Diabetic Neuropathy

By optiguy85d Latest Reply 2012-01-24 01:46:53 -0600
Started 2011-11-16 16:08:43 -0600

I am a Type 2 diabetic for 12 years and have developed very painful neuropathy. It has traveled from my legs into the upper portion of my body. Is there anyone who has found any type of relief from this type of pain?

31 replies

toomuchman 2012-01-24 01:46:53 -0600 Report

I was taking Lyrica and Cymbalta and they really helped me. I have a severe case of neuropathy even though I have my blood sugar under control, the nerve damage is done. I stopped taking Lyrica because Medicaid wouldn't pay for it. Then I lost my insurance. I was able to wean myself off Lyrica gradually. The withdrawl symptoms are terrible so it has to be done slowly. Now my problem is my phantom limb pain. It has become worse. I lost my right foot a year ago to a bone infection that went into my blood and gave me sepsis. My left foot has a bad case of Charcot foot. The Cymbalta helps a little but I have noticed since I stopped the Lyrica the nerve pain in both legs has returned. Gabapentin is worthless for me. I wish I could go on morphine pills but my doc doesn't want me on narcotics.

KBtown 2011-11-20 10:28:40 -0600 Report

I have diabetic neuropathy in both of my feet and half way up my calves. I also have it in my fingertips of all my fingers. My dr. told me that with as advanced as the neuropathy is I have been a diabetic for at least 10 years and didn't realize it. I don't envy those of you that have the painful form of neuropathy. I friend of mine has that type, also diabetic, and he is now on morphine for his pain. My problem is I can't feel anything when I'm walking. I've got slivers in my feet and not known until the area became infected. I've also burned my fingers because I forget and pick up hot pans and hold them too long.

JBrindley72 2011-11-19 10:21:20 -0600 Report

Bumps and bruises have nothing on Neuro pain. I have dealt with such pain for over 15 years. Narcotics are not the answer, but I do agree Lyrica has been a big help. In addition I take Flexeril and the combination has worked well for the last 4 or 5 years. bear in mind, you will never be completely "pain-free", but this combo works for me.

Teresa Rose
Teresa Rose 2011-11-20 00:38:47 -0600 Report

I use Flexeril & Neurontin. I don't know exactly what they do for me though. I ran out of Flexeril and didn't get my perscription renewed yet. I was going to try and see if I could do without it. I get so tired of taking all of the medicines I have to take.

george15 2011-11-19 10:10:18 -0600 Report

Lyrica and neurontin (gabapentin) work for me. I had very severe pain in both feet. After I got my blood sugar under control I found I could take less per day but could not eliminate it without the pain returning.

Jan8 2011-11-18 17:29:01 -0600 Report

Yes,I tale Lyrica and cymbalta and the pain has vanished. My sis takes cymbalta and that alone does the trick for her.

huffer 2011-11-18 12:42:56 -0600 Report

Have had type 2 since 1998 and am now insulin dependent, I have neuropathy in my feet,legs,arms and hands. I have found that Gabapentin, 800 mg at night and 400 mg in the morning helps a bunch. At 1 time was supplemented with Amitriptoline, but with controlled blood sugar I was able to use the Gabapentin Only. If you can find a good Doctor or N.P. they will work closely with you to find the optimal medication rates.

kimcavett 2011-11-18 19:32:11 -0600 Report


huffer 2011-11-19 07:57:45 -0600 Report

I am lucky to have a N.P. as a provider, he has fine tuned my medication to eliminate most of my burning sensations and keeping me alert and not excessively sleepy. He works with my Diabetic care team in Indianapolis, IU school of medicine, to optimize my treatment.

Teresa Rose
Teresa Rose 2011-11-20 01:04:30 -0600 Report

I'm from Indianapolis, Indiana!!! I would love to have a good doctor. I have neurapathy in my legs and feet and I am a type 2 diabetic. I am also excessively sleepy and tired. I have been getting B12 injections. IU school of medicine is an awesome place.

TaraHealth 2011-11-17 15:28:35 -0600 Report

Hi Optiguy— I had neuropathy in my feet from a different cause—due to copper deficiency as a result of cancer treatment. You have my total empathy. It is bad. Mine was the screaming pain kind as opposed to the numbness i know some people get. I took Gabapentin and detested it. It helped me sleep but not much more. What i wanted to say is that my neuropathy went away when my copper levels improved. Is there a chance that yours will improve if you "control your numbers" as you suggested? I just wanted to testify that neuropathy can go away though i don't know if it will for you. Fingers crossed. : )

Just Joyce
Just Joyce 2011-11-18 10:17:07 -0600 Report

Hi OPtiguy, I had that so bad before I was diagnosed and had no idea what it was. Once I was diagnosed and got my Type 2 under control, it seemed to disappear. I went to the pharmacist and asked about the lotions. I bought DiabetAid lotion and it worked. Every now and then if I feel it happening at night I rub my feet and legs with it and it goes away. Yours may ease up once you get your sugar under control.

valentine lady
valentine lady 2011-11-17 15:12:13 -0600 Report

Dear Optiguy85d: I too have Neuropathy in both feet and it's started up one leg, my left. I am alergic to Lyrica and Nuerontin the 2 meds that are reccomended for Nueropathy. So my Endocrynologist put me on 90 mil.grams of cymbalta. 30mg. in the a.m. and 60mg. at night for bed. It has all but cleared it up. I know most people take cymbalta for depression but it doesn't work that way for me. Speak with your Dr. about these meds. Their the ones you need. Nueropathy is horrible, but there is releif through one of these meds, I promise. Hope all works out for you, Valentine Lady

Teresa Rose
Teresa Rose 2011-11-18 08:17:47 -0600 Report

I have Neuropathy in both of my feet. It's mostly in my right foot. I take Nuerontin before bed at night. I don't know exactly what Nuerontin does for me. Does anyone know? Just wondering. I have the numbing kind of Neuropathy.

TaraHealth 2011-11-18 10:45:30 -0600 Report

Hi Teresa— I found that it helped me sleep because the pain was so much worse at night, but beyond that it didn't do much. It did, however, affect my mood terribly making me very depressed (i am sooo not depressive by nature) so i couldn't wait to get off of it. Once you start it, however, you have to wean off of it slowly. I did that and now am done!! Yay. : )

Teresa Rose
Teresa Rose 2011-11-20 01:07:45 -0600 Report

Since I have been taking the Nuerontin I have been really depressed. I'm usually not a depressed person by nature. Now I know why I have felt this way.

TaraHealth 2011-11-18 10:55:58 -0600 Report

The neurontin.Actually, i took gabapentin. But really the side effects were very bad for me. For sleep, there are some herbal remedies i like. Also, i have a prescription for Lunesta that works unbelievably well for me though i am a non-drug person so i try to only take it when i haven't slept at all. But i'm told by my holistic doc that it's not addictive physically. (The Lunesta not the neurontin) : )

optiguy85d 2011-11-16 22:10:41 -0600 Report

Wow, thanks everyone for your comments. I know this is from not controlling my numbers better. If you are in that category please don't wait until it gets this bad. I can't believe that I have this pain. I just started taking ALA this week. I tried Lyrica but it made me have crazy thoughts so I discontinued it. I do take Gabapentin 3X a day. No results yet. Any thoughts are welcome and thanks again!

MEGriff1950 2011-11-16 19:21:55 -0600 Report

I have been taking ALA for years, it helped a bit but as I do have nerve damage in my back it is hard to tell where neuropathy leaves off and the injured nerves begin. By the time I was able to get on Lyrica in January it got so bad that my legs were jumping all over the place uncontrolled. This was happening 3 to 5 times a day. I started on very low dosage of Lyrica and several months ago had to go up to 150 mgs a day. Before Lyrica I lacked the sensations for going to the bathroom, I had no sensation of hunger or being full. Since starting Lyrica all of these are normal again. I still have sciatica at times and late night just a few pin prick pains before I take my Lyrica.

Caroltoo 2011-11-16 19:39:30 -0600 Report

Mary: an surprised at what you are dealing with (didn't know it could get that bad), amazed at how well you are dealing with it, and feeling very blessed that I've escaped all this so far. Carol

MEGriff1950 2011-11-16 19:42:49 -0600 Report

Carol, Like I said some is neuropathy but I have 8 herniated discs in my back that has led to compressed nerves. The specialists cannot tell which is caused by which. For me Lyrica is the answer.

Caroltoo 2011-11-16 19:52:01 -0600 Report

Mary, The parallel still fits for me. I broke L5 in 2 places in an auto accident in 1994 and narrowly missed being paralysed from the waist down. According to my doc, if the had broken in any other way, it would have meant instant paralysis. I had pain and heavy medication for years. Always figured the pain was better than paralysis would have been!

Thankfully, it is much better now. I also take ALA but for BG, had not known it could help with this, however, my improvement w/r/t back pain fits the time frame when I started taking ALA. Now I'm dealing with only one disk that is threatening to become herniated. I think I've escaped that bullet for a while cause it has improved over the last 6 weeks. If it gets bad again, I'll consider Lyrica. Thanks.

Mickey/CCHT 2011-11-16 18:52:26 -0600 Report

I also have neuropathy in my feet and legs. I'm on my feet all day running around at work and would come home in tears! They had me on neuortin 3x a day! Not that long ago I discovered something call Alpha Lipoic Acid and this stuff is awesome! I no longer take the neurotin on the days i don't work and only sometimes on the days i do. It is also good for turning blood glucose into energy, helps brain functions and a host of other things. Google it, you will be amazed! Good Luck and God Bless, Mickey

kimcavett 2011-11-16 18:04:10 -0600 Report

When you find out let me know, please. I cry with my feet. I work standing up in a Walmart. I feel your pain.

Just Joyce
Just Joyce 2011-11-18 10:22:13 -0600 Report

Kim, go to the pharmacy dept and get DiabetAid Lotion. The stuff works wonders. It also eases once you get your numbers lower. When I was diagnosed, my A1C was high but I didn't need insulin shots. Six months later I got it down to 7.0 a year later it was 6.5. Now I don't have a problem with Neuropathy. It rarely happens.

Mickey/CCHT 2011-11-19 15:45:48 -0600 Report

I just saw that in the pharmacy area at wal-mart yesterday! I almost bought it to try, but talked myself out of it! Now I will go back and get it to try. Thanks!

ShellyLargent 2011-11-16 17:11:37 -0600 Report

I suffer from the same thing. Type 2 for many years prior to offical diagnosis 11 yrs. ago. How have your numbers been? If I keep very strict control over my blood sugars, then I find the pain eases off and most days is hardly even noticable. If I have a few days where I'm high, then the pain gets worse and is almost unbearable. I've tried the OTC creams and topical lotions. Nothing really works that well for me. A few years back, I was taking carbamazepine for the pain. It worked for me. It's a drug that's primarily used to treat epilepsy and bipolar disorder. Might be worth asking your doctor about. But make sure you have him go through the side effects with you to make sure it's right for you.

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