night every night with horrible pain in my feet and heals. Im excersizing daily and taking gambapentin without any success. My BG are at normal levels and I eat pretty good daily. I just started Alpha Lipoic Acid and Biotin (Natural over the counter vitamins) I saw a few people claim that it might of worked for friends but havent seen any really good treatment info to reverse the condition or at least subdue the pain. I have to take 6 tramadols and 5 250mg of advil to combat it and it still doesnt seem to really work.

Just Joyce
Just Joyce 2012-04-29 17:51:48 -0500 Report

Hi dhopfer, I have had it so bad it woke me up at night. My doctor recommended tennis shoes but not diabetic shoes. I saw a podiatrist who said I really didn't need diabetic socks or shoes as long as I get well fitting comfortable shoes. Once my blood sugar was under control, the pain stopped all together.

My feet no longer swell and I am doing pretty good. No medication required.

Jan8 2012-04-29 15:02:21 -0500 Report

Hi dhopfer,i have neuropathy also and i know just what you are going through.neurontin did nothing for me but made my head weird. My doc put me on lyrica 100mg 3xday and cymbalta 20mg.1xday. The neuropathy pain is gone. it took aout a month.

red flower lady
red flower lady 2012-04-29 00:38:54 -0500 Report

The boots are probably over, unless you get some that are wide, square at the toes. Give the medicine time to work and work with dr on the strenght. The meds worked for me when I was first diagnosed, but over the years not so much. You'll still be able to dance once the meds kick in and the pain subsides. You are so new, so you still have to go through the trial and error stages to find your fit. Once you get control of your numbers, the neuropathy usually backs off as well.

I have faith you'll be riding that new horse soon!

jayabee52 2012-04-28 23:14:10 -0500 Report

Howdy DH! Yes neuro can be very painful. I have the burning type in the my legs from the knees down to and including the toes. And that is painful.

I have tingling neropathy from my elbows to my fingertips. It is a bit irritating but is not so bad. I tried gabepentin/neurontin (same med) and it did nothing for me either. (My gf SQ takes neurontin for another issue and it has helped her)

Unfortunately for us nerves regenerate slowly, if at all.

But your "boot-scooting" days may not be done.

I dance on my nuropathic feet and that is about the ONLY time I forget that my feet burn. I love dancing so much that I guess it gets the endorphins going in my brain pan and I forget the pain for a while.

So don't write off dancing just yet. Try it a couple of times more and then decide. you may be pleasantly surprised! (I pray that you will)

Sorry about giving up your cowboy boots. I had to also, but with a good diabetes freindly shoe, I would believe your feet would be better.

Actually I have been considering getting cowboy boot which would be a half or a whole size larger so my feet would not be so scruntched up like they were. I plan to wear some gel insoles (or either transfer my custom made insoles from my diabetes shoes back and forth.

Praying for and with you!


dhopfer 2012-04-28 23:51:28 -0500 Report

Thank you. Thats an idea!!! I have some western boots that are rounded toe. Lots of room and a little big for me. Orthodic inserts might help too. I love to dance and am good at it at least I used to be. I want to dance so, I am not going to give it up. We will just see how it goes. I swear, its like I can feel every injury, every broken bone I have ever had screaming as loud as posible. I have had a lot of broken bones and even have a fake knee cap that is currantly yelling the loudest and is in a brace. My legs and feet just scream, and burn. Would bio-freeze do anything? How about rolling my feet on a frozen bottle of water? My chyropractor taught me that one. I am going to try and see what happens. If it work i will let you know. Keep dancing my friend, and dance one for me until I am back on my toes!

jayabee52 2012-04-29 02:37:00 -0500 Report

fortunately for me, no broken bones — yet!

As far as bio freeze goes it might work, but I have never tried it.

I have heard of folks using capcasin creme as the "heat" from the capcsasin supposedly somehow blocks the pain signals from the neuro. I have not tried it myself but may do so soon.

The only caveat I would offer is to try it on a small section of your foot so that if the pain is increased by the cream it would not be increased on your whole foot or leg.

I pray that you will be back on your toes soon!

dhopfer 2012-04-29 07:14:52 -0500 Report

Goodmorning Jayabee, I rolled my feet on a bottle of frozen water last night before bed and slept thure the night. Knee and ankles and hips still hurting but the burning did not wake me up or keep me up. Gonna have to do more with this ice thing and see what happens. Take care.

pixsidust 2012-04-29 12:40:20 -0500 Report

I have horrible hip and knee pain and I use a heating pad on them. I also have it on the side of my bed and use it in the night sometimes against the warnings. I wake up from the pain. I put it on low and it turns off automatically after two hours. It helps. I do the ice bottle on the feet too