New A1C 3 months after diagnosis

Diabrettic
By Diabrettic Latest Reply 2012-04-04 01:24:22 -0500
Started 2012-03-07 18:45:16 -0600

After being diagnosed as type 1 diabetic in December with an A1C of 14.3, I got my new blood work results today - 6.4! I have worked very hard these past few months but wasn't expecting that. Now if only I can get the neuropathy in my feet straightened out. I finally got approved to see the neurologist in 2 weeks. 2400 mg of Gabapentin a day did nothing. Tylenol with Codeine did nothing. All the supplements I've been taking have not helped with the pain. The only things that have bought me an hour or two of relief have been medicinal marijuana, acupuncture, and soaking them in icy, cold water for 5 to 10 minutes…but I digress. I hope everyone is having a wonderful week and I want to thank everyone who has given me advice over these last few crazy weeks.

-Brett


44 replies

BobbieNJ1000
BobbieNJ1000 2012-03-10 15:13:36 -0600 Report

Wow! Congratulations on that great work getting the A1c down to 6.4 so quickly! You're an inspiration! I really hope you can find help for the neuropathy. Looks like you've gotten some ideas to try.

Anonymous
Anonymous 2012-03-10 06:47:21 -0600 Report

congrads on exellent ac1 .proud of you on working hard on getting it underconrtol good luck on getting the neuropathy straightened out in your feet.sorry to hear you have that issue with your feet.

Caroltoo
Caroltoo 2012-03-08 16:01:21 -0600 Report

If you are going to take alpha lipoic, which did help me also, then take Biotin also. Alpha Lipoic depletes the Biotin in your system. If you take 2x600 of alpha lipoic (1-am and 1-pm) also take 5000 mcg of Biotin at one of those times.

Lizardfan
Lizardfan 2012-03-08 15:49:45 -0600 Report

Congrats on lowering your A1C, that is amazing in such a short time. As for your foot pain I will suggest something so simple you won't believe it works. My husband had shingles on his head, ear, neck and scalp. He had nerve damage from that and the burning sensation nearly drove him out of his mind. He tried all kinds of prescription meds and nothing worked. A friend told him to get a bottle of Absorbine Jr. antiseptic. It comes with a sponge type applicator to apply it. He used that and it numbed the pain and gave him relief. Just a thought, hope you get something to help you deal with your pain.

jayabee52
jayabee52 2012-03-08 15:52:03 -0600 Report

I don't think I'd heard that before Liz! I'll have to try it! It is amazing what one learns here!

Lizardfan
Lizardfan 2012-03-09 12:32:33 -0600 Report

It really works too! It numbs the pain enough for him to get to sleep or relax a bit and get some relief. His pain has subsided a lot, hoping it will help someone else.

Young1s
Young1s 2012-03-08 11:12:13 -0600 Report

Congratulations! That is an awesome drop. Hopefully the neurologist has an answer for your pain. In the mean time, keep doing what you're doing because it's clearly working.

locarbarbie
locarbarbie 2012-03-08 08:21:37 -0600 Report

Congrats…that is a fantastic achievement! I too believe that you should notice an improvement due to keeping bs under control. It may take a little while though. What I would caution you about however is soaking your feet in icy water. I understand it offering relief, but I feel it may be even more detrimental in the long run. That is good to know that marijuana helps, I would stick with that or the acupuncture until the ALA offers improvement.

Diabrettic
Diabrettic 2012-03-08 14:20:50 -0600 Report

Hi locarbie, thank you for your input. I hope that you are right regarding relief from the neuropathy in time. May I ask why you feel that icing them in water will be detrimental? I don't think I could take it if it got any worse. And I certainly don't want to be doing anything to worsen it.

locarbarbie
locarbarbie 2012-03-08 15:01:26 -0600 Report

Here is another idea…Go to the home page and on the right hand side is an area for you to click to speak to the experts. You can actually ask a physician this question rather than taking my word for it. I am very interested to know what the "correct" answer is.

Diabrettic
Diabrettic 2012-03-08 15:05:01 -0600 Report

That is a great idea. I will do that, and I'll let you know what what he/she says if and when I get a response.

locarbarbie
locarbarbie 2012-03-08 14:53:46 -0600 Report

I may be wrong…I am not a medical professional, but it seems to me that icing your feet is almost like recreating a situation inducing frostbite. Your circulation in the feet is already impaired, I feel this would just be exacerbating things. Hope this helps.

jayabee52
jayabee52 2012-03-08 15:04:03 -0600 Report

I haven't tried it myself yet, but I have heard that capsaicin creme helps with the pain.

It would seem counterintuitive that something which heats the skin would cause the lessening of the burning pain

Diabrettic
Diabrettic 2012-03-08 15:20:25 -0600 Report

Thanks, James. Worth a shot. I haven't had very much luck with cremes. Most do nothing for the pain and some make it worse by the horrible burning they cause. I will pick some up and give it a try.

jayabee52
jayabee52 2012-03-08 15:38:59 -0600 Report

if you do try it, be very careful and apply it to a very limited area. I am a bit of a chicken (bad experience with bengay on a very sensitive organ {enough said about that} as a teen, so I am doubly cautious now)

Diabrettic
Diabrettic 2012-03-08 14:58:41 -0600 Report

Okay, I will be extra aware of any worsening or negative effects from soaking them. I will also ask the neurologist what he thinks. Thank you very much.

Gabby
GabbyPA 2012-03-07 19:20:43 -0600 Report

Now that your sugars are in better control, the neuropathy may lessen as well. I find that when my levels are better, I have less pain.
I take also liquid B-12 and 600 mg of Alpha Lipoic Acid twice a day and that has helped me a good bit.

The A1c is a great improvement, so be patient with it all. It does take time.

Diabrettic
Diabrettic 2012-03-07 21:59:52 -0600 Report

Hi Gabby, I hope that you're right. Funny you should mention, I just ordered Alpha Lipoic Acid last night. I already take liquid B-12. I find that the B-12 does boost my energy a bit. I hope that I have the same results that you've received. I was going to do 300 mg daily of the Alpha, but that seems pretty weak compared to the 1200 you take! I'm desperate and will try anything so I appreciate the suggestions.

chayogarza
chayogarza 2012-03-07 22:40:37 -0600 Report

ALPHA LIPOIC ACID I COULD ONLY FIND 200 MG. I WILL LOOK ELSEWHERE.WHAT IS THE RECOMMENDED DOSE FOR IT?

jayabee52
jayabee52 2012-04-04 01:24:22 -0500 Report

I have taken 1600 mg per day (total) along with 5000 mcg of Biotin, and noticed a reduction of my neuropathy pain. I have since run out of the ALA and need to get more. I have noticed the pain in my legs getting stronger now that I have been off the ALA a whlie.

suziesgirl
suziesgirl 2012-04-03 20:47:20 -0500 Report

Please read the book Diabetes without Drugs by Suzi Cohen. You will be so glad you did. so many of your questions will be answered there. You can purchase it on Amazon or rent it from the library.
Best wishes
Sandra

Gabby
GabbyPA 2012-03-09 14:05:28 -0600 Report

I get mine from http://www.swansonvitamins.com/ and right now you can get the 300 mg of ALA on a BOGO. So I take two at a time and I get a free bottle. It worked out to be a good deal. They offer them on a changing basis. Give it a try.

I get my 600mg from there as well...It just worked out the BOGO was a good deal.

Caroltoo
Caroltoo 2012-03-07 22:54:00 -0600 Report

I use 600 mg in the morning and again in the evening. It does deplete your biotin, so be sure to take 5000 mcg Biotin, if you are taking 1200 mgs of alpha lipoic.

Gabby
GabbyPA 2012-03-11 10:31:05 -0500 Report

Thank you for the article. Now I know why my hair is falling out! LOL
Seriously though, Carol is saying to take 5000 mcg...the recommended dose is 30 mcg. I know they tend to under dose on the bottles, but that is a huge difference?

It is also known as B7 and I take a B complex. But B-7 is not listed...so what is a gal to do?

jayabee52
jayabee52 2012-03-11 10:36:36 -0500 Report

As I understand it the Alpha Lipolic Acid uses up a lot of the biotin. I had taken ALA without taking biotin for a while, but when I started supplimenting with the biotin, my results improved.

Gabby
GabbyPA 2012-03-11 10:39:43 -0500 Report

How much do you take? I have been on ALA for almost 6 months now...I like what is happening, but I would like better if I can.

Harlen
Harlen 2012-03-07 19:15:32 -0600 Report

Way to go
I know you worked hard on that wow
It takes time for the meds to work on pain at least for me it dose
But I still live with pain every day ,not from D but living very hard lol lol
Best wishes
Harlen

Diabrettic
Diabrettic 2012-03-07 21:55:39 -0600 Report

Hi Harlen, thanks for the encouragement. I hope that your pain will improve and that you will be able to manage it.

Caroltoo
Caroltoo 2012-03-07 18:59:38 -0600 Report

Looks like your hard work is showing up in a great A1c. Sorry the neuropathy is still such a problem.

Some of the supplements I take did take 3-6 months before my discomfort was gone. Mine wasn't painful. I just felt like I was walking on a golf ball and, since walking is my primary form of exercise, that was an issue.

Diabrettic
Diabrettic 2012-03-07 21:54:05 -0600 Report

Hi Carol. Nice to hear from you. Thank you for the reply. That is an interesting analogy about the golf ball. And I hear you about it being an issue. The stationary bike was my main form of exercise, but I haven't been able to wear shoes in almost 4 weeks. On a good day it feels like I'm walking on hot asphault. On a bad day it feels like walking on sharp rocks. My Aunt has some minor neuropathy from chemo. She says it's just numbness in her fingertips and that it is more of an annoyance than actual pain. My doctor told me about one of her patients who describes his neuropathy as walking on a fiery cactus. How horrible that must be. It reminds us that things can always be worse.

Caroltoo
Caroltoo 2012-03-08 16:00:40 -0600 Report

Does a numbing spray or ointment have a positive — though temporary — effect?

If you want to try suppliments, I listed a few I use further up in the discussion. I really do think they are helpful, though not fast and not necessarily a cure. You sound like you are at the point where just having less would be better!

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