teen groups

briannamom
By briannamom Latest Reply 2012-01-19 19:33:08 -0600
Started 2011-12-19 08:53:56 -0600

My 13 year old daughter was dx with type 1 nov 7th 2011, is there any good online support groups or facebook pages you can recommend. I am having no luck finding any, all the fb ones have few members that dont post anything


31 replies

johnny yuma
johnny yuma 2012-01-19 19:33:08 -0600 Report

I'm 16 and I've been a diabetic for about 7 months I have a hard time sometimes but most of my days are great this forum has been great so far there are many good people on here with good info

hreitsch
hreitsch 2011-12-28 12:04:51 -0600 Report

Yeah ok, I understand at first i dident want to talk about it either but now its all i can think about so i wanna talk about it more than anything else i would really love to talk to your daughter i hope i can help.

pixsidust
pixsidust 2011-12-24 10:20:13 -0600 Report

Maybe she could have a profile here and just come in and look at whats being said? She does not have to talk but become a passive participant.
Maybe you could set up a user name for her and her password. No one will see her email. She could have it to use when her curiosity rises. No one needs to know and she could just observe. Post it on
your fridge. She will be reminded daily

briannamom
briannamom 2011-12-22 19:01:38 -0600 Report

yes she does have a phone and texted all the time, she still hates talking to people about her diabaties, I am trying to get her to make a profile on here but she does not want to yet. =(

Starry20
Starry20 2011-12-21 21:06:23 -0600 Report

i too am 13, been on this site about a year, tho have posted an commented less than i would like to! but just get her an account on here!! i can tell u, harlen, gabby, oldandgray and dietcherry, which are older yes, will welcome them like family… just as rhey did me, and many others will welcome her too… we r happy to welcome new members… (i hve had diabetes for 9 years now… being diabetic as a teen is hard lol!) but diabetes period is hard, we are some of the toughest people out there!!

briannamom
briannamom 2011-12-22 14:18:13 -0600 Report

Hi Raven I will def try and get her to post on here! I think she would like to talk to more kids her age then me =) thank you !!

Starry20
Starry20 2011-12-22 21:21:39 -0600 Report

I dont think that its she doesnt want to talk to u, i think it may be that she just has feeling that she knows people without diabetes has… Feelings are more, i guess overwhelming… They seem to take over my entire body and they drain so much energy… So dont take it personal, i didnt talk to my mom about stuff for almlst a year…

briannamom
briannamom 2011-12-22 22:24:41 -0600 Report

thanks Raven, I figured I am mom so she wont want to talk to me just yet, thats why I am glad I found this site, but she does not even want to look at it or talk about it on here, I figure when she is ready she will come on here, its all just so new and prob hard to adjust to. =)

Starry20
Starry20 2011-12-22 22:26:14 -0600 Report

O boy, evryone on here knos its hard to adjust.. But when and if she comes on this site, she will be welcomed!!

hreitsch
hreitsch 2011-12-21 15:41:37 -0600 Report

Hello my name is Hannah Reitsch, I live in shelton Washington and i am 13 years old and i was diagnosed with type one diabetes ONLY 11 DAYS before your daughter on november 18th 2011. Please, please reply, I would love to talk with your daughter. Im pretty new at this too :) Thankyou so much for posting this.

briannamom
briannamom 2011-12-22 14:16:55 -0600 Report

Hi Hannah thanks for replying I will try to get Brianna to post on here, right now she does not like talking about it but maybe if I tell her about you and you being the same age she will get on here and make a profile to. =)

John Crowley
John CrowleyCA 2011-12-21 11:01:38 -0600 Report

You may want to check out two sites to see if they would meet your daughter's needs. First is http://juvenation.org/p/juvenation_welcome.aspx from the JDRF. Second is http://www.childrenwithdiabetes.com/

These are both very good sites that may be a good fit for your daughter.

So sorry to hear about her diagnosis. What a tough time. Thirteen is a tough age anyway. To add diabetes to the mix is a challenge.

We all wish you the best. You and your daughter are always welcome here. We'll do our best to share what we've learned.

Old-n-Grey-n-Wiser
Old-n-Grey-n-Wiser 2011-12-21 13:42:14 -0600 Report

John, while I for one like to see the "Young Adults"(I believe they are forced to become an adult with the diabetes diagnoses) here, it would also be great if DC could have a place where they could intermingle with each other. Reading the bios of you and the rest of the crew I know it would be a very informative spot for the teens to learn and not feel as they were outsiders.

Tom

Caroltoo
Caroltoo 2011-12-21 13:59:46 -0600 Report

I agree. A place where they could feel more comfortable to "just be teens" as well as have access to the main board when they want other information or discussion. They are forced to grow up fast to deal with this disease.

pixsidust
pixsidust 2011-12-20 11:59:13 -0600 Report

I first want to tell you that you are a fabulous Mom. You see whats happening and you are trying to give your child the tools to LIFE! No one feels your child's pain or trials more than you do. Your heart also beats within their chest.

Here is some other ideas along with Diabetic Connect.

Invite all her best friends over with parents permission and educate them about Diabetes I. Maybe make it a slumber party. Perhaps get literature from JDRF and give it to them in a zip lock baggy along with a letter asking for their support as they leave to take home. Having others who will help her and be a place to vent is important. Talk to the other parents and see what they think.

Talk to her teachers, and school. They need to know what symptoms to look for and some of her do's and don'ts. They also may be willing to reach out to her during the day

Nick Jonas of the Jonas brothers is Type 1. http://www2.jdrf.org/site/PageServer?pagename...

See if there are any groups that actually meet in your area. She needs to meet and make friends. You can tell her she does not have to go forever just right now while everyone is learning. Hospitals are good places to look, along with the link I copied for you. There is a locations feature there.

Right now You have to be the parent rather than the best friend and make the right decisions. While you are sensitive she can not dictate the terms while she is in denial. She will not want you to do anything but be strong in your love.
She is still a kid…your kid…forever

Young1s
Young1s 2011-12-19 16:26:10 -0600 Report

Welcome to DC. This community is a great source of support and information and I think you'd be hard pressed to find someplace better. There are some young people around your daughter's age in the community. Young Hannah has a discussion on here called "My Story" that you and your daughter might want to read. She very eloquently explains the events surrounding finding out she is a Type 1 diabetic. Fascinating story and an impressive young lady. There are a couple of other kids on there who responded to her discussion that you might be able to get in touch with as well. I hope this is helpful. If you or your daughter have any question, we are all here for the both of you. Be blessed.

briannamom
briannamom 2011-12-19 16:30:46 -0600 Report

thanks so much, she never wants to talk about it, and always says I have diabaties so what it's not a big deal, but I know thats not the case, hopefully I can get her to come look at this site

Young1s
Young1s 2011-12-19 16:50:14 -0600 Report

I can only imagine how scared she must be feeling right now. But hopefully, with time and understanding (of what she'll be facing), she'll become more comfortable with her new lifestyle. In the mean time, maybe if she reads/hears from other kids her age, she'll start to see that she will be able to handle this. I've posted the links to two of Hannahs discussions for you. These should give you further examples of the type of support and encouragement that is offered throughout the community.

"My Story"
http://www.diabeticconnect.com/discussions/13...

"The Pen"
http://www.diabeticconnect.com/discussions/13...

Mickey/CCHT
Mickey/CCHT 2011-12-19 13:11:51 -0600 Report

Please have her look around here. There are a few young people here that post. This is a wonderful place for both of you. The support and knowledge from this site has been a God Send for me, and others as well.
Good luck!
Have a Blessed Holiday,
Mickey

rickbond1973
rickbond1973 2011-12-19 09:25:18 -0600 Report

You've probably found the best one so far by posting here. :-)

briannamom
briannamom 2011-12-19 09:30:04 -0600 Report

thanks.. now its just to get her to look on here.. she is in major denial and does not want to talk about it with anyone,

Old-n-Grey-n-Wiser
Old-n-Grey-n-Wiser 2011-12-19 12:17:14 -0600 Report

There are several young adults on this site that are going through this as well as many adults that have been dealing with Type 1 for years, there is help here for both you and your daughter.