New Diabetic. Needs Advice

javarra96
By javarra96 Latest Reply 2012-01-12 18:06:13 -0600
Started 2012-01-03 15:03:52 -0600

I was just diagnosed that i hav type 1 diabetes on christmas. i was there for 4 days. when i got there, i could barely walk. my blood sugar was over 900. they told me it was shocking that i was able to walk and tallk, let alone be consious. any1, things are kind of easy so far. people are being really understanding and arent bugging me about it. i do have questions about it though. the more i have it the more i have. so for any1 out there reading this, does any1 hav any advice?


59 replies

Piper5
Piper5 2012-01-12 17:16:41 -0600 Report

My "basic" advice is…get in touch with a good Diabetes Educator. I've been T1 for 35 years and it is only the last two years that I really have understood what in the world is going on with my body. I owe it all to good education from a very special person. She took me on and made sure I understood what she was telling me. She made me ask questions, and then she would ask me questions. Because I have learned so much more about this disease and how it effects "Me" that my A1c has gone from 8.9 to 6.7 in just 10 months. Just when you think you know it all… you don't. Keep up on education. Good luck to you.

jigsaw
jigsaw 2012-01-12 18:06:13 -0600 Report

"just when you think you know it all…you don't. Keep up the education."
Some of the best advice one can take !

Lauren :)
Lauren :) 2012-01-08 00:04:27 -0600 Report

For any lows, keep a fruit juice box or glucose tabs close by. It has saved me many times! :) But, welcome to the world of type 1 diabetes! Here for any advice. :)

javarra96
javarra96 2012-01-07 10:05:03 -0600 Report

All day yesterday my numbers kept going low. Any reason why this is happening?

Type1Lou
Type1Lou 2012-01-07 17:11:18 -0600 Report

Your activity level could also cause variations and drops. Did you exercise more or were somehow more active yesterday? Exercise helps your body metabolize the food you eat more efficiently, so, if you'll be more active, you need to either eat more or reduce the insulin you inject. Something you should definitely ask your doctor about…

red flower lady
red flower lady 2012-01-07 15:40:39 -0600 Report

If you take your insulin and then don't eat or eat enough for the amount of insulin, then your numbers will drop. If your bg is low and you just eat to bring it up, you will probably end up with a high bg # which will require more insulin to bring it down again. However; you have to do the checks as you will most likely need to eat something so it'll stop the drop beyond the ideal range. Yes it can be a tiredsome cycle, but once you get the hang of it then it gets esier. You may just need alittle snack between meals to help regulate the numbers. Has your dr given you ranges for bg and the needed insulin to go with it?(high or low) This will help you alot, and you may have to reduce the amount of insulin slightly to get the desired #'s if you are eating correctly and following his orders. We all react differently from day to day and just have to stay on top of it and roll with the flow:) I hope I helped, if you need more clarification just hit my inbox and I'll explain further based on what you are doing.

Caroltoo
Caroltoo 2012-01-07 11:53:52 -0600 Report

Depends on how low, low is. Generally, it means you are not eating enough carbohydrates to utilize all the insulin. Since you are newly diagnosed, perhaps you are reaching a point of balance where you don't require as much insulin. Too low is also dangerous. I'd call my team and ask someone knowledgeable in your medical specifics. Probably a question for your doctor.

pixsidust
pixsidust 2012-01-07 10:03:07 -0600 Report

I wrote this at about my one month mark of diagnoses. Its the things I quickly discovered and thought about. On 2/16/12 will be my one year mark. I am still learning. Take a look and click on this link or I copied it below. I am so glad we are talking and you are alive! http://www.diabeticconnect.com/discussions/10...

What are your Diabetic Best Practices that help you toward success? In the evolution of watching what I eat and do, I am discovering some things, that help me be successful.

The first day after my diagnoses a month ago, my company took us all out to eat and thus my watching myself began. Here are some things that have helped me thus far.

If you are going out to eat as a group or individually, see if you can find the menu online. Read the calories, nutrition values and anything they provide that will help you make the best choices ahead of time.
Recently I went to Denny's and had food substituted at no cost to egg whites, a whole grain pancake, sugar free syrup, and low fat/sodium turkey bacon.

Keep your groceries well stocked with food you can eat. One of my first trips I made to the grocery store, I spent time reading the labels and looking carefully in each aisle as I went down them. I discovered a narrow strip of shelving top to bottom where sugar free ketchup, fat, gluten & sugar free dressing were housed in many flavors. Sugar free jam is not the same but passable. American fat free cheese does melt where fat free cheddar does not. Not all lunch meats are the same so read the labels.

Raw salt free nuts are sold separately from the rest of the nuts. I found mine near the fresh foods where you pour, bag, and label the package.
Try new vegetables and fruit. I love Granny Smith apples but was introduced to a Jazz Apple which is very crispy and sweet with a kick. Different lettuces have different nutrient levels and make for a good sandwich wrap. Remember the more colorful, a fresh item is, the more vitamins it holds. Eat raw when possible for the extra fiber.

Keep snacks that cater to all your cravings. They need to be quick and answer an immediate urge. My cravings fall into both a sweet and salty categories. For sweet I have the sugar free pudding and Jello cups. For salty I go for extra flavor of carrots dipped in garlic hummus, or broccoli florets in fat/sugar free ranch dressing. Pork rinds are also carb free but are 50% fat with high sodium. Take your snacks with you to work and when you go places. You will be prepared.

Try substitutes and go for the flavor. With fat free butter spray, I do not miss butter or margarine. Salt free Mrs Dash come in many flavors and seasoning combinations. I have found even some of the generic versions even tastier.

Experiment with recipes. I take a large lettuce leaf to roll my burrito filling in and eat it with a fork.

Involve your family to thinking about you. My son makes us stir fry and my food is taken out before the sauce is put on it. Do not have your feelings hurt if at a party there is not much you can eat. Discuss what they are having in case you need to eat ahead of time.

Walk in the sunlight as weather permits. Sunlight is good for vitamin D. We walk inside our office building, taking the stairs up and down with hall ways in between in inclement or too cold/hot weather.

Wear good shoes that give support and cushion. These do not have to say Diabetic or Orthopedic on them as there are many brands that are made well. They can be found if you Google the words comfortable shoes for brands. Most people have to try on shoes to determine fit and comfort. Once you know your fit in a brand and style, shopping on-line can be a savings, especially if you look for on-line store coupon codes to add to a website sale.

Drink lots of ice cold water. It speeds you metabolism up, warming the water and gives you much needed hydration. If you do not like water, try putting a lemon wedge in the water or use a sugar free Wylers or Crystal Light.

Connect. You made a start connecting here. I find the more people I tell that I am a newly diagnosed Diabetic, the more people let me know they are Diabetic as well.

Most of all be your own best friend. Everyday try and prepare to be your best. Celebrate the good you see. Make yourself a priority for yourself and those who love you. Be kind to yourself when you falter and realize you now have an opportunity to do even better.
Cry if you must but renew yourself with a plan and goals. Make your goals realistic and bite size. We are taking this thing step by step and day by day. Lets give ourselves a chance at success!

Dr Gary
Dr GaryCA 2012-01-06 22:37:21 -0600 Report

Hi javarra,

My gosh, what an experience that must have been to receive this diagnosis at Christmas. If there is a bright side, it is that your diabetes was finally diagnosed, s that you can get treatment, and get your self-care on track.

I would just add that it is important to get a lot of support when you are newly-daignosed. A diagnosis like diabetes brings up a lot of emotions. It can help a lot to have someone to talk to, even just to vent with, who can listen and not judge you or try to tell you what to do. Joining a support group can be a good way to get support from people who really understand what you are going through.

And getting educated is a big help, so that you know what you can expect and what you can do to take the best possible care of yourself.

And stay in touch with your friends on Diabetic Connect. Let us know how you are doing and how we can help.

Take care!

Gary

Type1Lou
Type1Lou 2012-01-06 12:15:21 -0600 Report

It's difficult to add to what all the others below have advised. Learn as much as you can about managing YOUR diabetes. Then take control! By keeping your blood sugars as close to normal as possible, you'll be less likely to develop those nasty complications later in life. You have within you the power to make the right decisions and ensure that you'll live a long, healthy and happy life. I was diagnosed with Type 1 at age 27 and am now 63. I never felt that my diabetes defined or limited me. Wishing you all of the best in the coming years!
Hugs,
Lou

MoeGig
MoeGig 2012-01-05 17:38:44 -0600 Report

The only advice I have is go to class and learn all you can. With this disease, you become your own doctor which a key to avoiding the horrible complications that will occur if you make the wrong choices. When I first came down with Type 1 in 1965, I was lucky to be in Boston and entered the Joslin Clinic teaching unit for a week. Classes, blood control, food education, etc became the best move I ever made. No complications and 46 years later, I'm enjoying partial retirement, travel, and an active life style. I'm sure you can find the equivalent in some clinic wherever you are. Good luck. Knowledge is power!!!

valentine lady
valentine lady 2012-01-05 13:11:21 -0600 Report

javara96: First of all I want to welcome you to Diabetic Connect, you couldn't have made a better decision in web sites. The people here ae just wonderful, full of compassion, insight and information. I really can't add to all the wonderful information you've been given, except to say having diabetes is a ever learning process You can't learn everything at once, don't try. Just be so proud of yourself that you got your BG (blood glucose) down from 900 to 188. That's wonderful all in it's own. My suggestion is to work on a good diet to live with, first and foremost. That is the most important to keep your BG pretty level, or it should. Otherwise listen to all these great people and their advice. Their right…
Valentine Lady

Uncle Lew
Uncle Lew 2012-01-04 15:40:56 -0600 Report

You will never stop learning. I was diagnosed 18 years ago and have never stopped acquiring new information.
A few suggestions:
1. Find a good endocrinologist. They are specialist in diabetes.
2. Take a class or classes in diabetes education.
3. See if there is a diabetes support group in your area and join it.
4. Don’t be afraid to ask us any questions.
Good Luck.
Godspeed

javarra96
javarra96 2012-01-04 20:10:30 -0600 Report

We met with my dietition, social worker, and nurse practitionor today. Accoring to them, so far I'm doing great with my numbers. My highest so far since I've been home was like 288 and my lowest was 52.

Caroltoo
Caroltoo 2012-01-04 21:57:35 -0600 Report

You are down from 900. That is tremendous progress!!!

You will feel more confortable with the whole process as you learn more about diabetes and learn how to take charge of your own care. That's not to count your family and team out by any means, only to say you are the one who will be buying your lunch and deciding what you snack on while you are at school. That's why knowin more will help you feel more comfortable about making good choices.

Just Joyce
Just Joyce 2012-01-04 11:05:58 -0600 Report

hi Javarra Welcome to Diabetic Connect. The one thing I can say is you have found a great group of people here. Many of us have been down the same road. I am type2 but we all still have to eat healthy, watch our carbs and exercise. Once you get you blood sugar under control, I believe it will be easier. It was for me. Ask as many questions you want. Someone will answer you…Good Luck

Set apart
Set apart 2012-01-05 06:53:27 -0600 Report

Welcome Javarra Joyce is so right you have found the best support here on line. I was diagnosed with T1 4 mos. Ago and am still learning. The main thing I have learned is that it is all about diet, and counting and watching what you eat. Not only this but the consistency in when you eat. I still find myself eating a lot of the same things cuz they work for me. Sometimes eating for me has become more of a fuel for life so my goal for the New Year will be to plan and prepare some great menus from all those cookbooks they have provided me with. Best of luck and welcome!

Just Joyce
Just Joyce 2012-01-05 11:28:10 -0600 Report

Set apart my problem with eating the same foods is that it is so boring. I have food allergies that I acquired with age. My friends father made the dressing for Thanksgiving and everyone was raving about it. I couldn't taste it because it contained raisins and whole cranberries. I would so love to blow my carbs on a peanut butter sandwich or a banana split made with real ice cream.

Monique R
Monique R 2012-01-09 10:46:09 -0600 Report

I can understand that my daughter has allergies and she is seven but she does well now that we have a list of them all. I pray that she does not become a diabetic so I watch everything she eats and she always asks me, “mom why can't I have that"? On the other hand, she knows the other entire thing she can eat so I let her find new things she can try.

Type1Lou
Type1Lou 2012-01-06 12:19:15 -0600 Report

Dear Joyce, Peanut butter is one of my staples. For lunch, I eat an apple that I've sliced up and spread the slices with all natural peanut butter. It's about 37 grams of carb depending on the size of the apple and the amount of PB you use. For a treat, I'll take one square of Dove dark chocolate and put a spoonful of all natural PB on it. That comes to about 7 grams of carb. I find I can do without the bread but still have my Peanut Butter!
Hugs,
Lou

daydreamer630
daydreamer630 2012-01-04 08:59:17 -0600 Report

Well, I've had diabetes for almost 19yrs and to this day I'm still learning. The thing about diabetes is its ever changing, as you change so can you BG(blood glucose). I'm always searching for new ideas and things to better my control. The biggest thing is not stressing too much. That can throw you BG out of control. So just take things one at a time. Eventually everything will come more naturally. Also this site is a huge help! Everyone is full of experiences and I'm sure most are willing to share! So hang in there and if you have any questions at all feel free to ask.

javarra96
javarra96 2012-01-04 20:38:08 -0600 Report

The people on this site have been very kind to me and helpful and i appreciate all of their advice. As far as stress goes…my life is and has always been one huge ball of stress so im guessin my numbers wont always be perfect lol

Monique R
Monique R 2012-01-09 10:50:09 -0600 Report

I find out I was a type one when I was 25 and then I find that if I let myself get stressed out my levels would go through the roof so try to find a way to limit them. You will get there and you will be fine.

Jan8
Jan8 2012-01-04 07:56:35 -0600 Report

Hi javarra96,if it weren't for the wonderful people here it would have been very hard for me to endure this diagnoses. i began insulin last year in Feb. Welcome and learn lots!

'Second Chance'
'Second Chance' 2012-01-03 22:48:23 -0600 Report

Hi Javarra96, I want to welcome you to DC!!! You will love it, there are so many friends here. Being a new diabetic, can be scary, if you're not educated, not knowing is what makes it complicated!! So, stay encouraged, and if I can be of any help to you, don't hesitate, just give me call!! I look forward to meeting you!

MAYS
MAYS 2012-01-03 20:43:25 -0600 Report

Hello, and Welcome to this wonderful family!
I would really like to help you to understand diabetes.
I really think that the link below will benefit you, after reading the article, click on the link within and order the free kit that was designed with teaching a child/young adult about diabetes, and it's possible complications in mind:

http://www.diabeticconnect.com/discussions/77...

http://www.diabeticconnect.com/news-articles/...

Here is the link to the free "Everyday Wisdom Kit"

http://www.diabetes.org/living-with-diabetes/...

Please contact them and order yours today, and remember, it's "FREE!"

~Mays~

door331
door331 2012-01-03 16:13:32 -0600 Report

Hi and welcome javarra! I am a 20ish Type1 and was diagnosed about 20 years ago. Here are a few tips I like to share here:

-find a good endocrinologist, diabetes educator, and nutritionist— Trust me a good team helps.
-research insulin pumps and determine if this would benefit your lifestyle.
-get support from your family and friends- educate them as well. A good support system will really help keep you motivated and on track.

I wish you the best,
-Eric

javarra96
javarra96 2012-01-03 17:48:54 -0600 Report

Thanks for the advice.
- 3 out of the 4 days i was in the hospita, my parents and i went through diabetic education. I met with a few different people, none of which i remember their names. How do i know if i have a good team of people or not?
-As far as insulin goes, i am using humelog (i think i spelled it right) and lantus. We have insulin pens that use nano needles and i hardly ever feel a thing when i take my shots. My parents said that i would probably prefer that than the pump.
-So far, everyone has been very supportive of my diabetes. A little too supportive. Everyone keeps constantly asking things like "are you okay," "do you need anything" and "how are you feeling" when you can tell that im fine and its kind of bugging me that people want to keep appologizing to me about something no one could control. I still need to educate my friends on what to do if i get low or seem low or how to use the glucugone pen if i ever pass out.
Thank you again for the advice. I appreciate it

lisagq926
lisagq926 2012-01-03 22:21:33 -0600 Report

Being newly diagnosed with diabetes can be scary but you are not alone. Check out the pump, I am a type 2 and have been on the pump for about 7 months. My A1c has dropped from 8.2 to 7.2 I feel so much better because I have more control than I did on the novo log and lantus and I do not have to carry nano needles on and run to the bathroom to give my shot before every meal. I still hve some work to do and I am still having my insulin rates adjusted but I'm telling you, going on the pump was one of the best decisions I made regarding my diabetes

red flower lady
red flower lady 2012-01-03 22:34:41 -0600 Report

Good for you. The pump isn't for all, but glad it's an option for those who want to try it. Diabetes has come a long way thankfully.

red flower lady
red flower lady 2012-01-03 20:31:57 -0600 Report

I'm glad to hear you are doing better. Be thankful that you have people who care as so many are doing this on their own. Sometimes you think you are ok, but others can see that little difference of being off and they don't want to see you go through an episode again. They feel helpless and it scares them. With some education it will help to ease things a bit. Hang in there as it is new to them as well.

javarra96
javarra96 2012-01-03 20:42:27 -0600 Report

No one has noticed a change in me. They are all just panicing since this is a shocker to everyone including me and my family. I think things'll cool down tomorrow though

door331
door331 2012-01-03 19:12:58 -0600 Report

You're welcome. Finding a good team can be determined by how well you get along with your doctor, their staff, and if their adjustments help you understand and control your numbers. Also, as stated above your A1C is one way to determine if your numbers are under control (sort of).

Humalog and Lantus is a good combo and up until last year I was using that system. My older brother is still on that regimen and does very well. I tried an insulin pump this last year and although it has some benefits their are some negatives about it too. In my honest opinion you are off to a great start.

It can seem like they are being too supportive in the beginning but after they learn more about the disease and if you show them that you can manage yourself well they will eventually ease up. It just takes some time.

Best of luck to you!
-E

MAYS
MAYS 2012-01-03 19:42:11 -0600 Report

An A1C Blood Measurement Test measues the amount of glucose that sticks to your red blood cells during a given time period of (let's say) three or four months which indicates how much glucose was contained within your blood.
The lower the number, the better!
This link on the subject of A1C testing may be of interest to you:

http://www.diabeticconnect.com/videos/1315-wh...

~Mays~

MAYS
MAYS 2012-01-03 20:11:03 -0600 Report

Talk to your doctor or medical team.
They will determine when to do one, which will normlly be the same day.
The results will be needed to determine a plan of action for you, medication and diet\nutrition wise.
There are also some other, very important test that should be done as well;

http://www.diabeticconnect.com/videos/895-vid...

This video may interest you as well:

http://www.diabeticconnect.com/videos/1492-wh...

But let's take things one step at a time, don't panic, there is a lot to learn and even more to hope and to live for!
Welcome to the Diabetic Connect Family, one for all, and all for one!

Caroltoo
Caroltoo 2012-01-03 19:55:24 -0600 Report

You have probably already had at least one done by your doctor or in Emergency. You could call them and ask what the score was. Otherwise, it's usually a test the doctors have done in a lab every three months.

Once, you are pretty settled into your program, the doc will start seeing you on a quarterly basis and part of that visit is to do the lab work which includes an A1c. Usually takes about 3 days to get the result. Ask the doctor to have the lab send you a copy of the results. You will want to start a folder and keep track of your progress.

dietcherry
dietcherry 2012-01-05 20:35:22 -0600 Report

Actually I have that information right in front of me; an A1c of of 12.5 would translate into an average blood sugar reading of 315.

Caroltoo
Caroltoo 2012-01-05 16:24:22 -0600 Report

Actually, people on site here have higher readings. What that says to me is that something that you ate or experienced (high stress) on Christmas could have caused an unually high (900) spike. You are T1, you have diabetes, all I'm saying here is that an A1c of 12.5 probably means your normal score is lower than the 900 it was that day…maybe more typically a 500-650 range.

That could be why your readings are coming down faster with treatment than usually happens. All those are good indicators for your ability to continue to manage this disease and get healthy! This is encouraging news. Thanks for sharing it.

Caroltoo
Caroltoo 2012-01-03 19:37:27 -0600 Report

A1c is a measure of your blood platelets have been damaged by the high blood glucose level. Your blood cells replace themselves every 2-3 months, so this is a way of looking at what has been happening to your blood over that 2-3 months. Some of the folks here start with 10-14 as their A1c. Doctors usually say our goal is to be under 7, many of us are working towards getting into the 5-6 range. The way to lower the A1c is to keep your blood glucose levels down.

red flower lady
red flower lady 2012-01-03 21:48:18 -0600 Report

You need to keep your bg levels within range. This is done by eating right and getting some exercise. You will need to go to a diabetes class (ask dr) and they will help you understand what to eat and why. A good endocrinologist that treats diabetes may also have these classes, mine did. Since you are new you'll have alot of info to deal with, but it gets easier to understand. Take a notebook with questions and write the answers. Don't feel funny about it as you are paying them for the info and they want to help you.

'Second Chance'
'Second Chance' 2012-01-03 22:08:59 -0600 Report

Hi Caroltoo, I hope all is well with you. I just want you to know, you really made it simple and plain, explaining what A1c was, and what it shoul be!! Great job!!!

Caroltoo
Caroltoo 2012-01-03 22:58:32 -0600 Report

Thanks! It can sound so complicated when you first start. Don't want anyone to feel overwhelmed.

Caroltoo
Caroltoo 2012-01-03 21:45:03 -0600 Report

Right now, you would do it by careful diet and use of your insulin to bring the BG numbers down. When your numbers are lower and it is safe for you to do so, then you add in regular exercise so that your body uses the insulin properly.

I am type 2 and my BG was 400 when I was diagnosed. I was doing a job in Canada when my toes were literally dripping blood and pus. Totally yucky!! I live in Hawaii, so it was a longggg trip home.

I saw my doctor and was given a referral to see a diabetic educator. I wasn't a good patient; I put the appointment off cause I didn't want to start insulin. I wasn't in denial about having diabetes, I was just looking for another way to deal with it. I immediately went out and bought several books to get information on diet, nutritional supplements, and exercise. It made a tremendous difference in my BGs when I applied it all. By the time I got to the educator, she recommended to the doctor that I just needed a pill, not insulin. You don't have that option because, as a type 1, you aren't making insulin.

I didn't know any better at first, so I started exercising immediately and brought my BGs right down. Mine was less that 1/2 of yours, so this worked for me. As high as yours were, I would ask my doctor when I could start exercising again and then start walking and working out as soon as he says OK. Exercise too soon, when your BG is still too high, can cause a condition called Ketoacidosis. It is life threatening, so you don't want to risk this.

Once you are in the safe range, regular exercise will do more than any one other tool to keep your BG in a good range and teach your body how to function healthily. It will help you to avoid many, if not all, of the complications you could develop. Find exercises you can do inside when the weather is bad, outside when it's good. Change it up, so you don't get bored. Walk, run, jog, play tennis, dance, bicycle.

As a type 1 who doesn't make insulin, your safety challenge will be to carry snacks or a glucose pack, so that your BG doesn't go too low while you are exercising. You really will have to approach this much more carefully and cautiously than I did. So be sure you talk with your doctor and with the rest of your team before you do too much. We don't want you passing our somewhere.

Old-n-Grey-n-Wiser
Old-n-Grey-n-Wiser 2012-01-03 18:10:11 -0600 Report

You will be able to judge how well you team is doing as you start getting blood glucose readings then your A1C readings taken every three months. If your numbers show a downward trend to safe numbers your team is working great. But you must remember this will take time, you have to find how different foods will affect your numbers, get your insulin dosages fine tuned. It is good to see that you have so much support, even though it can be overbearing at times, It just means that you arr loved and well thought of.
Tom

javarra96
javarra96 2012-01-03 18:14:09 -0600 Report

What is and A1C? And my docs just changed my lantus dosage from 20 to 17. My numbers have been decreasing all day with ranges from 188 to now 81. Is 17 good or bad for my lantus? Also, i smashed on pepperoni one night and it dropped my blood sugar down to 56. Why? Isn't pepperoni carb-less? If it did anything to me, shouldnt it have risen my blood sugar?

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