I am an Alien in the world of Diabetes Type 2

By windixy Latest Reply 2012-02-19 10:51:02 -0600
Started 2012-02-15 18:06:49 -0600

I am usually a loner and perfer to work things out on my own, but right now I am scared. Actually I'm petrified.

The Doctor diagnosed me back in August with a Blood Sugar of 330, gave me a bunch of reading material, a perscription for Medformen and a Meter. He told me to take my Blood Sugar every morning, take the meds twice a day and eat 45 mgs of carbs, 4 times a day, and have a nice life. The end.

At the present, I don't even know enough to ask questions.

I got the Meter the first day and have been taking my BS every day. The first week the numbers droped quite rapidly. From then on they run between 81 to 105. My A1Cs have been 6.4 and 6.0. The doctor says keep up the good work. I haven't been doing good work. I have been cheating right and left. I hate food. I don't like to eat good food. I have survived all these years on Coke a Cola, M&Ms, Mandrin Oranges and Spaggetti. And I am still doing it.

Did the Doctor make a mistake? Should I tell him I have been cheating? What do y'all think? I've been reading y'alls comments and believe that I can trully trust y'all, so I am interested in what y'all have to say.


23 replies

GabbyPA 2012-02-16 14:59:11 -0600 Report

Hmmmm where to start? If your levels are that good with that poor of a diet I am thinking there is something else going on. Or maybe I am just jealous because I get high numbers no matter how many meds I take and how low of a carb meal I eat. It just goes to show how different we all are.

I guess the big question is do you want to keep taking meds and keep eating the way you are eating and take more meds as it progresses through the years? OR
Do you want to eat better and do some "work" to be able to be off the meds and still have acceptable numbers? Delaying the need for meds and the complications that come down the road.

It is your choice. You can be med free I bet if you put your mind to it a bit. In my book that would be a better choice.

windixy 2012-02-16 15:54:47 -0600 Report

Please don't be jealous. These numbers aren't anything I did on my own. They just happened.

As to your big question, let me ask one first. What "COMPLICATIONS THAT COME DOWN THE ROAD"?

Regardless I do want to eat right, but not all the food in the prymid he keeps talking about. That's more food in one day than I normanly eat in a week.

I like your choice and am willing to do the work. In fact I tried. The doc sent me to a diet lady at the hospital (about an hour drive from my home). She made "Meal Plans" for me for one month. I got all the ingredients aned myself to stuff it down my stomach. After two days I thought I was going to die. I couldn't keep anything on my stomach. Not even water. I lost my desire for meat of any kind. Even to this day, I don't want anything to do with meat or fish. Just looking at it makes my stomach spaz. The doc says it is all in my head and I am just gonna have to get over it, but no suggestion as to how.

Well enough of the pitty party. If I do buckle down and get my act together, can I really be med free and get rid of this diabetes?

GabbyPA 2012-02-18 11:38:19 -0600 Report

When the doc says it's all in your head it is time to have a discussion with him or fire him. No one should ever just say that. There are reasons our bodies reject things and you both should look into what is happening. It could just be that you are not used to eating this way and that can be a huge put off. There is where you want to take it one step at a time. I have learned to embrace some foods I really didn't care much for before. They are healthier and I have to make that choice.

The complications are the things that diabetes can cause over years of having this disease. The more in range your levels are, the fewer complications you may face down the road. Noting is guaranteed, but it gives you a better chance. Diabetes affects nearly every aspect of your body because the extra glucose in your blood causes things to happen. The smaller capillaries are usually the first casualties and that is why neuropathy in our feet and hands is generally a first clue. There is also blindness and lack of good brain function. There can be slow healing that can lead to infections that can lead to amputations. There is a higher risk of heart disease because diabetes usually messes up our cholesterol and triglycerides. It all sounds horrible, and it can be if we don't pay attention.

Being med free doesn't mean cured. It means that you are controlling this disease with diet and exercise. A cure would be you can eat whatever you want and keep your levels in range. That doesn't happen and it is an on going treatment. Being a struggle is up to you. You make it a good or hard experience.

windixy 2012-02-18 23:28:33 -0600 Report

Great news Gabby ——- Got a flyer in the mail today. They are going to open a new clinic in my town. It is going to be maned by a laddy P.A.C. Come the first of next month, I'm gonna make an appointment to see her and see what she knows about Lupus and Diabetes.

Thanks for all the info you have been passing on to me. I am comming along better. I have gotten up to two meals of 45 carbs and a snack of 15 each day. I found out I love fresh fruit, yogurt, Gluserna (drinks & the bars) and spagetti. I can keep eating these untill I eventually grow tired of them. My goal for the next three months is to add 1 more meal a day. Wish me luck.

GabbyPA 2012-02-19 10:51:02 -0600 Report

That is good news all around then. I hope that as things even out, and it does take time, that you will also find a doctor that wants to work with you. That is so important and unfortunately, many of us don't have that opportunity. Sometimes it just takes some shopping around. Good luck on the new clinic!

jayabee52 2012-02-16 16:13:17 -0600 Report

I suspect that you may have tried to eat all those calories/carbs all in one or two meals?

Sometimes one has to work into it gradually. How many times a day normally do you eat now? and when you tried to follow the dietician's recommendation, how many times a day did you try to eat?

Some people find that eating smaller meals more frequently has helped them. some eat 5 or 6 small meals per day. they find that that helps them regulate their blood glucose (BG) better and they don't have to cram all those carbs and calories into just 2 or 3 meals.

Also you CAN live as a vegetarian and not have to eat meat. You may need help figuring out sources of protein which your body needs, but it can be done. It is not as easy as being an "omnivore", but it CAN be done.

windixy 2012-02-18 23:21:00 -0600 Report

No I didn't try to eat it all in one meal, I tried to eat it all in one day. I wasn't use to eating more than 1 meal a day and occassionally a nighttime snack. However I am comming along better. I have gotten up to two meals of 45 carbs and a snack of 15. I found out I love fresh fruit, yogurt, Gluserna (drinks & the bars) and spagetti. I can keep eating these untill I eventually grow tired of them. My goal for the next three months is to add 1 more meal a day. Wish me luck.

owsi83098 2012-02-16 14:22:17 -0600 Report

windixy —— I have just been told about the same way you were and am learning how to live with it. I went in for a high blood presure check and they wanted to check for liver damage and came back with this and looked at me and said ( you need to loose weight and your a1c is high so we can put you on this med but it will make you gain wieight but it could bring down your a1c so want do you want to do ? ——- will the next time I went in I asked to see a new doc. and he explained it a whole differnt why and I am on meds and checking my BG 4 time if not more a day and watching what I eat. It started out a1c 7.6 am now down to 6.5 so if you don't like what you hear from the doc. then ask for a new one and welcome to dc were you will learn alot if you ask.

windixy 2012-02-16 14:36:08 -0600 Report

Thanks a bunch. However getting a new doc is not an option at this time. my doc is not really a doc. He is a P.A.C. and his office is a half hour drive from my home in the boon docks. There is a hospital about an hour away I guess I could go to. I'll think on it a while.

Weight is sorta a problem for me, I guess you could say. Underweight that is. I have always been about 20 pounds underweight. My doc gave me some pills just to make me gain weight and they made me hate food even more. He flat gave up. Oh he complains, but he doesn't offer any sugestions anymore.

I love the puppy. Is he/she yours?

Thanks again for the warm welcome

j j windixy

TsalagiLenape 2012-02-16 09:04:15 -0600 Report

Hi windixy! I would suggest to make a list of questions you have then find and endo make an appointment and ask away. Keep asking until you understand it. Some slight changes or variances in your diet would help but that is your choice when and what and how to do it. Being petrified is normal. SO relax. I mean if that was your one and only appointment thus far I would reconsider who my Primary Care Physician is seriously! Dont be shy to ask for only stupid answer you get is the one you ask. Yet thus far I dont see that happening anytime soon here from anyone posting or replying to a post. For knowledge is power which should be shared so if you gain knowledge and dont share tis a waste. Thus you enrich yourself along with others on here by asking. Some are scared to ask thus you help them when you do ask. Others may not realize it but have the same questions and forgot to ask again you help them when you ask. Being a loner is fine yet there are times when you reach out and it not only helps you but others along the way. So be bold and daring! Reach out like you did here is a start! Great Job by the way! Hugs

Copperchef 2012-02-16 08:56:33 -0600 Report

windixy, welcome to the forum. Diabetes can be scary, but here you can ask questions, get suggestions and also have a place where you can sound off.
Now with that being said, Let me make a suggestion. You need to go and see an Endocrinologist. This is a doctor who is going to do a lot more for you than you GP. You need more information to assist you in your daily quest to help you live a long life with this disease.
Both my wife and I have the disease, for reasons unknown, my wife's diabetes is a little more aggressive than mine. But everyone is different. We both go to the same Endo, so we generally go to each others appointments together.
We also have attend free diabetes classes at our local hospital, getting free nutritional advice, testing suggestions and disease information.
Check around in your community to see if these are available in your area.
The biggest thing that you need to do, is get good information first and from a doctor that understands the disease.

Nick1962 2012-02-16 08:56:23 -0600 Report

Hey windixy! I echo the responses here so far. Your diagnosis story sounds real similar to mine, and at the time I was the loner as well (thank heavens this site drew me out).
Won’t lie to you, you have to change your eating habits, but luckily judging by your numbers it should be fairly easy. Testing 4x/day during the “honeymoon phase” isn’t nearly enough. It doesn’t really give you usable data. I’m one of those that James was talking about that tested and recorded after I did anything. It taught me what foods, exercise, and stress did to me at various times of the day. Right now I could tell you within 10 points what my BG is, and with the consent of my PCP, we’re experimenting with doing away with testing all together. Of course, that all depends on me, and my ability to follow my feeding program. For me it really comes down to the pain and inconvenience of testing versus how bad I want bread or pasta. Of course it’s cost also. I could eat a slice of pizza, and pay the 80 cents/strip to test (which of course raises the price of that slice), just to tell me I spiked. And don’t forget I tested 4 times with most meals so that’s another $3.20 per meal. At first that cost was justified to tell me 2 slices of Domino’s caused me to blow a 180-200, but now, the pizza ain’t that good at the additional $3.20.
I’d definitely seek a second opinion on the meds. Metformin was murder for me and I was taken off after a brief stint when I got down to your numbers. There may be other reasons for you being on it, but it’d be worth your fining out before blindly taking it. I’m not offering medical advice, but a little self-education will go a long way for you.

diabetesfree 2012-02-16 04:47:31 -0600 Report

I really think that you should at least get a second opinion, if not find a new Doctor entirely. I not oly would question his treatment, but his test equipment as well. Testing someone ONCE and concluding they have diabetes seems a bit swift of a decision to me.

jayabee52 2012-02-15 22:44:47 -0600 Report

Howdy windixy WELCOME to DiabeticConnect! sorry you qualify to be here, but since you do I'm glad your're with us.

have a bit of advice which you may find unpleasant.

Yes I feel the Dr did make a mistake, but that mistake was not what you may think. His mistake (I actually have called it "borderline malpractice" a couple of times) is to put a patient on a Blood Glucose (BG) lowering medication and not have them testing at all OR as in your case testing not enough.

Actually I suspect that your Dr is following a request by insurance companies. They want to cut down on expenses by limiting your number of tests, so they don't have to pay for as many expensive test strips. But the quality of the care you give yourself and the care your your Dr can give you is based on what information he has about what is happening with your body. The way to get the best information is to test frequently

In reality if you are on a BG lowering med. you should test a MINIMUM of 3 times a day. (You could and perhaps should test more frequently if you have the need). I know of a fella here who says that when first diagnosed (Dx'd) he tested his BGs up to 15 times a day. He did that so he could tell what certain foods were doing to his BG readings. And today this fella still tests a lot, but he is ALSO managing his Type2 diabetes (DMt2) without the use of diabetes medications. I also do the same ( manage my BG without diabetes meds — only I don't test as much).

Your first test in the morning when you get up before you eat anything (called a "fasting" BG reading) So that is blood test #1 for the day.

Test #2 should be taken 2 hours after you take your fist bite of food (this is called the "postprandial" BG test) Now to get a better picture of what your meals are doing to your BG levels you can choose to rotate which meal you test on which day of the week. For example on mon, you can do the postpradial after breakfast, on tues post prandial after lunch, Wed, after your evening meal and so on. Of course you are recording all these BG readings in your log book or log sheet.

Then for test #3 for the day is before you go to bed for the night. This is important because it tells you where you are at, BG wise, when you go to bed. This is important because if you wake up with a fasting BG reading above 140 and you went to bed with BG of (lets say) 95, it will tell someone who knows what might be happening inside your body, what happened last night (that is a whole other discussion, and can be addresses at another time.

It may be unpleasant because many folks don't want to poke their fingers that many times a day.

However you ought to determine how many times a day you think you need to test and at the next appointment, show Dr your log book and ask Dr to write a prescription for the number of test strips you will use for a month, testing that many times a day. After all it is YOUR body and the quality of your care of your DM is at stake.

There is much more I could say but I will stop now so I don't overload you with more than you can handle at one time.

You may be in a stage where some other Drs might call pre-diabetes. IF you get motivated to eat right, and care well for yourself in this stage of your DM you might even have it go away. But that means you will need to eat right, (a whole other discussion – which we may have at later time)

Take some baby steps toward managing your DMt2, and then make some more. Before you know it you are walking, and then running.

Who knows? You MAY be able to beat DMt2!

I pray that you do!

If anything is unclear to you just ask. I feel that the ONLY “stupid” question here on DC is an HONEST question which is NOT ASKED!

Blessings to you and yours

James Baker

Young1s 2012-02-15 19:01:08 -0600 Report

Welcome to DC Windixy. I don't think your doctor made a mistake, it sounds like he is working off of misinformation. While I hate to hear when a doctor isn't the greatest source of information or assistance (happens too often), in your case it may just be that he's reading your results and thinks you're doing all the right things. Trust me, there are a lot of members here that wish that they had 6.0 A1c and have BG's (blood glucose numbers) run between 81 to 105. Me being one of them. But you're not doing yourself any good by not eating properly and relying solely on the Metformin to keep your levels in control.

I am all about full disclosure when it comes to talking to my doctor. If I don't tell her what I'm doing, right or wrong, then I couldn't expect her to accurately diagnose me, treat my ailments or offer me suggestions for improvement. And I understand your hesitancy about asking questions. It may feel like you should know the literature he gave you front and back by now but it's okay that you don't. What's important is to tell him that you don't and ask for help with understanding it all.

So my suggestion would be to contact your doctor and let him know that you haven't been doing as well as he thinks. He will then probably have you come in to go over any questions you have. He can also connect you to a nutritionist to help you address your eating habits. The nutritionist will go over what you eat on a regular basis, your likes & dislikes of foods, portion size & control, reading food labels, etc. Also ask for a referral to attend diabetic education classes. You'll learn a lot about what you need to do to control your D.

I hope this has been helpful to you in some way.

digitaldoorbell 2012-02-15 18:57:43 -0600 Report


I am not going to lecture you. In fact, I am going to wait to substantively respond until others who take medication can share their experiences. I control this health condition with diet and exercise alone. The only thing that I do want to say is that it's great that you reached out to ask others with common experiences. I want to ask you to tell your doctor exactly what you've said here and I'd like you to reconsider some of the food choices that you are making.

It's only natural to be afraid. Anyone here who tells you that they weren't isn't being honest.

All the best.

jladytiger1979 2012-02-16 20:26:23 -0600 Report

Totally agree with your final statement. I heard diabetes & I thought I was gonna die! Since you are do far away from your medical team do LOTS of research. This is a great place to start. Make small changes. One at a time. I've only been diagnosed 2 years but my A1Cs are now in the non diabetic range and I've lost 114 lbs . O however will never be completely off my metformin because it treats my pcos but I'm down by half of what I started out with. Diet and exercise.

digitaldoorbell 2012-02-16 22:03:12 -0600 Report

That's great! Was that dramatic weight loss all in this same two year period?
I agree with small changes. You realistically incorporate them into your lifestyle and in no time you're in better physical shape than you were for most of your life.

windixy 2012-02-16 22:13:25 -0600 Report

I'm sorry, I think you mixed me up with someone else. I didn't have a dramatic weight loss. I've been fighting being underweight all my life.

No problem in contacting me. Just wanted you to get this message to the one you intended it to go to.

Keep hanging in there


jladytiger1979 2012-02-17 08:18:06 -0600 Report

I guess the TFOTM was make small changes toward your diabetes. The diabetes can cause weight loss too. That is a sign/symptom. Obese are not the only people affected by diabetes. You can do it. I'm sorry you don't have better medical support. That is crucial.

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