New Irish girl here

nikster99
By nikster99 Latest Reply 2013-08-31 12:36:34 -0500
Started 2012-01-13 17:21:21 -0600

Hi there
My name is Nicola. I'm Irish, 29 and have been diabetic since 1997. I have MODY diabetes and would be particularly interested in having discussions with other MODY diabetics in particular. It runs in my family and I have never heard of/met any other MODY diabetics other than my relations

I'm trying to really sort out my control at the moment as I am trying to get pregnant and I know that it's extremely important to be a model diabetic to have a healthy baby

Looking forward to chatting with you all


16 replies

Pamtime
Pamtime 2013-08-31 12:36:34 -0500 Report

Hi, Nicola. My name is Pam. I have been diabetic since 1976. Yesterday i was diagnosed as MODY or at least Endo seems to think I meet the criteria. I was 21, thin, on active duty military when I was diagnosed. Have long had issues with post meal highs, and insulins not working as they should. Looks like it is going to be a learning experience. He want to add a sulphonylurea to my meds. For me it is horribly scary as had a severe low a few years ago. Scared the confidence right out of me… Please listen to your Endo and they will guide you through a healthy pregnancy.
Pam, Oregon

nikster99
nikster99 2012-01-16 16:41:17 -0600 Report

Caroltoo- thanks for the info on friend requests, I hadn't noticed that on the app. I'm going to go and find my friend requests straight away

nikster99
nikster99 2012-01-15 17:03:33 -0600 Report

Sorry- I was at a wedding all day yesterday so only catching up on posts.
So- MODY is in my mothers side of the family. My grandfather was diabetic (don't know what type). 6 out of 7 of my mothers siblings are diabetic. They were initially diagnosed as either type 1 or 2 but that changed to MODY as more research was done on MODY.
I'm a member of the Irish diabetic federation but I find that MODY is still one of those topics that nobody really knows much about.
My mother was such a well controlled diabetic that she actually went off all her medication during her 3 pregnancies!
My control isn't the best at the moment- I ate way too much of the wrong things over Xmas but I'm making changes and trying to be better

Caroltoo
Caroltoo 2012-01-15 17:40:37 -0600 Report

We will all be happy to talk with you and help in any way we can. I'm fairly new to the site and not family with MODY, but I know some here are. That information will come up on the discussion as people notice it and respond.

Glad to have you here with us. You might get some more response too, if you would go ahead and accept the "friend" status that some of have offered. You probably know, but to do that you'll need to go to the 'inbox', then to 'friend requests', then 'accept.'

For the fun of having someone closer to you to talk with, you might friend roshy who is in Dublin and in college/university. She has been a real pleasure to talk with and might have some more local insight for you.

sweetkyfirefly83
sweetkyfirefly83 2012-01-14 11:31:09 -0600 Report

I was diagnosed with MODY diabetes. I was initially diagnosed with type 2 at 22 years old, but my endocrinologist said that diagnosis was wrong and I in fact have MODY. I've had such a hard road and seems like Im still travelling on that road. I would love to talk to you since I have so many questions about MODY. :)

roshy
roshy 2012-01-13 21:49:04 -0600 Report

i like the way slowly more and more irish people are linking up with the site!! i remember when i used to be the only one back in the day!!!!

in anyways, wecolme to the site!!! i am also irish ( 24yrs old) and type one!!! where abouts are you from in ireland?? have you tried the Federation of Diabetes in Ireland!! they are deeadly for information and will post you out leaflets containing important information on diabetes and pregnancy !!

I hope you find the site useful!!

best of luck !

red flower lady
red flower lady 2012-01-13 19:28:31 -0600 Report

Hi, I'm glad you found this site. Which one of your parents carries the MODY gene? If it is your mother, did she have gestational diabetes when pregnant? Do you have one or two copies of the MODY gene? I know that most people don't know about this form or that you can actually be tested to determine if you are type 1 or 2 and not just go by age, weight, etc… Also , since this is a genetically linked diabetes, there are other specifics that can be associated with Mody. Were you ever tested?

Would love to tal more:>

jayabee52
jayabee52 2012-01-13 19:22:32 -0600 Report

Howdy Nikster. WELCOME to DiabeticConnect! Sorry you qualify for inclusion in our "little" family. but since you do, I 'm glad you're here.

I am not MODY, (merely T2) but this post did lead me to research what it is.
I had heard the term but had not taken the time to read up on it. I expect you will find a few MODYs here, but not many, since it seems such a rare occurance.

I pray you have good fortune in getting your diabetes under control and you have a healthy child.

Blessings to you and yours

James Baker

Las Vegas NV

PS, where are you at now?

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