Restrictive Lung Disease

By LLaunders Latest Reply 2012-04-21 14:18:43 -0500
Started 2012-04-21 10:56:23 -0500

I have just been told that I have Restrictive Lung Disease. Does anyone have any iinfo on this disease. I really do not know what to expect. I am terrible short of breath and can not do anything with out gasping for breath. Any info would be appreciated.

6 replies

Caroltoo 2012-04-21 11:14:12 -0500 Report

It's when the lungs loose their elasticity and become rather stiff. It makes it very difficult to breathe. Why don't you google "restrictive lung diease". There are a number of sites where you can find some information. The ones I browsed quickly seem to relate it to smoking, environmental air pollution, and asbestos exposure.

LLaunders 2012-04-21 11:55:55 -0500 Report

Thanks, will try that. But I have not been around asbetos, never smoked, so unless it came from air pollution? Had a PFT done in 2005 and it was there then but not accute. Had another PFT done in March and they told me it was considerable worse. Got the diagnoses on Thursday.

Caroltoo 2012-04-21 12:43:20 -0500 Report

I'm really sorry to hear that. Sounds like it would really limit your ability to get around, if it's that hard to breathe. Are you using oxygen? What's the doc saying about next steps in dealing with this?

LLaunders 2012-04-21 12:57:47 -0500 Report

I am not on oxygen yet. My actiivities are very liimited. Can not do anything that causes me to breath harder, like lawn mowing, clean house, pick up anything heavy, have to stay in controlled temp. (ac) this time of year. The dr. has scheduled me for CT scan, kidney function test, I do not understand what that has to do with this, and then possible lung biopsy. These are schedule for 5/1. It seems like forever. I hate waiting. I would like to add you as a friend, but I am not sure how to do that?

Caroltoo 2012-04-21 14:18:43 -0500 Report

Click on the picture beside this message. That takes you to my profile page. Then click on "Follow" beside my picture on that page. It will generate a message to me and I will do the same in response to that message. It sounds a little odd, but on this site if we both agree to "follow" each other, we are friends.

LLaunders 2012-04-21 12:48:54 -0500 Report

I am not on oxygen yet, I have to have CT scan and kidney funcition test, do not know why that test, but that is what the doctor emailed me. My activities have been severely affected. Now the Dr. says I should do nothing that cause me to breath harder. No lawn mowing, no house cleaning, no heavy lifting, etc. Also told me if I experienced any chest pain or if the breathing got worse, go immediately to the ER. So now I just have to sit and wait, my appt is 5/1. Seems like a year to me, I hate not knowing.