I have a Question...I also want you to know me better~

KarynCandy29
By KarynCandy29 Latest Reply 2015-02-21 18:02:03 -0600
Started 2012-03-07 14:11:10 -0600

****If for some reason this can't be posted here I'm sorry****

When I found out I had type 2 D,and went to a 3 day course to learn about it(it was more like 2 1/2 days)..was not much help at all..did any of you have to do this ? And did it help you?
I am in Canada..in Quebec,Where everything is French..I'm not! anyways the people who taught the 3 day course did try but explaining things were hard for them at times not saying the right words..then with what I call the( language Police) this woman kept correcting the words the Dietitian & nurse were pronouncing wrong..needless to say I didn't get much out of the 3 days..ect..ect..ect..then to find out on the last day something they talked about to us we all misunderstood what she had said..so I sat there being numb and feeling depressed…

I did explain to the Dietitian & nurse at times it takes me a longer then most to soak things in..due to 2 Traumatic brain injuries,with being in a coma for the first one at the age of 15.(my doctors know about this not sure if they did)
I was also born with brain abnormalities…so here I sit… it's been one of those days no matter how much I read up on diabetes ,I'm feeling so LOST..helpless..did any of you feel this way..or do feel this way from time to time?

Thanks for listening!


61 replies

Old-n-Grey-n-Wiser
Old-n-Grey-n-Wiser 2012-04-04 16:06:36 -0500 Report

Oh the joy of living in Quebec where the only language accepted is French, many of our friends here in the states do not realize that the Province of Quebec is totally French and English is very much frowned upon

KarynCandy29
KarynCandy29 2012-04-05 09:54:46 -0500 Report

some day bill 101…will be no more~and I'll do my happy dance~

Old-n-Grey-n-Wiser
Old-n-Grey-n-Wiser 2012-04-05 10:13:36 -0500 Report

I get a Fire dispatcher on my scanner, he has to give the address to each call in both french and English, the other day I heard the call in french then he said " I don't know how to say it in English", both funny and scary
Tom

nanaellen
nanaellen 2012-03-12 21:29:51 -0500 Report

I took a 6 week course when I first found out. Didn't learn ANYTHING except don't eat sugar!! Everything I've learned came from THIS site!! I've had D for 6 almost 7 years and they kept telling me " Oh you'll get used to it!" Guess what? NOT!! I didn't learn about shorter needles and the "angle" to put the needle in until I found THIS site!! All ya gotta do is ASK!! We're all here to help each other because people without D have NO IDEA!! I vent here all the time!! Great people!! We've all "been there done that"!!

Sopies Grandma
Sopies Grandma 2015-02-21 18:02:03 -0600 Report

Its the same for me, I have learned more here on this site than I have ever known from doctors or anyone. I have taken several classes on diabetes, but I am still learning.

Just Joyce
Just Joyce 2012-03-12 15:51:13 -0500 Report

Karyn, everyone has a style of learning. I am visual so if there are no visuals I am not going to get it the first time around. I didn't have to go to a class to learn about diabetes although it would have made my first month of being diagnosed easier. I got a lot of information on line and from books that I bought.

I talked to a friend who is a registered dietitian who is a great help. I also talked to my pharmacist and friends and family who are diabetic. If you are feeling lost, look for information at www.dlife.com, www.diabeticliving.com, www.eatingright.org, www.diabetes.org I use them all the time. I also liked Diabetic Living on Facebook and get information on a daily basis.

jayabee52
jayabee52 2012-03-12 15:58:18 -0500 Report

Karyn the 3 main learning styles are (in no particular order) 1, visual, 2, auditory 3, tactile (manipulating things). With a bit of thought you might be able to determine what is your main learning style.

MykenziePamala
MykenziePamala 2012-03-11 10:51:55 -0500 Report

My daughter was 8 when she was diagnosed with Type 1, We had multiple classes to go to and it just seems overwhelming. To tell you the truth I was scared out of my pajamas! What if I screwed up, what if I counted wrong, so I just started reading every book I could find and Joined the DC community. You listen and listen and it takes a lot to absorb it. I think it is great you have joined our community, with so much to learn it really helps having someone to talk to. Dealing with Diabetes can be frustrating, very frustrating. Hope you use this site to help you out, it helped us. Reading posts we found out things that would potentially raise MyKenzie's blood sugars and after a few tries we verified that French Fries, Pizza and Oatmeal were her bad blood sugar spikers. But if we combined certain things like protein with these,or cinnamon in oatmeal, the spikes weren't as bad. DIABETES IS A HUGE SCIENCE EXPERIMENT!! We found the "Calorie King" Book great for figuring out carbs for all your foods. Hope all is well with you and I hope this helps.

KarynCandy29
KarynCandy29 2012-03-13 11:36:50 -0500 Report

Thank you so much for taking time to reply to me post, your daughter is very lucky to have you for her mom!!!
I will look for the Calorie King book sounds good..
I'm getting to the point that I feel like I should just eat the same thing for breakfast, lunch, supper and leave it at that..I just don't know …the deeper I get into it all the more I feel overwhelmed …or maybe it's just a brain fog day for me today…
Tomorrow will be a better day~:0)
Karyn

Gabby
GabbyPA 2012-03-11 11:25:17 -0500 Report

You hit it right on the head...."diabetes is a huge science experiment" That is so very true. I call myself my own guinea pig. LOL One thing is for sure, you get to know how the human body functions more than a lot of folks do.

Young1s
Young1s 2012-03-11 11:06:41 -0500 Report

Yes it is! And can be a fun one if you go at it with the right attitude and a willingness to try.

Lakeland
Lakeland 2012-03-10 08:52:21 -0600 Report

me too where I got angry was when I went to the classes & it was 6 classes. the rules changed from when my dad was diabetic years ago, so I went in thinking I knew alot & they kept telling me I was wrong. I told them they either lied to my dad or they lied to me.

after stating my views I opened up to the new classes & I did learn alot & much of it helpful. the classes gave us a chart. to write all foods down they required snacks & then blood testing before I ate then 2 hours after. it took several weeks to get my numbers down.

as an infant I got encephelitis & had seizures for 6 years I wan't supposed to make it to the age of 2 but I did & I have very bad memory & sometimes smells triggers wierd thoughts. some think it's a mild seizure.

but I turned it into a science experiment. trying the foods then testing later figuring out what foods spike my sugars & which foods dont. then I'd go for a walk & test again & see how my numbers could drop 30 points just by a walk.

the only thing I watch any more, is the carbs. I choose my carb, if I want dessert, I skip fruit & bread, if I want the pasta, I choose the higher fiber pasta 4 or over. & skip bread.

the high fiber items take you body a longer time to break down & the numbers won't spike. I learned for me fruit is a big spike for me, so I don't have it often & when I shop for it I purchase the small apples, small banana's ect.

I walked alot now I can't with my bad hip but I lost 40 pounds & dropped my aic from 10.3 to 5.5

Best wishes'
Diane

Dr Gary
Dr GaryCA 2012-03-10 08:52:18 -0600 Report

Hi Karyn!

It is great to meet you. I am looking forward to getting to know you better@

I am sorry to hear that had this experience. It sounds like a lot of things were going on in the class, including some cultural issues. But the bottom line is that you did not get what you needed.

One thing you might want to keep in mind is that we all have our own unique learning styles in terms of how we need to be presented with information in order for us to learn. Here is a link to a discussion I posted awhile back on learning styles:

http://www.diabeticconnect.com/discussions/9101-show-tell-what-s-your-learning-style

It might help for you to get a sense of how you need to be presented with information. Do you need pictures? Examples? And then, when you are talking with your practitioners, ask them to present the information to you in a way that you are most like to take it in. Of course, they can't completely change they way that they present it. But if you need a list, for example, you might ask your practitioner to help you to create one. Or ask for an example.

It might also help to come to your meetings with your practitioners with a list of questions. And then jot down their answers. Sometimes we have to help our doctors and nurses to help us.

I am glad you are here. Diabetic Connect is the most incredible group of people. I hope that you will stay in touch!

Gary

KarynCandy29
KarynCandy29 2012-03-12 08:07:09 -0500 Report

Dr Gray,
Sorry it took me so long to answer your post ,I was taking part in a project study for medicAlert..Thank you for your post , you gave me some great advice..and good idea's..I have not looked at the link you posted for me yet..but I will! Thank you for your kindness and answering my post~ Hope you have a good day!

Karyn

Armourer
Armourer 2012-03-09 00:14:14 -0600 Report

I've had diabetes for nearly 14 yrs, and my wife still shakes her head because I still don't get some things, even after she has explained them again and again. If there is something you don't understand or have questions about, just post it here, and folks come out to give their experience, knowledge, and help.

TsalagiLenape
TsalagiLenape 2012-03-08 12:38:41 -0600 Report

I do often times its when I call having a duh moment. So tis normal for most of us. However with the trauma you been thru, the language gaps, tis no wonder you didnt get much out of it. So now you come on here and ask ok? I did an eariler post which mentions using 3 x 5 cards. That may help you. Hugs

Jim Edwards
Jim Edwards 2012-03-08 11:36:23 -0600 Report

KARYN, when first diagnosed, I don't care what language you speak or what language you are taught in, it is usually Greek to most people (sorry if there are any Greeks on here, not meant to offend). Why? 1) we are trying to adjust to this life sentenance we have been given 2) We are trying to understand the magnitude of adjustments (fruit is good for you, so we have been told, but now we can only have 1 piece a day and it is better if that is divided up into 2 servings!) wE WERE ALREADY EACH HEALTHIER (whoops) bread, and now we are "allowed" 1, maybe 2 pieces a day. We started our day off right with a bowl of cereal, high in fiber, now, because of carbs, we have to cut that bowl in half and leave the table half starving. it is tough when we were taught one thing, made adjustments to improve our diet, then get the D sentenance and have to start over again. Without any brain trauma, I am still adjusting, still absorbing, and still pretty ignorant at times about the big D.
Oh, as far as posting, as far as I am concerned if it concerns your health, mental, physical, spiritual, emotional, psychological or any other "al" you are welcome to post it and ask. A nice thing about this site is that if you have something you consider really personal and you have made friends with someone, you can PM them and have correspondance away from the public post.
Take care, with hugs, Jim

Jan8
Jan8 2012-03-08 10:27:45 -0600 Report

Yes Kayrn, we all feel lost at times. Just stay with us and you will learn all about diabetes type2. There is lots of information here. Sometimes you will have to read many times for it to soak in. Don't worry we al learn at different speeds but just know it really doesn't matter because once you learn something it will stick with you. Your reaction to this disease is quite normal. Go to diet and you will learn how to eat. Make sure you take your medication with food.

jigsaw
jigsaw 2012-03-08 08:34:42 -0600 Report

Karyn…I believe most of us if not all of us feel lost, confused, and frustrated with their diabetes at times. It's is an extremely complex disease that can have a multitude of effects on ones body. Over the years, and as my diabetes progresses, I have had to modify my diet, and meds from time to time to keep keep my bgs well managed. After 18 years of diabetes, I am still learning, feeling frustrated at times, but always managing to get my bg within a comfortable range so far. It seems to me that your feelings with diabetes are not unusual at all.

KarynCandy29
KarynCandy29 2012-03-08 09:02:03 -0600 Report

Jigsaw…Thank you for taking the time to answer my post and for helping to put my mind at ease..Thank you for your support!

Type1Lou
Type1Lou 2012-03-08 07:56:35 -0600 Report

There are lots of great books out there that can help you understand your diabetes. One in particular changed my life: "Diabetes Solution" by Dr. Richard Bernstein. Suzy Cohen's book "Diabetes Without Drugs" also offers some good insights, particularly for Type 2 diabetics. There's a fount of information out there and living with diabetes is a continual learning process…not only about diabetes itself but about how your body deals with it. After 36+ years, I'm still learning. This site is an excellent source of information and support! Welcome/Bienvenue to the community!

KarynCandy29
KarynCandy29 2012-03-08 08:37:33 -0600 Report

Hey Type1Lou,
Nice to meet you!

Thank you for the welcome, I will be sure to look into the books you suggest
I agree with you the site has been wonderful for learning and getting extra support to help hold one up when one feels they can't take another step..
Do you mind me asking are you from Paris?

Type1Lou
Type1Lou 2012-03-08 09:27:54 -0600 Report

No but my Mom was from Quebec and I still have many relatives there. I was lucky enough to grow up in a bi-lingual household in the US and acquired my French effortlessly, as a child. As a child, we used to spend at least a summer month staying with relatives in "la belle province", where I was able to use my French. I also chose to major in French at University. I'm still quite close to several cousins who live in Bauce and La Mauricie. Recently, I've tried to learn Spanish but my old brain isn't as receptive as it used to be (or maybe I'm just not willing to devote enough time to it?) so I can understand your frustration with language.

jayabee52
jayabee52 2012-03-08 00:21:17 -0600 Report

Howdy again Karyn! I feel for you having to take your diabetes class with the language barrier like that. But even without the language barrier, I didn't get much out of my 2 half-days of classes in 1995. I sat there for hours straight feeling numb on the bottom and dumb on the top! They presented so much at one time it was like trying to take a drink out of a fire hose with the nozzle turned full on!

Do not feel like you are less a person, Karyn, as I felt like that even though I had a Masters degree, and had been working as a CNA in the medical field for a while.

I like this method of learning that we get on DC much better.

I note that Harlen urged you to ask questions below. I second that! I feel that the only "dumb" question on DC is an HONEST question which is NOT ASKED!

Blessings to you and yours Karyn!

James Baker

KarynCandy29
KarynCandy29 2012-03-08 08:02:30 -0600 Report

Hello again James,
I love the Metaphor you used "taking a drink out of the fire hose with the nozzle turned on full "..yeah that sums it up nicely..I love your way with words..
funny how an illness can take us and turn us upside down..As I read your post to me ..(It reminded me of a time when my children were growing up, and I use to tell them there is no such thing as a dumb question) Well I will be sure to ask those dumb question ;0) and I won't feel badly for asking them..Thank you James you, as so many have helped me along the path to becoming the whole person I was before and who can say she is feeling better about herself with the support you all have giving me in the short time I've been here..I will be sure to pay it forwards…
Blessings to you and yours James

*****Alert**** Be forewarned people the dumb questions are coming ;0) (just joking)LOL

vivdg88
vivdg88 2012-03-07 21:03:23 -0600 Report

i never took classes or even was talked to about being A diabetic. doc just said look on line that should help ! well i'm learn n stuff the hard way by myself. what to eat. what not to eat. always try n to think positive but that's just me ive always looked on the bright side. : )

Harlen
Harlen 2012-03-07 19:22:49 -0600 Report

Hello
If you have any Questions please ask
There is a LOT to know and we all know a bit and are always happy to help
And yes I still feel that way from time to time
Best wishes
Harlen

Gabby
GabbyPA 2012-03-07 19:26:29 -0600 Report

Hey buddy, I have not seen you for a while. Hope you are well.

Harlen
Harlen 2012-03-08 10:22:35 -0600 Report

I spent weeks going thrue the things here and that was some time ago lol
So much info and from others that live it just likr you are ,it was such a help
So if you can not fined what your looking for just ask some one will know or know how to get the info .
Best wishes
Harlen

Gabby
GabbyPA 2012-03-07 18:46:17 -0600 Report

I went to a 9 week course, one day a week and it was very helpful for me. I shared my notes from the the classes here so maybe that will help out. I don't speak French, so it's all in plain old English. http://www.diabeticconnect.com/discussions?query=TCOYD+class
There are 7 discussions you can check out. Read the replies as well, as there is more information in those from other members.
I hope this helps you out.

KarynCandy29
KarynCandy29 2012-03-07 21:33:37 -0600 Report

Gabby, wow 9 days ,I wish I could of done something like that..I think it would of helped me a lot more .. I'm so glad you speak in plain old English …hehe..
Thank you so very much gabby this is very nice of you..I will be sure to check out the discussions!!!
I will be sure to let you know if they do help..thank you for your kindness~

Caroltoo
Caroltoo 2012-03-07 18:56:48 -0600 Report

I like that. One day a week is an amount of information you can take in and process. Nine weeks gives you time to make mistakes, ask questions, and try course corrections.

I saw a diabetic educator three times over about 6 weeks and did something similar. Since it was one-on-one, I did get my questions answered and have used a lot of that information as I've tried to find my way through this puzzle. The d.ed. was much more helpful than the doc I was going to at the time. He was sincere and concerned, but not too knowledgeable. As least he did call an endo to consult with him about me.

Gabby
GabbyPA 2012-03-07 19:01:06 -0600 Report

I got so much out of the class and was sharing things with my doctor. Crazy, but true. The class was through "Taking Control of Your Diabetes" and they are a wonderful organization. They have a lot on their website as well. http://tcoyd.org/

Irish1951
Irish1951 2012-03-07 17:22:36 -0600 Report

Welcome to our community! What you have experienced is probably no different from what many of us have had to deal with. Be assured that you will more than likely get more information from the people here than from most classes anyone can send you to. The members have been thru so many varied situations that you will be able to get the help you are looking for. I know that it all seems so confusing and often you get conflicting information. As you go on this journey it will get better. Ask any question here and someone will answer. There will be days when things don't work and nothing seems to be going right- we all have those. We will support you.

KarynCandy29
KarynCandy29 2012-03-07 21:46:03 -0600 Report

Irish,Thank you for the warm welcome and for the encouraging words..It's nice to know I'm not alone and I don't need to be shy about asking anything to do with this darn illness..nice to know I have others to lean on,who are very much just like me..I hope I can support you and the others as well..
Thank you for your kind words!

pixsidust
pixsidust 2012-03-07 21:49:08 -0600 Report

I learned 90% here. The other ten cause my grandpa was Diabetic.
I am very much still learning so ask away and more than once too.
So glad to have you here and have your friendship

pixsidust
pixsidust 2012-03-07 15:49:01 -0600 Report

Some things I get quickly, some things take time to soak in and others never soak in. I never get them and do not want to…like Economics.

Get the basics…take your time. If you are an auditory learner read out loud. I can do nothing in total silence. I need sound! My son is the same way.

I can not imagine having that much info being crammed at me. I would give feedback to the course about the translator being a distraction.
Yes I have days I do not want to absorb any Diabetic stuff.

This book is wonderful. Its full of bright pictures and chapters are just a few pages long written in plain language on everything

Type 2 Diabetes Your Questions Answered

A Comprehensive Guide to Living Well
Rosemary Walker - Author
Jill Rodgers - Author

There are some good copies cheap on Half.com that may help you
http://product.half.ebay.com/Type-2-Diabetes-...

I have heard the brain is a wonderful thing
with the possibilities of healing…I pray healing to you

KarynCandy29
KarynCandy29 2012-03-08 08:22:46 -0600 Report

Hey Pixsidust,
Thank you for taking the time to answer my post, You and I sound some what alike..:0)
Reading out loud, hummmm…never thought of it before, sounds good to me ..I will try it, thanks for the advice…:0)
I did order that book from chapters here in Canada,but because I live in Quebec I could not get it because I wanted it in English and not French..I will try the place you talked about and see if I can get it through them..( some books stores will send and some won't..all depends..
Thank you for your kind words

pixsidust
pixsidust 2012-03-08 13:53:51 -0600 Report

I found this as cheap as 75 cents with 3.49 shipping
in the link I put here for you.
Its so bite size with each element and chapter with lots of pictures
that its easy and enjoyable for my mind to wrap around.
I have allot of books but this is the best and my favourite

Young1s
Young1s 2012-03-07 15:40:44 -0600 Report

I went to two 1 day diabetes education classes, at different times. But because they both happened 2 1/2 - 3 months after I joined here, I didn't feel like I learned anything new from either of them. Basically everything that they had to suggest I was already learning about and putting into practice because of all the advice I had picked up from this family. That's why I'm a true believer in the phenomenal support and wealth information received here. This place really does work. Does that make me a DC groupie?

Young1s
Young1s 2012-03-07 15:44:46 -0600 Report

Oops I forgot to answer your question. I have hit the information overload wall a couple of times. When that happens, I find it best to just focus on the one thing I can work on within my control. And right now, for me, that's working on my BG's.

Caroltoo
Caroltoo 2012-03-07 14:56:53 -0600 Report

When my BG is high, I feel very much like that. One of the reasons I make sure it isn't high! Don't like the feeling at all!!!!

I, too, have had a traumatic brain injury. I was having a great time slalom skiing on one of Idaho's lakes when the boat swerved suddenly (necessary) and I was on a long tether and swung up beside, then in front of the boat. Toed in a little as I began to decrease speed after this 40 mph whip and did a 1 1/2 flip in the air. I landed on the back of my head/neck with my chin tucked into my chest. Passed out for a while (good reason to wear a life jacket, otherwise I wounldn't be here anymore) and had a concussion. A few years later the trauma was reactivated by whiplash during an auto accident when my sports car was hit from behind by a truck.

Healing definitely takes time and patience. A good place to start is keeping your BGs down. How are yours doing?

byrun
byrun 2012-03-07 14:37:23 -0600 Report

When I was first diagnosed I dived into reading as much about diabetes as possible. A self inflicted information overload. No brain trauma but I think I may have "half-heimers". The educator I met with didn't help much either. Not her fault because I didn't know which questions to ask. When I joined this community I spent and still do spend most of my time reading the postings from other members. I have learned more here than elsewhere from people that are living this life every day.

KarynCandy29
KarynCandy29 2012-03-07 14:50:14 -0600 Report

Thank you for answering my post ,,,I am trying to take it in..being here does help,I have been doing a lot of reading as well..I really like it here think I'll stay if you guys can put up with me..I can be a hand full at times…LOL

CWMecca
CWMecca 2012-03-07 14:58:52 -0600 Report

Welcome to the community! I was diagnosed last August and have gotten NO help from any doctors at all. I don't have insurance so that makes things difficult. I did talk for a bit with a diabetes educator at the hospital but even then didn't learn enough. I've learned some things here, some at another linked community. My problem is that I have Type 2, heart disease, high BP and high cholesterol. I'm still trying to figure out what I can and cannot eat and how much to satisfy all these different diets. It's frustrating and confusing.

Nick1962
Nick1962 2012-03-07 15:33:38 -0600 Report

Same story here. Everything that was presented to me was simply clinical, and the support group was nothing more than a pity fest. It wsasn't untill I joined a diet group that i learned how to control diabetes. I'm a T2 with the same high BP/cholesterol issues, and heart disease runs in the family. Hopefully now that I've managed to get some control, it won't rear it's ugly head.