Cushing's Disease/Syndrome

By LTennion Latest Reply 2012-02-06 14:53:28 -0600
Started 2012-02-04 08:08:09 -0600

Has anyone else been diagnosed with this rare disorder? It is a hormonal disorder that mimics as well as causes Diabetes.

Tags: awareness

2 replies

LTennion 2012-02-06 14:53:28 -0600 Report

Oh gosh, where do I start! My symptoms began about 10 years ago. Heavy sweating on my head & neck only. Uncontrollable blood sugar levels, high blood pressure, high cholesterol, purple stretch marks on my abdomen & breast, red & fat face, excessive hair growth on chin & face, hair thinning on scalp, weight gain (pregnant appearance) incredible fatigue, frail bones, emotionally unstable, cognitive decline, and depression, nausea, trouble sleeping, and muscle wasting. From what I've read, I had just about every symptom associated with this disorder. Once I was diagnosed a Diabetic, everything else (complaint or ailment) was attributed to having diabetes. I was told to get my blood sugars under control, which now we know, I never had a chance with elevated cortisol levels. But I was lucky…my PCP had ordered a CT Scan because I complained of nausea & slight pelvic pain. My Endocrinologist at the time had placed me on Victoza and one of the warnings was Pancreatitus. The scan revealed two nodules on each adrenal gland. Sure enough, my cortisol levels were off-the-charts. As of today, I have undergone two Pituitary Surgeries. The last one was at UT Southwestern in Dallas, Texas on 12-12-11. As it turns out, my tumor had invaded my cavernous sinus cavity and rested against my carotid artery. Therefore, the surgeon couldn't be sure he got everything. We have just completed blood work & 24 hr. urine tests and my levels are still too elevated. I am now having to consider having my adrenal glands removed in order to be cured. My best advice…be tenacious and hang in there! Educate yourself…it helped me to know and sorta understand what's going on, and what to expect. But mostly, (like diabetes) this is a roller coaster ride. You will have your up & downs, good days & bad days. I certainly wish you the best on this journey and remember that there are plenty of us out there in the same boat. Perhaps not everyone you encounter will have Cushing's, but you will find support, encouragement and compassion.

nzingha 2012-02-06 12:25:13 -0600 Report

wow when did u post this… yes i have!!! tell me what were ur symptoms? my diabetes just got out of control suddenly. My face took on the moon shape, the blotches appeared on my skin, weakness in the legs, swollen feet…gosh…! the numbers from the urine and blood tests were waay out. Tell me how has it affected you?

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