please help!!! lots of questions
By please help!!! lots of questions Latest Reply 2012-04-01 10:46:39 -0500
Started 2012-03-29 20:23:28 -0500

Hi everyone, my brother is 13 yrs old and
was diagnosed with diabetes when he was 10. You
Would think we would have this under control by now but
We don't. Not at all,his a1c's have all been above 10 and its because he
Wi not take it seriously. Me and my family have tryed everything we can
Think of was woundering if anyone had ideas. Also I
Was wondering if its bad or rare that he is on lisinopril and actos at
Such a young age.

17 replies

ston3xc 2012-03-31 15:51:28 -0500 Report

Pictures on my profile might be a wake up call. My son was diagnosed at age 12 and while I could help him control it when he lived at home, he did not like the feeling of being "different" than his friends. When he left the household to be on his own, he did not take care of himself, resulting in the amputation of his right foot. He knows it was entirely his own fault.He had it done 2 years ago and is doing very well. Your son's meds are helping his kidneys. Children your son's age are going to be diffecult to help because they want to be like their friends. Some of them "get it" and some don't. You have to be careful in how you handle it so that you don't alienate him. Hang in there and keep your head up! hugs to you!

northerngal 2012-03-31 14:16:07 -0500 Report

I was also diagnosed at age 10, but type 1 from the start. That was several years ago, but perhaps I can still help. It sounds like he should be using insulin, not oral medications, since the numbers are so high. As he goes through his teen years, there will be problems controlling things, because his body will be changing, maturing and doing the usual teen things. (growth spurts, moodiness, acne…all the things we remember) You have to remember that kids that age think they are invincible, that nothing has consequences and they'll live forever. Don't try to scare him, but be understanding. Explain why its important to monitor what he eats and how he adjusts his insulin. Part of the problem may very well be the high readings, it leaves you tired, thirsty, listless and just completely lacking in energy or the will to do anything. That is the D, don't blame him! Tell him how much better he will feel when it is controlled and all the activities he can enjoy with his friends. At that age, they do not want to feel different or "special" in any way, he simply wants to fit in. When its controlled, he can play sports, skateboard, etc. Tell him to make sure his friends know, so that if there is a problem, they can help. Most are willing to help, they just need to know what they should do. Emphasize what he CAN do, not what he CAN'T or shouldn't. Thats too much responsibility for a youngster of his age. Explain to his level of understanding, but don't treat him like a child, you may be surprised how willing he is to figure things out with some good information. It's rare that he'd be the only one in the community with it, and there are great resources for information. Most who've live with it for a while are more than happy to give pointers about dealing with it. Puberty will likely cause some control problems, but it sounds to me like he needs some insulin, a delivery system (I'm on a pump and love it) and education about how to control things. Good luck!

GabbyPA 2012-03-30 12:41:58 -0500 Report

At 13 there are so many things going on, this just adds to the mix so badly. I would say that at 10 if good habits had been formed, he might be doing better, but getting them enough food to grow on and not send them through the roof with spikes is a delicate balancing act, to say the very least.

This is where the whole family has to do what he needs to be doing. Everyone needs to be eating what he eats. Everyone needs to be doing exercise or fun things together. Everyone needs to not nag, but be the examples to him that this is a "normal" way of life. He is going to fight it I rather imagine, but if you guys are doing it, then he has no excuse.

If you guys keep foods for you around that he "can't" have, then you make him feel different in his own home, and that is very lonely.

What might be a good thing to talk to his doctor about is a pump. That way there is the ability to be a little more "normal" around friends.

As for the drugs he is on, I don't understand. If he is type 1, why is he on Actos? Is he taking insulin?

please help!!! lots of questions
please help!!! lots of questions 2012-03-30 18:43:57 -0500 Report

Thank you for replying. He does have the pump and the
Nurse told him that he could eat whatever he wants now:( I'm not sure
Why she said that to a kid!! He did better with the pens but was ALWAYS
Hungry so we don't want to go back to the pens if possible.and I feel
We all try to lead by example but he wants to be like his friends and eat
what they are, knowing its wrong he has started to hide it and then lie
to my mom. He has been put on actos and a low dosage of
lisinopril to help prevent any more kidney damage. This is what
worries me!! I don't know if its normal for a kid to already have possible
Kidney damage. or normal to be on these meds

GabbyPA 2012-03-31 10:41:52 -0500 Report

Yeah, I would have given that nurse that look of "shhh, don't say that"...never tell a kid they can have what ever they want to eat. YIKES! That just teaches them to up the insulin instead of watch the diet or exercise more.

Lisinoril is a "preventative" treatment and I think it is a "go to" drug for a lot of doctors even if it is not needed at the time. What I would do is ask the doctor to explain and to get some testing done on his kidneys so you guys know where he stands for now. Normal is a very relative word, and if it is something that is needed for him to function well, then it is his normal. Comparing notes is fine, but you still have to treat him on an individual basis.

The hiding stuff is going to cause trouble. So some clearing of the air may be in order. He needs to know that being honest doesn't get him into trouble. You all need to know what he is doing to at least be aware so that you know what to do if there is an issue. Maybe help him understand that it is not "wrong", but just not a good choice. It's hard to deal with life when you feel everything you desire is "wrong".

dietcherry 2012-03-30 17:07:23 -0500 Report

Hey Gabby. I dont think he is T1; I took her post to mean he is T2. I read recently that childhood cases of T2 now outnumber T1. So sad :'(

GabbyPA 2012-03-31 10:42:58 -0500 Report

Yes, it is based a lot in the foods we feed our families. All the processed stuff and junk foods are kicking that up a good bit I imagine. Not saying it's a fact, but that is where I feel there is a lot of trouble.

dietcherry 2012-03-30 11:44:11 -0500 Report

Hello! I really dont know what I could add to robertoj's on-target reply except to say that no child/young person should have to deal with D or any disease for that matter.
Your brother is at an age when there are so many experiences and accompanying responses that will shape him as an adult; D can feel like the end of the world to him at times and serves to make him painfully aware of his own mortality.

Attempt to be a positive and gentle influence on him in keeping himself in line with his health challenges. The good choices he makes each day will serve him well later in life. Plus he will learn accountability and discipline. Sports are a good way to sharpen these 2 qualities as well.

Good luck to all of you :)

robertoj 2012-03-30 01:41:55 -0500 Report

At his age it is hard. Dealing with diabetes makes him feel different and that can be an awful negative motivator. Diabetes is cruel and the unfairness can make him act out in anger. It is a delicate balance between prodding and pressure. Chronic illnesses can also include a depression factor. It is so challenging for the entire family and I will pray for all of you. I wish I could be more helpful.

please help!!! lots of questions
please help!!! lots of questions 2012-03-30 18:53:11 -0500 Report

Thank you for this!! I hate to say this cuz I'm not the one
living the daily battle but its so frusterating watch him lie and
and roll his eyes at my mom when she ask him to test before eating.
I feel he should know that it has to be done and do it with out a
fight. My mom and the rest of us tried what we feel is everything to
get through but I guess more patients and positive attitudes is what
we need to continue… I know he rebelling and have no idea how me
is feeling and it hurts me that I can't make it better for him.

robertoj 2012-03-30 19:15:44 -0500 Report

Make sure to take care of yourself. I spent years dealing with my daughter and her problems it was tearing my wife and I up. I was advised to accept that she is the only one that can change herself and that I should pray and place her in Gods hands. Our relationship has never been better. She listens but hardly changes her behavior. The improvement is small but we now have hope.

Caroltoo 2012-03-30 19:09:16 -0500 Report

You sound like a patient and concerned older sister. Think back to how you felt at 13. You probably didn't want anyone telling you how to do anything, it was all about your friends and you beginning to discover the world. That's where he is except he has the additional issue of trying to free himself of another layer of parental control around his medications/ food/ treatment issues that you didn't have to deal with.

That's why this takes extra patience and subtlety … he is a teen with blazing independence needs and out of control hormones which, incidentally, also mess with BG control. Should he know better? Of course, and he probably does, but he also feels the invincibility of being 13 and being sure he will never really be seriously sick or die. That's just part of being 13.

Be patient with him, continue to be encouraging, and a good example and help him live through the next couple years until he can hear you better and begins to care about himself.

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