out of control

By sarahlynn25 Latest Reply 2012-03-22 09:58:04 -0500
Started 2012-03-19 12:27:44 -0500

So Ive been diagnosed with type one for almost a year now and ever since I left the hospital it seems no doctor can get my levels under control, my first Dr never returned my phone calls so my parents and I has to try to control it by ourselves for over three months. I've finally found a new Dr who I really like and she seems to be getting them under the 400s but they're still getting In thr high 200s even when I take the correct amount of insulin. I am on the pod now which makes thingg a whole lot EASIER but my blood sugar is still rising to the 200s :/ I'm also losing weight and can't seem to gain any, which in my case is a bad thing. I only weigh 135 and Im 5'9". I dont know really what in doing wrong, I was hoping someone here might be able to give me some advice?

4 replies

BobbieNJ1000 2012-03-22 09:58:04 -0500 Report

Eric has already given you some great advice. It will be much easier if you can get a diabetes educator or endocrinologist who can work well with you, but it's still up to you to keep all those records, test frequently and really get to know what you are eating. Here are some things I've found helpful:

1) I use www.myfitnesspal.com - also an app for smartphones - to track my foods including recipes I make myself. Be sure to compare labels though when possible to be sure you've got accurate numbers. (There are other apps or you can do it on paper but this works great for me.)

2) I would be lost without my food scale, along with measuring spoons and cups. I rarely eyeball it if I can measure it.

3) Eating the same meals most days, at least for breakfast and lunch, really helps. It's harder when traveling or eating out, but when I can eat my usual foods, I know how my BG will react and I can bolus more reliably for it.

4) Think Like a Pancreas by Gary Sheiner is how I learned to adjust basal and bolus insulin. You can call your doctor for confirmation when you want to make a change to your calculations while you are starting out.

5) A spreadsheet for my calcs. I set one up on my iPhone and save it for each day so I can go back and look at each days BG, carbs, I:C factor, bolus, etc. It's helpful in case I don't do other logging for a few days.

It really is a lot of trial and error - and a lot of time! - unfortunately, but you really can get there.

Good luck and take care!

door331 2012-03-20 10:35:30 -0500 Report

Hi Sarah,

As you probably know the pump/pod gives you a lot more control over your insulin regulation. It simply takes a bit of time and a lot of trial and error to get the numbers set just right.

Now the weight loss is easy to explain- your BGs are running too high. Without insulin your body cant break down the energy in the food you eat so it looks for other ways to get energy— basically the fats and proteins in your body. When you get your readings under control you will be able to stabilize your weight.

To correct unknown elevations in my BG readings here is what I would do for myself— it sucks but if you do track everything it will help clear things up:

1) Log the food you eat. Keep track of the carbs specifically and make sure you are estimating your portion sizes properly. This is critical. Although not usually the healthiest- prepackaged food makes this process easier.

2) Log your BG readings more often— right away when you wake up, before every meal, 2 hrs after every meal, even 4 hrs after the meal if you don't plan on eating soon, also before you go to bed. The more frequently you test your BG the easier it will be to see "trends" where you are constantly going high or low throughout the day/night. This will help determine if your Bolus or Basal readings need to be adjusted.

Do that for at least two full weeks. The more the better. By testing frequently you will start seeing where your BG spikes during the day. This is pretty much the first thing an Endo will have you do because these logs are essential.

Now is the trial and error part- if you see that your BG is still high 2h after eating you may need to increase your Carb ratio for the bolus during that meal— BUT if you were to say—- skip a meal — and you see your numbers still slowly climb hours later in the day (or night) then your Basal is actually the culprit. It can be difficult to figure out which one is causing the high BG unless you are fasting for a period of time.

Working with your endo or diabetes educator should really help pinpoint this. But as I said- those logs help them do their job better and get you on track.

Hope this helps and feel free to send me a PM if you have any questions.

RitaLynn 2012-03-19 12:55:56 -0500 Report

Hi Sarahlynn, I would recommend going to an endocrinologist. They will send you to a diabetes educator, dietitian and will watch you closely. Are you eating the proper food? Proper amount? It is hard if you don't know how much to eat.
keep me posted on how you make out!

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