Am I the only one???

By sweetkyfirefly83 Latest Reply 2012-01-11 19:46:54 -0600
Started 2012-01-07 20:34:11 -0600

I am 28 years old, and have been a diabetic since 22. I have been through so much since the diagnosis and its been a very hard road.

I started out on diet control, then to oral meds, and now strictly insulin. Ive been on insulin for 4 years now. My problem is that I seem to get "used" to the insulin and it seems to stop working after a year or so.

The past year I have had so many problems with high blood sugars. I am seeing my endocrinologist every two weeks. He changed my insulin again, and it seems to be working really well. So well I had a low blood sugar episode.

I am so tired, and feel so horrible all the time. It seems so hard to deal with. I know I should be used to it, but with two small kids, it is so hard on me. Am I the only one who feels like this?? Sometimes I just want to cry. I feel broken and like damaged goods.

9 replies

annesmith 2012-01-10 01:58:37 -0600 Report

HI…I am so glad someone else feels " alone". I did not mean it's great that you feel bad, just that sometimes I feel so alone, because I'm brittle, but I realize there are other brittle diabetics out there. I have huge problems with all my joints in my entire body…they flare up every day, then just progress to worse by evening. I have a left foot that is so darned tired of being damaged for years. When I was 15 years old, my left foot showed serious signs of bad diabetes. I never really told anyone, but one teacher in school was nice enough to point out to me that it is not normal. To this day ( I am 41 years old now), my left foot is bad. I had a few years where it went into a "normal" state, but now, it's worse than ever…and that really scares me…I don't want to lost the foot. I am sorry that you feel tired and horrible all the time. I feel SO so so so tired every morning when I get up…then when I have my strong black coffee with creamer and a little bit of sugar, I feel really good. However, by around 4pm every afternoon now, I feel really tired, I feel bad, and my joints majorly flare up…they stay flared up until the next morning again. It literally feels like my body is not producing something, but I can't pinpoint what it is not producing…I feel like a car that is OUT of oil, and extreeeeeeeemly LOW on steering wheel fluid..ha. I seriously need to get in to a doctor, and tell him about my severe joint pain. I wish you the best, and HANG IN THERE!!!!! I know it's very hard…heck, I have had nights now where I feel like such crap I can't even walk hardly…I have to lean up against a wall when I get up out of my chair. My left leg feels like it is ulcerated in the lower part..and it feels bad. I don't know what happened to me, yet, in the back of my mind, I do. I have found that praying REALLY really super hard, especially at night , to GOD, has helped me a lot. I would suggest a lot of prayer—I'm not trying to force it, and then see your doctor as soon as possible. I am astounded at the lack of something my body is not producing…I'm getting updated bloodwork down soon, so I will see a closer picture of what's going on…sorry to sound selfish…but, like you, I am so darned TIRED. I walk and run 5 days a week, am not perfect on my eating, but not too bad. I feel like I have no oil in me, as if I have run out of fuel, and I have to keep getting up to keep my circulation going…I don't know WHAT would cause me to feel like I am out of "oil" —-oil is not the right word, but it feels like that. It feels exactly as if when you go to ride a bike, and you go to pedal, the pedals BARELY move. ANNE

sweetkyfirefly83 2012-01-11 19:46:54 -0600 Report

I went to see my endocrinologist today and he said that I did in fact have diabetic neuropathy in my hands and feet. He said it was most likely from my body being used to having high blood sugars and the nerves were not getting enough bloodflow because my blood was syrupy. But since my sugars are getting under control and are at better levels, my bloodflow is better, thus reaching my nerves and making them "wake up" so to speak. I was prescribed Gabapentin for the nerves. Also, he said something about getting on an insulin pump.

jigsaw 2012-01-08 21:39:11 -0600 Report

I have been through a few difficult times with bg control also. During the 17 years that I've been diabetic, there were definitely a few rocky roads. So far, I have always been able to get my bg under control with either diet, meds, and exercise. I have had certain meds stop working after a time, but I haven't heard of insulin suddenly not working. I have increased the dosage of my meds, changed meds when necessary, and altered insulin dosages. I have altered my exercise routine and diet over the years depending on my overall bg and a1c. Probably, the major cause of poor bg control and feeling crummy with many diabetics is due to diet. Diebetic educators as well as a good dietician can work wonders especially if you are doing something that is correctable. I utilize an entire diabetic team consisting of an endocrinologist,dietician and a few diabetic educators. I'm confident that there is an answer to your dilemma ! I know it can be frusrtating and seem like looking for the needle in a haystack, but more than likely the answer is closer than you think.

sweetkyfirefly83 2012-01-08 21:03:42 -0600 Report

Yes pixsidust a lot of frustration. I watch my diet closely because I have to carb count. I'm more frustrated with the way I feel when then sugars go up then down and visa versa. I have constant body aches and pains, the dizziness headaches and the shaking.

I was without insurance for an entire year and had to cut back meds because I couldn't afford them. But I'm back on insurance and trying to get everything back under control. So it feels like I did when I was first diagnosed.

With the aches and pains, does anyone know if it could be a form of neuropathy???

pixsidust 2012-01-08 20:28:51 -0600 Report

I do not know how you eat. I had a past co-worker who used his insulin to eat whatever he wanted. I am sure you do not do that but I want to encourage you to use your diet as well. Only you know if areas can be tweaked or not…There is a lot of frustration with this disease!

sweetkyfirefly83 2012-01-08 20:00:03 -0600 Report

James, I am still in the learning stage. I was being treated by a family physician initially, and during my pregnancies by my ob. I am seeing an endocrinologist now and hes doing things differently.

jayabee52 2012-01-08 02:28:28 -0600 Report

Howdy Sweetkyfirefly. WELCOME to DiabeticConnect. Sorry you qualify for inclusion in this "little" family but since you do, glad you are here.

No You are not the only one to feel lousy about the Dx of diabetes. In the 3 + years I've been here on DC there are dozens who have come to this website in despair and frustration over their Dx. Often once they have asked questions and gotten support and answers their attitude and confidence got much better.

I have had diabetes for 16 + years, and I remember the confusion and the emotional turmoil I had. I remember feeling broken and feeling like damaged goods, but feel like that no longer!

Your body getting accustomed to a particular insulin is unusual, but not unheard of. Do you know if your body will accept the insulin like new if you give it a time to rest from a particular insulin and then re-introduce it to you a year or so later?

Blessings to you and yours


PS: I was in a VFD and was on the ambulance crew in Nebraska for a short time a few years ago. Loved it!