Please Watch this!!!!!

By KellyJo76 Latest Reply 2016-09-08 13:12:36 -0500
Started 2011-12-13 13:24:03 -0600

Sometimes I just can't believe that people that have this disease do not know the difference between Type 1 & Type 2 diabetes!!! Sorry… it makes me angry. If you are diagnosed, or even KNOW someone that has this disease, EDUCATE YOURSELF!!!

90 replies

Anonymous 2016-06-30 05:00:29 -0500 Report

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suecsdy 2015-12-11 11:33:25 -0600 Report

That is exactly what I did after dx. Everyone "knows" the basic thing about diabetes…It means you can't eat like you used to. But why and how are things to be learned. About scared the daylights out of me when I first started researching. Very depressing at first. Someone needs to write more about how diabetes is not the end of the world for you. (Only the end of life as you knew it). Scare tactics are not the best way to introduce someone newly diagnosed to the world of diabetes.

LRD 2015-10-02 11:49:12 -0500 Report

I have been diagnosed as Type 1 for autoimmune disease. Unfortunately I do not hear much from others that have Type 1 and wonder if there is any difference in what to do. Thanks

Kalisiin 2015-12-10 17:02:12 -0600 Report

The biggest difference is going to be that, while many Type 2's can control with diet and exercise, and some also need oral meds…many Type 2's do not require insulin…although some do.

Type 1's all require insulin.

Thankfully, for me, I am a Type 2, controlling on oral meds diet and exercise. I have a severe needle-phobia, so I am terribly glad I do not need insulin…and everything I do in my diabetes management is done with an eye towards forever avoiding the needle.

They need an insulin in a pill…or maybe a gum, like nicotine gum, ya know it?

sweetthang64 2016-09-08 13:12:36 -0500 Report

I'm type 2 myself and take insulin shots, both lantus and humalog. I hate needles too but have gotten used to it since it's hard to turn away when injecting.

Jibber Jabber
Jibber Jabber 2015-07-27 18:10:39 -0500 Report

I agree there is much ignorance…but must admit I was part of it before I was diagnosed…I knew there was a type 1 and a type 2…and actually several other types..which is something I recently learned…but when I was younger I didn't have a clue as to the differences between the two…and I am not a dumb chicky by any stretch of the imagination…It just wasn't a part of my everyday reality…so I didn't bother checking into it…I think that is the case with most people…

mjw1551 2015-07-27 16:53:41 -0500 Report

It is important to understand these diseases. My son was diagnosed Type 1 at 18; I am Type 2, diagnosed in my 40's. He has had an insulin pump for the past 5 years (he's now in his 30's) and is doing very well. I was on insulin shots for my T2 for over 9 years and recently got off of them. Thanks for the info.

Kabby52 2015-02-22 03:08:01 -0600 Report

This video doesn't offend me, but all those videos that claim you can easily cure diabetes by taking something like cinnamon or drinking water with baking soda in it does. Some will claim a cure in a week or 2 weeks. And one claimed 1 day. Youtube does have some valuable and interesting information there, but there sure is a lot crap there too.

Jibber Jabber
Jibber Jabber 2015-07-27 18:15:30 -0500 Report

Had posted something but decided to take it down…I do NOT wish to stir that pot today…but I do agree there will always be people trying to make a buck off desperate people..

Kalisiin 2015-06-17 21:01:21 -0500 Report

Yeah, Mike Huckabee was pitching something about curing diabetes with cinnamon and something else and it just made me FURIOUS!! Here's a man who was Governor of Arkansas, so has some influence with some people…a diabetic himself…and he's giving misleading and potentially dangerous info in order to turn a buck…made me want to SCREAM when I found out about it.

Anonymous 2016-04-25 13:10:47 -0500 Report

When I hear Suckabee talking about how BAD Donald Trump is I have the urge to remove his TONGUE! He swears THE BIBLE has a cure for diabetes and a book he supports has the rest! HOGWASH MISTER SUCKABEE HOGWASH!

Happy to be here
Happy to be here 2015-01-11 15:53:37 -0600 Report

Until I became Type1 diabetic at the age of 35, I was not educated and did not understand it. No one else in my family had it, so it has been quite the learning curve. I am almost 16 years in, and still find new challenges. This site is awesome, as it shows us all we are not alone, whatever the details. Our input is often the only ed some people get, so keep that in mind.

jimbolea 2015-09-12 10:48:59 -0500 Report

I much like the rest of you had to and i stress HAD to learn about this Disease , having it right now for 30 Years, I should Have a PHD being Me and type 1, I know what Foods affect my Metabolism, I know what Amount of Insulin to take after testing my blood, Its the interaction that I have missed, talking amongst friends , That I hope to do on here, I just wish they had a chat board.

funnygirl98 2015-01-11 14:55:49 -0600 Report

Hi KellyJo, This was a great video;-) My step daughter was a T1 diabetic since she was 8 yrs old and I learned a lot from helping my daughter with her shots everyday. Unfortunately she passed away 2 yrs ago from complications from her diabetes and I agree with u when u say it makes u mad when ppl say they know the difference between T1 and T2 diabetics… T1 diabetics don't produce insulin from their pancreas and that's why this group will always have to be on insulin injections or have the insulin pump put in their bodies to keep their bs's regulated. I totally agree that ppl need to educate themselves when it comes to the difference between T1 and T2 diabetes!!!! Good video;-) funnygirl98 (Robyn)

nhiemstra 2014-10-05 09:02:43 -0500 Report

Good video. Although, there is one error in the video. Type 1 can also affect adults. Although I have "Type1.5" and many have not heard about it. I produce some of my own insulin, just not enough and for years gave myself injections, now use a pump.

LRD 2015-10-02 11:54:09 -0500 Report

I have heard about Lada, 1.5, but am wondering if I am in that catagory. I was first told I was a Type 2 from an endo in Kansas and now a Type 1 from an endo in Alabama, because of an autoimmune disease. I don't see the Alabama doctor until later this month. I will ask him if I am in between. I was wondering who else is Lada?

rangerlina 2015-01-21 20:03:28 -0600 Report

Very true; I am adult onset type 1. I came down with the flu at a time when I was the healthiest of my life training for a 6 month hike… only my white blood cells turned to the pancreas and destroyed it. I was lucky I moved - once out of the ICU (almost a month) the general doctor they sent me to had NO clue and told me that I should be on pills in no time! I even knew better than that at the time. The adult onset part had the entire hospital confused, it seemed.

Kats49 2014-08-27 14:33:06 -0500 Report

Unfortunately I DO know the differences, my hubby had Type 1 I have Type 2, but you are right so many do not know and have preconceived notions about what the disease is…TY for sharing the video.

elizag1 2014-06-29 19:53:10 -0500 Report

I did watch it. I have type 2.
It makes me sad because my Older Brother had type 1 and, did not manage it,
he needed help and did not get it. It is a terrible disease but, you have to work at taking care of yourself, the diet is the secret..

KellyJo76 2011-12-20 13:17:31 -0600 Report

For me, the pump makes it almost TO EASY. Counting carbs is a necessity with this disease. You just have to make healthy choices with food.

meter readers of void
meter readers of void 2011-12-18 02:06:42 -0600 Report

from what I could tell that would make me hypo or t2, never really understood the sweats and shakes and the tunnel vision to the no energy just want to sleep and hungy as hell feeling , have been though that before , its been awhile since i've blacked out ,just know t1 is in my future -its not a good feeling to have , hate it ! can't eat just one peice of chocolate or candy after afew hand fulls and a gallon or two of water later my socks are holy from too many dashes to the restroom, my part I guess you could say was just ignorance of a problem ,if I could manage that better ,who knows it may not be to late

MoeGig 2011-12-15 20:07:43 -0600 Report

Although the causes between Type 1 and 2 may be different, the goal of the treatment is identical…and that is to achieve an A1c in the 6's. Stated differently, whether you are Type 1 or 2, you have to get under control or you will develop similar (the same) complications…(clogged micro arteries-blindness-kidney-foot problems) whether you are Type 1 or 2. Now, the means to achieve that goal (A1c in the 6's) might be the same or different if your pancreas is generating some insulin (Type 2), or none (Type 1). You could be on pills to stimulate more insulin (Type 2), or have to inject insulin (Type 1). I guess, if you want to live a long and complication free life, then you have to achieve the goal…whatever it takes. I know many Type 2's who take insulin…because it's easier to "achieve the goal" (my 96 yr old father). I'm Type 1 and having been taking insulin since 1965…and have been able to achieve the goal so far…and have avoided complications. I guess my conclusion is that "analysis/paralysis" of the difference between Type 1 & 2 is not worth it. Did I say that "you have to achieve the goal"? :>)

Chopstix 2014-09-15 05:41:36 -0500 Report

You can be Type 2 and still have to inject insulin. My dad did and I had to last year after heart bypass surgery from April to August. The only person I would wish that on is someone I did not truly like. And there are some.;-)

dietcherry 2011-12-15 11:27:29 -0600 Report

Thank you for posting this KellyJo! Im T1 too and Ive been on the receiving end of some of these misconceptions, mostly because this is how people living without T1 identify those of us who do.

You are VERY MUCH appreciated for doing your part to spread awareness and education!!! Lots of Love to you! :)

pixsidust 2011-12-14 22:57:57 -0600 Report

I enjoyed your media show. All good information. I am sad for the type 1 diabetics. I am under my one year of diagnoses for Type 2.

KellyJo76 2011-12-15 09:13:39 -0600 Report

Thank you. I might have gotten a little carried away here, but I saw a comment from someone that had INACCURATE information and it made me mad. I just feel, if you have diabetes (1 or 2), you should learn all you can… and it will only hurt you if you don't.

annesmith 2011-12-21 00:28:40 -0600 Report

How do I educate people on the fact that I have more than one type? I'm tired of people not believing me, tired of some health care professionals that did misinform , tired of clinics that lose my medical records. I'm not mad at you, but the subject you brought up I can relate to for sure. I'm very very very bitter , as in, very few people that can relate to me. I have had an insulin mix, I have had slow acting insulin, they all work. I was tried on Metformin 6 years ago, and it set me way way way too low—interesting. My pancreas rejected it. I'm just wondering WHY it's so expensive …sorry to sound so bitter, negative…I really am…I'm normally a positive person, but, some subjects are very very heavy. For example, in my honeymoon phase, I got treated like absolute crap…told by all nurses " OH, you are so LOW, honey, not much wrong with you. " THEN, my medical records get lost, 4 times , at a clinic. I'm so poor ( I work 2 jobs) that I'm struggling just to afford my strips to take my blood sugar like I should. HECK, I was almost admitted for DKA 4-6 times in the last 4 years…I won't say much more, as what I am trying to tell you is, I pretty much got ignored all around!!!!!! I knew another lady that had type 1 and type 2 diagnosed—yes, there is such a thing—BUT, it can't be found in ANY of the medical literature…so, HECK, got any suggestions as to how I deal with this? No offense to you at all, but, I am dogged TIRED…sincerely, ANNE

Happy to be here
Happy to be here 2014-11-11 09:56:18 -0600 Report

so sorry to hear of the problems you have had. I think you have taken a big step, in joining a group like this. Whether people have the same condition or not, each person's journey is individual to them. I was not aware that a person could have both type 1 and type 2. Thank you for sharing your experiences and keep learning about it. Recording your journey for you is truly the best way to manage this darn disease. I am learning, health professionals come and go, but you are always there at the end of the day, still needing to manage what is happening. Good base management is key, because if comlications happen, you have that much under control. Also I am finding a good pharmacist, can really be a great addition to the team. Just knowing there is someone out there who understands what is happening, because they may have experienced it too,does help. I am 15 years in, with type1, and now celiac and dairy free. The food allergies comlicate things because of the feelings of deprivation. Compared to what others here share, mine is easy- peasy. Take care and keep learning. You have the power to care for you and when you get tired of it, remember you are not alone.

Just Joyce
Just Joyce 2011-12-14 20:03:51 -0600 Report

Kelly when the Dr told me I had diabetes and that I had type 2 and did not need to take insulin shots I heard nothing else. I admit, I don't know much about Type1 and currently have no interest in learning more. I am still learning about Type 2. I do understand that T1 diabetics do not produce insulin and can die without it. I also know that it is harder for those who are T1 because they must take their shots.

You can ask or even demand that people educate themselves. You can take a person to the library but you can't make that person read a book. So you are angry. that is too bad because your anger isn't going to force people to learn anything. I think COMPASSION would be more appropriate. There is so much information out there regarding T1 & 2 and it can be very confusing. Nutritionist and physicians don't know everything about any one particular disease. They too are learning.

I don't get angry because a person doesn't know something. In most cases, people have read so much about a topic they become confused. For this you ask questions and guide them in a direction that will help them have a clear concise way of answering their questions themselves. In other cases, people may not know where to look for answers to the questions they have. For others, they may not have access to a computer, are too far from a library, have a computer and are unable to have internet service or may not know how to use a computer. There are many factors in the mix as to why a person may not be able to educate themselves which is why those of us who have a better understanding are able to help them.

funnygirl98 2015-01-11 15:32:32 -0600 Report

JustJoyce, I never looked at it through ur eyes like that b4… it makes perfect sence;-) funnygirl98 (Robyn)

LindseyLou993 2011-12-17 23:45:32 -0600 Report

Joyce, it is fine that you choose to not know everything you can about diabetes and it is OK for you to not agree with spreading awareness, but that does not mean people like Kelly and myself will EVER stop trying to educate every person willing to learn. How will there ever be a cure if no one knows the disease exists? Type 1 and type 2 are very different…it is a completely different mindset. I know because I am T1 and I have family members who are T2. It is a terrible thing to be tied down by your medication. Did you know T1's can go into DKA in just four hours if they forget their insulin? It is a much more dangerous disease than T2.

THAT is why we need to spread awareness. Just think of two year olds who have to take shots with everything that goes into their mouth. Do you remember how horrible shots were when you were a kid? Now imagine taking 3-6 per day, every day, for the rest of your life, and dying without it. Don't you want the world to understand THEM?

Just Joyce
Just Joyce 2011-12-18 18:06:15 -0600 Report

Lindsey you misread what I said and jumped to an unfounded conclusion or assumptions. I said I was not interested at this time in learning more about T1 which does not mean that I won’t be interested in the future. I am still learning about T2. My friends know I am always asking them to be tested for diabetes. I even notified my Facebook friends of Diabetes Awareness Month and to have themselves tested and to ask their friends and loved ones to be tested. I am currently working on putting together a Diabetes Health Fair for children and adults in my community for next summer. This is what happens when you jump to conclusions about something or someone. I am a community leader, come spend a week in my shoes and you will find out just how much I know, who I know and what I do to keep people aware of various things.

You are only tied down by something if you choose to be tied down. I know people and have worked with people with a wide variety of disabilities or medical conditions who must take medications or use daily medical equipment and not one of them are tied down. My mantra is, “I CONTROL MY DIABETES, IT DOES NOT CONTROL ME”.

Everyone who takes medication more than likely has missed a dose. As a former EMT, I have transported far too many people who have missed their medication and took a double dose or waited till it was time for the next one. Some were repeat transports.

According to my mom, I was never afraid of shots as a kid nor did I cry when I got them and to this day it doesn’t bother me. I understand that it must be horrible for the children who must take shots 3-6 times a day.

I live in the real world and the fact of the matter is you can spread awareness of every kind of medical problem there is. People are aware of these medical conditions; you are assuming they don’t and I don’t know what you are using to make that assumption. The problem is some people really don’t care about diseases until it happens to them or someone they love or are close to. You can make people aware of something but you can’t make them care about it. That is the reality of life.

KellyJo76 2011-12-15 09:10:11 -0600 Report


It's fine to say that you don't know… but if you don't know, then don't give someone bad information. Type 1 diabetics cannot stop taking insulin EVER (unless of course there is a cure) and most of them don't take other medications for diabetes unless they are in the early stages or the honeymoon phase. I think its a shame that people that have this disease don't do their homework. Just sayin'!

annesmith 2011-12-20 23:57:20 -0600 Report

HI…I have known the difference between both types for years, and if some people spread bad information, I don't blame you for being mad. Heck, I have had so many people over the years treat me as if I am someone I am not, I lost count..nothing is worse in my book. What kind of misinformation were they spreading? I'm just curious. I have more than one type of diabetes, and gave up on explaining it to most people—I knew a lady that had 5 different types. We both got treated by most people as if we were type 2 diet control. It's like you call someone George and their name is Mary..write me back!!!!—-ANNE

Just Joyce
Just Joyce 2011-12-15 13:56:02 -0600 Report

Kelly some people don't know where to begin to do their homework and pride keeps them from asking and until you walk a mile in someone's shoes, you may not know why they don't or can't educate themselves. If you were a teacher and I had a problem learning something in your class and you got angry with me for not learning or learning on my own, I would change teachers.

Today I was in our main library which is huge. I was looking for a diabetic cookbook. A woman in the same aisle as me was wringing her hands and almost in tears. She had just left her doctors office and was diagnosed as T2. She was told she could no longer eat any of the foods she had at home or anything with sugar in it. I got her calmed down and told her she didn't have to throw her food away and that it is almost impossible to not eat products with sugar in it.

I helped her pick out books that I bought that helped me. We found a cookbook for her and a menu planning book for diabetics. We sat at a table and we planned a meal together with the foods she had at home. She was having Christmas dinner at her house this year so I told her how I eat on that day. We then went to the ladies room and I showed her how to use her meter that was given to her and how to log her readings. We talked for another hour and she was smiling and felt better. She said she was about to leave because there was so much information, she didn't know where to start. We left with my fiction to read over the holiday and her with an armful of books and websites to visit. More importantly because I took time out to help someone, she felt better and was smiling and I made a new friend.

Instead of getting angry with her because she really didn't know where to begin, I used compassion and understanding what she was going through to lead her down the road to educating herself about the disease.

KellyJo76 2011-12-15 14:33:02 -0600 Report

That is an incredible thing to take time out to help another person. That is all my video was really trying to do… create a discussion for those that don't know and help them learn. I am trying to encourage everyone to learn about their disease. I am not trying to offend you.

Dixiemom 2011-12-15 10:36:07 -0600 Report

I agree with you, every one should educate themselves on trhis. But we live in the real world, some are too lazy to do it, some are illiterate, some are in denial and don't want to learn. I could go on. I know how you feel especially when the ignorant give advice, but sadly there isn't much we can do about it. As Joyce said, you can take a person to the library but you can't make themread a book.

KellyJo76 2011-12-15 11:22:55 -0600 Report

I can keep putting up videos, do blogs, community outreach, etc. and try to make a difference to those lazy individuals that you are talking about. And I do all of those things. I realize not everyone will respond - but if I can help even ONE person understand, its worth it.

Just Joyce
Just Joyce 2011-12-15 14:08:39 -0600 Report

Kelly, I graduated from High School after taking math classes during the summer because I got more individualized assistance from my teachers. After graduating, I got sick and was in the hospital for several weeks. The ward clerk was in my room getting information and my doctor came in. He noticed that I had a problem giving my phone number and social security number. He had me tested by a neurologist and a psychologist. I learned that I have a mild form of dyslexia. I have no problems with reading and understanding. I can't remember numbers in order which means I can do basic adding and subtraction in my head as long as it is two numbers. I never learned the multiplication tables other than 2, 5, and 10. It takes months for me to learn a new phone number unless I call it on a regular basis. Therefore, anything dealing with complicated math is beyond me.

Does that make me lazy? No. For kids and adults with ADHD who have a hard time learning something make them lazy? No. For those who are illiterate and can't read or for those who can only read on a basic level lazy? No. It means that people have different levels of learning and for them learning something new could be frustrating and could take a while.

I help a lot of people in my community. A lot of them don't have a computer and the elderly have no idea how to use one. This doesn't mean they are lazy they simply need someone to help them. However, the person who can read, write, has a computer and does not educate themselves, may not be interested in learning something about their medical problems. Still doesn't make them lazy it just makes them uninformed.

KellyJo76 2011-12-15 14:41:54 -0600 Report

Again, not trying to offend you… lazy was the word that the previous poster used and I was replying to her. I can appreciate your point of view - some people don't have the means to educate themselves and its really too bad.

Just Joyce
Just Joyce 2011-12-15 19:43:30 -0600 Report

Kelly I live in a depressed community. In fact it is almost equivalent to a country that is considered Third World. However, we do have educated people who are doctors, lawyers, educators, social workers and business owners. We also have people who are poverty stricken and those who are the working poor. There are people who want to be educated but do not have the means of doing this because they simply cannot afford college even with grants. They can't afford textbooks. Those of us involved in the community associations fight a constant battle to improve schools, rehab housing and make it affordable, reduce crime and improve and build resources for people the government now labels as underserved. Once people are labeled their confidence in themselves can become lowered. They don't feel that education, better jobs, housing and medical care is for them. I agree with you in that even if people make an attempt to educate themselves, they can improve their lives. However, until more computers are in homes, schools and libraries, those who want to self educate, will only be a dream to them.

Dixiemom 2011-12-15 11:29:24 -0600 Report

Yes it is. You are a crusader and we need more people like you. Thanks and keep up the education. We all can benefit.

w8chd 2011-12-14 12:33:35 -0600 Report

Definitely educate yourself. But sometimes there is so much information out there it can be difficult to know what is accurate and what isn't. Even among the healthcare providers it will vary from one to another. I have found out more from talking to other people with the same problem than I have ever found out from talking to my Dr. I had never heard of type 1.5 before I read the term on here. You have to be your own judge and decide for yourself what you choose to believe. I have been taking insulin for two years now and I asked my Dr. about six months ago just how I am classified and she said insulin dependent type 2. Does that make any sense? I have been diabetic for 10+ years and used about every oral med there is before beginning insulin.

GabbyPA 2011-12-14 18:26:10 -0600 Report

Insulin dependent Type 2 is very different. You won't die if you do not have insulin. A type 1 will. There are a host of differences between the two (or more types) and it is confusing. But as we deal with where we are at, we can grow to learn more outside our immediate needs. I know for a long time I avoided making any comments on a type 1 question because I had so little experience or knowledge with it. I am more comfortable now, but still have a LOT to learn.

w8chd 2011-12-15 11:56:36 -0600 Report

Yes it is confusing. I still am not totally clear on how type 2 and insulin dependent go together. I would like to know just how one is determined to be diabetic in the first place. What is normal? This is probably going to cause a few people to wiggle around in their chairs a bit…if it does I apologize in advance…I have to wonder if it is as much of an "epidemic" as we are led to believe or not. I say that because just as with blood pressure and cholestrol, they keep lowering the numbers. When I was "diagnosed" my Dr. told me that something like three or so fasting readings above 200 you were diabetic. Now aren't they saying your diabetic if your readings are over 100 or so? Anytime a number is lowered a few points that automatically encompasses a larger part of the population into that group. Where does it end? So I ask, is it really as much of a problem as we are led to believe or is it one partially created by lowering the numbers as to what is considered normal? That is a valid question.

GabbyPA 2011-12-15 13:13:49 -0600 Report

This is true. They have lowered the cholesterol number so far down that nearly no one is in a normal range. I do believe a lot of it has to do with the drug companies. After all, how will they sell their drugs if we are more healthy that we are lead to believe? Sinister? Maybe, but I thing that is what drives a lot of those numbers. Even our diabetic ones.

I have been told that a non-diabetic will never exceed 140. Even on a bag of jelly beans, soda pop and candy canes. That is what makes the difference. Once we start to exceed that on a post meal reading or even more so on a fasting test, it is proof that our bodies are not working properly.

w8chd 2011-12-16 08:23:49 -0600 Report

I believe that is accurate. My Doc and I have been shooting to keep mine <140. To do that I have to take 300 units of insulin per day. 200 of Humulog 75/25 and 100 Lantus. That's a lot… isn't it?

dietcherry 2011-12-16 09:28:11 -0600 Report

Hello! That seems like a lot of insulin and Im wondering if youre also resistant to synthetic insulin, something Id never heard of until a DC member mentioned it—are you on a pill to decrease insulin resistance?

KellyJo76 2011-12-16 09:14:35 -0600 Report

That does seem like alot. I am on straight novolog (with a pump) and only take about 60-70 daily. I don't know anything about those mixed insulins, I have never taken any of them. When I was on Lantus (several years ago), my Endo started me on a set dose based on my weight. Did your doctor ever tell you what your insulin to carb ratio is?

w8chd 2011-12-16 09:34:26 -0600 Report

No. I never took mine based on carb intake. It was based on my readings. Not any longer. My problem with insulin was weight gain. In the two years of taking it I went from 250 to 280 in the first three months and up to 306 over the next 1.5 years. My solution…about 5 months ago I pretty much stopped taking insulin altogether. Maybe about twice a week at the most. I am now down to 255 as of today. Naturally my bg readings went up. 400+. At my last Dr. visit last week after reminding me of the possible side effects of my experiment she told me there was no need to come back until I was done experimenting. At this point I am more than irritated with it all. How do you combat the weight gain?

KellyJo76 2011-12-16 09:52:19 -0600 Report

I feel your pain… I have asked my doctor about weight gain from insulin and he thought I was nuts. He told me that is was my diet… so I started writing down everything I ate. It became so easy with my pump, because all I had to do was plug in how many carbs I ate and it gives me insulin to cover them. In my case, it turned out that my doc was right. I was eating too much. The weight loss you are experiencing is actually because your blood sugar is so high and that is a dangerous experiment. I have been there… I went through a bad phase early on where I decreased my insulin intake to lose a few pounds. It worked… but as soon as I went back to regular doses, the weight came back. The bottom line is, EVERYONE has to follow a sensible meal plan to be healthy and lose weight, it doesn't matter if you are diabetic.

Caroltoo 2011-12-16 14:56:54 -0600 Report

Very good point for insulin users.

I think there may be a difference with some of the pills we use. I took Actos and one of the side effects is weight gain, from water retention, I believe. Whatever, when I stopped taking it, I immediately began to loose a pound a week for about 20 pounds. Now, like everyone else, I have to work for weight loss and eat less.

w8chd 2011-12-16 12:15:21 -0600 Report

Definitely food for thought.
I have never been to an Endo or anyone like that. Just general MD. We've discussed it but I just hate to start more running somewhere else. Where I live my md is thirty miles away. Anyone else would be farther than that. I took management classes. There the cde had us to count carbs…60g per meal. Before that I was several hundred g's per meal. I did that for four months. My readings went down but my weight still increased so I quit doing it. I still watch the carbs some but I feel like I'm just spinning my wheels for nothing.
We've discussed the pump possibility but I'm afraid of it causing weight gain and if it does then all that expense will have been for nothing.

KellyJo76 2011-12-16 12:44:59 -0600 Report

For me, to lose weight, I think 60 grams of carbs per would be too much. I would try to cut that in half. Veggies are more filling, so I would add more of those to my plate. I understand about having to travel to see a doctor. I mean… I live in Montana and there wasn't even an Endo in the area until last year. You had to travel about 100 miles to see one or I guess one would visit every few months but it was impossible to get an appointment. I am lucky that I found an RN that is also a T1, she has been my rock.

w8chd 2011-12-18 17:20:42 -0600 Report

I'm not sure diet is as much my trouble as the meds themselves. Everything I have taken for diabetes has caused weight gain. Some of my family members have been on the same meds as me in the same dose and they didn't gain weight. I am really thinking my metabolism is part of the culprit. I have been dealing with this for 10+ years but it's just in the last several months it really seems to be troubling me more. Is that a normal thing?

jayabee52 2011-12-19 12:59:26 -0600 Report

If you would ask me I would answer that it is probably everything, the diet AND the meds all put together. You MAY have a bit of "portion creep" going on with your foods. (It happens to most of us, unless we weigh or measure everything every time we eat something. The BG levels are higher so we increase our med intake, so that may be what is going on. And you may be right about the metabolism too. How we metabolize foods and meds does change over the years.

w8chd 2011-12-20 07:00:10 -0600 Report

I lean more toward metabolism being the problem. Any med that may cause weight gain or loss is always weight gain for me. I have done dietary changes numerous times and while I would have good results with bg control my weight would continue to increase. A few years ago when counting carbs my a1c was 6. My weight however had increased to >300. Not acceptable. I still give carbs some attention but not like I did. From what I see people who don't or never did have weight issues generally don't have them from meds either. Many of the rest of us are going to have the weight problem no matter what we do.

Caroltoo 2011-12-18 17:30:15 -0600 Report

Simply put, if I ate 60 carbs/meal, I would look like a blimp!

Why don't you try reducing the carbs/meal a little and see what changes. If you weight stabilizes that's a key to what you need to do to loose weight. If your BGs go down to a level that is too low, talk w/doc about reducing the insulin dosage. I'm assuming you have already had a discussion with him about wanting to loose weight. If not, maybe that's the place to start.

w8chd 2011-12-18 23:44:25 -0600 Report

In the 10 yrs since this all started I have had three Docs. All in the same office but my primary has changed that many times. I wish I had never started with insulin. My first one held off on it for about six years because she was concerned about the weight gain associated with insulin. We fell out over the frequency of office visits she wanted me to maintain. The second one was of the opinion insulin was the best solution. So I took his advice. After about eight months I started seeing another one, number of office visits was becoming a problem. They want me to come in every three months, I don't feel the need for this. That hasn't been a problem with my current Doc. She has the opinion I need to go to an Endo for this. I tend to agree but just haven't given her to green light to set it up.
I can try reducing the carbs a bit. You never know. We've discussed the weight issue. She is not a fan at all of my current solution to that problem. This is just such a aggrivation of a problem. I hate to use the word disease. There isn't really any easy answer. At least with my blood pressure that was simple. Once we found the right meds for it, that isn't even mentioned at my visits, hasn't been for several years. The meds for it work perfectly. As far as blood pressure is concerned, I eat what I want. Too bad diabetes isn't that easy to deal with!

Caroltoo 2011-12-19 02:55:56 -0600 Report

Hear a lot of frustration in here about this particular doctor's office. Maybe an Endo would be a good choice…new eyes from outside of the office.

The visit every three months is the AMA best practices guide that they are supposed to fulfill. Don't be too hard on them because of that. They are obligated to ask. You can say no or just not make an appointment. Your choice.

I hear you talking about a pill to take care of this…have you tried regular exercise and a diet that has lots of low glycemic index fruits and veggies along with lean protein so you can get control of it. You may not even need a pill. I'm med free because of dietary changes and exercise and have an A1c of 5.7. James Baker is in a similar situation as are others on site. Take charge of your life and make the changes you need to so that you can be healthy.

w8chd 2011-12-20 07:11:50 -0600 Report

The three month thing is no longer an issue. Since July 2010 I go when I want to. The only difference is I lost my insurance coverage at that time. That makes me think the three month guideline is more based on money than medical necessity.
Fruits and veggies are not a large part on my diet. Weeks can go by in between them being on my plate. Always has been that way. Once I get my weight down to where I want it (<250) I'm most likely going to see an Endo and get their thoughts. I am right at 250 this morning. That is a 56 pound loss in the last five months!

jayabee52 2011-12-20 07:38:12 -0600 Report

Christian, Fruits and veggies are a necessary part of a well balanced meal plan. You may be having hungers for those good things in your meal plan but not know it.

Congrats on your loss! 56 lbs is quite an accomplishment!

valentine lady
valentine lady 2011-12-13 20:04:47 -0600 Report

I'm a firm believer in educating yourself. There are very few Dr.'s around that take the time to tell you much of anything. So read books ( can't say you can't afforad them the library is full of books on diabetes.) Search out a good website like DC and ask questions, read answers to others and listen to the older ones who have been around for 2 or 3 years. Valentine Lady

Mickey/CCHT 2011-12-13 19:23:38 -0600 Report

Ok, time to get the crayons out(to draw me a picture!!), I don't understand what the problem is? I'm thinking I'm missing something here.

jayabee52 2011-12-13 19:25:58 -0600 Report

her basic message is "educate yourself". (I use finger paints)

Mickey/CCHT 2011-12-13 19:31:00 -0600 Report

LMAO!! Finger paints!! My brother says that to me all the time, about the crayons. If I don't get what he is saying, he will say "Don't make me break out the crayons!". He is such a smarty you-know-what!!
Thanks for letting me in on what was up, thought I was missing something again!!
I agree, we should be more educated. Not just diabetics, but everyone! It might help more people sooner.

jayabee52 2011-12-13 19:33:38 -0600 Report

When I was dating Jem she had a mug with the inscription on it "professional smart ass". The next time I came to visit she had one for me too!

Caroltoo 2011-12-13 23:10:09 -0600 Report

James: Maybe that's why I understand your sense of humor. That was always Wayne's nickname for me to, if you can believe a pastor calling his wife a smart ass.

Mickey/CCHT 2011-12-13 19:37:54 -0600 Report

I can see why! But I totally love your sense of humor. We so need it here. Laughter is so important! Keep it up smarty pants!! LOL

jayabee52 2011-12-13 20:01:37 -0600 Report

you should be in my head! some of the stuff I think I believe is pretty funny, but sometimes it is quite biting, and sometimes is off-color. Since this is a G - rated site (Or PG13) i keep those comments to myself. They might start a fight or turn ppl off to me and perhaps the site.

My cousin and I used to play a "game" called NIGUSOB (Now I Got you [you]Sweet old Boy {pg version of the title} )

One day we were talking about songs which were popular at that time. He said he liked the "indian love song" but he forgot the title. The first line of the song said "Running Bear loved little White Dove" so he referred to it by the first names in the first line: "I like "running Bear'" my answer: "Yes, I know " and he by the tone I used he understood that I had zapped him in the NIGUSOB game. (we werent playing the game at the time) I just kinda blindsided him, and I don't think he liked me much for a long time.

That is the kind of Smart ass things which flow through my head, sometimes responding to a advertisement on Radio of TV, or a conversation I overhear and sometimes to something I read here.

It is fun sometimes to be in my head. And since I have ADHD sometimes I say some things impulsively. I sometimes start replies which have scathing humor in them and as I am typing them out I think about how what I was typing would be received by the intended recipient. Quite often then I would revise my reply before I sent it, or just click the "cancel" link.

Dixiemom 2011-12-15 10:43:41 -0600 Report

Jim, mu mouth always gets me in trouble. Sometimes it's not what I said but the tone of my voice. We need humor in our lives, lot's of it. Without humor or laughter I couldn't keep going. Keep on with the jokes and the humor. It's fun.

jayabee52 2011-12-16 13:41:18 -0600 Report

Mine does too from time to time especially since I have ADHD and can tend to be impulsive from time to time and the person closest to me — my Jem — got bruised feelings sometimes, But for me humor is the spice of life!

Mickey/CCHT 2011-12-14 08:30:44 -0600 Report

Yes, we do have to be careful to whom we make some of those comments too. And if people really do not know you, they might be offended. I have 2 brothers, so i'm used to being zinged!! I'm not very quick with the wit, I'm one of those people that will think of something 3hours later and thing, OH i should have said that!!!

So, as long as you are having fun in your head, that's all that matters!! LOL
Peace, Mickey

jayabee52 2011-12-15 02:08:09 -0600 Report

I can entertain myself for HOURS with my wit. But when I try it on someone else often it is seen as offensive.

I also do have one of those delayed reactions too — "wish I would've said THAT!"