Type 1 Diabetes, Addison's disease and hypothyroidism

By OliviaScottGA! Latest Reply 2014-12-08 00:43:42 -0600
Started 2011-10-27 20:27:25 -0500

Does anyone else have type 1 diabetes, addison's disease and hypothyroidism? If so how do you manage everything in your life without getting so stressed out?! College is very stressful and it seems like I can not get better before getting sick and having to get fluids. I feel like i stay at my doctors office and the er. I have a dexcom sensor that alerts me when I go low because I can not feel it until its in the 40's which is a huge help. In the past year I have had three episodes where I was unconscious, seizing and not breathing. During one I turned blue so no one knows how long I had been like that before they found me. I eat at least two meals a day but I have to force myself. I am never hungry so I can go all day and forget to eat until my bs bottoms out. I am 5'8 and 115 pounds.

7 replies

Bamb 2014-12-08 00:43:42 -0600 Report

Hi. I know what you mean. In fact, i just looked at the section on this site about managing stress and those times when I feel like I'm exhausted from the constant monitoring everything and from all the crazy things that happen even when i know I'm doing as best I can. There's some good stuff here. I just stumbled across this site an hour ago and joined. Sometimes its lonely and i feel like I'm doing this all by myself. And I'm lucky..I have very supportive family and friends but they cant't fix this for me or even understand what it feels like. Even after all this time i need to remember to relax, breath and just assess this moment. Ask myself,Am i ok right now? Breathe. What should i do right now to help myself? Breathe. Just stay in the moment.
My advice is eat lots of salty foods like they tell you. A long time ago, a doctor told me to never to pass a water fountain without drinking. Now i carry water with me all the time. Pickles are my favorite salt food or salty nuts. i seem to need salt more at night.
I was diagnosed with Addison's 40 years ago last month, Hypothyroidism 26 years ago and diabetes I, 6 years ago. For the near constant dehydration i take Hydrofludrocortisone but only as needed. That works for me but some Addie's take it daily in combo with their other steroid. Take good care. God bless and keep you. Beth

cordiervoodoo 2014-11-10 18:53:12 -0600 Report

oh wow someone else, so nice to know there are others out there. I was diagnosed with addisons and hypo thyroidism at age 15 and T1D at 36 years after a major addisionian crisis. I have been struggling ever since having all three to try and find a balance and living stress free as a single parent is never going to happen. I am starting a new raw food /mostly vegan diet soon as I dont seem to suffer as many side effects and i dont get the tiredness .. hopefully it will help with overall well being too..

alleabee 2014-07-03 16:17:31 -0500 Report

I have the same. Diagnosed with type 1 diabetes at 13, addisons disease at 18 and hypothyroidism at 23. I'm 25 now. I've found that managing stress daily is very important.

Deusen7 2013-08-13 16:15:00 -0500 Report

Hi I just found your link while I was searching on google. I am 27 and got diabetes at 2 yrs old and hypothyroidism at 14 and Addison's at 19 and I had cardiac arrest and had to get a pacemaker/defibrillator at 24. It's been a long long road but am feeling better and better. I have it found anyone else with the same issues I do so it is nice to know there's someone out there! If you want to talk or just vent, just reply!

Nostress 2013-06-21 08:13:45 -0500 Report

I have Addison dissease, Hashimoto and diabetes type 1. Addison since 1990 and 10 years later Hashimoto. Now since one year diabetes type 1.
I was 38 when they discovered the Addison and 60 when I got diabetes.
I think you're much younger.
I am from the Netherlands.

berrykins0 2011-11-04 07:48:56 -0500 Report

sorry i can't help you but i do feel bad for you what happens. i had problems with my thyriod i'm type 2 diabetic. i went from hypothyriod to hyperthyriod do to gravesdiease. which automunne system attacks the thyriod makes it overactive sighty for me. but can make thyriod hypothyriod which is called hashimotos diease which is other automunne diease. my thyriod just wasn't working very well.but i thought sharing my experience with my thyriod and me being diabetic type 2 may make you feel a little better. sorry can't help but would like to.