Questions... So many questions....

Gardencricket
By Gardencricket Latest Reply 2011-12-07 11:44:46 -0600
Started 2011-12-05 19:21:09 -0600

Hi everyone,

Well, I guess I am more confused than I thought. I don't know if my doctor is listening to me or not now. I am on 6 prescribed meds and 5 supplements.

I started taking Pravastatin on 11-18 and within 3 days I was in so much pain and weakness that I couldn't do anything! By Thanksgiving, it was so bad the rest of my family noticed and asked what had happened to me ( I was hurting worse than when I fell in Feb. 3 times in one day ) So I told them the meds I was on and instantly found out that my Grandpa can not take any form of statin because of the same problems! I continued on it a few more days, as the doctors office wasn't open until Monday. I called in the morning and told them that I was stopping that day and I started taking Fish Oil. Nurse said she understood and would relay the message to the doctor. Well, that lasted all of 1 hour, I got a call back and said he understood why I stopped, but wanted me to start CoQ 10 at 30 mg and restart the statin in a week. Fine. Maybe it is just needing the enzyme.

Took the CoQ 10 for a week and added Flaxseed Oil, Vitamin B complex and Vitamin E to the Fish Oil. I started getting back my strength and the pain was almost gone after 3 days!

Took the statin this morning and by 3 pm I was/am so week that I can barely hold my laptop steady! I am in pain all over again! I called my mom and told her what was going on. She asked what I was gonna do and I told her that I was stopping the statin. Grandpa tried 3 different kinds of statin, and still couldn't take it. I am not a guinea pig!

I called the doctor and got the message given to the doctor. Well. I guess that didn't go over well because I got a call back stating that my medicine couldn't be causing my symptoms! He thinks it is just the blood pressure righting itself! So I have to go in again for a blood pressure check and pulse check. I know it isn't going to be low enough for them to say "see"!

I just started seeing this doctor, I haven't seen one for a long time. I don't know what to do. If I keep taking this medicine, I know I will be hurting. How am I supposed to get control of my diabetes and blood pressure, if I am constantly in pain and depressed from it?

I guess I will just have to see how he and his staff handle this. I know my body. I know what I can handle pain wise. I have had 2 C-Sections and was up walking with in 3 hours after each. Pain is not something I take lightly. I can handle quite a bit. But when I can't even sit, stand, lay or walk with out pain and I haven't been hurt or fallen, I know it is something I am taking.

Thanks for letting me vent, ask a few questions somewhere in there :(


13 replies

Nick1962
Nick1962 2011-12-07 11:39:12 -0600 Report

Glad to hear your BP is down and your doctor is finally listening. Hopefully that’s an upward trend. When I read your first paragraph I thought “6 meds and 5 supplements? That’s just wrong”.
I realize that I am one of the lucky few who can pretty well manage through diet alone – the only meds I take now are lowest dose Caduet (combo BP/cholesterol) and if I know I’m going through a stressful period, I’ll eat fish oil (good fish oil) like M&Ms. But I eventually hope to drop those also.
It sounds to me like your Doctor is much like mine. Treatment is to throw pills at the problem. At one point I was on 4 meds (including two statins), 2 supplements, and felt much like you. This went on a few years, me completely oblivious to it thinking he knew best. I had the big three – overweight, high blood pressure and high cholesterol (and newly diagnosed T2). When I read the side effects of all my meds – can’t be in the sun, use no caffeine, blah blah, blah, no wonder I felt like crap. They made me sicker than the original problem. At one point I had a med to treat raised liver enzymes, which was caused by the statin (the most common adverse side effects are raised liver enzymes and muscle problems), and on Vit D due to a deficiency because my BP meds wouldn’t allow me sun contact for more than an hour. It was just snowballing. Luckily my Chiropractor intervened and gently smacked me and asked if my PCP was actually recommending anything to address the root cause of these issues. I said “no, he’s real good about not getting on me about my weight”, which once I said it, it sounded really dumb. She just looked at me and said “you want to continue like this?” Long story short, once I dialed in my diet and weight, I was able to get off nearly everything. And feel 1000% better! I can actually sleep at night, and some of those meds gave me some pretty freaky dreams!
I’ll echo what the rest suggest (James and Carol - those two are so smart it’s scary) and to shop for a new doctor. Get friend’s recommendations, do online searches, etc., because there’s a fine line between “treatment” and “care”. You do need to take charge, and find someone who will actually assess if these specific meds and supplements are necessary, and in those doses. And even more important, the combinations of them are OK. In fact give the list to your pharmacist and nutritionist and see if he/she sees and red flags.
Be positive, it gets better!

Gardencricket
Gardencricket 2011-12-06 17:52:00 -0600 Report

Ok, got my blood pressure checked this morning and it was down, 138/82. My pulse was 78 but I was just walking. The nurse sent me home to wait for the call, and I am happy to report, my doctor listened to me! He agreed with me about the statin, and instead put me on Welchol, max dose though. So, we shall see :)

jayabee52
jayabee52 2011-12-06 21:14:02 -0600 Report

great to hear Sarah! See what happens when you stand up for yourself?

Gardencricket
Gardencricket 2011-12-06 22:08:50 -0600 Report

Yep :) I go on Monday to actually MEET my doc, I have seen the nurses, the nurse practitioner and the cardiologist. But not him, so the meeting I have a notebook full of questions about me and all this stuff. And I will get answers.

Gardencricket
Gardencricket 2011-12-05 22:49:38 -0600 Report

thanks for the replys, I will reply to each tomorrow, I am so tired. one good thing did happen today though. I went to the local diabetic support group at the hospital and meet 3 very nice ladies, one of which is the leader, and she is a type 2, and has the same issues with the statins, so I know I have "backup" when I deal with the doc tomorrow

June Tademy
June Tademy 2011-12-05 20:21:47 -0600 Report

Well my question is when are you going to find another Doctor? It appears to me that this Doctor is not really listening to you, what you can do is ask him to let you see a specialist and/or again just find another Doctor. I changed Doctors so many times it will make your head spin, I suffered a lot with abdominal pain when I was on metmorphin, it was terrible. You have to understand that this is your body and you are in charge, you do not want to keep paying this Doctor when he is not helping your condition, this is serious it is your life. Please do give another Doctor a go of this and do not keep taking any meds that are hurting instead of healing. Please keep us advised of your situation. Take charge of you of your health, the Doc means well but if he is not listening to you, you have to find someone that will listen. Perhaps you could suggest that you guys work on the BP first and then move to the next issue. Do take charge of your body and keep in touch with us. Wish you well

jayabee52
jayabee52 2011-12-05 20:00:37 -0600 Report

After having problems like that you must be firm with the Dr. After all who works for who? Dr works for YOU! You (and your ins co) are paying for his services.
If you cannot handle statins, there are other ways to deal with cholesterol.

You can refuse to take the med. THAT IS YOUR RIGHT! Especiallty if it causes you pain. Pain is your body's way of screaming SOMETHING IS NOT RIGHT!

I usually support the Dr (because I used to be a Certified Nurse Aide) but in this case I suggest not to take the med.

Caroltoo
Caroltoo 2011-12-05 19:58:11 -0600 Report

Sarah,

Your mom asked a good question: what are you going to do, meaning it really is your choice because it is your body. Perhaps a second opinion would be in order, but they can be expensive.

I actually had a similar experience as your granddad. Let me share a little of it and you can take from it anything that fits for you. In 2005 I had a "mild" heart attack, meaning little/no damage to the heart. Ended up with stents and a huge supply of pills. Long story short, I also tried 3 different types of statins over the next 2 years. All carried the warning that they could cause serious side effects like the ones you and I experienced.

When I found myself leaning on the walls of my office at work because I couldn't balance or handle the pain in my legs, I quit taking them. I, too, knew my body and knew this wasn't right. Eventually, I'd told my doc and she suggested another. After 3 tries, we stopped talking about it because I declined a 4th attempt. I still take the CoQ10 and the Mega Red Krill Oil, but no more statins. After a return trip to my cardiologist in 2008, he said I was doing great.

You have a serious BP issue and I would be really concerned about your stopping BP medication. Statins have a more indirect effect on our heart function, mostly by reducing cholesterol. Perhaps another thought is to suggest to the doc that you will do the other meds and revisit this one after the BP has "righted itself". I guess he can refuse to continue to treat you, but most doctors I've been to respect my right to decide what I will or will not ingest. Though, I'd have to admit, it has not always been without me fighting for what I believe to be best for me!

Maybe this gives you some ideas about how to think this decision through for yourself. Your doctor sounds like he wants what is best for your health, so try to get him onboard. Sounds like your mom would be a good sounding board also. Then, of course, there are all of us. Take care.

Carol