Name that pain

By Somoca Latest Reply 2012-04-04 02:25:24 -0500
Started 2012-04-02 02:31:28 -0500

I am trying to find out if the pain I am experiencing is from the diabetes or perhaps "chronic pain". Can you recall the pain you felt when you overexerted yourself exercising, working in the yard or work? Now imagine such pain in different areas of your body attacking you without warning in different spots of your body. THAT is the condition that I have experienced for the last six months. Has anyone heard of this happening before?

It is awful when it reaches my hands. The pain is horrible but then it will go away as if it was never there only to attack me somewhere else. Any ideas?

37 replies

Denisency213 2012-04-03 11:24:01 -0500 Report

Funny because the pains that are described in every reply is all the pain I feel almost every day dr said cant be neuropathy as I haven't had DM that long

jayabee52 2012-04-04 02:25:24 -0500 Report

As I understand it, one can get neuropathy even though one doesn't have DM. It comes from a variety of sources other than from DM.

troublemaker27 2012-04-02 16:25:26 -0500 Report

it's been not a good day for me i'm having problems with my stomach it's feels funny inside.
i can't think or see straight.
i just went to the hospital today and visited my friend george he's in sad shape.
so i ran off.
i can't sleep i can't do anything right my vowels hurt my stomach when i go to the bathroom.
what can i do?
please help me otherswise i'm going to the doctor's for appointment sorry but this serious and it's getting worse thank you

Lakeland 2012-04-02 14:01:04 -0500 Report

I have chronic pain & I'm diabetic, mine is not neuropathy. My mom& brother are also diabetic & they have neruopathy, to them their pain is burning, stinging & pins & needles.

But I also have some neuropathy, I got nerve damage from a hip sugery & that feels like what a novacane from a dentist feels like— a fat, fullness, numbness, tingling feeling. I'm on vicodin for 5 years & I'm going to try a pain management clinic in the next few weeks.

He showed me a picture dermatone diagram, to show me the nerve that's affected & where the pain is referred to.

if this don't work for me they'll call it fibromyalgia & I'll just remain on vicodin

best wishes

granniesophie 2012-04-02 08:21:15 -0500 Report

Have either of you been tested for Fibromyalgia? Or maybe RA? If not, then maybe that would be a good next step. No one should live with intense pain like that without nagging the doctors for a reason and not settling for the same old neuropathy diagnosis just because you have Diabetes. It really could be something else. Maybe you as well, Gerie, I hate that you have such pain all over.

Somoca 2012-04-02 10:20:27 -0500 Report

Grannie, I wanted to be more informed before I went to the doctor since I have to pay for the visit out of pocket. My doctor likes to give the same answer for every single question I have …" Lose weight". If i had a tumor hanging off my eye and asked him what the problem is, he would say , " Lose Weight", darn heathen, lol.

cavie2 2012-04-02 03:21:29 -0500 Report

Sounds like diabetic nueropathy, every body experiences it differently but mine feels like someone stabbing me with a sharp knife. Soles and sides of my feet, toes, lower and upper legs, stomache area, palms of my hands. I often get about half a dozen stabbing pains in the one area in rapid succession then nothing or a short respite then it will start somewhere else. But I have notice over time that this usually happens when I have eaten something that is a No No for diabetics if I watch very carefully what I eat I can go for a week sometimes 2 with no pain then I am tempted again and it all starts up. But what I experience is so sudden and unexpected and painful it makes me literally jump and yell out.

Somoca 2012-04-02 07:15:15 -0500 Report

I will need to watch my eating habits more closely. I usually do not keep a journal of what I eat. My mom does, so maybe I should…Thanks.

Somoca 2012-04-02 07:10:47 -0500 Report

really Cavie? I thought DN was when you couldn't feel things anymore? I had no idea.

jayabee52 2012-04-02 10:59:06 -0500 Report

My Diabetic Peripheral Neuropathy (DPN) feels like FIRE burning on my legs from my knees to my toes. My DPN on my arms from my elbows to fingertips tingles like a arm waking up from being "asleep". Believe me, Somoca, some DPN symptoms are PAINFUL, and some are merely annoying!

Cavie said it right when she said "everyone experiences it differently".

Somoca 2012-04-02 12:58:51 -0500 Report

But Jayabee, my numbers aren't all over the place??? If I have some control over my numbers (stress I have aggravates my BS numbers sometimes) this is still going to be a problem??? wow.

jayabee52 2012-04-02 13:07:17 -0500 Report

my numbers aren't all over the place now either.

I replied to you in a thread further down that I was puzzled by your symptoms. I am wondering if it is DPN at work here or some other conditon at work. I will think on it and do some reading and perhaps I'll find something which might be doing it. It perhaps could be arthritis, either Osteo or Rhumetoid but I couldn't be sure.

Somoca 2012-04-02 12:51:03 -0500 Report

I always waited for the burning feeling too, but this is different. Leave it to me to be different, Oy Vey. :D

jayabee52 2012-04-02 12:54:45 -0500 Report

you can be glad you don't have the burning feeling. I can live with it, and it doesn't keep me up at night like some have reported for their DPN but it is something I wouldn't want to wish on my worst enemy. (For that I leave it to the fleas of 1000 camels LoL!)

Caroltoo 2012-04-02 11:55:12 -0500 Report

James, that feels like what I get when I have a minute misalignment in the lower spine (SI, L4-5 area). I've just found a chiropractor who made a very specific adjustment to one spot, then I have been doing stretches to keep it from tightening up again. This is from breaking L5 years ago — my muscles are still doing some protective stuff — but it got so bad a couple weeks ago that I was driving my stick shift pretty much with my left foot only and that's a neat trick with a stick! Case in point: it causes a horrible burning sensation! I'm so sorry you experience this regularly. When I was experiencing it, I just wanted to curl up in a ball and cry it hurt so bad. Thank God, the treatment worked.

Somoca 2012-04-02 12:54:56 -0500 Report

I feel like curling up in a ball when it hits my knees. I have to use my hands to move them to the side of the bed, then stand up slowly and rock a few minutes before I can actually move. What perplexes me guys is why isn't it all the time?? why does it come like unexpected houseguest, painful as heck-minutes feel like hours and then "poof" gone.

Caroltoo 2012-04-02 14:28:24 -0500 Report

Mine comes and goes to … it's a function of muscle tension. As the muscle tenses and tightens, it puts pressure on nerve endings and causes pain.

My latest solution is a hot bath to begin the relaxation, followed by about an hour of stretching that finally relieved the spasm and brought relief. This is low impact … I lie on back on the bed and move my leg into positions that cause pain, then hold the position while the muscle stretches, then move on to do it over again in the next tight spot.

To get the leg pain that affected my knee, I ended up on my back with the foot of the affected leg held in my opposing hand. Just let the weight of the leg and gravity stretch the muscle in your back while you support and hold the foot. It hurts at first, but it gets it stretched out, then it feels of so good afterwards. Also, it's a progressive movement. At first your foot won't be near your hand … then as the muscle stretches it will get closer and closer.

jayabee52 2012-04-02 13:00:07 -0500 Report

that part is puzzling! Mine is constant it is always there. The only time the sensation goes away with me is when I dance and I am focusing on what I am doing, and I think getting my endorphins going have a part of that too.

Caroltoo 2012-04-02 14:36:31 -0500 Report

It may also be the activity loosening the muscles so there is less tension/pressure on the nerves. Look at my reply to Somoca just above your message. That might help you also.

jayabee52 2012-04-02 12:01:15 -0500 Report

Was that pain bi-lateral? From your stick shift trick with your left foot, I suspect it was not bilateral. Was this the same pain you described as the "pebble in your shoe" pain, Or something different?

Caroltoo 2012-04-02 12:42:30 -0500 Report

Oh, totally different. When first diagnosed I felt like I had a little pebble in my left shoe. It was like walking with a very small rounded stone in my sock. Not painful, just annoying. It took 2-3 months to go away and never returned.

This recent occurance was searing, burning pain that started around the outside of my right hip (at joint height), dropped down my leg on the outside all the way to my ankle and wrapped around the leg in mid-thigh and mid-calf. Excrutiating when I would move my knee as I worked the pedals. No left leg or food involvement at all. Totally, one sided.

jayabee52 2012-04-02 12:50:13 -0500 Report

That sounds terrible! My pain is bilateral and is equal on both sides. That is why I think it is diabetic Peripheral Neuropathy (DPN) and not a pinched nerve.

annesmith 2012-04-02 03:00:27 -0500 Report

This is Anne again—I reread your e-mail—one thing I know for sure is that mine is serious serious joint pain—all joints in my body are in so much pain every night, that they feel red , and to the point where they do not want to allow me to even move——you and I definitely have something very significant here—I hope you can find out what your's is. I don't do any heavy lifting at all…I walk and run 5 days a week, but not to the point of stretching the joints out of whack. It feels like I am producing zero of something. It literally feels like I am riding a bike and the chain on the bike has zero oil on it, then I can't pedal. I go to turn my ankles ( both of them) and I can barely turn them. I go to walk , and I can barely walk as, like I said , it feels like I have zero "oil" in my joints. I know they found my liver does NOT rebound or do the liver dump very well at all..most diabetics ( I think many type 2s) naturally have what they call a "liver dump" if their blood sugar is low, it will "dump" sugar into the bloodstream to compensate—over the years, my liver almost stopped doing this. I wonder if that is half of my problem—cause, if my liver is not doing that, then I'm getting virtually zero compensation when I go low—no, I am not hypoglycemic in case you were wondering. Write me back!—ANNE

annesmith 2012-04-02 02:50:27 -0500 Report

I am going through something very very similar to that..I'm getting really really worried about it—they said I had neuropathy without a doubt about 5 months ago—they gave me a strong medication for it—not Gabeptin—something else, and it wiped out all of my pain. Well, the medication started to make me bleed internally, because the pills are so strong, so I stopped taking it—I have a strong history of peptic ulcer disease. Now, it is BACK, and with a vengence—I am good in the morning, but by evening, I'm about's worse now. Several nights at my second job, when I got up out of my chair, I had to LEAN up against the wall to be able to walk—diabetic ulcer on my left foot I had since July—it healed finally, but now, I have SEVERE joint pain—OH, it's bad. It feels like something is attacking me in a way—-alls I know is it means business. I couldn't even turn one of my ankles one night and then again the next night—-it was scary. I wonder about lupus, I really do..but, it acts like it's a huge flareup of the diabetic nueropathy they diagnosed me with—I had planteus facious—it's hard to spell back in November—you get it in the shower stall usually—and it plants itself inside your feet—it then causes SWELLING really bad—and it's painful—I think it moved into my joints now—I never was able to get rid of it—I tried everything. I bet anything it's both —-Are you diabetic? If you are, what type? I am a brittle diabetic,all I know is, is that I too have similar attacks as yours, and by morning, it's the evening, it comes back HUGE—I also have now NEEDLE pains in my feet at night—OH, the pain—it comes on very suddenly. I never had that before—-I'm 41 years old—-ANNE

Somoca 2012-04-02 07:09:45 -0500 Report

Anne, Iam so sorry about the pain you have. It sounds as if you are in worst pain than me.