What if we had???

caspersmama
By caspersmama Latest Reply 2008-11-19 00:06:00 -0600
Started 2008-11-10 11:22:26 -0600

I was thinking about this last night. Since this site seems to have so many knowledgeable people that know how to do things what if we had a daily or weekly chart to see our numbers. Since everyone has been sharing their numbers, we could put in our daily numbers as we test. Like in the morning I could type in ilvtony20 on the chart then put my morning b/s, then in the afternoon or night put the next number. That way we could show others how we are doing for motivation and comparison. does anyone like that idea? Or does anyone know how to do it where it would stay from day to day or we could put it in a special place. What do you all think?


33 replies

DonnaAnn
DonnaAnn 2008-11-10 20:52:21 -0600 Report

As to whether or not to post your numbers, no one says YOU HAVE TO POST, or even go to that site!
I have a site chart if this group would like the address and you can check your own if you want to with your own chart. Or the group could use it for this website. Very easy to use.

enigmalady777
enigmalady777 2008-11-10 19:20:52 -0600 Report

I like the idea so long as it is done voluntarily and no one is made to feel "shamed" if their numbers are not picture perfect.

For me, reading others posts on this board and the others I belong to, about their struggles and successes not only motivated me to do better, but also helped me to feel less alone and less of a "failure", Knowing that others were struggling too, gave me hope that I wasn't the only one going tough times.

Keep in mind too, that I'm not a "newbie" to diabetes - I've had if for 15 years! As it is a progressive disease it was helpful to me to know that there were others experiencing the same trials and tribulations that I was.

short1dr
short1dr 2008-11-18 19:13:50 -0600 Report

Me too. I've been a diabetic for over 15 years but I feel like a newbie because I haven't been to an updated class in at least 10 years. I love all this information. It's great. It really does help me so much.

short1dr
short1dr 2008-11-10 16:48:23 -0600 Report

I don't know how to do it but I like the idea because maybe we can get some ideas how to fix our blood sugars. Maybe some of us are having similar problems. I'm not sure but I like the idea.

sparkysmom
sparkysmom 2008-11-10 13:58:34 -0600 Report

I would do it. I would like some constructive criticism if my numbers are too high. I want to learn to lower them Maybe there would be a way so only the people who want to could access it. Some type of password protection so not everybody has to look. I hope I'm making sense.
Jackie

caspersmama
caspersmama 2008-11-10 15:54:41 -0600 Report

Yes you are and I agree but others that have been here longer than me said it would upset some, so as I said before I will not have anymore bright ideas. I will let John start his project he was talking about. I just thought like you it would be good to help not hurt people. And I am sure that there would have been a distinction between type 1 and 2. I sometimes am made to feel very stupid on this site.

Lee Ann - 22107
Lee Ann - 22107 2008-11-10 16:28:10 -0600 Report

There's no need to take what anyone said personally. Perhaps you're misinterpreting because no one called you stupid or even said it's a stupid idea. As I've already said twice, I see the benefits to what you're suggesting, but there are some potential issues that also have to be considered.

sparkysmom
sparkysmom 2008-11-10 16:35:58 -0600 Report

There are a few bugs to work out but it is basically a good idea. I'm sure John and the techies will work it out.

sexyswamprat
sexyswamprat 2008-11-10 16:46:29 -0600 Report

I would definately post my numbers. I would love to compare my numbers to others numbers. Maybe there could be a section that a user could post what med they are taking, only if they wanted to. I would love to see how others are responding to the same meds that I am taking. ilvtony maybe you could start a disscussion topic for those of us who want to post our numbers. It's a start for now. I know there are others that would like to compare numbers also. This is a great idea.

Lee Ann - 22107
Lee Ann - 22107 2008-11-10 12:05:36 -0600 Report

My two cents: I think it's important to carefully consider whether or not it's a good idea to make people's numbers so public. Don't get me wrong - I can see benefits of something like that, but I think there are disadvantages also. As a former "bad" diabetic, it can be very discouraging to people who aren't doing well, to the point that people might feel like they're failures or don't belong in the community because they aren't "good" diabetics. Comparing numbers is a slippery slope because so many people use those numbers as score cards. I know it's obviously a voluntary thing, but I just think it could undermine some people's efforts. I don't know if I'm explaining where I'm coming from with this very clearly…

caspersmama
caspersmama 2008-11-10 13:00:53 -0600 Report

OK good to know. It was just a suggestion. I quess we will keep posting it in discussions. I just thought it would be easier. I get tired of trying to find a discussions to put things in everyday.

John Crowley
John CrowleyCA 2008-11-10 13:24:00 -0600 Report

The new feature we're developing would most definitely have full privacy controls. But we do think there could be benefits from sharing your numbers with others and receiving advice and encouragement.

caspersmama
caspersmama 2008-11-10 13:33:04 -0600 Report

But like Lee Ann said people would not feel right if there numbers were not the same as everybody else's. I for one thought it would help. I will just stop coming up with ideas and let the leaders do the thinking.

Lee Ann - 22107
Lee Ann - 22107 2008-11-10 14:31:31 -0600 Report

I think there are people who could benefit - that's why I said there are benefits, but there are drawbacks to consider when implementing something like this.

In theory it's just science, but in reality, there's *a lot* of emotion wrapped up in those numbers - pride, happiness, anger, resentment, frustration.

Of course, the people who are interested should be considered, but I think it's careless to not consider that there are also people, often lurkers, for whom it could be discouraging.

Someone enlightened me to the dangers of sharing A1c's a few months ago, and I've since stopped. I've also stopped reading other people's posts about it. It's no one's business. I can just as easily talk about how I've achieved my diabetes success without disclosing numbers. Everyone has different goals, some people have T1 and others have T2, there are just too many variables. I mean, if I compared my #'s to a T2, I'd be considered a complete failure. When I hear a T2 upset that their BG soared to 160, it's almost beyond comprehension to me, a T1 of 30 years who's seen everything from LO (600) many times during my life.

I just think there's a big difference between sharing *how* you're taking care of yourself versus what the final results are since the final results need to be relative to you and your goals, not a bunch of other people.

It's a slippery slope, as I said initially. I'm just giving another viewpoint on the topic.

Jlynn
Jlynn 2008-11-19 00:06:00 -0600 Report

I think you have aa unique idea. And some will like it and some will not…(its life), Me somedays I;d want to share @ other days take a pass..LOL Just one other thing is people need to know the "individual" Ideal number too…and when to test after meals etc..
Could you all (that wanted too) just ? idk download your meters weekly or,and us that graph??idk ..quick brain storm!!

kdroberts
kdroberts 2008-11-10 13:39:08 -0600 Report

I hear what you're saying. It is also very daunting for newly diagnosed people as well. A lot of doctors don't give goals at all so if you've just been diagnosed with a fasting level of 300 and you come to a site and a lot of the people are listing fasting results 70-100 you could get quite overwhelmed. Also, on a couple of occasions I've posted some constructive criticism of peoples numbers only to have other people (not the ones my comment was directed at) jump all over it and slam me. Just like testing itself, there has to be some reason to do it and some way to make use of the results. If it's just a log of results and nothing else it's not going to be more than an ego boost, an online log of their results, something disheartening or something they start to fill in but lose interest very shortly.

short1dr
short1dr 2008-11-10 16:56:46 -0600 Report

I guess I don't quite get what the problem is about revealing our numbers. I'm one of the new ones and I have found it motivating to see others numbers. It helps me immensely! Sure I might get a bit depressed by my numbers when they aren't good but the only reason I have finally started to really track my numbers is because I can see where they really need to be and that I can have bad days but I need to keep it up for my overall health. It gives me a goal. So maybe we can do this but in a place where no one who doesn't want to see them doesn't have to.

sexyswamprat
sexyswamprat 2008-11-10 17:00:25 -0600 Report

I agree with ya short1dr. And I don't see the problem in revealing numbers also. Those who want to will and those who don't, don't. Pretty simple if you ask me.

caspersmama
caspersmama 2008-11-10 17:51:17 -0600 Report

That is what I was trying to suggest. Not everything on here needs 100% participation. I thought it would be motivating for newbies and help veterans to see how they stack up. But there are an elite few on here that know it all and nothing you say will ever be good enough. Sorry if this sounds bad but I feel like I am stupid for even suggesting such a thing.

caspersmama
caspersmama 2008-11-10 18:55:53 -0600 Report

You can start it, if I start it, it will get crtictized and it will take on a negative feeling. That was not my intention. I wanted it to be helpful and informative to those that are struggling or for those of us who have done it and how. I think we would all be smart enough to say whether we were type 1 or 2 and to check with our doctors if we wanted to try something. We are just not given enough credit. I have gone off of insulin after 4 years. So I have to be real tight with my control now so I do not have to go back on. So I thought this would make me accountable for my numbers just like weighing in at Weight Watchers would be for a dieter. But you can start it I do not mind.

Lee Ann - 22107
Lee Ann - 22107 2008-11-11 12:39:58 -0600 Report

The reference to "an elite few" is really unnecessary. If you or anyone else has an issue with feedback that I gave or with me personally, please send me a private message or indicate here that you'd like to exchange messages rather than make passive-aggressive comments like that on a public forum.

I've already explained why I said what I said and what my intention was, and I think I explained myself clearly. If you have an issue, take it up with me rather than make all these dramatic posts about how you think you're being targeted.

I would have sent this as a private message, but apparently I'm unable to do so.

caspersmama
caspersmama 2008-11-11 14:28:17 -0600 Report

I am not going to get into this with you publically or privately. You made your comments and I made mine. Leave it at that. I am tired of being made to feel like I cannot express an idea on this site. Obviously there are people who thought this was a good idea and they(not me) started a post for daily numbers. If you do not like that than take it up with them.

kdroberts
kdroberts 2008-11-11 14:36:19 -0600 Report

I wouldn't worry about it. The poster you reference has a history of fishing for sympathy and trying to make things all about them. Twisting a comment around and generally commenting without regard for the topic in question is not uncommon. I don't know why but it appears they have to be the center of attention and act the martyr.

John Crowley
John CrowleyCA 2008-11-10 11:54:34 -0600 Report

That is such a great idea. In fact, we are developing a whole new feature for the site for this kind of tracking and support. However, it will take some time to fully develop.

But you definitely don't have to wait for us. This could be a great way to get things started.

highlandcitygirl
highlandcitygirl 2008-11-10 11:35:18 -0600 Report

i think that this is a good idea,as i really don't know what is considered dangerous numbers. i could learn and know how others deal with it. the idea is good because it would also help us watch out for each other.