At my Wits end.

By frogqtie2 Latest Reply 2014-09-12 02:54:27 -0500
Started 2012-03-26 16:54:49 -0500

I have had Type 2 Diabetes for aboiut 10 yrs and have always been able to cont4rol it, My numbers were in the 6s. My last 3 month check was 7.8 which isnt to awful. But med changes have caused my BS to get out of control. Most nights it is in the upper 400 or 500's. My metformin was increased to 1000mg twice a day. I am on sliding scale of insulin (Novolin). Any time the reading is over 120 i take a shot. I also have COPD and have been put on an inhaled steroid, which causes a rise in BS. I have cut out bread, potatoes, beans, fruit, and some mild products. I dont know what else to do to get my BS down to an acceptable level. Any help or suggestions would be apprciated. BettyQ

38 replies

patsy1972 2014-09-12 02:54:27 -0500 Report

I have diabetes and copd i need to stop smoking but I cant by myself i have tryed but it is real hard does every one a group or something i can do need help with this

liquorish 2012-04-16 17:01:37 -0500 Report

Beth: I am sorry. I forgot that my name is Liquorish, not Ghostie.

sadi23 2012-04-16 17:42:06 -0500 Report

They were also blessed to have you in their lives…love you always..Teri…I have been quite ill and not on any of the sites, I have missed everyone, sorry I had not gotten back to a few…but still getting strangth back…keep in touch I miss you…Trei

liquorish 2012-04-16 16:54:53 -0500 Report

Beth: Please, please do not quit eating potatoes, etc. You MUST replace them with things like whole wheat bread, sweet potatoes, whole wheat pasta, or even Dreamfields pasta that is supposed to have only 5 grams of digestible carbs per serving. I just bought some, so can't tell you if it works. Only one store in my home town carries it. I went on the good carb, bad carb diet but did not replace the white potatoes, etc. with other things, and my blood work got all messed up and took over a year to straighten out. You may need to go strictly over to insulin. I did about three months ago. I have been Type 2 for 17 years, and my meds started dropping my sugar too low. It has taken awhile to get it regulated back, but I think I am on track now. If you aren't seeing an Endocronologist, I would suggest doing so. And also an eye specialist to make sure the high sugars aren't damaging your eyes. It happens very quietly without warning. I have had 4 shots in my right eye since December because of high sugars. It took a while for the insulin dosage to get to the point it worked. I hope this has helped. Please let me know. Ghostie

frogqtie2 2012-04-16 17:52:31 -0500 Report

Thank you for your reply. I did treat myself to a baked potato the other day. Sweet potatoes are not one of the foods I care for. I do eat some carbs, beans, whole wheat bread, even a little pasta. I have always loved Pasta, thats a hard one to give up. My Doctor and I have discussed going to strictly insulin, and at this point we decided against it. If I can get it under control by May, then we are sticking to the plan I am on now. I have never seen a Endocronologist , and I have never to a dietition about how to control it with diet. Mostly I just muddle through. My numbers are getting better, usually between 150 and 250. Sometimes I am just so really tired. I already have cateracts and an appointment to see about having them removed. They will check any changes in my retina at that time. Hopefully that will come out fine. yes you have helped me a lot. Sometimes it is just good to talk with someone who is/has gone through the same thing. Betty

liquorish 2012-04-17 19:48:40 -0500 Report

It really helps to hear that others are having the same problems that I am having. I get tired of the whole mess, and depressed. Your tiredness could be from the high BS and also from trying to figure out what you can and can't eat. Hang in there. Your doctor seems to be on top of things. I would like to recommend a book called "Food Cures". It is not a book that says you can cure cancer with a certain diet. It is by a nutritionist and tells all the different vitamins and minerals a person needs, and how much you need, and what foods contain them. It has really helped me alot. How long have you been diabetic? What made you get your sugar checked? It is interesting to hear other peoples stories. Looking forward to hearing from you. Liquorish

annesmith 2012-04-03 02:08:39 -0500 Report

Anytime I have used a steroid, my blood sugars skyrocketed to the 400s and 500s, even 600s—a really good friend of mine was on steroids before he was diagnosed diabetic, and after taking them for severe asthma for several weeks, he got really sick at home one night and called 911. They took his blood sugar in the hospital, and it was locked in into the 500s—it would NOT come down—they gave him insulin for about 5 days, and his blood sugar fell down into the 90s and 100s then. They said the steroids are what caused his huge blood sugar spikes..he was then shortly thereafter diagnosed as a type 2 diabetic—he takes a pill for it—Glypycide I think. ANNE

frogqtie2 2012-04-16 17:56:28 -0500 Report

I know how easy this can happen. Hopefully everything has evened out for your friend. Your B/S can really sneak up on you. I am going to look u the pill and see what it does. Maybe something I want to discuss with my doctor. Thank you very much for the information. Betty

locarbarbie 2012-04-01 06:30:22 -0500 Report

Okay, prior to the pro-air, what were you using to control your COPD?
Do you smoke?
Has the pro-air helped your COPD to such an extent that it is worth having such elevated BS?
Is your Dr. aware of the difficulty in controlling your numbers?
Is it possible to substitute the pro-air for another inhaler (maybe Q-var) that would not raise your BSs?
What is your daily meal plan like?
Maybe one of us could offer some helpful suggestion if we had this info…it's awful when you feel like your body is going haywire.

frogqtie2 2012-04-01 10:41:39 -0500 Report

I have always used the pro-air, the flovent is the new one, I also use Albuterol 4 times a day per nebulizer and yes these do make a huge difference in the way I breath. Yes the Dr is aware of the problems I am having. He has modified my sliding scale. Now I take a shot anytime it is over 125. He tells me the yo-yoing is almost as bad for me as not taking anything. I am happy to say this morning it was 142. :)

frogqtie2 2012-04-01 10:43:04 -0500 Report

And yes I do still smoke. Have cut way back and use an electonic cigarette most of the time.

annesmith 2012-04-03 02:12:08 -0500 Report

I know the feeling—I have cut back to under a pack a day on most days for the last year, as, it backed me into a corner…ha…I had a light heart attack at age 35, and another one at age 40—I'm 41 now. It scared the crap out of me..just to show you how addictive nicotine is, you'd think I'd have just quit right after the first heart attack—I didn't—I'm afraid to tell most people nowadays, as I have had some people get really mad at me for not quitting—and have thrown me some really dirty looks. ANNE

frogqtie2 2012-04-03 04:58:41 -0500 Report

i seldom smoke in public, dont even take them with me when i go out. And yes you do get a lot of dirty looks. I know smoking isn't good for you, but I feel that my rights are being violated. If some one doesnt like it they should move.

locarbarbie 2012-04-01 13:14:41 -0500 Report

Betty, I am glad that your bs numbers are improving. I also use a nebulizer with Albuterol. And good for you for cutting down on your cigarettes, you will quit one day I am sure. I quit smoking cigarettes 8 months ago at the stroke of midnight while my grandaughter was spending the night. I had tried everything, hypnosis, cold turkey, Chantix…never ever thought I would quit. I did (and still do) use e-cigs to take the edge off. I plan soon to quit the e-cigs as well. I use the very least nicotine level at 0.6%. I have given myself a deadline of July 30th to quit the e-cigarettes. So…baby steps!!

frogqtie2 2012-04-03 04:59:54 -0500 Report

I like the e-cigarette it helps me a lot. I was a 2 pack a day smoker and and am now down to 10 cigarettes a day. slow procelss but i will get there.

pixsidust 2012-03-30 22:14:41 -0500 Report

I am so sorry. Have you been able to quit smoking? I know steroids are necessary with COPD. Sounds like something more needs to happen with the insulin

frogqtie2 2012-03-27 11:08:19 -0500 Report

yes I have had the steroid added within the last month. Also I take Acarbose with meals. so 3 aday. My BS this morning was 210.

annesmith 2012-04-03 02:13:34 -0500 Report

It sounds to me like you need a little more insulin, but, I am not a doctor. Maybe just a tiny bit more would bump your blood sugar down to more normal levels..good luck!!!!!—ANNE

locarbarbie 2012-03-29 07:26:01 -0500 Report

What type of steroid inhaler do you use?I use one called Q-var, does not seem to increase bs, however it's possible it would be lower without.

Do you exercise? That should help lower your blood sugar. This is the one area where I really struggle, but I know I need to make it a habit.

frogqtie2 2012-04-16 18:08:17 -0500 Report

I checked out the Qvar, it is also a inhaled steroid. It doesn't have any warnings about the use with diabetes, but that may be just because it has never been tested. I will see what my doctor has to say about it. Unfortunatle no I don't exericise much. I know I should but when i get to the point that its difficult to breath, I stop. :( Betty

jayabee52 2012-03-29 13:31:38 -0500 Report

I am familiar with Q-Var as my wife needed it for her COPD. Didn't know it was steroidal. As I recall she didn't have a rise in BG when she took it, but she was so brittle on so many areas it was hard to tell. I loved her intensely and would not have wanted anything bad to happen to her, but perhaps her death was a good thing due to her many medical challenges. I miss her and her vibrant personality immensely now that she's gone!

frogqtie2 2012-04-17 03:35:24 -0500 Report

I am so sorry about Your wife Jay, the kind of Love You and she shared is wonderful. Once in a lifetime thing. I am going to talk with my doctor about the Q-var and get his opinion. I would love to have something that doesnt affect my BS. Thank You. Betty

jayabee52 2012-04-17 19:17:00 -0500 Report

Yes it would be a great thing if you could avoid something which doesn't affect your Blood Glucose (BG) levels in a bad way.

Thank you for your condolonces Betty!

I am a man who has been doubly blessed, IMHO.

Jem passed from this life in July 2010 and now in 2012, I had been contacted by another lady "SQ" through the same website (Dating4Disabled) Jem had contacted me through. SQ and I have hit it off, and I know the relationship will be different than that of Jem and I, but I think perhaps it may be just as good.

Fortunately SQ doesn't have quite so many "medical challenges" as Jem did and our relationship shouldn't be so short lived as was that of Jem's & mine.

Dennis1963 2012-04-16 18:16:20 -0500 Report

Jay I am so sorry to hear about your loss. Sounds like she was as lucky to have you as you were to have her.

Your a good man.

locarbarbie 2012-03-29 14:24:40 -0500 Report

I use it also for COPD, according to the product information, it is a synthetic corticosteroid chemically related to dexamethasone. All I know is that for now it does help me and does not seem to raise my glucose level.

It is a beautiful testimony to your Jem that you miss her to such an extent. She must have brought you such love and joy in the short time you were married. I cared for my mother at home while she was dying from lung cancer. When she was diagnosed, they gave her 6 months to live. She died within 6 weeks, and really only suffered the last 3 days or so. She was a strong Christian lady and never showed any fear of dying. I believe God blessed her because her death was actually (hope this does not sound gruesome) quite beautiful. A hospital bed was just delivered for her that day. I was frantic for the hospice nurse to administer her pain patch, and shortly thereafter our pastor came and sang a prayer to her.. I knew she did not have much time left yet the nurse assured me that she had months to live. After the pastor left, I went in to check on her and she was gone. We may not always understand God's plan, but we can know that we will see our loved ones again.

jayabee52 2012-03-29 15:06:40 -0500 Report

I have done some intensive scripture study and I have been convinced by that study that we are together in heaven now. (of course I COULD be just be having wishful thinking). My physical eyesight is preventing me from seeing her at this time. But I expect that we are together in eternity with Jesus right NOW!

My Jem and I had been out the previous afternoon to get her a cortisone shot to reduce her Rhumetoid arthritus pain. She walked down the moblie home steps on her own power — quite painful for her. and we had just gotten home. I remember Jem being on the speakerphone with a friend and she was so tired she drifted off to sleep. I finished the conversation with our friend and hung up, and decided to let her continue to sleep. The next morning I tried to wake her and she already was cooling off. I am glad she passed so peacefully in her own home with her things around her, rather than in the hospital with all the machines beeping and the hubbub in the hall.

Your account wasn't gruesome at all but reminded me of a beautiful moment in Jem and my history.

Jem and I cared for her mom during the last days of "MommaG's" life. In fact that was when Jem & I were first "married". Jem had never been married before and now it seemed I was in Jem's life permanently. The hospice nurse told us that if MommaG was going to see Jem get married we'd better do something SOON! We got a wedding "service" together with family and a couple of friends and a hospital chaplain friend from Jem's past (student internship).

MommaG had not been responsive to anything for the past day and a half and was confined to her bed in her bedroom. We held the service in MommaG's bedroom and sometime during the service MommaG opened her eyes and smiled a large smile. Her daughter had gotten married and would be taken care of. MommaG died the next day. I expect that she was happy Jem was being cared for and could "let go" of her life.

We had another "show" wedding in March 2009 and finally got legally married in May 2009 in a small service at my former church in Las Vegas, with one of my favorite pastors officiating, (just before he moved to another congregation in Missouri).

Missing her as I do makes it tough on other ladies.

I had several relationship failures in the meantime because I was so focused on her. My current GF doesn't seem to be bothered by my mention of Jem, but she acknowledges that Jem is a "tough act to follow" But SQ seems to be confident enough in herself that she isn't threatened by my memories of Jem.


annesmith 2012-04-03 02:25:17 -0500 Report

I am heavily into scripture studies, too, and I have heard Jesus in my bedroom at night, I have heard my deceased father's voice several times since he died 3 years ago..they are not dreams—I'm positive—also, I have prayed very very hard to God for quite a few years, with huge huge positive response..I have found Him to be full of grace and extremely kind hearted. It's absolutely awesome to say the least. I lost count of how many times Jesus or God , or both of them , talked to me..this subject of course I can't really talk about at either of my jobs, so when I get the chance, I cherish it. I honestly believe myself that there are areas of complete HEAVEN on earth right here and now—I have experienced many of them. However, I have noticed there are some serious serious areas of complete absence of God, too—bad bad places. I personally think that God has already gradually separated us out—that He was nice enough to do it gradually—however, I strongly remind myself, " He very well might come down from up above in ANGER on a day we all do not know—so BE prepared." If I did not have God and Jesus, I'd be worthless..I'd probably be a terrible person , as, God is my life—wish I could be a better person for him, but I do the best I can everyday..ha..sorry to get off topic——-ANNE

robertoj 2012-04-03 02:54:22 -0500 Report

I remember that you spoke of Jem. I believe that it is much more than wishful thinking. I'm glad your new GF is okay with it.

jayabee52 2012-04-17 02:18:35 -0500 Report

One of them didn't like it much. But the current GF is OK with it (I asked her) as she shares about her ex husband too. I think it is cathartic to be able to talk about the good and the bad of our former spouses.

locarbarbie 2012-03-29 16:44:28 -0500 Report

SQ sounds like a class act also, you are very fortunate. You have certainly been through alot…thanks for all your insights.

jayabee52 2012-03-29 17:13:54 -0500 Report

I also think she is a class act and that I AM quite blessed in that I have found 2 such wonderful ladies. In fact I said to SQ this morning when she asked me how I was: "I am so blessed that if I had any more blesings, I'd have to be twins!"

Set apart
Set apart 2012-04-03 06:19:30 -0500 Report

James your stories are beautiful and your faith is just as wonderful! Thank you I needed to be reminded today and I was led to this discussion. God continues to tell me, "For I have plans for you…" there some days I forget to listen! I also believe in scripture as God calls his people we will be reunited with this those whom we've lost and there shall no longer be pain! Blessings!

edvel54 2012-03-27 10:09:42 -0500 Report

Has any other medication changed? I find every time I add or change a med, my BS goes out of whack. Are you on any other meds besides the Metformin…I have always been on some other support pill along with metformin

alesiafae 2012-03-27 00:13:55 -0500 Report

Are you taking the insulin before you eat? Try it if you haven't. Check numbers, take insulin if needed, wait 30 mins then eat. See if that helps.

frogqtie2 2012-03-27 00:40:47 -0500 Report

Alright, I will try this in the morning. Its usually over 200 in the mornings. Tonight it was only maybe it is going to taper off and stabilize. As always any help or suggestions are appreciated. Thank you.