Do you find that people are not very honest or open about the amount of insulin they take or their numbers?

By nzingha Latest Reply 2015-10-19 00:48:47 -0500
Started 2012-02-17 05:17:28 -0600

I find that when i ask people how much insulin they take, more out of trying to find out how doctors determine this, they never really tell you outright. It's a beating around the bush and trying to justify and the same goes for many when you ask for their numbers? Is this an experience anyone has been having? I have for example this diabetic partner and he lies to me everytime. i am recording what he says and he doesnt even know.Each time he gives me a different figure. He's been on insulin for 27 years…whats the big deal?

39 replies

cavie2 2012-02-18 05:18:48 -0600 Report

I started on insulin on 4th Feb 2011 at 10 units at night time and kept taking lows in the middle of the night, waking up and feeling weird after testing it was really low. I was told if it bothered me just to start taking it in the mornings. I was also advised if my BG was still too high to increase my insulin by 2 units and check it every 3 days and keep increasing it or decreasing it by ONLY 2 units at a time till it stabilized. I was eventually changed to Lantus Solostar and now only take 8 units in the morning. Some people I know take insulin 3-4 times daily and have seen replies where some have stated they are taking 25 -35 units. They may be embarrassed at the amount they are taking because it is not under better control and don't want to admit it. Some people have the mind set that if they are taking medication and or insulin that will sort out the diabetes and they can eat what they want. NO what really matters is what you eat primarily the medication is there to help to try to get the BG stabilized but the type of food you eat is of paramount importance

nzingha 2012-02-19 01:59:04 -0600 Report

so true and i am proving it everyday… its just what u eat… my bs is fantastic in the mornings because i am careful about my intake at nights..druing the days it jumps all over the i am going to have to be more careful and i have been able to lower my units as well and want to keep lowering it everyday.. but i realise that i have to take the long lasting one at nights.. i keep trying to cut it out and when i do my numbers get high again…

pixsidust 2012-02-17 23:59:31 -0600 Report

Hes not taking care of himself so he wants to appear that he is.
He may not be even giving himself shots if he is making up numbers
Ask him to show you when he does so you can really be accurate.
I gather he does not want to be nagged even though, he deserves it.

Give him an out, let him know you understand
that he does not want to be accountable.
Ask him to let you be fully part of his life and to help
you keep accurate records so he can control the diabetes
instead of it controlling him.

You want him around for a very long time
so how about you start afresh and make a commitment to health
with each other, eating, exercising, and losing weight together?

nzingha 2012-02-19 02:00:10 -0600 Report

i try but he's always finding excuses because he's sooo busy and cant come this morning ..then we reschedule and he finds another excuse and if i follow him i will fall off track i go by myself…!

red flower lady
red flower lady 2012-02-19 11:55:52 -0600 Report

I think he is telling you something by his actions and you just aren't seeing it or ignoring it hoping it will change? I agree with Carol, leave him be and see if or when he calls you. If he doesn't do it, then you have your answer. Just because another diabetic may not be doing what you like, that shouldn't keep you from following your own plan when with that person.

Caroltoo 2012-02-19 02:01:52 -0600 Report

Why don't you just ignore him for a while? If he comes to you fine, but if he is trying to get out of becoming more involved, he will stay away and then you will know where you stand.

nzingha 2012-02-18 04:59:09 -0600 Report

idid but he's always finding excuses as to y we cant go swimming this morning or that… he has meetings, he's expecting calls from all over the globe like its not on his cell and he can get it anywhere… he has to go outta town.. always some excuse.. but as i have learnty the need to c0ntrol ur diabetes has to come from the inside.. no one else can make u want to do it.. so i'm giving up. i have other things to do and my life is just as busy as his except for the fact that i'm on vacation and even so… i have 3 grand children dealing with.. and no one keeps u busy as kids…lol!

red flower lady
red flower lady 2012-02-17 13:09:42 -0600 Report

I have to say, I have never had another diabetic ask me how much insulin I use or what my numbers are. I have been asked if I have high and low problems, or do I use the sliding scale or a set amount. I don't see how asking these specific questions would benefit anyone else. The amount I use is for MY body and will differ from someone elses. For example: My bg number can be the same as you, but we would probably need different amount of insulin, even if eating the exact meal and portion. Why, based on how our body uses the insulin. You also have to consider activity after meal, type of insulin, etc.

Also, some people feel that it is personal information, which it is, and will just throw out a number instead of saying I don't discuss that info with others or saying it isn't your business to keep from having hard feelings.

I just reread your post, why are you recording your friends answers without their knowing? This is sooo wrong!!! What do you plan to do with the recordings?

nzingha 2012-02-18 05:07:09 -0600 Report

record …as in write it down because i know i will forget.. and because i have proven he isnt being honest..on that subject…its a practise i have because of my training.. i write down everything…or i file it somewhere..i hate when people lie to me and they feel bad when i say to them on date so and so u told me bla bla.. so how has that changed now.. they know they mustnt play those games with me… lol! n honesty all the way.. thats just me…

red flower lady
red flower lady 2012-02-18 12:35:22 -0600 Report

Ok, I understand now. Maybe you need to stand back some, and not push people to feel defensive because of the WAY you are? To have someone constantly documenting your every word and then throwing it back in your face isn't right and actually makes a relationship harder. Trust has to work both ways, and to me, this clearly isn't so. What training? Some people mean well, but their own actions actually contribute to the problem and they can't see it. Now, if you know he is going to lie to you and you can't stand that, then don't ask, like you said he has been doing insulin for 27 yrs, so he'll continue to do it his way, right or wrong:)

Young1s 2012-02-17 12:36:25 -0600 Report

I think sometimes people don't want to even admit to having D because it has such a bad stigma attached to it. Or they feel they will be judged or looked at differently, as if they did something wrong. While I don't go around advertising I have D, I don't shy away from talking about it. But I guess it's just harder for some people.

nzingha 2012-02-18 03:11:14 -0600 Report

and thats the truth young1s… people r ashamed of saying they have diabetes..and they lie about the insulin especially. i askeed my diabetic partner up to yesterday aboout his insulin breakdown and he as not answered my email and i bet he will conveniently say he didnt get it. i wear an armband that says i am diabetic… i dont take it off because if i'm somewhere and anything goes wrong, people should know and with our condition we never know…i hate when peoplel lie and pretend…i am not suggesting that u go around and announce it.. but people u associate with need to know. what i hate is when i go anywhere to eat and someone announces that oh she cant eat this or that.. i tell them leave that to me to decide and announce.. they stop it after a while…

red flower lady
red flower lady 2012-02-18 12:45:17 -0600 Report

That you are diabetic and type, yes. Amount of insulin isn't relevent to them, unless they give you shots and check your bg for you. As for the comments on food, that is what happens when you advertise the condition, they think they are helping you as you think you are for others. You have to educate your associates about diabetes because unless you are one, people only have a generalized notion about it and it isn't correct. Maybe you can get some info from the ADA and pass it out to them and then say "I kow you are concerened, so maybe this will help you understand?"

Good luck

Young1s 2012-02-18 11:11:22 -0600 Report

I agree that there are key people in my life that need to know the ins and outs of my diabetes, but not everyone. For now, it is enough that most people I know are aware of it and will be able to recognize the signs of a high or low. Your partner may feel the same way. What I want to know is, what is this burning need to know about about his particulars? I could understand it if you were dating, but I'm assuming you're not so I don't see why it's so pressing for you.

nzingha 2012-02-18 11:49:08 -0600 Report

as i said i wanted to check agsint mine and other people i know to see if i was being overdosed.. just comparing even tho i know we r all not the same in how our bodies react to medications and if he's my good friend.. which i think he is.. then i dont think its pressing at all… my other dabetic friends have shared this info…so y not be honest and say i dont like to discuss that aspect…he's raised issues that i've told him r sensitive and i dont wish to discuss and its never been a problem…honesty.. is all i ask for from people with whom i associate…

Anonymous 2015-10-19 00:48:47 -0500 Report

Boy, you really have an attitude. It's none of your business what other diabetics do . If I knew you were recording me I would give you so many lies and stories it would make your head spin AND we wouldn't be friends anymore. Go see your doctor about YOU ! You are really nosey !

calayx 2015-10-19 00:47:00 -0500 Report

Boy, you really have an attitude. It's none of your business what other diabetics do . If I knew you were recording me I would give you so many lies and stories it would make your head spin AND we wouldn't be friends anymore. Go see your doctor about YOU ! You are really nosey !

calayx 2015-10-19 00:46:48 -0500 Report

Boy, you really have an attitude. It's none of your business what other diabetics do . If I knew you were recording me I would give you so many lies and stories it would make your head spin AND we wouldn't be friends anymore. Go see your doctor about YOU ! You are really nosey !

Young1s 2012-02-18 15:30:42 -0600 Report

If your concern is about your dosing then that's should be discussed with your doctor. As someone mention recently, we could have the same D type and be on the same medications, but because we are different then we would react differently to foods, meds, exercise, etc. There's just no way to compare. To me, his refusal of answering speaks volumes. I'd just just let it go, otherwise things will become uncomfortable between you and may start to strain the partnership.

Anonymous 2012-02-18 13:06:16 -0600 Report

You need to worry about your own numbers and medicine and ask your doctor about being overdosed! You don't need to know or have the right to ask others their personal medical habits, etc… You can't base your diabetes off of another diabetics drug use as you are not them, so it is useless. When a person doesn't tell you something or lies, that is their way of saying don't ask!

Either you are a control freak and need to know everyone's business, or you are a competitive person and need to rate your diabetes with other's to feel included? Neither is a good way to be viewed, and you need to learn to stop and focus on yourself. If you want everyone to know your medical info, then share it, but fyi, not everyone wants to know it. When a person says how are you? They really don't want a breakdown of your aches and pains and meds, it's just another way of saying hi.

You say honesty is all you want, so I an giving you HONESTY!

Harlen 2012-02-17 10:36:42 -0600 Report

All I know is what I use one day will not be the same as I use the next
But I use a scale and cover for my carbs it all depends on what I eat
I am always strate with what I eat and how much insulin I use but I may just be wird lol
Best wishes

nzingha 2012-02-17 12:00:56 -0600 Report

so therefor eu test before each meal, then u decide on how much insulin to take\/ i was prescribed a certain amount of units and i stick to that most of the times… which is y i keep wondering if maybe i am overdosing myself.. should i be using a sliding scale.. ok if my reading is low.. i take less but if its high i stick to the prescribed units or increase it?

red flower lady
red flower lady 2012-02-19 10:51:31 -0600 Report

Drs use the sliding scale from my experience, based on how well you respond to insulin. This again, is based on bg numbers and the type of insulin used. You can't just decide to adjust it yourself, but work with your dr to decide on the bg numbers for you and if you need to change insulin. It may be that you are not right for a sliding scale?

Harlen 2012-02-17 19:54:21 -0600 Report

Well this is where you need to step up and do what you need to do
If I was you lol I would get the book ( the calorie king )
The book has whats in what in a lot of food as well as eating out .
You can use a sliding scale od take a set amount of insulin or you can get to know what your needs are .
Please keep in tuch and let me know how its going and if there is any thing I can do to help you
Best wishes

Set apart
Set apart 2012-02-17 06:33:25 -0600 Report

I am very honest when I go to Dr., this is how we
Problem solve if my current dosages are working for me. With this we were able to figure out that we needed to change my Lantus injections to 2 x within a 24 hr. Period. novolog and I whoa now that's a tricky question, it can send me to a low so quick am very insulin sensitive. I am not a big eater so if I am going to take novolog I better be ready to eat!

nzingha 2012-02-17 12:02:25 -0600 Report

actually i was referring to when a fellow diabetic ask the question.. like if i ask u now… how many units of insulin if u do take it… do u take with each meal? and what was ur reading today?,.. what happens with ur doc is bet u and ur doc.. i am just referring to being honest with a fellow D…

Set apart
Set apart 2012-02-17 16:04:14 -0600 Report

Oh I see, oops, I have and will share the truth. I take the same amount of insulin daily 8 units am and 8 units pm, I tried 9, but had some night time lows. I am also on a sliding scale for premeal corrections I usually am safe with a 1 to 30 carb ratio. I count both BGs ovefr 140 and food intake. This is is the honest truth! LOL!

nzingha 2012-02-19 10:33:38 -0600 Report

oh i wasnt necessarily asking u for urs.. just wondering if generally speaking u find people u know r not honest…as that has been my experience… they lie because they r embarassed about the very fact that they r on insulin.. have u found that to be ur experience?

red flower lady
red flower lady 2012-02-19 11:29:37 -0600 Report

I don't know anyone who is embarassed to be taking insulin? Maybe frustrated. It may be that they just don't want to get into the discussion that will surely follow? Alot of diabetics would just rather be talked/treated to as a regular person and wish to keep diabetes care to themselves. You know, not be defined by their diabetes, and have normal discussions since we deal with it daily and talk about it with our family.

Same idea as your job, once you leave work, you don't want to leave and then continue to talk about it or do it for friends constantly.

Set apart
Set apart 2012-02-19 20:13:37 -0600 Report

I really don't know too many people who have diabetes except for this site. I agree with red flower lady though, why would anyone not say the truth? Maybe the topic can be like when women share about their weight. Most women say they are at a certain weight when you can tell they're not, usually! We say things like oh I am at 126 now when we are really 128, oops off the topic again!

gymnasticsfreak1989 2012-02-17 05:26:57 -0600 Report

im one of them, im not honest because my doctors come to conclusions way to fast and have the tendency to judge without knowing it, they are very intimidating but not in a good way, but i dont have insurance so i dont go to the doctor anymore lol

Set apart
Set apart 2012-02-17 06:39:06 -0600 Report

Please be very careful, and make sure you are maybe at least talking to someone that you can trust! I seem to have found a D nurse who I can even call her at home if I have to. I am open with her and very honest, which is how it should be. When I first was diagnosed I realized that this team that was supposed to be on my side wasn't going to be placed there magically I had to seek them out and advocate for myself. So tell me how do you determine how much insulin you need? have you checked into programs within your area which provide services based on a sliding scale?

nzingha 2012-02-17 05:59:33 -0600 Report

did u say u dont go to the doc anymore? how an u stop? so dont u test? And if i should ask u no what are u numbers.. would u know and would u share..honestly?

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