A community is built on trust.

Uncle Lew
By Uncle Lew Latest Reply 2012-01-23 15:17:13 -0600
Started 2012-01-23 13:15:34 -0600

We are a family of individuals united by diabetes. We share our individual hopes, fears and experiences. We are individuals not corporations with commercial agendas.
In recent weeks I have found what I feel are two disturbing incidents.
First a Farrah M joined our community. From her profile and introduction she describes herself as a Customer Service Manager for US Med. Within days her profile picture turned from a picture of herself to a picture of the US Med logo. How blatant an effort to advertise in our community. I have red flagged her posts and protested the presence of US Med in our community.
The second disturbing incident is a GEARHEAD BADGE which is awarded to anyone who has a question answered by US Med. Why do we need such a badge? Will we soon have a Liberty Medical badge and then badges for every mail order operation. Will it stop there? Or will we have badges for every manufacturer of diabetes equipment and medications: the BD Syringe and Needle Badge; the Bayor Contour, Accuchek or OneTouch Meter Badge; the Lantus or Novolog Insulin Badge; and only God knows how many more.
I appreciate the advice of professionals but at what price? As a member of our community US Med has complete access to our profile and all our information. This a plethora of information, along with the question asked, from which to build a data base. A data base to flood us with advertisements and other useless spam (possibly phone calls and snail mail). This is not paranoia but simply a distinct possibility.
Do we really need commercial profiles, commercial badges or commercial anything else littering our community. If you look near the bottom of the page where your badges are displayed it says “A COMMUNITY IS BUILT ON TRUST”. I trust you but not the commercial establishment. Let us stem the invasion now.

1 reply

John Crowley
John Crowley 2012-01-23 15:17:13 -0600 Report

Uncle Lew,
Thank you for your input. And you are certainly correct in reminding us all that the community is built on trust.

We want to assure everyone that we are in no way trying to compromise your privacy or give any organization access to your personal information. We do however, want to use partnerships with trustworthy organizations to bring resources into the community that we would otherwise be unable to offer. The arrangement we made was for the US Med representatives as well as the clinicians from Joslin Diabetes Center to share their knowledge and experience. They are not here to push their companies/organizations or to mine the site for your personal information.

It is important to note that you still have control over your privacy settings and can decide what anyone in the site can see when they visit your profile. These experts are members of the community. But they are not automatically friends with anyone and therefore you have options to control what they can and cannot view on your profile.

I'm happy to answer any specific questions you have about these programs and what we hope they bring to the community.

John Crowley
Caregiver Advocate
Diabetic Connect

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