Neuropathy causing knots on hands, swelling and pain?

By alanab Latest Reply 2012-04-04 02:14:00 -0500
Started 2012-04-02 15:03:04 -0500

I just started seeing a rheumatologist because I've had knots come up on the joints of my fingers, and in the past few weeks have had a huge increase in pain and stiffness in my hands. The initial bloodwork doesn't indicate RA, which is what they thought to start with…and she said it may be due to neuropathy. I've heard of a lot of different types of pain from DN, but this is news to me. Has anyone else had similar symptoms? The only thing she's currently doing is upping the Neurontin, but it's not helping.

12 replies

jayabee52 2012-04-03 12:44:24 -0500 Report

Howdy Alana. I just happened to be in the Arthritis Connect (AC) site this morning and there was a posting here I thought might be helpful to share here:

"Hi Ms Private, The test that will diagnosis RA is a positive anti-CCP, it confirms the diagnosis of RA, but a patient who does't have a positive anti-CCP might have the disease. Common lab tests include RA factor, antinuclear antibody, and C-reactive protein (CRP). The two hallmarks of RA are morning stiffness in joints lasting an hour or more and symmetric edema of the small joints of the hands and feet. Joint or bony erosion evidenced on x-ray, would indicate advanced diseased. A neurosurgeon is most capable in the diagnosis of spinal abnormalities and treatment. Lifestyle changes in diet and exercise are important for RA. A diet rich in grains, fruits, vegetables, and omega-3 fatty acids is beneficial. Proper body weight will reduce pain. Be aware of risk factors for dyslipidema, hypertension and diabetes. People with RA have a higher risk of cardiovascular disease (CVD), including MI, myocardial infarction and stroke. Depression runs twice as high in people with RA. This is a lot to come to grips with, the members at AC will help you. Social networks are very helpful in dealing with your problems and concerns of RA. You will never be alone with people who have been through the RA experience and are willing to help you go through the all the aspects of RA. You have come to the right place for help, let us help you. Welcome to our world."

I want to invite you to Arthritis connect (AC) You can find AC by looking at the upper edge of this page and put your mouse over the "visit another community" link and there will be a drop down menu box where there will be various conditions mentioned. Click the one which says Arthritis and use your login info for DC to login.

I pray that site will be helpful for you! Oh and there's one for Rhumetoid arthritis too. (I have osteo only so I don't go to the RA site)

alanab 2012-04-03 13:49:12 -0500 Report

~hugs~ Thank you, James. That's some excellent information. I know more about what to ask my Doctor now. And I've peeked in over at the other Connect forums, and I apparently should join several! I appreciate greatly that you took the time to share that.

jayabee52 2012-04-04 02:14:00 -0500 Report

that's what we do here! I have been helped immensely through participation in these sites (I am in several also) and so wish to "pay it forward".

Tamra Hodge
Tamra Hodge 2012-04-03 11:48:06 -0500 Report

I do have RA,and also have knots in my hands and elbows.I did have the test done and it came back positive for RA. Keep checking with your RA dr. Hope you feel better soon.

alanab 2012-04-03 12:41:41 -0500 Report

Thanks, Tamra. I'm going back in a couple of weeks armed with x-rays, and they've done more bloodwork in the meanwhile. Are you taking anything for your RA? All the meds I've heard of seem to have some serious side effects.

jayabee52 2012-04-02 15:30:57 -0500 Report

My late bride "Jem" had RA and it was difficult to get the test to read right. If it walks like a duck, quacks like a duck … ect,. I would say don't give up on the RA test because of one negative test. Jem had to repeat the test over the years to finally get the Dx of RA. I have not heard of neuropathy causing knots, or swelling. Jem also had Lupis (Systemic Lupis Erithramosis — or "SLE") Which does cause hot swollen joints and symptoms as you describe. Of the 2 I'd rather have the RA as the SLE attacks one's internal organs as though they were foreign bodies. Not fun at all, but unfortunately we don't get to choose what we get.

alanab 2012-04-02 16:35:00 -0500 Report

They also tested for lupus, but that test came back negative as well. Whatever it is, I don't want it…~l~ but as you said, we don't get to choose. I just wish I knew what it was so I could try to deal with it.

Boats@52 2012-04-02 15:13:34 -0500 Report

Try Vitamin C I am taking 2000 mg sustained release it has helped me a ton !
A good read is "vitamin C" The real story By Andrew W. Saul Phd

jayabee52 2012-04-02 15:33:14 -0500 Report

Glad you are being helped, Boats! What is it doing to your Blood Glucose (BG) numbers and/or your neuropathy pain?

alanab 2012-04-02 15:24:18 -0500 Report

I'll have to give that a try…have to do something, because I can barely use my hands unless I take Percocet, and that's not much of a solution.

jayabee52 2012-04-02 15:42:17 -0500 Report

that's not much of a quality life to be sure!

Boats@52 2012-04-02 16:17:09 -0500 Report

Vitamin C has helped with the pain in my feet and upper thigh area not sure it has done anything for my blood sugar but only been taking it for about 2 weeks i am taking the NOW brand 1000 mg twice a day with a meal.

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