Who do you talk too?

By Mickey/CCHT Latest Reply 2011-11-06 11:20:52 -0600
Started 2011-11-02 19:03:08 -0500

Was just curious if someone could tell me whom to e-mail about adding a picture to the gifts we give each other? I would really like to see a smiley face on there! A big yellow one! Sometimes I just want to smile at some one!!! LOL

Tags: censored

23 replies

Trevor Smith
Trevor Smith 2011-11-04 16:18:00 -0500 Report

This was censored accidentally! I'll have it restored for you shortly.

Old-n-Grey-n-Wiser 2011-11-04 16:52:58 -0500 Report

It is Friday Trevor;)

Trevor Smith
Trevor Smith 2011-11-04 17:02:20 -0500 Report

I know, and I'm really excited for the weekend! The discussion has been fixed. Crisis averted.

jayabee52 2011-11-04 17:50:55 -0500 Report

Is there something like Kidney Connect coming soon? A lot of folks here have and elsewhere also have kidney disease. about 49% of people on dialysis are people with diabetes and the other 49% are from high blood pressure.

I've fielded a LOT of questions from folks here, once they learn I've been on hemodialysis for a while and am perhaps going to go back on it again.

I may even be willing to be an advocate of some kind on the site.

Mickey/CCHT 2011-11-04 17:57:07 -0500 Report

Ive not heard that, will check into that. I know we have the National Kidney Foundation walk here every year in the summer.
Being an advocate for people is so important because unless you know someone that's been on dialysis or work in the field, people have no idea what it entails and how invasive into your life it is. I know when we get new patients the other girls always want me to take them because i take a little extra time with them telling them what is going on and show them a little about the machine, etc. It's the beginner speech!

jayabee52 2011-11-04 18:34:07 -0500 Report

actually I was asking Trevor if it was in the works and how close it was to coming online. but I suspect that he has gone home by now. It is after 4 here and in Salt Lake it is an hour earlier (Mountain time)

I have asked them for the Kidney Connect about 1.5 yrs ago. I used the link above under "visit another community" "what would you like our next community to be?" I've asked others to go there and ask too. (would you ask if you haven't already?) I believe it would be a valuable addition to the Alliance Health family of sites.

Perhaps you might also be good to be an advocate on the site as a Dialysis Tech.

My Jem had been on peritoneal dialysis and also on Hemo, so I have talked to her about being on peri dialysis and her impressions of it and her trouble with it.

she switched to hemodialysis just after I had been in her life for a month or two.

I myself have only been on hemo. In fact the fact that I had been on hemo attracted her because we could "compare notes".

Heather44118 2011-11-02 19:45:33 -0500 Report

oh, I want one added too please. We need a girl hugger, most are generic but sometimes i wanna give a hug and wish it was a girl. Thanks a bunch if you guys can do that. Love the smile idea too.

GabbyPA 2011-11-03 16:04:47 -0500 Report

Isn't our hugger named "PAT"? Like on SNL....am I giving my age away? LOL

Heather44118 2011-11-03 20:28:13 -0500 Report

ok i feel undereducated. what is SNL. I grew up without tv so not sure. maybe we need a person who blushes for when we ask those embarassing questions. lol

GabbyPA 2011-11-04 09:08:03 -0500 Report

LOL, that might not be a bad idea. SNL is Saturday Night Live. I never watched it much, but PAT was a character that looked both male and female and would have dialogue where you would crack your brains trying to make him/her a gender. It was genius, in a weird way.

Mickey/CCHT 2011-11-03 22:48:12 -0500 Report

SNL is Saturday Night Live on tv. It's been on for a long time. I like the blusher idea too! That would be cute!

GabbyPA 2011-11-02 19:23:11 -0500 Report

I will let the team know. You can email me or Jeanette and we will pass it on. Or putting it here is a great way too, as many others will add their ideas as well and we are always wanting to make the site work for you guys.

Mickey/CCHT 2011-11-02 20:57:31 -0500 Report

Thanks Gabby! Just thought it would be fun, ya know. Sometimes i just wanna smile at someone! Thanks a bunch! This site is wonderful by the way, you can let whom ever know who works on this, and you too, that this site is a God send! God Bless all of you :)

GabbyPA 2011-11-03 16:04:09 -0500 Report

It is a very special place that is for sure. It has come a long way in the short life it has had on the net. I am sure it will get better and better. It is one of the few sites that really listens to the members. They cannot always accommodate them, but they do look at everything you guys share.

Mickey/CCHT 2011-11-03 22:50:42 -0500 Report

I just love this place! I actually just fell into it and i am not even sure how! I was searching for answers and "POP" here i was! I think i was lead here to help me, God knows it has! All of you, please keep up all the good work! Be Blessed