Just joined tonight

By misris Latest Reply 2011-11-18 12:14:36 -0600
Started 2011-11-14 03:06:17 -0600

Hello I've never been on anything like this but my endocrine says this might help me to talk to other ppl sooo I'm 20 I've been diabetic for 18 yrs since I was 2 and I've never been able to get myself under control my A1c is always 13 or higher so I'm just hoping ppl on here are supportive and I'm able to vent and talk about things with ppl who understand so is this sight supportive? Does anyone have any ideas on how I can get my A1c down?

30 replies

EJMac 2011-11-18 12:14:36 -0600 Report

Welcome. Having this disease is a challenge for sure. It doesn't matter if we like it or not, it needs to be dealt with or we will pay the consequences. I agree, get a good endo who you can really talk with. It's kind of like a puzzle because what works for one doesn't neccessarily work for everyone. For me I needed to know what foods were not good for me-like bananas. Always thought I was being healthy, but it raised my BS way too much. I also had to deal with portions-I was eating way too large of portions of everything. I'm still working on losing weight, getting better control, but it's alot better. Not wanting this disease doesn't change a thing - we have it and we need to learn to deal with it. We'll never do perfectly, but progress not perfection really makes a huge difference
Good luck. Come back to these posts. I have learned so much here. I also know I'm not alone with my anger or frustration.

valentine lady
valentine lady 2011-11-15 14:28:12 -0600 Report

Misris: First of all WELCOME TO DIABETIC CONNECT!!! You find wonderful people here with your best interest at heart. Now to your question, I know I don't have the perfect answer for you, but here goes. First if you don't have one you need a good Endocrynologist, sounds like your diet is out of whack. To many carbs per-day maybe. The tinest bit of sugar in any form can throw you off completly. An example, I can eat a banana with a BS of 124, after the banana it will be 450 to 500, but oranges are okay for me. Oj raises my BS quite high as well. Some people can eat these things and nothing happens, me it's differant. Have your best at heart, Valentine Lady, good luck to you…

Mickey/CCHT 2011-11-14 18:56:43 -0600 Report

Welcome to DC. If you are looking for knowledge and support, this is the right place! All venting is allowed! No name calling though!! LOL JK.

I wish i had some advice for you. But being kind-of new myself, i'm sure i would not have anything helpful to add that you have not already heard! I wish you the best though, and i hope someone here can help you out.
Blessings, Mickey

GabbyPA 2011-11-14 13:53:19 -0600 Report

Welcome to the Community! I think your Endo is quite wise that he would allow you to seek help from others in support. Some doctors don't like that we go out and find others to help us a long. There are so many here who have great ideas and will be able to offer you input.

I am not a type 1, but before you can lower your A1c, you will have to find a way to get some control on your daily levels. Maybe kind of start from scratch and tackle the thing you want to change most first. Perhaps it is carb counting, maybe it is getting in some exercise? Perhaps it is getting a pump to help you better manage or hooking up with someone here who you can be accountable to? You pick where you want to start, and I bet there will be a lot of folks here who are willing to help.

Set apart
Set apart 2011-11-14 21:25:40 -0600 Report

Hi Misris, welcome I am not only new to the community, but am also so new that I haven't even had my first A1C test. I am Type 1 and can only say that my bgs depend on me totally. I only eat what I know wpwill not make me sick, when in doubt I double check. Take care

RebC 2011-11-14 10:00:42 -0600 Report

Hi misris! This is a great site, especially if you are looking for support. My little sister is in a similar situation to you…she's only had it 15 years, but it's very brittle and hard for her to control, so I understand where you're coming from! Welcome to the community!

Chad1978 2011-11-14 09:59:36 -0600 Report

Personally, I found this site by mistake when I was trying to do some research on diabetes, and somehow I found this site. I was diagnosed in '08 as a type 1 diabetic, and I was 29 at the time. I am not certain it would be helpful for me to compare my A1C's with yours, but I will tell you how I am able to keep my A1C's low. Everyone's bodies are so different, so what works with me may not work as well with you, but it's worth the try. The key ingredients for me have been eating right and exercising. I know this is about the lamest response, and most obvious, but these are the things that got me out my 7 or 8 ranges to instead the 4 or 5 ranges. Since I made sure that I ate properly, and exercised regularly I have had consistent lows. I used to exercise when I had a chance, although I rarely had a chance because exercise was such a drag and so I would come up with excuses to get out of it. Exercising was like going to work, but that was until I made it more fun than work. In the beginning I had no interest in going for a jog, but then I started to jog with my wife and/or our dogs. It was much more enjoyable with company, but now it's just as fun for me if I'm by myself with my iPod. Again, these two things dramatically changed my A1C's dramatically, but that may not necesarilly be the case for you. Do you make sure to exercise regularly, and do you watch your carbs? My name is Chad, and if you have any questions then feel free to ask away. All questions are good questions. The only bad questions are those that are not asked.

Your fellow diabetic,

Set apart
Set apart 2011-11-16 06:09:35 -0600 Report

Chad you are so right although still new when I exercise and watch those carbs usually 2 hrs. After I eat I will be below 140 whic doc says is good. I have had a few mishaps went over 170, and realized I miscalculated my carbs. When I was first diagnosed dr. Said I would be my own guinea pig in this one and she was right although they give you the tools and SOME information you end up finding out what works for you. I live in a rural community and have found the care here very limited and with hardly no education so am in the midst of changing where I will be driving over an hour to get my care. Will be seeing an Endo and am trying to figure out what is going to happen with my pcp or how all this works with the team you are supposed to have. We are not supposed to be alone in this! I am a T1 I hope that's the right diagnosis they said my peptide tests definitely say I am am T1!

Gracie40 2011-11-18 11:21:09 -0600 Report

Set apart, you will find the hour drive worth it. Be prepared to ask questions. I hope you get to see a Diabetes Educator as well. So helpful. Ask Endo if they do not offer a consult with CDE. (Certified Diabetes Educator) I have a pcp and an Endocrinologist. My pcp does not touch the diabetes. Endo is in charge of my thyroid dysfunction and type 2 DM. I just make sure my Endo sends a report to my PCP. Wishing you all the best!. Gracie

Chad1978 2011-11-16 08:08:52 -0600 Report

Although it's going to be a pain in the neck I am happy to see you taking that 1 hour drive in the hopes that the care will be better. My original endo was a mere 15-20 minutes from my house, but now I have decided that I too will be taking a longer trip to make sure that I will also receive better care then I was before. My endo road trip is now a 45 minute to an hour drive, depending on traffic, but it's definitely worth it to me. Your numbers after meals seem pretty good to me. I am usually in the 160-180 range after my meals, and my endo thought that was good for me. That is definitely going to be a question I need to remember to ask my new endo the next time I speak to her.

annesmith 2011-11-14 23:16:57 -0600 Report

This is wonderful that watching what you eat and exercise helps you so much. How come so many people claim type 1s never have a drop in A1c if they add diet and exercise to their insulin? ANNE

Chad1978 2011-11-15 07:58:33 -0600 Report

Well, the funny thing is that I just found out yesterday that my original diagnosis of type 1 might have been wrong. For almost 4 years I have been told I was a type 1, but now they are not so sure that is correct. I have recently changed endos, and am testing to find out which type, exactly, I am on. Very crazy that I never got a 2nd opinion from the get go. I am in the middle of some testing, and after test number two my new Dr has taken me off of insulin and now I am on Metformin. The next test is the genetic test, and it sounds like that will be the final test, and should allow my Drs to know which type I am.

Chad1978 2011-11-16 07:52:56 -0600 Report

I sure hope so. I really should have gotten a second opinion from the get go, but live and learn, as they say. Who are 'they,' that say these things, anyways? That is another one of life's little mysteries…LOL

annesmith 2011-11-16 21:47:50 -0600 Report

Yeah…a second opinion is always the best in my opinion. I wish you the best, and write me back when you find out what the second opinion is…sincerely, ANNE

Chad1978 2011-11-16 22:16:07 -0600 Report

And I am back on the insulin, LOL. My Dr called me today with results from the rest of the blood tests that she received today, and the results are that I have Latent Autoimmune Diabetes, which is basically a slow version of type 1 diabetes. It would have been nice to hear I was a type 2, but I am just relieved to finally know for sure which type I have.

GabbyPA 2011-11-17 21:51:12 -0600 Report

Knowing is WAY better than guessing. Even if it is not the answer you want, at least the wondering is over.

Chad1978 2011-11-17 23:33:31 -0600 Report

I agree. I've been a type 1 for four years, so nothing changes which makes things a bit easier for me. The good thing about this is that I do not have to research the heck out of type 2 diabetes. I have already researched the heck out of type 1, so that makes this answer a lot less work for me.

Chad1978 2011-11-18 09:35:04 -0600 Report

Ha, that second degree sure would look good on the resume, but I'm much to lazy to take on any more courses. LOL

MEGriff1950 2011-11-14 09:55:00 -0600 Report

Welcome Misris, you have come to the right place to vent and learn. I am a type 2 which is a totally different story then for T1. There are many members here who are 1's and hopefully they will come in and offer some help.
Have you attended a diabetics education class? Those have helped many here. Do you keep a stringent eating schedule? Do you have a meal plan? All diabetics need to eat on schedule but especially you 1's.
Good luck and be blessed,

TsalagiLenape 2011-11-14 07:24:59 -0600 Report

Misris You come on here any old time. Trust me that here you will be able to vent your spleen if you want, rant and rave over nonsense, or just give encouragement to those who need it or just because. I know you have had diabetes longer than I yet I am older than you. So I will treat you as my "other" daughter which I have many of them! In the short time I have been on here the help love support and understanding is so overwhelming but great to know I can come here with anything. Plus all of this benefits all of us because we know how it truley is living with Diabetes. Hugs

Old-n-Grey-n-Wiser 2011-11-14 07:00:17 -0600 Report

Misris, as you take control of your life and its problems, the biggest hurdle at your age is to remember to slow down, do one thing at a time, multi tasking leads to stress. Your number one priority is your health, without that you have very little. You can always find someone here for support and encouragement and we are more than happy to give you an open ear to vent to or a strong shoulder to cry and lean on when needed. Take care


granniesophie 2011-11-14 05:19:45 -0600 Report

It is very hard not be be stressed! I know, I'm the Queen of Stress :) You can try many things. Robert is right, everything is baby steps. One day at a time.
I try to walk or listen to music when I am stressed, and sometimes I just have to zone out and close off the world for a short time. It helps to identify what you think is stressing you. Some things you can control, others not so much. Try to figure out how to control those things you can. Find out why they stress you. Maybe its something that you CAN control or maybe you just have to make it go away. Don't take the world on your shoulders, it's not expected of anyone.
The people here are great support, we have all of us been there, and some still are. There is new stuff to learn and share every day. Open your heart and your mind, and let it all in. Come here to talk, vent, teach, and learn.
And, welcome :)

robertoj 2011-11-14 03:54:30 -0600 Report

That is what we are here for. Their are many wonderful people on this site. I feel that the first thing any of us needs to do is to simply love yourself. Too many people feel like they don't deserve to be well. You know that you are a diabetic since you have had it most of your life but the question is how well have you accepted it? The things we need to do are simple but that doesn't make it easy. Eat healthy meals, be active and learn techniques to lower stress. I walk, listen to music and meditate. Having a good support network is awesome. It takes awhile to develop good habits so don't press take baby steps. Have you done any research? It helps to be involved in your treatment.

misris 2011-11-14 04:36:33 -0600 Report

Thank you. Yeah I've done research I think it's a lot about stress. I've never been able to talk about it because no one has ever really understood like my family they are wonderful it's just some times they get lost because they've never experienced it. So I'm hoping talking to ppl on here helps. I'm trying to think of ways not to be so stressed?

Mary1969 2011-11-15 23:53:51 -0600 Report

I'm with you on the family and how they don't understand. Yet, they tell us what to do all the time (right?) Or, did you test today, what did you eat, what are you on etc…Very annoying and that alone CAN stress you/us out. anger is terrible also. I've been diabetic type 1 for 22 yrs now. I've had the pump for over 15 of those lovely years and it has made a BIG difference. has your endo or dietition recommended the pump before ? MAYBE something you could look into or just look online at what they do and how they work for us ? Just a suggestion, and we are all here for you day OR night.

robertoj 2011-11-14 05:50:45 -0600 Report

You are young and part of that stage of life is a lot of stress. It's hard when well meaning people don't get it. There are many ways to combat stress and our members will offer many. Writing in a daily journal can help you sort things out and keep track of your progress.

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