Endo disdain

By Setzer Latest Reply 2012-04-17 20:47:16 -0500
Started 2012-04-13 03:20:18 -0500

Whenever I go see my endo I can't help but thinking that no matter how much he know's about my disease I will always feel like my 2+ decades of living with it will always trump him by a wide margin. This leads to me getting annoyed when he's suggesting stuff to me that I've either tried already or I know won't help me. Also, is it to much to ask that I actually find an endo that is a diabetic him/herself? maybe I ought to go to medical school. I feel like I would have listened much more if my doctor had walked in my shoes already.

39 replies

Setzer 2012-04-17 09:08:17 -0500 Report

To my doctor - Thank you for being an hour behind schedule yesterday. I actually had things I wanted to tell you but the time I had to wait ate in to the available time that I had. Now that I had a few minutes to think about it, it probably isn't your fault. The patients before me also had things to tell you. Oh well, thanks for knocking my cost of appointments down to 75 from 180 so paying out of pocket doesn't hurt so much. I appreciate it.

Mame C
Mame C 2012-04-16 16:45:00 -0500 Report

I know what you're talking about. I was diagnosed 40 yrs ago. As a 14 yr old sitting across the desk from my Dr. who was morbidly overweight it was very difficult to take her recommendations about my diet! Over the years I've seen various Drs. & it wasn't until about 10 yrs ago I decided I was gonna find one good endo. I'm glad to say I found him 3 yrs ago & I have never been more confident in a Dr. really informed & on top of what's going on w/me. My husband & I decided to treat ourselves like customers, not just patients. It has made all the difference in our care.

MoeGig 2012-04-15 13:11:07 -0500 Report

Reading all the posts here, then you should all have "Endo Envy"…for the guy I have. Actually, I believe endo's should and can only be used as a "reference guide". After 46 years of dealing with this stuff, you have to become your own doctor. I can't see any specific plan that would work for me since different things are happening every day. Juggling diet, insulin, food, illness, exercise, weight, schedule changes…it's like a 6 way matrix that continually changes from one day to the next. I don't think I could shoe-horn my life into a fixed activity…in addition to the fact it would be totally boring. Yes, many of the days are similar. My solution is to test often, understand what I'm eating, and take it from there…the goal is to achieve an A1c in the 6's. How you get there doesn't matter…hence, my Endo is a reference guide…and a pretty good one, but I have to do 90% of the heavy lifting.

jayabee52 2012-04-17 02:30:45 -0500 Report

Moe I respectfully disagree with your statement "How you get there doesn't matter" in regards to getting your A1c in the 6s. My late bride had an A1c of 6.0 yet within the 90 day period she received the A1c she had BGs of 300 to 600. HOw did she achieve the 6.0? She had corresponding lows which brought the average of the A1c down radically. Such wild roller-coastering of BGs is not good for anyone. Therefore I disagree.

MoeGig 2012-04-17 06:55:32 -0500 Report

My condolences for your loss. I'm sure it's tough. I certainly wasn't proposing 300-600 sugars with 27's to average it out. My point was more not being overly dependent on the doctor, but having to do it yourself. Anyway, have a good day.

robertoj 2012-04-17 03:03:31 -0500 Report

Great point. I seek consistency and to me trends have more value than numbers. An occasional spike is no problem if I'm following my plan. A series of highs or lows requires a serious correction in my plan.

Setzer 2012-04-15 22:34:31 -0500 Report

90%, wow. I'm supposed to stay away from heavy lifting this soon after eye surgery. Yeah I know, just being a smart ass. :p

dietcherry 2012-04-14 16:44:46 -0500 Report

Sorry you have to deal with that. Can you not go to another Endo? Not all Endos specialize in D; maybe he specializes in another organ/gland/disorder of the endocrine system. Its worth asking! I always take notes to my appts and they keep me focused on what I want to get out of our time together.

Setzer 2012-04-14 22:20:11 -0500 Report

Kind of want to find another woman doctor but there arent any in this area. They seem to listen to me more, with the guiy I'm seeing now it's like every visit is the first time he's ever seen me. On the other hand, I'm probably moving to Greece in a few months so I'll just have to find another one. Might as well just stick it out with this guy until then.

stevemanwaring 2012-04-14 09:19:03 -0500 Report

I understand how you feel!! What I hate is when the appointment as a whole leaves me feeling like an idiot that was just diagnosed. I also hate getting a prescribed regimen for how to take my injections. That will never work because no two days are EVER the same, therefore needing different injections and different time, etc. I appreciate the concern on the dr's side, but treating this royal pain in the ax requires very personal, intensive insulin therapy, designed for each individual becuase everybody is different. Joe Blow from Kokomo's daily plan will be different than John Doe's plan, and it is impossible to predict all factors that affect blood sugar - diet, stress, healthy or ill, exercise, insulin doses, other meds, etc. This is no simple twenty minute appointment. It must be lieft up to ME.

Setzer 2012-04-14 11:49:44 -0500 Report

Yeah I hear you. My doctor seems to think that 10 units of Apidra before meals works for every diabetic on Earth. Tried to explain my sliding scale to him but he's so dead set on the number 10. So pretty much I let him talk while I'm thinking to myself "Yes, well I'm not going to do that but thanks anyway."

dietcherry 2012-04-14 13:06:56 -0500 Report

lol When I was diagnosed with T1 in the Dark Ages of D awareness (1981) I was taught to take a set number of insulin units with no deviation and tailor my meals to that set amount. Now its the opposite! :)

lawgal 2012-04-15 14:05:23 -0500 Report

Ohhh…definitely understand that dc. I have been on one specific diet since 1976 and now that I have gastroparesis I have switched to an extreme opposite diet. No sugar and very little carbs to icecream and carbs. Don't get me wrong I love icecream and carbs but I now feel I haven't a prayer in getting my BS's normal…of course…I guess I never did! LOL!

dietcherry 2012-04-15 14:12:07 -0500 Report

lol You remember those days ??? lol Remember the Exchanges Meal Plan? I still have my Meal Plan book from 1981 and I get a kick out of looking at it and seeing how regimented it was !!! Thank God we have come so far ;)

frogqtie2 2012-04-17 04:07:34 -0500 Report

The regimented style doesn't work. I am on sliding scale and until recently in the mornings I did not need any insulin, if I had taken insulin my B/S would be too Low and I never did understand the Exchange Plan..You learn by trial and errow what will cause a spike. Betty

dietcherry 2012-04-17 09:18:02 -0500 Report

Hello! In fact it has worked for me for years and its been theorized that this is the reason so many long-term T1s have little to no long-term complications of T1. Every single bit of food was counted then, hence my comment. I was never taught, or perhaps it was unknown then, that people react to foods in entirely different ways, and how thingssuch as protein, vinegar, etc. can naturally lower or maintain healthy BG levels . :)

lawgal 2012-04-15 14:20:49 -0500 Report

Oh yah. The exchange list. I am now on a pump and have a sensor to detect my highs and lows. I didn't like counting carbs at first but I never like anything my Endo tells me initially. Lol! We have come a looooooong way.

jigsaw 2012-04-14 09:02:01 -0500 Report

I have had the experience of dealing with doctors that have an attitude as you describe many times. That's why I fire them, unless I find one that listens and includes me personally, and as an individual. After all, they are working for me ! The last doctor I fired called my house. He wanted to know why I took copies of my med records, and cancelled my last appointment. I told him that he was so busy examining me, and listening to my heart and shushhing me up, that I couldn't get a word in edgewise. I never got the chance to tell him the main reason that I was there. Bottom line, I have to take care of me! I have found a new doctor. He is also a diabetic!

Set apart
Set apart 2012-04-14 08:13:51 -0500 Report

I am with you, my Diabetic Educator who I thought knew me just left without saying she was leaving. How did I not know during my last visit when she introduced me to a new lady whom I thought was just joining their team. Next thing I know I need her and shes gone, got so frustrated because I was spiking and didn't know why and have this woman who really doesn't know me asking me, "Well what did you eat?". I wanted to scream and say that I mainly eat rabbit greens, and protein, along with small portions of carbs. She was judging me and I felt alone! I will see her in June, if she hasn't changed I will explain my situation, and ask to see my Endo. We only see him if we are not doing well. If your A1c is ok then you don't see him. Does this happen to others?

Setzer 2012-04-14 11:42:04 -0500 Report

Havent seen an educator since my endo I saw when I was a kid because she would just tag along during my doctor visits. Didn't really add anything by being there from what I remember.

Nana_anna 2012-04-13 22:26:20 -0500 Report

Its frustrating when Dr. only have a short amount of time to spend with each patient. We as a patient, need to be flexiable and realize that not all Dr. have that time that we need to have with them. They can give us good things to look into and stuff. I don't think they mean to ignore our concerns though. If I have a problem, I keep asking until I get the answer from them. It' takes time to. They are constantly running to each needs of a thousand patients everyday. I am not sticking up for someone though who doesn't take a patients concern seriously. I disapprove of bad bedside manners. I am only saying what we can do on our end, helps to lesson the Dr. loads as well. There's allot we can learn by going to other classes that are usually offered free, or learn from the internet sources. Educating ourselfs is a good thing!

Harlen 2012-04-13 20:31:33 -0500 Report

My Endo is like that too lol
I just look at her and say Ok.
Go home and shrug it off ,dont let it get to you .
We know what we are doing after some years taking care of D and keeping the numbers good .But there is new stuff every day and we can hope they keep up to date.
Best wishes

red flower lady
red flower lady 2012-04-13 23:55:57 -0500 Report

Oh, I'm not like you. I'm paying for the visit and it is my health, so saying ok and going home unhappy and then shrugging it off isn't an option for me. I could have just stayed home for that. I discuss things I have read on the internet or from other diabetics at the level I'm at to help myself. I also ask for info to take home and read if he is having me do something new. I don't just see the endo for diabetes only, but for several other issues as well so I have to stay on top of things for my sanity.

Set apart
Set apart 2012-04-15 05:41:06 -0500 Report

I have had to become proactive when it comes to my D, initially upon diagnosis I thought that the Drs. Would take take care of this. I on the other hand was reading and learning, I knew what I needed, in 7 months I have gone through 2 Drs. And am content where I am at for now! I would like to stay that way, but am not afraid to change a DR. If I need to! It's frustrating but with D you become your own DR., your own person in charge. It used to scare me sometimes that I had to decide the amount of insulin I needed, trial and error can be scary!

jigsaw 2012-04-14 15:49:43 -0500 Report

I'm proud of you ! Very smart, yes indeed, very very smart!!! If they don't listen, I say fire them !

Harlen 2012-04-14 10:47:19 -0500 Report

It just her way if I have a prob then I work it out There are a lot of resorsess out there if you know where to look .I had to bring her up to date on whats what with the new insulin pumps .I go to my Endo for the suppliess If I dont go I cant get them thru my ins .
I am at the point where I know what to do .
Thrue here and other places I get the new info I need that may help .
Best wishes and I still like you lol

red flower lady
red flower lady 2012-04-15 13:49:37 -0500 Report

I didn't say I didn't like you:( I said I'm not like you in the sense that I can't just have that sort of oh well attitude, it would drive me nuts! If I don't like the dr I'll change, if I don't agree on the drs advice, well then it is time we discussed alternatives. There is always a middle ground just have to be willing to get there.

I'm real good at the different resources, had to be! I have been dealing with my type 1 since a kid and sadly no where near that except at heart. I'm also blessed to have a daughter who works in medical field, so can tap her coworkers, and she also has a background as a medical researcher. I'm also happy she is in grad school to be a physician's asst. Now, if the 17 yr old daughter who is in college to be a cardiologist finishes before I die, well then I'm set, haha.

I know we all deal in our own way and as long as we are happy with where we are then all is good.

I still like you as well, seriously!!

Setzer 2012-04-13 10:21:56 -0500 Report

I did have a great endo that listened to me and I felt like he wasn't just feeding me lines out of a book but he retired on me :( The guy I'm stuck with now is just so-so. Oh well, by now I think I can take care of myself. I mainly just need him for prescriptions.

red flower lady
red flower lady 2012-04-13 09:06:18 -0500 Report

I'm right there with you! I simply explain that while I understand the dr is trying to help me, I have already tried that medicine or plan and explain that it doesn't work. Then I ask for another suggestion. It doesn't do any good getting mad as they don't know us. They go by the book of a standard treatment as if you were just diagnosed. This is why it is so important to find an endo who specializes in diabetes and stay with them as long as possible, or have your medical records with you.

I have also, on occasion taught the dr something he wasn't aware of.

Dennis1963 2012-04-14 16:23:58 -0500 Report

Many doctors have a couple problems. one, they don't know us at first, and usually they have so many patients it takes a while to get to know us. Then there is, I believe, the medical field in general, is behind on diabetes, it seems quite obvious because most, if not all treat the symptoms. They continually rely on the new products that come out to try.

I hope I am not sounding negative, I really do not mean to, I am just looking at the reality of it, "from what I can see" of course.

I believe doctors have their hands full, many (at least in my area) are flooded with patients, if I spend 10-15 minutes with my doctor it pretty good.

Considering the business of being a doctor, I believe many rely on the med-scientists other then exhaustive study themselves, they just do not have the time for it. Of course we know they did during their schooling.

TsalagiLenape 2012-04-13 08:47:04 -0500 Report

Well here is an idea. Why not write down what you have done, the results and the stagnant point you are at. Then ask the doctor if you were in my shoes and done all this, what would you hope for and expect? So maybe if the Doctor can relate to this without Him/Her thinking you are questioning their knowledge or authority, this would benefit you greatly as well as make the Doctor more aware that one set plan doesnt work for everyone. Plus help the Doctors knowledge to grow and thus become more effective. Just a thought. Hope it helps not meant to offend. Hugs

lawgal 2012-04-17 20:47:16 -0500 Report

I agree. I write down those type of things and questions I have prior to all my visits since I have trouble remembering pretty much anything. Ha! lol! When I had insurance I had a wonderful Physicain Assistant who spent as much time as it took to see me. I felt a little guilty tho since the nurses were always interupting us telling her she had another patient! In fact, I'd say I better go and she'd just say 'they can wait…you need me more at this time.' Wow! Things have changed now that I get medical treatment from the University Hospital. But at least I have that. I still keep in touch with the facility I use to get treatment at and the educators and PA's. They still use me as a Patient Advocate there and keep me supplied with the pump and sensor supplies that aren't covered at the University Hospital.

Caroltoo 2012-04-13 07:39:59 -0500 Report

As we all say, it is a diverse and many faceted disease. He may know the disease well — so he makes all the suggestions from that knowledge base — but you know you and your responses intimately. For me, the question is, does my doctor listen to and respect my experience with the disease? Thankfully, I have found one who does.

robertoj 2012-04-13 03:46:41 -0500 Report

That is a good point. Diabetes isn't a cookie cutter disease (what is?) It is different to each of us. They don't know what it's like to do everything "right" and have poor results. Nearly everything I've learned is from here and other sires.

jayabee52 2012-04-13 03:41:28 -0500 Report

You seem to have a very good point there Setzer. One cannot know what it is like to be in another's shoes.