Do you suffer from these 7 often misdiagnosed problems? Neuropathy...

valentine lady
By valentine lady Latest Reply 2012-04-09 14:11:42 -0500
Started 2012-02-02 20:33:42 -0600

1) Burning
2) Numbness
3) Cramping
4) Sharp, electric pain
5) Hurt when you walk
6) Prickling/tingling feeling
7) Difficulty sleeping from leg/foot discomfort

This can be in your feet and legs but also your hands and arms. If you suffer from 1 or more of these problems you can suffer from Peripheral Neuropathy.
These problems can be caused by diabetes, hereditary disorders, medications, such as cholesterol lowering drugs and others.


79 replies

Cortney, CMT
Cortney, CMT 2012-03-14 08:53:59 -0500 Report

I don't know why my picture is upside-down, that's funny! Just thought I would pop my 2 cents in here… There are symptoms that mimic neuropathy, that can be from other issues.. If you are looking for relief, and not getting it through traditional treatment, it may be because your symptoms are due to something else. I have been a massage therapist for 7 years, and worked with chiropractors for the first 6 years. I don't want you to think I am saying you all don't have diabetic neuropathy, however, I would like to offer up some information. The nerves in the body originate from the spine and travel through all muscles. if there is a problem with your spine, or with a muscle relating to a specific nerve it can cause the same symptoms as diabetic neuropathy. For instance, the sciatic nerve originates in the lower back, around L4, (which is the 4th lumbar vertebrae) then travels through the muscles in the buttocks and down the leg. It is one of the largest nerves in your body. There is a muscle in the buttocks called the piriformis muscle, and if that muscle gets tight, it can cause the nerve to get "pinched". If that happens, it can cause a burning or tingling sensation in the legs or feet, pain and numbness. All signs of neuropathy… however, the treatment may be as easy as a release of the piriformis muscle and regular stretching. The other issue is that you may have a bulging disc causing the same symptoms, and chiropractic care may be in order to relieve symptoms. Just thought maybe these tidbits may be helpful for some people. Good luck to you all and I hope you can find relief of your symptoms. Massage is also good for diabetic neuropathy, so find your local massage therapist, and see if they can help you manage your symptoms!! :)

Caroltoo
Caroltoo 2012-03-31 20:01:03 -0500 Report

I use massage and chiropractic regularly since giving up on traditional medicine after 2 years of treatment with many pills and little therapy after breaking L5 in two places in an auto accident.

My doctor told me I was lucky I was not instantly paralyzed in the accident. I made little progress under his care and choose to start chiropractic and massage therapies. I now walk and run up to 3 miles a day, in some cases while pushing my husband in his wheel chair. What a wonderful difference it has made in my life and health.

valentine lady
valentine lady 2012-04-08 21:13:39 -0500 Report

Carol: Hi to you, long time since we last talked. We have to keep in closer contact. I enjoy your company so much. Your last post about massage therapy and chiropractic care is a true tribute to natural care. You should be very proud of yourself. I am of you. Your a very lucky lady to not have become paralyzed. You make me want to use chiropratic care nfor myself. I just might give it a try myself. I'll check my insurance tomorrow to see if it's covered. Thanks again for such a great testamonial. Hugs…Peggy

Caroltoo
Caroltoo 2012-04-08 22:21:05 -0500 Report

Hi, Peggy, yes, we have been missing each other. Glad you got your computer issue resolved so we can see you more often. How's school going? Carol

valentine lady
valentine lady 2012-04-09 09:37:44 -0500 Report

Carol: Schools going great, I love it. I'm behind now, once again, but soon will catch up and up and onward. Thanks for asking…yeah, you'll see me around more often now. That I look forward to. Hugs to you, Peggy

sadi23
sadi23 2012-03-31 19:43:59 -0500 Report

WOW Valintin Lady & everyone HELP …I just read over many of the posts, & i have been told & have a referral request to see a nuraloust (sorry spelling) as I have been diagnosed with Raynuads Disease, Vasclitus, Diabetes…I have felt many times for 25 years like I am walking on rocks, My left leg swells, as if it was run over by a car, turns Bight Red, hot or not, blue, blackish, white mainly bottoms of my feet, all of the colors, can be cold, I mean cold, for hours, then hot, very hot, my toes are often blueish, blackish, hurt don't bend, walk flat footed, as if they wont bend, feels like the skin is going to break open, get dry… I grow exess callouses, also around my fingers, I have to cut off, & file (I know, now diabetes, its a no no) but I don'y know what they will do next, to stop it?I have to wear nail polish, or my nails drink up all the moisture from around them, also my eyes, I have to put lube all around my eyes, or when I wake up, they are sunken & so dry I can hardly see & this skin hurts, (I also have LUPUS & SJogren) that doesn't help that. But I get numb, all over the place, but my butt & thighs, knee down, feet & hands, just 2 months ago, my side, under arm, 1/2 of stomach & back & down my butt was numb for about a month, slowly disapated away. Often hip, knees, feet, my two outer fingers, then 2 pointer & middle, as well at the side of my arm the fingers are numb? My husband poked me with a tooth pick, even in really sensitive areas, it felt like a blunt object, he would poke himself, same place & say *&&$^*() are you kidding me, that doesn't hurt??? Yrs ago, I put Icy Hot on my neck & couldn't get it off fast enough, as it burned..Now I can put the strongest kind on & it feels only like lotion. I had a low grade fever of 99-101 all the time, since I was 7 yrs old or so, the past 6 years, even it in hospital with a brain infection, I had no fever, even I get a lower than normal fever, no one knows why. I get lumps under my skin, that hurt & come and go. I have black lines down my thum & pointer finger. I had to cut my nails they would grow so fast, & long, since I was a teen, now I can't get them to grow at all. I have chronic infections, COPD, Look at my profile & see my diagnoses, I am 52 now, been sick with something since a small child..have any questions ask, but if you can help please do…thanks so much or ideas thanks Teri

valentine lady
valentine lady 2012-04-09 09:49:06 -0500 Report

Hi Teri: I just don't know what to say. I am so sorry for all your medical problems, but unfortunately I don't have any suggestions for you. My only suggestion is to do exactly what the Dr.'s tell you what to do. I realize they don't know how to stop it, but neither do I. My prayers are with you and will be. Keep me posted and I hope the Dr's can do something, anything. Hugs to you, Peggy

jayabee52
jayabee52 2012-03-31 20:32:32 -0500 Report

Howdy Teri!

I don't have much in the way of what to do about your conditions, but I want to let you know that I feel for you. My late wife "Jem" had many of the same conditions (she laughingly called them "medical challenges") as you. She had SLE Lupis not the discoid Lupis (which is yours?) She had congestive heart failure, COPD, GERD, Rhumatoid arthuritis, Uterine Fibroids and was totally Blind at age 14 due to Retinitis pigmentosa. I came into her life late in her life and I loved her SOOOO much! Even though she had so many medical challenges going on, she was a ray of sunshine.

Your account brought her memory back to me.

I will pray for you and your family that you will be able to find a solution to your challenges!

James

sadi23
sadi23 2012-03-31 20:49:25 -0500 Report

Thank you James…I glad i was able to bring you some of the most wonderful memories to your mind today…I have sytemic Organ involvment, with many seconday conditions…just remember, even if you came late in life, you were not even close to, to late…you gave her such love, hope, kindness and some of her very best times and day, before she becme a angel in heaven, as she was already one here on earth…my post was just a lot of questions, as i have been told most of what they think the issue are, i just thought maybe someone here, had a few ideas or things that could help…I gotta keep asking…I gotta keep wishen…I gotta keep hoping…I gotta keep going…I can thank many of you for them all…Thanks to you all, and thank you so much, you have brought me love, and much more, over the months we have talked, its been quite awhile, i hope its not as long, the next time we speak… I love the man you are…hugs to you… talk soon…your friend Teri

valentine lady
valentine lady 2012-03-14 12:02:50 -0500 Report

Hi Cortney: Thank you for some absolutely wonderful information, full of some wonderful points. I had been tested for just about all you mentioned and they came up with nueropathy. They say mine was brought on by my diabetes. However, they have since gone back and decided I have sciatic nerve damage to my leg. My back is okay, thank the Lord. But, I do have a message therapist that started coming in to see me once a week. Wish I could afford more times a week but well, so goes life. What I do get helps a lot. Again, thank you for your wonderful information. Hugs to you, Valentine Lady

tisdell
tisdell 2012-02-06 08:24:37 -0600 Report

I have all of the above my doctor said it come from me being a diabete, i hate when those sharp pains shut through my foot,and when I'm on my feet doing my run around paying bills I get back in the car my legs start to cramp up and hurt buy the time I make to The house I can't get out the car I would have to sit for a min. Cause my legs are hurting so bad, they diagnose me with PAD the medication they put me on is PLAVIX 75mg and they helped a lot.

emt866
emt866 2012-03-17 23:55:11 -0500 Report

The same happens to me when im out and about i dont last long and i have to force myself to keep going by the time i get home i have to wait a few minutes till i can acually get out the car. my dr. keeps telling me that the pain is cause from me having hbs but wont give me anything for the pain so all i have is regualr tylenol which dont relieve the pain at all. I usually have to laid down and thats when it gets worst cause then starts the muscles ache. its rough and getting worst. thanks for the info i will discuss this med with my dr to see if he thinks it will benifit me in anyway.

sadi23
sadi23 2012-03-31 20:53:08 -0500 Report

emt866 I know how you feel, i haven't driven for over 2 years, but as a passenger I still feel that way…prayer with you…teri sadi23

valentine lady
valentine lady 2012-03-18 08:22:22 -0500 Report

Hi emt866: sounds like you have a bad case of nueropathy. The muscle spasms are quite common with this. I have to take a medication called Baclafin (think that's how it's spelled) anyway, it relieves most of the spasms. You need to make your Doctor understand. This is a real, quite painful, illness. When it hits, like it does you, well I don't don't know how you even walk. When you lay down though, try putting a pillow under your knees, close to your behind. Do you get the picture. It helps the spasms, somewhat. Also straighten out your leg and bend your foot back. It hurts, but a Physical Therapist taught this to me and it really helps. Good luck with your Doctor. You know, you might even print this out and take it to him. Hugs to you, Valentine Lady

valentine lady
valentine lady 2012-02-07 18:33:25 -0600 Report

I'm on Plavix, 75 mg. daily myself. But mine is for my heart. I have a stint in my
heart or I should say my one of my arteries. I had no idea it helps with neuropathy. Almost makes me happy I'm on it. That sharp pain down the leg and into my left foot is almost to much to stand. I know how you feel. Thank you for the information, and good-luck to you and your illness. I'll be thinking about you, keep me posted. Hugs to you…Valentine Lady

Dixiemom
Dixiemom 2012-02-04 08:31:42 -0600 Report

Peripheral neuropathy is not only from diabetis. I've been diagnosed with PN since 2000 way before I had diabetes. The symptoms can be controlled with medication. Your PCP or neurologist can prescribe something for you. If one medication does not work tell them and they will prescribe something else.

valentine lady
valentine lady 2012-02-04 15:09:54 -0600 Report

I know, if you read the opening statement correctly you will see it can be caused by diabetes, medicatons, hereditary disorders and cholesterol lowering drugs as well. I am on medication for neuropathy and suggested some to several other people that posted me. But thanks for the concern…Valentine Lady

sweetpea646
sweetpea646 2012-02-03 20:17:53 -0600 Report

I have those symptoms, my doctor said its all from the diabetes. my arms are burning and itching, I get the tingles in my arms and legs. I have gotten used to it, the doctor said it will fade away. yeah right? lol.

Jan8
Jan8 2012-02-07 08:33:17 -0600 Report

What is your doc thinking? He's not. No,it won't just fade away.Do you have an endocrinologist? It doesn't matter what it's fro. You want relief.

Caroltoo
Caroltoo 2012-02-03 21:27:11 -0600 Report

What I had in my left foot at the time of diagnosis has gone away, so I guess it is possible.

valentine lady
valentine lady 2012-02-04 15:16:54 -0600 Report

Dear Carol: Your my first that I ever heard has just went away…congradulations to you and this gives me hope. My medications help about 98%, that 2% drives me nuts at times. Especially the sharp pains done my leg into my foot or down my arm into my fingers where they cramp up. It's only occasionally, but that occasionally makes me crazy. Hope all is right with you. Special hugs to you…Peggy

Caroltoo
Caroltoo 2012-02-04 15:34:10 -0600 Report

When diagnosed it felt like I was walking with stone in the heel of my tennis shoes. Couldn't find one; thought maybe a bunched sock, but no luck there either. Checked my foot, found smooth skin. Kept on looking and not finding anything. About 2-3 months later, realized I was no longer trying to find the "lump" because it was gone.

Hope that gives us all hope.

nanaellen
nanaellen 2012-03-18 22:51:18 -0500 Report

I had the SAME symptoms!!! I felt like I walked all day with a pebble in my shoe right under my big toe!! That's how I found out I had neuropathy in my feet. I've tried 2 different meds but no luck helping the pain and some VERY unpleasant side effects! Going back to him next month.

valentine lady
valentine lady 2012-03-19 09:14:10 -0500 Report

Hi nanaallen: I'm so sorry your suffering so much with neuropathy. Below me, is a reply from Caroltoo. Her remedy seems to work, it's even being adopted by the medical profession. I would try that, in fact I plan to do just that. Tyically they give you Lyrica or Nuerontin. I am very allergic to both. They put me on Cymbalta, 90mg. 60mg. nightly, 30mg. mornings. It has not cured it, it has controlled it. That's why I'm going to give Carol's natural remedy a try. Let mr know how it all goes, what your Dr. says, etc. Good luck to you, Hugs…Valentine Lady

Caroltoo
Caroltoo 2012-03-19 00:27:07 -0500 Report

Nanaellen: I used Alpha Lipoic Acid (600 mg 2x/day) and 5,000 mcg of Biotin (1x/day). It took about 2 months, but it went away. I've seen at least one Medical group (Kaiser) recommending this recently, so it's beginning to be recognized in mainline care also.

Caroltoo
Caroltoo 2012-03-19 16:54:44 -0500 Report

I get mine from my local health food store. Alpha Lipoic comes in two forms: supposedly the right hand version (form of chemical model) is more active so you can take less. It didn't work for me (made my stomach sick), so I take the left hand molecule and take 600 mg 2x/day.

Most Biotin comes in small quantity per typical daily guidelines, but the info I've read indicates that the 5000 mcg is best because apparently the Alpha Lipoic Acid in some way interferes with some Biotin adsorption. So if any one asks you why so much Biotin, that's the answer: need more because of the alpha lipoic acid depleting biotin from the system.

nanaellen
nanaellen 2012-03-19 23:46:20 -0500 Report

Thanks for the info Caroltoo! I'm definitely gonna try that! I have nothing to lose!! And maybe everything to gain!! I'd almost given up on ever having painfree feet… first because of the bone spurs (since I was 32) and now the neuropathy! I'll keep you posted! Ellen :)

valentine lady
valentine lady 2012-03-19 18:08:09 -0500 Report

Hi Carol: Thanks for the information, I passed it on to "nanaellen". I plan to use it myself. Pray this nueropathy goes away or at least somewhat subsides. That sure would make me one happy lady. My feet would love you forever…LOL…thanks again for your part in all this, your the best. Hugs, Peggy

valentine lady
valentine lady 2012-03-19 14:18:12 -0500 Report

nanaellen: Hi, good question…my understanding is you can get these vitamins in a health food store. Some place, where you live has to have a good health food store, call a round, you'll find one…Valentine Lady

valentine lady
valentine lady 2012-03-19 18:16:00 -0500 Report

nanaellen: Caroltoo got in touch with me today, not the message above this but the next one up. You need to read that. It explains the vitamins in detail. I plan to do this even if you don't. But, I suggest you give it a try. What do either of us have to loose? Let me know what you think..Hugs…Peggy

nanaellen
nanaellen 2012-03-19 23:38:39 -0500 Report

Thank you so much Peggy! I sure WILL give it a try, although I have to say I don't know WHAT I would do if my feet DIDN'T hurt!!! LOL (I've had bone spurs on my heels since I was uuummmm around 32) My feet have hurt since then!! I even went to a Yorker's Shoe store where I told the salesman IF he could find me a COMFORTABLE pair of shoes I would make him the BEST Steak Dinner he ever had…after paying $138.00 and 3 hours later I had to take them off!! Needless to say he never DID get his Dinner! LOL I sure will keep you posted! :) Ellen

valentine lady
valentine lady 2012-03-20 09:49:00 -0500 Report

$138.00 and you could only wear them for 3 hours. You need surgery on those bone spurs. It's worth the inconvience of not being able to walk for a while. I was awake when they did my bone spurs and awake when they did my Morton's Nueroma, on both feet. I was grateful I had it done. Is there a chance you can get those spurs shaved down? Keep me posted…Hugs, Valentine Lady

red flower lady
red flower lady 2012-03-18 00:20:57 -0500 Report

I have never heard of that symptom before? That is so crazy and hope not to get that one. Happy you don't have that feeling any more:)

valentine lady
valentine lady 2012-03-18 07:58:20 -0500 Report

Hi red flower lady: Thanks for your comment. Your right, it's crazy. Crazy and painful…I still have the feelings but the medications all but do away with it. I don't know when or if it will ever stop, for good. But thank you for the thought. Valentine Lady

red flower lady
red flower lady 2012-03-18 14:21:25 -0500 Report

Actually, I was talking about Caroltoo's symptom. I suffer from neuropathy as well, and have all the one's you mention as well as a couple of other symptoms. I had never heard of the feeling like a stone in her shoe, and am grateful not to have it. Meds don't really help me, guess I've been a diabetic for way to long.

I'm happy to hear it works for you though and you get some relief. Do you mind me asking what medicine you like the best for yours? RFL

valentine lady
valentine lady 2012-03-18 15:20:27 -0500 Report

Dear Red Flower Lady: I had non way of knowing you were referring to Carol's post. I naturally assumed you were talking abut me. I'm so sorry the mistake took place. No, I don't mind that you would like to know what medication I take. Lyrica is the most common med given for neuropathy. However, I am highly allergic to it. So I take 90mg. of Cymbalta. 60mg at night and 30mg. in the morning. It controls it very well. I know typically Cymbalta is for depression, but it just doesn't affect me that way. Anyother questions, you know where to find me. Valentines Lady

valentine lady
valentine lady 2012-02-03 21:06:35 -0600 Report

Hi Sweetpea: I like your name…but, obviously your Dr. is not that up to date about diabetes and all that goes with it. Neuropathy gets worse, not better and it sure doesn't fade. Ask anyone that has it and have had it for awhile. You need to get another Dr. that can help you through medicaton. There is medication out there that can help you about 98%. I know because I'm on some. I can honestly say yes I've seen those rosey, pinkish, little spots on my forearms. It's called petechiae and my Dr. actually looks for them when I go to see him. It shows the Doctor how much your diabetes has progressed, etc. Don't scratch them, they'll get worse or I bet you found that out already. LOL
Hope I've been of some help. Keep me posted. Hugs to you, Valentine Lady

kaiya2465
kaiya2465 2012-02-03 20:15:47 -0600 Report

Hi Peggy, I have Peripheral Neuropathy & you have the signs exactly right or at least in my case. Mine was caused by a TBI supposedly. But it is very frustrating at times because I have not found anything that really helps me with the burning feeling & the electrical pain as you put it…which is the worst symptoms for me IMHO.

Dixiemom
Dixiemom 2012-02-04 08:34:36 -0600 Report

I am on Cymbalta, 60 mg. at bedtime. I was on Neurontin but that didn't help. So far I am without pain.

valentine lady
valentine lady 2012-02-05 16:47:09 -0600 Report

Hi Dixiemom: I take cymbalta too. 60mg at bedtime and 30mg in the morning. would say it's cleared up the pain 98%. Every once in awhile I get those electric
sharp pains down my leg into my foot. Man those hurt, but cymbalta makes it's quite livable. Neurontin didn't help me either, in fact became allergic to it. Hugs to you, Valentine Lady

valentine lady
valentine lady 2012-02-03 21:16:43 -0600 Report

HI Christine: Good to hear from you…so sory to hear you have neuropathy too.
Have you tried cymbalta yet. Talk to your Doctor about it, I know that it was found for depression but it works better on neuropathy. It doesn't harm the tummy or any vital organs that I can find yet it kicks the neuropathy in the butt. Talk to you soon. Special hugs to you, Peggy

wrightman
wrightman 2012-02-03 18:57:00 -0600 Report

When I felt this weird tingling feeling (like you described in #6), I was very worried, since I didn't understand what it was. I started panicking, thinking diabetic neuropathy would lead to further complications and fatal consequences. These doctors' answers and more on diabetic neuropathies on the site made me a little less anxious, so I thought I'd share it with you all: http://bit.ly/Aa1MWX.

bluejava
bluejava 2012-02-03 17:45:16 -0600 Report

And there are symptoms of dried, cracked skin and changes in foot shape! A lot of studies say that alpha lipoic acid helps, according to doctors (http://bit.ly/w9SSCz).

valentine lady
valentine lady 2012-02-03 21:26:27 -0600 Report

Yes, I believe you are correct and for the dried skin, especially cracked skin on the feet there's this product out called Bag Balm. It's in a small green can and sells for about $6.00, at Walmart in the animal section. It originally was meant for cow udders when they crack from the cold or what ever. Rub it on your feet and put on an old pair of socks and go to bed. It works wonders and soon your feet won't have cracks and scales anymore. Don't stop with the bag balm, continue to use it on a regular basis. Hugs to you, Valentine Lady

Dixiemom
Dixiemom 2012-02-04 08:38:34 -0600 Report

I used Bag Balm on some of my patients in the nursing home to prevent and treat bedsores. It's a great product.

jayabee52
jayabee52 2012-03-20 03:08:37 -0500 Report

I agree Dixie Bag balm is a great product and I have used it frequently, but there are some who don't like the petrolatum in the mixture. Too greasy they say. There is another product called Udderly smooth ~ http://www.udderlysmooth.com/ which does not contain the petrolatum.

I have also used that and do prefer that product now.

valentine lady
valentine lady 2012-03-20 09:38:38 -0500 Report

i USE BAG BALM ON MY FEET. THEY USED TO CRACK AND BLEED, NOW I'M A DIABETIC THAT JUST CAN'T HAPPEN. THE CHANCE OF INFECTION IS TO GREAT…BAG BALM AND UDDERLY SMOOTH WERE MADE TO HEAL COWS UDDERS WHEN THEY CRACK AND BLEED. THAT STUFF WORKS…VALENTINE LADY

edvel54
edvel54 2012-02-03 14:03:05 -0600 Report

Last dr visit I mentioned that I had burning, numbness & tingling in my hands & arms. and the first thing out of their mouths was carpal tunnel syndrome…I tried to ask if it diabetic related and all they say was I should go to a specialist…I went to a website and found that I have most of the symptoms for Peripheral Neuropathy. I seem to fall more than I should as was really interested about muscle problems and the part where it states "You may trip over your toes". I now know what I am tripping on.

valentine lady
valentine lady 2012-02-05 18:12:00 -0600 Report

edvel54: I'm at the shock part of these posts. I can't believe a Dr. would even think to say that to you. All I can say is you need a new Dr. keep me posted…
Hugs to you, Valentine Lady

Dixiemom
Dixiemom 2012-02-04 08:48:22 -0600 Report

See a neurologist for your neuropathy. Mine is not diabetic related as I had it way before diabetes came on the scene. I know all about the falling and tripping. You may have footdrop due to the neuropathy. They can prescribe a brace for this to prevent you from tripping . It does affect the muscles so you should be doing some strength training exercises. There's not much to be done about falling. I can be standing holding on and still crash. This happened 2 weeks ago at my daughters house. We were talking and suddenly I started falling and that was it. I don't fall often so that is good.

jayabee52
jayabee52 2012-02-03 09:42:25 -0600 Report

Hey Peggy!

I believe I have peripheral neuropathy as I have the tingling type in my arms (elbows to fingertips) and the burning type in my legs (knees to tip of toes).
I also believe I am developing a case of gastro paresis, and neurogenic bladder.

I am a real mess!

valentine lady
valentine lady 2012-02-03 13:30:09 -0600 Report

Hi James: I'm so sorry you have all these things wrong with you, but I wouldn't call you a mess. Just someone with some serious medical problems. Since you have these problems from above get to your Dr. asap…He/she will more than likely put you on lyrica or neurontin. I am allergic to these medications so I take Cymbalta 90mg daily and that's about to go up to 120mg. I know that typically
Cymbalta is used for depression but they have found it works best on neuropathy. It works like a charm, believe me. Hope you find some relief, I could hardly sleep until my Dr. put me on cymbalta. Now I sleep all night and have no problem during the day. Oh once in awhile I get those sharp pains, but the burning is gone and for the most part the numbness too. Good luck to you, your in my prayers, always. Hugs to you, Peggy

jayabee52
jayabee52 2012-02-03 14:36:49 -0600 Report

I am on Nortyypteline, an antidepression med, but it seems not to help. I have also been on Neurontin/Gabepentin which did absolutely 0 for me. I am now trying to attack the problem using Alpha Lipolic Acid (ALA), Biotin, and Benfotiate. I just started the Benfotimate yesterday so the jury is still out on that. I seem to detect a diminishing pain level with the ALA. Biotin is supposed to be needed to help the ALA.

I still await the time when I can walk pain free. I usually can sleep, however.

Thanks for your good thoughts for me.

Blessings to you and yours

James

annesmith
annesmith 2012-02-03 01:46:05 -0600 Report

YES, I just started suffering really really super bad from diabetic neuropathy in the last year…my feet suffer the most, along with my left leg. I had diagnosed pancreatitis at age 16, and am a brittle diabetic. I was taking a really really good pill for it—-not Gabetine, as my body is allergic to that…some other pill, and it worked very very good, only, I had to stop taking it for awhile, as it pounded the heck out of my belly…internal bleeding is a risk for that pill…I also have arthritis along with the inflammation from the neuropathy, so I end up with double and triple inflammation now…aaaahhhh, the wonders of getting a little bit older..ha…ANNE

Dixiemom
Dixiemom 2012-02-04 09:12:33 -0600 Report

Drink lots of water. I was told we should drink half our body weight in water.Water has healing powers we don't necessarily think of. I am trying to do this right now. I drink very little and need to hydrate myself. Try it and see what happens. Just remember, these aren't the golden years, they're the rustede years.

valentine lady
valentine lady 2012-02-03 13:46:29 -0600 Report

Hi annesmith: I also suffer from diabetic neuropathy. The correct name is at the top. I never knew this was the correct name either until I found this article. Ironically, I'm with Brittle Diabetes as well. We should become friends, we seem to have so much in common. I can't take the normal medications for neuropathy
so I take Cymbalta. I know it's advertised as a depression medicaton but they have found that with at least 90mg. going in that it cuts the problem 98%. I have it in my left leg and foot and in my right hand and arm so far. Cymbalta is good on the stomach is the reason I brought it up. Good luck with your medical problems. Know your not alone…Hugs…Valentine Lady

annesmith
annesmith 2012-02-03 23:46:37 -0600 Report

Wow, we are both brittle. I am so happy I found someone that can relate. Of course, everybody on here has been more than supportive. I can't take any kind of antidepressant at all, as it gives me seizures. For some reason or another, they all raise my blood sugar to the roof. I will see about getting back on the pills they gave me before, as they worked really good. Are you type 2 brittle or type 1 brittle? Sincerely, ANNE

valentine lady
valentine lady 2012-02-04 16:20:27 -0600 Report

Annie: I am Type 2 brittle and boy can I ever relate. My biggest problem is that I drop so fast at the most inoppertune times. Like in the middle of the night I dropped to 22. I must have been a little higher because I remember thinking use the call light. When they came in all I aid was my blood sugar and they said I passed out. They gave me a shot of Gluagone and still had to call EMT'S for me to go to the hospital. I rarely go high but when I do it's always a doozy. I'm so sorry you develope seizures with some medications. I too have seizure disorder but haven't had a seizure in almost 10 years. Knock on wood…Hugs to you, Peggy…aka…Valentine Lady

jayabee52
jayabee52 2012-02-04 16:30:23 -0600 Report

my bride Jem was also brittle when she was alive. And she would drop like a stone in the middle of the night. Sometimes I would wake up in the middle of the night and she would be scarfing down carbs like there was no tomorrow.
I encouraged her to wake me to get a BG reading, but she didn't want to wake me (or was she protecting her "scarfing time"? LoL).

valentine lady
valentine lady 2012-04-01 15:02:51 -0500 Report

James: I'm not sure what Jem was doing, but when I drop it's so low there's only 2 things left to do, give me gluecagone and call 911. I drop into the 30's or sometimes the 20's. I have dropped into the high 40's and 50's and started loading up on carbs. And I didn't care who saw. I would eat peanutbutter and wash it down with oj with 2 Tbls. of sugar mixed in. It was gross but it sure works. Sometimes if I had enough warning I made a gooie peanutbutter and jelly sandwich and wash it down with the oj mix. I think she was scared and was trying to get the carbs down and her numbers higher. Don't know why she never told you or woke you when this was happening except she didn't want to wake you. Hugs, Peggy

jayabee52
jayabee52 2012-04-01 16:01:19 -0500 Report

She just had cookies, crackers and candies at our bedside no PB or bread. She was frantic in her eating. Probably didn't even think to wake me until it was too late. There are times I wonder if that what it was that finally took her from me. She got low and didn't have her carbs to bring her up so expired on the daybed.

I gotta stop with the woudda, couldda, shouldda or I'll drive myself batty.

valentine lady
valentine lady 2012-04-09 10:49:37 -0500 Report

Dear James: Yes you do have to stop the wouldda, shouldda, couldda or you will drive yourself batty. Just remember it was her time to go home. The Lord cslled her and she left to go be with the Lord. I know you miss her and she knows you loved her, very much. That's what counts. You took care of her, you loved her and you accepted her as she was. Those are the things to dwell on. and of course how much she loved you. My thoughts and prayers are with you, always. Peggy

sadi23
sadi23 2012-04-02 15:51:12 -0500 Report

Thanks guys, I have had problems w/my feet for years, I also have a overgrowth of thick skin, on my feet and around my nails, I have to wear nail polish or my nails will drink up all the moisure around them, the skin hates it. I now use a file to try to remove some of it, I know its a no no, but it I didn't it would be so bad…it would split open, I just started the bag balm, thanks to all of you, it hasn't done to much, but it often takes some time…I wash & care for my feet daily, even before D, doc's said it was from the combo of my Lupus & Sjogren ( detroying of the mucus membrains & glands. Sucks i have little to no spit, you have no idea what happens when you have little to no spit, spit does so much for us, It also causes my eyes to be as dry as they could be. I have to put lube around my eyes, & pack my nose, & any where else, or I will really suffer. I too take my shoes off, I have always hated to wear shoe's even as a young child. I buy good fitting shoe too. If any one has any ideas, on my post please comment back, I love to learn any thing & every thing I can… God bless you & yours…your friend Teri Also I think or the doc's tell me they believe i have D neropathy, I have not much feeling, like if you poked me with a tooth pick, any where, it feel like it is blunt, I don't feel any pain, as my guy will poke himself in the same area, & just be shocked that that didn't hurt. I also get numbing areas a lot… with pain many different colors, bloches, I have Raynauds disease & Vasulitis, my hand can get so cold, that i might up between my legs for 45 minutes, then my legs feel as if i has a bag of frozen peas between them…i also get hot hot from knee down…I think it could also be from D??

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