Dual Diagnosis? Cutting Edge Information-Free Celiac/Gluten Free Webcast with Celiac/Gluten Intolerance Experts Thursday, May 3, 2012, 2 p.m. ET/11 a.m. PT

Lydickk
By Lydickk Latest Reply 2012-04-16 17:32:03 -0500
Started 2012-04-07 20:44:58 -0500

NFCA will kick off Celiac Awareness Month with a live hour-long broadcast featuring gluten-free experts Alessio Fasano, MD, Stefano Guandalini, MD, and Cynthia Kupper, RD, CD.

Moderated by Alice Bast, NFCA Founder and President, the panelists will provide a “State of the Union” on celiac disease and the new kid on the block, non-celiac gluten sensitivity.

With a special focus on patient-provider communication, the panelists will explore the following:

Defining Celiac Disease & Non-Celiac Gluten Sensitivity
Latest in Gluten-Related Research
Nutritional Management & Support

Patients and providers alike will benefit from this lively 60-minute discussion!
Thursday, May 3, 2012, 2 p.m. ET/11 a.m. PT

For more information and to register, go to http://www.celiaccentral.org/liveevent/?utm_c...


17 replies

roshy
roshy 2012-04-16 11:26:35 -0500 Report

are diagnosed celiacs automaticaly prescribed calcium suppliments? are they necassary ?

Lydickk
Lydickk 2012-04-16 17:11:46 -0500 Report

Calcium supplements are not necessary unless you have issues with dairy products and end up calcium deficient. But celiacs, and those that are gluten intolerant are typically low in quite a few basic nutrients. A recent study showed the nutrient levels of both men and women. They don't know why women are more deficient than men. Seems that lots of our nutrients come through enriched flours, etc. that contain gluten. Those nutrients are actually removed during the milling process but then added back in. Rice, corn, and other flours that are gluten free typically do not initially contain those nutrients and they are not added to them like with enriched flour. Contact me off site at Lydickk@yahoo.com small and I'll email you an attachment that shows the nutrients that most celiecs and people with gluten intolerance end up low on. Ii will take a couple days since I'll have to clean it up a bit or simply retype it since I wrote all over it when I was in the pharmacy for 1 1/2 hours locating vitamins that are gluten and rapeseed free. Now that I'm taking the vitamins all I have to do to pick up the few nutrients I'm still missing is eat 30 almonds, 2 oz of tuna, and 1 hard boiled egg daily-all which my doctor approved. I'm sure I could do pick up the missing vitamins/nutrients easily with other foods but I took the easy way out and picked the ones that were highest in the nutrients/vitamins I was missing. And just for the record, my doctor said that they have never actually come up with ANY daily requirements for ANY vitamins and minerals. They just see the effects of too much or too little in patients and treat accordingly by diet modifications or supplements. Problem is most people, and doctors, don't realize that they aren't really feeling up to speed and don't even question if they may have nutrient deficiencies until full blown symptoms appear. I can't wait to hear what the experts have to say on the webinar. It's only been 6 months since I did the elimination diet that identified that I'm rapeseed intolerant and either celiac or gluten intolerant and I feel like I already have a lifetime of knowledge.

Gabby
GabbyPA 2012-04-08 12:45:04 -0500 Report

Even for those of us who are not gluten sensitive, it is a great way to find ways to cut gluten out of our diets. I don't think it is particularly healthy for most of us anyway.

If we register, will we get a reminder? I might forget between now and then.

Lydickk
Lydickk 2012-04-08 19:59:34 -0500 Report

Yes - you can check that you want a reminder and they will email you. You can set it up to sign in through twitter, facebook, or register through VOKLE which lets you communicate with them electronically. I've never used VOKLE before but I went ahead and set up a VOKLE account and plan to give it a try.

roshy
roshy 2012-04-07 21:02:00 -0500 Report

yay!!!!! coooooome on the celiacs!!!!!! its about time we get our own awareness month!!!!

Lydickk
Lydickk 2012-04-07 21:28:06 -0500 Report

Better yet . . . it's about time non-celiac gluten sensitivity gets taken seriously and support is give for nutritional needs! I posted to this community in addition to Celiac Connect simply because I've found the following on Celiac Connect is dismal at best with most Celiacs/Gluten Intolerant individuals participating here due to dual diagnosis!

roshy
roshy 2012-04-08 00:10:48 -0500 Report

well im a member there too but i guess im a diabetic at heart. . . . meaning ive had it longer and see myself as a diabetic before i see myself as a celiac . . . .. weird but true!!! but i suppose its about time i embrace the celiac in me!!!

Lydickk
Lydickk 2012-04-08 20:01:53 -0500 Report

My diabetes was diagnosed first . . . but now that I know the symptoms, etc. I am confident that I have been either Celiac or glutten intolerant since preteen and diagnosed diabetic at age 54. Seems the glutten reaction actually spikes the glucose!

Caroltoo
Caroltoo 2012-04-08 20:06:12 -0500 Report

Does indeed. When I was studying up on celiac/gluten intolerance, I read that it is sometimes a trigger for the development of diabetes. Wish more people realized how at risk they are so they could take care of the problem.

Lydickk
Lydickk 2012-04-08 20:24:18 -0500 Report

FYI - I've FINALLY found prenatal vitamins (Nutri-Supreme Research Vegetarian Prenatal Caps-they are Kosher Parve) that are gluten/rapeseed free which contain most of the vitamins we miss out on due to dietary changes caused by eliminating gluten from our diet. I'm not pregnant by any means but whatever works works!!! (Their regular vitamins are also gluten/rapeseed free but have tremendously high levels of some of the vitamins, etc. so I'm not keen about taking them-seems like they don't want to overdose fetus'!!.) All I have to add daily to get at least 100% of everything eliminated by going gluten free is 1 vitamin, 30 almonds, 1 hard boiled egg, and 2 oz of tuna. All of which my doctor approved of whole heartedly. 12 hours after taking the first vitamin the purple blotches that had started forming on the insides of my upper arms a couple weeks age which were developing white circles in the center suddenly began to clear. They were probably part of the reaction I had to the Enbrel which left me losing muscle strength EVERYWHERE in my body (hardly walking, partial bowel movements, choking on water and food, etc.) It's amazing what food intolerance and medication reactions will do to the human body. Now if I only knew exactly what to blame on what . . .

Caroltoo
Caroltoo 2012-04-08 20:27:24 -0500 Report

A prenatal should have everything an adult usually needs plus some to compensate for building a baby, so that should cover ordinary needs and our extra gluten free needs. Good idea!

Lydickk
Lydickk 2012-04-08 20:10:38 -0500 Report

Now only if we could get more primary care doctors to understand the connection. Mine is coming around. I emailed him and my nutritionist that I worked with for the elimination diet where I discovered glutten/rapeseed intolerance or celiacs the link so they can watch if they are available. Unfortunately, it is right smack in the middle of the afternoon. I've taken vacation time from work so I can get home in time to participate.

Lydickk
Lydickk 2012-04-08 20:26:37 -0500 Report

Don't need luck - I'm already seeing the results!!!! If I had only been able to locate these vitamins 5 months ago when I discovered the intolerance ;>{