Diabetic BURNOUT

lawgal
By lawgal Latest Reply 2012-05-08 08:30:21 -0500
Started 2012-04-18 18:40:47 -0500

Does anyone out there ever suffer from Diabetic Burnout? I'm having a long run of it and I just don't know what to do about it. Sometimes I have a difficult time getting up to test my BG and many times, tho my sensor is alarming me for a high or low, I just let it ring. I am feeling like I don't care anymore. Yes, I have a therapist but she isn't diabetic.


54 replies

Magpi
Magpi 2012-04-26 23:29:38 -0500 Report

I am suffering from this also. Since I gave birth to my daughter about 10 months ago I just have not been taking care of myself correctly. I don't test, I rarely remember to take my meds, I don't diet, I mean I'm worried but I worry more about the baby then myself. N I kno it's stupid for me to jus not do what I'm supposed to but I jus feel like sick n tired of it.

jayabee52
jayabee52 2012-04-27 01:10:48 -0500 Report

Howdy Magpi WELCOME to DiabeticConnect!

if you are ever on an airliner and they come to the part about the O2 mask dropping from the ceiling they say you are supposed to put your own mask on before you try to help some other person. The reason I mention this is the principle is the same here: You gotta take care of yourself before you can really care for someone else.

With my 2nd wife, "Jem" I was in a caregiver role for her. Her brother asked me several times during the months I was with Jem if I was taking care of myself. I assured him that I was. He was concerned for his sister's welfare and that I couldn't give her good care if I didn't take good care of myself.

It was and is a big job, but take care of yourself for no other reason than you want to give your daughter the best care you can, and you want to live to see her grow up, marry and have grandchildren. Don't you?

Praying God's richest blessings on you and yours!

James Baker

Skapy
Skapy 2012-04-26 16:31:27 -0500 Report

I was actually going to post a similar post about this. Anyhow I replied to another post recently talking about how I dealt with my depression at one point. I had a similar problem to you when I was just feeling down about life and did not want to do anything, so naturally like you I just let myself go. I stopped taking meds and was not monitoring my BG. Eventually, I was clearly experiencing symptoms of Hyperglycemia, which really made me realize that I should stop. With the help of my doctor's I finally got my act together.

jayabee52
jayabee52 2012-04-27 01:13:31 -0500 Report

Howdy Skapy WELCOME to Diabetic Connect!

I am glad you finally got your act together! I didn't really get mine together for about 15 years or so with the help of folks here on DC

Blessings!

James Baker

lifedriver
lifedriver 2012-04-23 14:24:37 -0500 Report

Hey lawgal, we all go thru this senerio you are not alone and it is not unusal. not testing. not taking meds feeling like whats the use. This is what I call the trick of the enemy. Playing mind games with you. If you don't take care of you thing will only get out of control with no way back . Focus and begin each day with a renewed attitude that you can overcome all obstacles and get the uppper hand on your Diabetes control. Lawgal you will come back and your body will thank you for it…LIVE

lawgal
lawgal 2012-04-23 23:04:55 -0500 Report

I never thought I would receive so much support from just joining an online community. Tears come to my eyes each time I read something meant for me. Thank you all so very very much. I think I am in love with every one of you! Hugs to all.

KarynCandy29
KarynCandy29 2012-04-22 20:29:44 -0500 Report

Hi , I'm so sorry you are going through this,I hope you can talk to your GP or the person who helps you with your Diabetes…May I ask how long have you been dealing with Diabetes? I'm glad your here with us, this is a great group and if you need to talk don't be shy We can honestly say "We understand"
Hope your starting to feel better~Hugs
Karyn

lawgal
lawgal 2012-04-23 12:42:30 -0500 Report

Thx Karyn. I have had diabetes for 38 years. My Grandmother and father had it before I was dxed. So I guess my entire life Diabetes has been in my life. Hmmm…sounds like a song. lol! I've been having a difficult time getting a GP. As for now she is a nurse. But nurses and Physician Assistants have been much better than the doctors I have dealt with. No offense to Dr. Gary. I have reached out to dyou guys and kjthat has helped me alot so far. So Thank you and I hope to get to know you better also. :)

Molisse
Molisse 2012-04-22 00:38:05 -0500 Report

I didn't realize that I have a problem that others are going thru. I'm new to this site and have read a few posts. I'm T2D for 24 years and have been on insulin for about 10 years. I take Novalog, Lantus(twice/day), Victoza. At times I feel that I'm nothing more than a pincushion. Open my mouth, take a shot. At times my belly is nothing but bruises. Then I tend to stop eating but once or twice a day, and those aren't really meals, but snacking, or what I call, eating over the sink. I do live alone, so I don't have to cook for anybody. Knowing that there are others out there going the same sort of things, helps me know that I'm not going crazy. lol

lawgal
lawgal 2012-04-22 11:06:17 -0500 Report

I have been reading Diabetic Burnout by William Polonsky and wanted to share a phrase he has in the book, "Few things generate burnout like the awful frustration of having followed instructions and done everything just right and still be failing to get the diabetes into control. At those times it seems no use to continue to try. Think how discouraging it is to fail at something you really wanted to do. Then consider what it must feel like to have diabetes and be failing at something you never, ever, wanted to do in the first place."

lawgal
lawgal 2012-04-22 11:09:10 -0500 Report

In addition, I just want to give a BIG thanks to everyone who gave me support, love, straight talk and encouragement in this discussion. So THANK YOU!!!!!!!

EJMac
EJMac 2012-04-20 20:10:11 -0500 Report

Boy do I understand it.I'm on insulin pens which are easier, but all the sticking gets real old. One night last week after not having a controlled day of eating I went to bed and didn't test before or give myself the 4 units of Lantus. I sweated the whole night where I had to actually change my nightgown-it was soaking wet. Don't think I'll do that again. Sometimes I am so careful with the diet and still my blood sugars are running a little high. Stress, illness, exercise all affect the BS. It really gets OLD!!!!!!!!!!!!!!

pkwillhoite
pkwillhoite 2012-04-20 17:21:41 -0500 Report

Lawgal,
I just want to let you know that I am going through the same thing. I feel your frustration and the reason why yuo feel like you do. I go thru this a lot and what doesnt help is that I depend on the government because I am not working and I cant find a job t support my D. I am depressed and I can go to the dr because they cancelled my medical.

lawgal
lawgal 2012-04-20 17:46:44 -0500 Report

I know how you feel. I am on disability, lost the best job in the world, and lost my insurance so it is very difficult for diabetics to get what we need when we ain't rich or we have no insurance. That is part of my burnout. It's like, "Why should I care if I am unable to care. Know what I mean?"

Anonymous
Anonymous 2012-04-22 06:18:39 -0500 Report

Can't you get Medicare or is it not past the 2 year mark? I think making hard working people wait for Medicare is completely unfair. If it weren't for the fact that I'm a Veteran, I'd be screwed as well.

pkwillhoite
pkwillhoite 2012-04-20 18:21:15 -0500 Report

I so understand and it is hard. I barely went back to the dr after 6 months of no insurance and now I got a letter saying they are taking away the medical and now i am back to not going to the dr.

dietcherry
dietcherry 2012-04-20 15:36:56 -0500 Report

I went back and read your Discussion post and realized I wasnt helpful at all in my response; I only expressed what I had been feeling today so for that Im sorry! Burnout is something we all will feel sooner or later, I guess. I have myself a good cry or yell, depending on wether Im sad or angry, and then get on with it.
I really dont have any advice but to say that Im sure there are lots of people who care about you and want you to be healthy and well, and at those times we have to find our inspiration in them until we can once again inspire ourselves.

pixsidust
pixsidust 2012-04-20 09:52:23 -0500 Report

Its never too late to regroup
Plan your meals and snacks so you have a chance
to be successful and start afresh.
Take the time to shop for you, and step out to love yourself
You are worth it…say it until you believe it

As Tom said we all get burn out, then I regroup!

lawgal
lawgal 2012-04-20 13:47:57 -0500 Report

I have been trying to tell myself "I am worth it" my entire life. Don't worry, I"m not going to go into that part of my life. Too depressing and the Burnout might get worse. lol. But thank you pixidust for reminding me of that; it is something I need to work on.

pixsidust
pixsidust 2012-04-20 21:08:30 -0500 Report

I had a feeling about that

I had a hard life, abandoned as a toddler, much abuse, tragedy and sadness. Here is the thing.
Our value is not determined by the acceptance of others,
the love we have missed out on or the tragedies that have fallen.
Our value is because we are unique each one of us.
God loves us enough to give us his Son.
Thats amazing in itself.
We should be our own best friends and not punish ourselves
because we think or another thinks we fall short.
Truly I can see that you are a lovely person.
Speak good words over yourself and about yourself
or let us remind you from time to time.
You are beautiful
You are smart
You are kind
You are a good friend, and woman
You can achieve and you can be successful
Lots of Love Christy!!!

Molisse
Molisse 2012-04-22 00:19:10 -0500 Report

I have been thru the same type of events except being abondoned. And had a hard time changing my thinking. Mine was mostly verbal abuse especially during marriage, which did get more physical as the years went on. God is your best friend ever!!!!!!!! Like this very much.

TsalagiLenape
TsalagiLenape 2012-04-20 08:00:54 -0500 Report

Yes I believe we all hit that burnout area several times in a week or month or year. Yet I have made it a game to see how well I am doing. I have people in and around my life that want me to land on my face and beg for their kind of help. Well If I dont do what they want, it ticks them off and I have a good reason to laugh and smile. So when I burnout per se, I turn it around and look at it from another perspective and jump start on that. This way I am still being positive and moving forward instead of in a rut or falling on my face. Hope this helps as it was meant too. Hugs

JSJB
JSJB 2012-04-20 02:43:21 -0500 Report

I don't know if I have burnout but there are times that I just don't feel like sticking my finger, taking a pill, sticking to my diet or exercising but I do it. I think of the concequences and that means more pain and doctor visits(hate doctor visits) so I do what I have to. We didn't ask for this condition but we have to deal with it. So what I say to myself, "Snap out of it there are people who depend on you and need you" that usually does it. Good luck and Snap out of it:)

lawgal
lawgal 2012-04-20 13:55:38 -0500 Report

I'm glad you have never felt the Burnout issue as it seems many of us have. How fortunate to have control of your diabetes. I'd like to say "Snap out of it" as well, but it is more easily said than done.

rob38
rob38 2012-04-19 22:30:39 -0500 Report

I totally understand where you are coming from, I am a 38 year old male, I am type one diabetes and I have a two year old son. I defiantly do not have my diabetes in control at all. I also feel burnt out and need to reach out to you and others like me for support. Let's stick together, it's easier with a support group.

lawgal
lawgal 2012-04-20 13:38:13 -0500 Report

I am with you rob38. T1D sucks the big one and I am in the mood of hating it and what I have let it do to me. Having it for 38 years with many, many highs and lows, I have developed poly-neuropathy, retinopathy, gastroparesis and a number more of complications. I received alot of help once I got put on the pump but now get very little. I guess since my life is troubled I let my diabetes be trouble. I have lost most of my family and have no children. Think of your son when you become defiant. To watch your child grow up and find the good things in life is a much better place to be. Hang in there dear. I hope we all are here to help one another. I mean it. I am here for you. Great! We have a support group now!

BobbieNJ1000
BobbieNJ1000 2012-04-19 15:30:25 -0500 Report

I hate to admit that after only 6 months I already feel burnout sometimes. It's hard to look into the future and know that this is what I will be living with for the rest of my life. It's so much work! I appreciate the suggestion to have some fun. I try to do that on the weekends. During the week it seems like work and D take all my time and energy.

I hope you'll pull out of the slump soon, lawgal. All of you longtime Type 1s are an inspiration to me to keep going.

lawgal
lawgal 2012-04-20 13:58:13 -0500 Report

Thank you BobbieNJ1000. Now this is something that helps me to go on. I hope I can get out of this slump soon so I can be an inspiration someone like you might need someday. Peace.

kintana
kintana 2012-04-19 14:54:03 -0500 Report

I actually just joined this site for this very reason! I'm not taking care of my diabetes as well as I know I should be (not changing my infusion site when I should, neglecting testing my blood sugar) and I also feel like I don't care very much. Talking with people usually gets me out of bad moods, but I don't have any close diabetic friends, so I just get sad looks and uncomfortable reassurances.

In the past during brief burnouts, I haven't found any good solutions - somehow I just forced myself to step it up. But that's not a permanent, effective solution and doesn't work all the time. So, to conclude, I don't have any advice, but I'm right there with you in looking for some!

jayabee52
jayabee52 2012-04-19 17:58:40 -0500 Report

WELCOME to DiabeticConnect Kintana! You are at a good site to help you with most things having to do with diabetes. Perhaps you'll even feel better about having it and be more motivated to care for yourself.

kintana
kintana 2012-04-19 19:30:24 -0500 Report

Thank you! I'm feeling better just taking the first step in getting involved in this community! I have a feeling it's going to be a great resource!

jayabee52
jayabee52 2012-04-19 19:53:32 -0500 Report

well I have been here 3+ yrs now and the support and encouragement I have received here, plus the information I have gleaned from this site, has been responsible for moving me to discontinue insulin and attempt an experemental eating plan which has been successful in managing my diabetes well without the use of diabetes medications. It IS a great resource, and a great site! (IMHO)

lawgal
lawgal 2012-04-19 15:32:10 -0500 Report

Wow Kintana! As I read your comment it was like I was the one writing it! Every single word! I don't have any advise either and usually I don't lack that attribute. lol

Gabby
GabbyPA 2012-04-19 10:50:58 -0500 Report

Burnout is normal. It's not a great place to be, but we all get there at one time or another. Take some baby steps again to get you back on track. Usually, once you realize how crummy you are feeling because you are not taking proper care of yourself, you get motivation to feel better and do better.

If you need some accountability, hook up with someone from here and share a plan to get back on the wagon. Or if you have someone at home that can be the gentle nudge or the kick in the butt that you need, employ them to be your coach.

You have taken the first step of recognizing that you are in burnout. Now you can start turning it around.

red flower lady
red flower lady 2012-04-18 20:41:57 -0500 Report

We all suffer from it at some point, but diabetes is still going to be there, especially for us type 1's. Maybe it is something else in your life that is missing or messed up at the moment and you are blaming the diabetes, as you have control of that? I find that when I get overwhelmed in another area I end up frustrated with my diabetes, until I am not overwhelmed anymore. Maybe you want to look for a therapist who specializes in diabetic care if it will make you feel more comfortable.

Try doing something for fun and relax, maybe this will help you to get back on track and get your head clear. The sooner you get over this burnout the better you'll feel.

I hope you feel better soon:)

lawgal
lawgal 2012-04-19 11:38:13 -0500 Report

Thankyou Gabby and Red flower lady. It is nice to know others feel this way…not that it is good to feel this way but to know I am not alone in this. My non-diabetic friends and family don't really understand my feelings of burnout and it has made me feel like I am going crazy. I am a newcomer here but as the time goes by I feel comfortable speaking my mind about Type 1 diabetes. Again…thank you girls.

red flower lady
red flower lady 2012-04-19 14:00:41 -0500 Report

I hope we can help anytime.Not to many non-diabetics understand what we go through. And us being type 1, well there is a whole lot of stuff/gadgets we have to go through and use. It can get frustrating and overwhelming, but you have to learn to see/feel the clues of burnout starting to hit and try and get a jump on it. I find that making changes to my daily routine helps so it isn't the same old thing day in and out. There are so many fun and interesting things to see and do, we just need to get out of the house besides for work.

Warm weather is here so maybe just take a walk, no stress in it:)

lawgal
lawgal 2012-04-19 14:56:29 -0500 Report

Thx red flower lady. I understand and agree with what you say. Difficult things for me is I just got dxed with minor onset of dementia caused by the many highs and lows in the past 38 years. I lost me job due to this and have been advised to not drive. I miss working and driving. In addition, I am losing my house to a short sale which is causing my credit to basically suck and many other woes God has the humor to give me. Maybe that is the reason I am dealing with Burnout. Ya think??? As jayabee52 said, "I'd lol but it is really not funny."

red flower lady
red flower lady 2012-04-20 20:01:28 -0500 Report

Well, I figured there had to be more to it then just being diabetic and the daily care of it for you to have burnout. That is usually how it works. Yes there is some nast things that can come from it, but you just have to keep up the fight. I'm so sorry for the situstions you are in and I know it stinks, but now things have to change, and sometimes change can actually be a blessing:) Have you applied for disability? There is always the bus to get around( more exercise, so good) and fresh air too. Do you have the bus that comes to your door? You just have to make a list of the things that are not great at the moment, and start fixing them as you can, and checking off the list, this gives you control. It takes some doing, but help is out there.

Gabby
GabbyPA 2012-04-19 10:52:01 -0500 Report

Diabetes is the scapegoat for many of us isn't it? Not that I fee sorry for it, but it isn't always fair.

red flower lady
red flower lady 2012-04-19 14:08:00 -0500 Report

No, it isn't fair, but what in life is? You know, I hate when things happen and people are quick to say it is the diabetes causing it. I also don't use my diabetes as an excuse, this would be doing myself a disservice. I know we all deal with having diabetes in our own way and this is just how I see it:)

jayabee52
jayabee52 2012-04-18 20:21:30 -0500 Report

Yes lawgal! I have had Diabetes burnout for about 40 days now (I kinda gave up diabetes for lent — I'd LOL but it is really not funny).

I had fallen off the horse with regards to eating and testing my Blood Glucose (BG) levels. I had gained back 15 of the 65 lbs I lost over the previous year and when I have tested my BG levels I didn't want to see the results I was getting. I knew I had to get back on the horse and ride it again. I am not eating junk as much anymore and am fighting the cravings for junk which I had overcome a little over a year ago. I still struggle with it, but I am getting stronger with each passing day.

As far as your therapist not being a Person with Diabetes (PWD) it may or may not be a problem according to her skill. You might want to check out Dr Gary (PhD) who is a community advocate here on DC. You can find his profile here ~ https://www.diabeticconnect.com/users/265624-...

Dr Gary is not a PWD but from reading some of his postings I think I remember he has a problem with hypoglycemia. You might want to contact Dr Gary and pick his brain via email for insights re your burnout. I have found him to be very insightful and helpful.

You can overcome your burnout!

I pray you do!

Blessings,

James.

lawgal
lawgal 2012-04-19 11:41:06 -0500 Report

Lol!!! I like the Lent part. I should just say that when others tell me I should take care of myself or I'll die! At least it might make them deal with a little humor. I will check out Dr. Gary asap. Thank you for your thoughts Jayabee52.

Gabby
GabbyPA 2012-04-19 10:53:49 -0500 Report

Great suggestion. I LOVE Dr. Gary. His is a great voice of reason in this unreasonable task of diabetes care. He has great insight and never makes you feel like you can't do it. He gets 10 out of 5 stars in my book.