Dr. won't diagnose gastroparesis

By Lori1 Latest Reply 2011-10-22 21:30:57 -0500
Started 2011-10-20 19:06:13 -0500

Has anyone else had a problem with a doctor refusing to diagnose "gastroparesis" when you have all the classic symptoms of diabetes-related gastroparesis? I had a gastric emptying test which came back negative (d/t it being a "good" day for me and because the amout of food they had me eat was insignificant it didn't cause symptoms). My new, young doctors say that what I have is not gastroparesis at all, but something else. I've had every other test in the book, and all they say I have is "chronic inflammation of the esophogus and stomach lining." In the meantime, the gas/bloating/nausea/upset stomach symptoms are killing me (although I can often keep the symptoms at bay with careful diet and lots of water and exercise). My doctors say that few people truly have gastroparesis, although that term is thrown around a lot. Any suggestions?

4 replies

Mickey/CCHT 2011-10-22 21:30:57 -0500 Report

Lori how are you doing? I just wanted to let you know that i started taking that protonix. I want to say it's working, but it could be my mind tricking me! I have only been taking it a couple of days. But you might want to ask your doc about it. I guess it's in the same family as prilosec, but stronger. It is actually supposed to heal. Also i was told that Nexuim helps heal it too. I used to be on that but my cheapo insurance made me start taking the priolsec! So, any who, just wanted to throw that out to you, maybe it could help? Good luck and let me know how you are doing. God Bless

Mickey/CCHT 2011-10-20 22:09:44 -0500 Report

My goodness! Your symptoms are what i have and i just had an endoscope done 2 weeks ago and they told me i had gastritis. I wonder if that is the same thing. I have been miserable! My doc just called me in a script for protonics(?sp). But the doc that did the scope just told me to eat smaller meals and don't eat late! Well i have been and i still feel terrible! My boss is the one that told me about protonics and i called my doctor. 2 days later they called it in so i will pick up tommorow. Did they prescribe you anything? After you eat does your stomach swell up real big and hard and hurt?

Lori1 2011-10-20 22:20:35 -0500 Report

Yes, exactly. The only thing the doc prescribed was Prilosec, which I'm a little fearful of taking d/t other issues it can cause (messing with your stomach's acid content/production can't be a good thing). I, too, had an endoscopy (with biopsy) and breath tests. What I have is gastroparesis, yet this new class of young docs doesn't want to admit to that, thinking they can explain it otherwise.

When I sit too long (such as at my job), my stomach just locks up. It's gotten so bad that I've considered looking into some type of disability. If I sit, I get sick. If I move around, I do pretty well.

Thanks for your input.

Mickey/CCHT 2011-10-20 22:49:09 -0500 Report

I sounds like what i have! I just went back to work after a month of them just trying to figure this out! It is horrible. I have a strenous job and it is not been good. I'm trying to hang in there it was only my 2nd day back, so we will c. I was already on prilosec, they upped it to twice a day, but i did not notice any differece, so i just take it once again. I have really bad acid reflux that i've had all my life. Well, i will take this protonic starting tommorow and i will let you know how it goes. Good luck!