What's your diagnosis story? And another question..

By QueenJavigus22 Latest Reply 2012-05-12 14:46:26 -0500
Started 2012-04-04 23:07:25 -0500

I am just curious on other's diagnosis stories.. When I was diagnosed I went into DKA. I fell into a coma for 25 hours, I got to the point that I couldn't even recognize my own mother. The months before I was thirsty and dehydrated and couldn't get enough liquid.. not just any drink though, sugary juices and pops.. I also had dry skin in my hands and feet and I was so tired always. On Christmas Eve morning I couldn't even walk, I was so dehydrated I couldn't speak either. My mom half way carried me to the car and I went to the doctor. My blood was 650.. I think. I got driven by ambulance to a small campus of Cincinnati Childrens (Librity campus, it's near my house) they couldn't find a vain for the IV, so I was brought to the main campus in Clifton. In the whole process I fell into a coma and was in one for about 25 hours, they even scanned my brain to make sure I didn't have brain damage. Chrismas day, the first present I got was Type 1 diabetes. Anyway, I was just wondering what other's diagnosis stories are? Thanks! Also one other question.. I have a friend who thinks they may have diabetes.. This wasn't a syptom of mine, but has anyone itched because of high bloodsugar or gained weight before diagnosed? Thanks again!

28 replies

forsakes alive
forsakes alive 2012-05-11 21:09:06 -0500 Report

Thats an interesting question,I sure do wish I could remember,most of my childhood is a blur to me. Having my med. records sure does say alot,dont really understand half of what was written,though did get some information out of the records. Apparently I've always been a severe diabetic from what the Docs have stated over the years. Though I have made it this far,I must be doing something right.From what was documented, the Doc I had been seeing in my 18 year mark,told me I wouldn't see 24 ,well I have 22 years on him.

GabbyPA 2012-05-12 14:46:26 -0500 Report

That is great to hear. You just have to keep on going. My husband has outlived his doctor's predictions as well. It is a great "club" to be a member of.

margokittycat 2012-04-08 16:57:31 -0500 Report

My DX was weird, my mom kept taking me to the doctor due to massive weight loss, thirst that was never quinched,dehydrated, having to pee all the time and being tired and very very pale all the time. The doctor kept telling my mom they could find nothing wrong and to keep an eye on me. 17 day's before my 10th birthday, she took me back to the doctor and he said let's take some blood you take her home and we will call when the results come in. About an hour after leaving the doctors office they called and told my mom to get me to the hospital now, they saidif she waited there would be a chance that I would go into a coma. My BS was 857. They started me on an IV and insulin drip and proceeded from ther. I was in the hospital for a few weeks, and then ended up back in the hospital for christmas that year, two years later in the hospital at Thanksgiving and the next year easter. They had hard times figuring out why my BS would not stay under control it took a team of specialist in a town 2 hours away from my home to discover I was allergic to long lasting insulins.

I have heard of individuals having itchy dry skin due to high BS counts and some have gained weight due to always being ungry and eating all the time but never filling fll, just like the thirst that never is quinched.

jayabee52 2012-04-08 13:54:30 -0500 Report

For me my Dx was rather anticlimatic. I had been realy thirsty and was needing to pee a lot. I knew those were symptoms of Diabetes (DM) I was working as a Certified Nurse Aide in a hospital ER one night and had access to test strips to test one's urine for high Blood Glucose. I did the test and which showed that I was in the 300 range. \

My official Dx about 6 mos later, was rather a bit of a let down as I already "knew" I had it. I just got it confirmed for me. I didn't get tested right away as at the time of my urine test, we had no health insurance and were on an extremely tight budget.

Setzer 2012-04-08 10:41:23 -0500 Report

This was back in early 1990. I had all the usual symptoms, frequent urination, weight loss, thirsty, nd what have you. My mom had taken me to a doctor a few times and the nurse says "oh he just has a bug". So what happened next was either that night or soon there after, can't say I remember because I was pretty out of it. I had some OJ and within seconds I just started throwing up everywhere so we went to the hospital and it was immediately apparent to the doctor on call what was wrong with me. Happened to see the nurse who said I just had a bug on my way to the ICU. My mom ripped her a new one. Got out of the hospital a week later on my 5th birthday.

Young1s 2012-04-08 10:32:47 -0500 Report

Somewhere around the beginning of August 2011, I started noticing that my appetite was insatiable, my vision was often blurry, my ankles were swelling, and my feet were in constant pain, even just after rising from a nights sleep. I knew deep down that something was wrong, but I guess I was in denial because I didn't decide to make an appointment with my doc about it until the middle of September. One week before my appointment, my body shut down on me. I was hospitalized with a severely inflamed pancreas, the pain was unbeleivable, and a serious deficiency in vitamins and minerals. The focus was mainly on getting my pancreas to settle itself but they checked my blood often. The numbers were always in the high 300s to mid 400s, so the topic of possibly being diabetic did come up. Even though the numbers were consistently high, I still didn't believe it until I was released from the hospital and my PCP confirmed their suspicions. Looking back, I guess I hoped that once my pancreas was completely healed, my numbers would go back to normal but no such luck. I'm not bummed out about that though. Because of it all, I've gotten a second chance at living my life in a better and healthier way.

alanbossman 2012-04-08 08:20:31 -0500 Report

I was diagnosed back in June of 2008, I was parking cars with my wife at our church fall fun fair and it was hot and I got really thirsty and urinating more, a friend who is a p.a. had a meter with her and tested me the meter read high she told my wife to drive me to the hospital right now. So I got to the hospital at the er room and they told my wife that I was staying they rushed me up to ICU and hook me up to all kinds of needles and tubing. My BS was 714, when they got my BS under control I got to go home 7 days later.

elaines 2012-04-07 12:27:52 -0500 Report

Now that I look back the diagnosis was the easy part. I remember one summer when I turned 19, I was going to bed with those push up icee pops, not one but several. I was so thirsty and couldn't get enough to drink. But at the time not knowing the symptoms of diabetes I brushed it off to the summer heat. Of course because I was drinking more I was urinating more. To me it made sense, drink more, pee more. Finally on September 23 I went in for blood work. They came back telling me I was diabetic and needed to start insulin. I didn't know what all this meant and was a bit in shock. I was told no further testing like a glucose tolerance test was needed because the sugar was too high. I remember going to small group classes learning all about diet and what to and not to eat and how much. I remember thinking how in the heck am I going to be able to remember all these exchanges. It was a bit overwhelming. Then came injection and mixing insulin training. I didn't think I could do it the first time but thankfully needles never bothered me and I had no problem. But for many years I didn't test my sugars and when I did the meter would read high, meaning over 650. I would still be functioning but maybe thirsty or tired. Not realizing that the high/low sugar levels were doing so much damage. At one point I was unable to afford the test strips and insulin. I ended up in the ER several times over the years in DKA. Came close to death a couple times. One time they wanted to life flight me but the weather was too bad due to a snow storm so they had to transport me by ambulance. I put my family through so much stress. Because of all my neglect all those years I now suffer just about every complication there is. I lost one eye and am legally blind in the other, I have had 7 strokes with thankfully no damage or weakness, I was on dialysis for 1 1/2 years until receiving a kidney from my sister, I had a pancreas transplant, foot ulcers and suffer with severe neuropathy causing me to have bad balance. I am on so many medications for the rest of my life. But I have great support. We learn to live with what we are dealt and do what we can with it. That is why I joined this site. I thought that if I could save one life or help one person to prevent going through what I do then this would all be worth it. It took me a long time to figure out why I was given this disease but once I did I felt it easier to accept. So I am going to use it to my benefit and not let it control my life any longer.

Teresa Rose
Teresa Rose 2012-04-07 12:17:35 -0500 Report

I was diagnosed last May with Type2 Diabetes. I probably had it for a long time before that though. A couple of years before I was diagnosed I had many changes to my body that were clues. My skin itched really bad. My skin became dry and my nails thinned. I gained weight that I couldn't get rid of no matter what I did. I was thirsty all the time and always had to have something to drink right next to me always. I was excessively tired all the time. I was tested for Diabetes but the test showed that I wasn't diabetic. I was Diabetic though. I don't know why but test don't always show it. When my doctor finally diagnosed me I wasn't surprised. I had already made some life changes before I was diagnosed. I don't have a dramatic story but I'm glad that at least now I can get the help I need. Your story is very moving. God surely has his hand upon you. I'm sure there is a special purpose for your life. - Thank you for sharing your story & I wish you many blessings in your life. ☺☺☺ - Teresa Rose

roshy 2012-04-06 21:23:07 -0500 Report

God your story is dramatic to say the least!!! Mine is a little less dramatic but here it goes!!

I was 16 still in school and was working my very first part time job in a leisure center!! the work was hard and exausting but i loved the atmosphere and the new friends i made so i put the exessive sleeping down to school and the job. Over the new year i went to Austria on a skiing holiday with the school and there i fell very ill. Very thirsty, very tired, unable to leave the bed at all however becasue of school policy i had to drag skis up a snowy mountian because i was unable to stay alone in the hotel. !! In anyways when i returned home one morning i woke up with a shooting pain in my back and i was unable to get out of the bed, the pain literally left me paralysed!! the following morning i had the same pain so i went to the doctors!! He took a wee sample and thats when the maddness begun!!

Straight to the hospital i went. UVs in both arms, nurses and doctors and needles and monitors for a whole week!! looking back on the whole thing i handled the diagnoses pretty well, it wasnt until i got home the shit hit the fan!!! A few months down the line I wouldnt take the insulin properly, i ate whatever i wanted, i wouldnt test my sugars for weeks upon weeks!!! i didnt go to hospital appointments because there was no point; all they were going to do was critisize and give out to me!!! Im sad to say this behavour went on for a good few years until i landed myself in hospital with a DKA!! I was in intensive care for a week and i never felt so scared in all my life!!

Im happy to say my control is much better now!! Getting type one as a teenager is pretty rough and i think at this stage i have alot of self awareness of why i had done the bad things in the past!! its not easy but control is a process and you learn from experience!! Im 24 now and im not half as scared of diabetes as i was in the past because i feel like i own it !!

My dad has had T1D for over 50 years now and he is as healthy as ever!! So there is hope for us all!! Its nothing to be scared of if you can say " i tried my best" at the end of it!

Thanks for posting!! i love sharing stories like these!!

QueenJavigus22 2012-04-06 23:24:46 -0500 Report

Wow, you're story is dramatic too! There is hope! :D

roshy 2012-04-07 11:16:52 -0500 Report

my dad was diagnosed because he couldnt see what the teacher was writing on the blackboard!!!!!! so he got a nice pair of glasses and a needle and a bottle of insulin to sort that problem out!!

Type1Lou 2012-04-06 10:29:01 -0500 Report

My Dad developed diabetes in the early 1950's when I was maybe 4 or 5 years old. I grew up watching him test his urine for sugar and give himself his shots. He always had literature about diabetes in the house with the symptoms of excessive thirst and frequent urination listed. I was working as a group supervisor in an office when I started experiencing increasing thirst and more and more frequent urination…it was waking me up every 5 minutes. I lost 10 pounds in the space of 2 weeks and when I made the appointment with my PCP, I anticipated the diagnosis. They did a glucose tolerance test and determined that I was diabetic. They tried diet/exercise for a week or so but then I started on insulin right away. That was back in 1976; I was 27 years old at the time. We've certainly come a long way since the early 1950's and even the mid 1970's when I was diagnosed. I'm not saying that dealing with diabetes is easy…it's a constant balancing act. It is easier though than when my Dad had it.

QueenJavigus22 2012-04-06 13:55:50 -0500 Report

Wow, that's kind of like me, the night before my coma I didnt even sleep and I kept drinking and going to the bathroom. my dad had it too, it is really sad. Back then it was hard to take care of, sadly it was so hard that after about 43 years with it my dad died, that was 10 years ago. It has come a very long way. When I get mad I just think how lucky I am to have a pump and a good program for my insulin and it's not as hard as back then.

Type1Lou 2012-04-06 15:04:50 -0500 Report

Please accept my condolences for the loss of your Dad. Mine was already in his 60's when diagnosed and he lived until he was 81… and he was a young 81. I lost my Mom 7 years ago but she was nearly 98 at the time so I was blessed to have my parents in my life as long as I did. I'm grateful that it is easier for us to now get better results in the management of our diabetes…not saying it's easy, just easier.

tabby9146 2012-04-08 13:25:16 -0500 Report

sorry to hear about your parents, glad you had them as long as you did .I lost my dad at age 22, he was only 62 that was 25 years ago, but my mom is 84 now and still going well enough but needs more of my care. So blessed to still have her.

QueenJavigus22 2012-04-06 15:08:44 -0500 Report

It is so much easier. I have my mom and I am so happy to have a great family and friends. Also, to have a nice website like this to talk to others with diabetes :) Thank you very much, I'm sorry about the loss of your father and mother too.

Armourer 2012-04-06 01:10:35 -0500 Report

I'm the first in the family to have diabetes, have had T2 since 1997. Just went in for my quarterly doc visit and told in a phone call that I had it. Might as well said I had cancer. My wife thinks I got it from changes in the brain in 1993 when I had a brain-stem stroke. Spent the first year on my stroke diet which is totally opposite from a diabetic one. Ended in the hospital for a week. Spent a couple years in denial, then a couple more where I wouldn't test in pricking my fingers. Very happy the day alternate sites came along. But never could get it under control because I didn't eat right due to the cost of the right foods ($40 a month for myself, then $50, and now $75) and not eating meat. First on pills & diet, then found out metformin was ruining my kidneys & liver six half years ago and switched to two types of insulin. Have gained 40 pounds because of this, but a new med has me drop 15 pounds in five weeks and my BG in the normal range, plus it makes you not want to eat. So I eat one meal a day with great numbers! Bucks I save on food and insulin will go to help pay for the new med.
Good luck!

QueenJavigus22 2012-04-05 23:08:41 -0500 Report

Wow, what a story. Yeah.. my father had diabetes type 1 (died from complications) My uncle has type 2 fron genetics, and a few other people in my family have type 2 from genetics,.. and my cousin has type 1 and I have type 1. It runs in my family as well, it doesn't skip. So, are you still hypoglycemic, or is it just like normal type 2 now?

Gemm 2012-04-05 14:01:37 -0500 Report

Diabetes isn't always inherited nor does it necessarily skip generations. My husband is also diabetic and his father and 3 or his brothers are also diabetic and his g'father on his father's side was also diabetic. His story is similar to mine in progression though he was diagnosed Type 2 several years before I was. From my research I've basically found that there is no "typical" story though many of us may have similar ones. There are some symptoms but most people, including myself, often have no idea what they are unless they have someone close in the family who has been through it, and even then they may not feel that they are at risk. I have 1 uncle and 2 aunts who have been diabetic but they weren't around closely when I was growing up so I didn't see that they went through.

My husband and I had both been Hypoglycemic (I now know that is considered Insulin Resistant or Pre-diabetic - depending on which doc I'm talking to) for some years prior to being diagnosed Type 2. I had been diagnosed as Hypoglycemic when I was pregnant with my younger daughter in 1983 and was just told try a high sugar diet to keep my BG up far enough. I wasn't diagnosed as Type 2 until about 2 years ago, though my doctor says I'm really still on the cusp between Type 2 and Insulin Resistant (he's puzzled and he's a diabetic doc and is even the local overseer of an insulin trial for a new insulin of which my husband is one of the subjects).

In 2002 I was told I was then considered Critical Hypoglycemic. At that time I was averaging BG levels of between 45 - 65 with lows down in the mid to upper 20's (and I was still walking around even in the 20's - tho not real well. LOL). At that time I was told to take all added sugars out of my diet and also to be careful of fruits, though I am still able to eat some daily, but limit fruit juice as an emergency low BG episode treatment. Since my BG is so irregular, my doc is hesitant to put me on any meds yet as I have too many hypoglycemic episodes a week now. I am basically doing the best I can to keep my BG leveled out by diet and exercise (not real easy with severe arthritis but I manage with aqua therapy at the local PT center at our hospital.) There are days I can have an extreme Hypo episode within 1 1/2 hrs after eating and have been known to occasionally have one within 20 minutes after a meal, some with out any spikes and sometimes with a spike. He doesn't want me to have more because of any meds. We'll see as time goes on :)

draco59 2012-04-05 10:07:29 -0500 Report

Mine is a simple story, I had about a 75% chance of getting it. Both grand-fathers had it and it skips generations. It was also in my father’s mothers genes. So even though I was diagnosed around the end of 2005. I knew it was just a matter of time. If I would have taken better care of myself, I could have prolonged my diagnosis or never developed it. But I didn’t and I did, get it. I believe things happen for a reason, a reason we don’t know and maybe never will. I just take it one day at a time.
On your second question, I had gained weight long before I was diagnosed, plus one of the meds I was given for it helped me gain more, I’m off of it now, BTW it was Actos….. Itching, that’s a new one on me…..

GabbyPA 2012-04-05 09:53:27 -0500 Report

My story is not nearly as dramatic as yours. Type 2 is often more gradual. All of my family, mom, dad and my brother had diabetes so I was kind of aware of some of the problems that came with it. I had an ingrown toenail removed and after the surgery, I realized that my foot never felt "right". I asked my podiatrist, but he said it was nerve damage from the surgery. So I ignored it for a while, but like you said, I could never get enough to drink and I often had to fight to stay awake at 3:00 in the afternoon.

I finally tested with my mom's meter and a 301 appeared. I was bummed, because I had always hoped it would miss me. I changed a lot of my lifestyle and lost a bunch of weight. Overall, it really did help me get more healthy, but I waited too long in hopes that it would "go away" if I didn't know about it.

sasypphire 2012-04-05 00:31:14 -0500 Report

Ok my story. I was 8 yrs old and perfectly healthy! The summer after second grade I fell Ill with the normal symptoms, dry mouth dehydration, has no energy except for the moment I had to pee, I did not water eat a thing but I could not get enough water. My parents had taken me to every hospital in town. They could not figure out what was wrong with me. One doctor would say I had the flu another would say that I was just growing up. One doctor even asked if "I was getting enough attention at home". But the end of the summer I looked like a living skeleton. My big sister decided to take me one more time to a different hospital. The peds section was on the second floor the nurse that was stationed there said she could smell me coming up. She admitted me right away. I then passed out. When I woke up they told me that if my sister had not brought in when she I would have been died. I was in the hospital for 2 weeks. That was in 2001. 2 week after I was diagnosedi turned 9 and we did not celebrate my birthday because we did not know the rules that well yet. Then sadly 2 weeks after my birthday 9/11 happened.

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