PreDiabetes And Extreme Pain in Feet and Legs

By AudraHansford Latest Reply 2011-11-13 17:18:24 -0600
Started 2011-10-20 00:29:19 -0500

I have not been officially diagnosed, but I am a VERY high risk for diabetes. For the last 2 months now I have been having a very painful "pins and needles" and burning in my legs and feets, but I do not have insurance. The local health department here does not do free health care, but I was hoping someone might have some ideas as to what is going on and how I can go about getting at least tested for dieabtes free or really cheap. I don't work and my husband is on unemployment (he was one of the several that lost their jobs when Josten's moved to TN). Any help will be much appreciated!

6 replies

AudraHansford 2011-11-09 22:05:46 -0600 Report

Thank you both for your replies, yes we do have a health department/agency but its actually in the end more expensive than seeing an actual doctor. I will try the Red Cross though. Again thank you so much!!!!

sharonb55 2011-10-27 21:22:49 -0500 Report

OMG…I am new here. This is my first post. I was diagnosed with Type2 about 6 months ago. I didn't know anything was wrong with me. I had no symptoms except the toe on my right foot next to the big toe was tingling and numb. All of a sudden I started feeling sick and weak. I told my family dr and she ordered a blood test. When I called her she said..or actually yelled at me "Well Sharon your sugar is over 300 no wonder you feel ill!"..I almost passed out. She also told me when I get my sugar down the feeling will come back in my toe. WRONG..I totally changed my diet to HEALTHY…lost 30 pounds from walking hours at night time and was feeling better…except for my toe. When I went to see her again the beginning of October 2011 the numbness had spread to the ball of my right foot and now it was also burning and feeling like hundreds of needles were sticking into it. I could hardly walk on my right foot. Two days after the dr visit the same thing started in my left foot. So now my right foot is totally shot. It burns, then gets really cold and white looking and I have to put it on a heating pad on low to warm it up. The whole foot tingles with the needles feeling, burning, cold and when I walk on it it feels like I am hooked up to a cord plugged into an electric socket. Now the same thing with the left foot…not quite as bad as the right but quickly getting there. It's all happening so fast. My family dr. referred me to a neurologist and he did a EMG i think it's called on me. The neurologist told me I have diabetic neuropathy in my feet, numerous pinch nerves in my legs and moderate carpal tunnel in both my hands. He said I have to learn to deal with it and live with it and the only thing I can do is try to keep my sugar down to slow the process of the neuropathy. I am at the point now that I hobble around my house using a cane and a month ago I was walking like a normal person at an Alice Cooper concert… wtf?? Why so fast? Anyone know? I live in a big house and have to take care of my mother who is 85 with alzheimers and dementia and our 11 loving stray cats we adopted. I am on Neurontin 300mg three times a day and it hasn't helped at all. The only thing I can do when I have to go out to the store is get a 10mg percocet from the very wonderful man in my life for 20 years. It dulls the pain in my feet so I can at least walk. I am only 56 years old and fear that in a year from now or maybe even less I am gonna be in a wheel chair. How will I be able to take care of my mother and this house and the cats? No one in the family will help me and my mother is still not bad enough to go into a nursing home. She still has quite a few wits about her and knows pretty much of the time what is going on. Geezzzzzz I think I might be going into the nursing home before her the way things are going in my body. I used to wait until dark…I love the dark I always have…and go for walks for hours at a time not afraid of anything. Taking a flashlight, bottle of water and my ipod. Just walk and mind my own business. This is how I lost 30 pounds. After being stuck in the house all day cleaning, cooking, making sure my mother had her shower, meals and med's walking was a release for me. My own time alone to think and be free. Now I can't even walk to our mailbox in front of the house up by the road without PAIN…unbearable pain in my feet and I am sure my legs are next. And whatever else. I am sooo depressed. Am also on Effexor for depression…xanax for my NERVES and ambien so I can SLEEP at night. Alzheimers in a loved one is very hard to deal with. I cry for my mother lots of night but she dosen't hear me. Now I feel that I could cry for myself too but I won't. Jerry (man of 20 yrs) does the crying for me. It sickens me seeing him so depressed too…This all hasn't really hit me yet because it's only been about a month since it started, but when it does finally sink into my brain I am gonna crack. It's like whole world has turned upside down in just 30 days. If it wasn't for the neuropathy in my feet I feel pretty good. I am also on Metformin like others at 250mg a day. Every morning when I test my sugar it is approx 130..i just can't seem to get it out of that range..Then later in the day a few hours after I eat it is like between 95 and 100. I don't understand alot about diabetes yet and I don't understand what the A1c level is all about and I have no idea what mine is..I have to have my family dr. explain it to me when I go to see her again in the beginning of Nov. 2011…also to tell her the neurologist said I have nerve damage and it is permanent and the feelings in my feet are NOT coming back!! It is such an awful feeling when I walk all I think about is to hurry up and get done what I have to do and sit down and get off my feet. My only relief is when I take my med's and go to sleep at night. Then when I wake up in the morning first thing I have to do is put my feet on the floor to get up and the suffering starts all over again. I am so desperate for something to help me I ordered this stuff off the internet called "Neuropathy Support Formula" with B1 and B12 vitamins and R-Alpha Lipoic Acid to help with the pain. It had alot of good reviews so Jerry paid for it and I just received it in the mail today and took my first 4 pills. You can actually take up to 6 pills a day if u want to but I want to see how my stomach reacts to it ( I have reflux for years and take Protonix 40mg daily). I am hoping for the best OR it might just be a scam. The bottle says you have to take it for at least 4 months to give it a chance to work. Then other people say it has helped them sooner. I don't know. They ship out another bottle every month at $49.99. I will try it for 4 months. If no results I will call and cancel and probably cry 'cause of no hope. I will give you guys here updates on the results…Maybe I am hoping for a miracle and won't get one. Or maybe I will. I really don't know how much longer I can live like this and it's only been a month. Am gonna ask my family dr for pain meds too because I can't do hardly anything. At this point in my life I feel like it is almost over and the damage is permanent so who cares if I take some some narcoticts to help get through this and take care of things at home. They are the only thing that helps me and Neurontin is bull sh*t…Thanks for listening people…Anyone else here have very painful neuropathy like I do and what do you do and take for it?…Glad I found this place…You all seem very kind and caring…Sharon

sharonb55 2011-11-13 17:18:24 -0600 Report

Dear Anne, I can't believe I just sat here for 2 hours replying to your post and my mother just walked in my room and scared me and I hit a key on my keyboard and it deleted the whole post.. Ugghhhhh… I will try to remember everything I typed and try again. First of all you should INSIST to your doctor that you want and need to see a neurologist for an EMG test. You very well could have nerve damage in your foot especially having diabetes as a child and not having it treated. I never knew how dangerous diabetes could be until the last 7 months. I don't know what a brittle diabetic is…is it type1 or type2 ?..I've had Type2 for a lousy 7 months and it has destroyed a pair of perfectly good feet for life. I am sick to death over this. I can imagine how you feel especially having a heart attack at the age of 35. I don't know about any ulcers in my veins nor inflammation any where in my body but u can bet I will surely ask! Thanks for telling me that so I can have it checked out. I have another test at my family dr in 3 days to also have my circulation tested. It's called a lower arterial something…I forget the whole name. I had to literally fight with the nurse at my dr.'s office to have it done. She kept telling me "You just had an EMG done Sharon" and I told her that is for the nerve damage. EMG's don't detect circulation problems!!! What the heck would it hurt to have my circulation checked especially with diabetes because that causes poor circulation. If I do have poor circulation at least there is some medicine that will help me with that too. I was so mad. The last time I saw my family dr. she told me when I got my sugar down the feeling would come back in my foot. WRONG!! It actualy started in my one toe months ago and I got my sugar down to 107 now and at night 3 hours after I eat it's only 95 but my both feet still seem to be getting worse. Pain, numbness and tingling is going up my legs now. The damage was supposed to stop not keep spreading. I never even heard of diabetic neuropathy until 2 months ago. The neurologist I went to had an attitude problem and so did the pain specialist. I'm lucky if I saw the pain specialist for a WHOLE 10 mins. The neurologist telling me it's no big deal. Just to deal with it and live with it. OK put these doctors in my feet for one minute and believe me they would be wiriting some good pain scripts for themselves. I am on something called "Neurontin"…it's an anti-seizure medication (lovely) that is supposed to block nerve pain to the brain. I was on 300mg 3 times a day …now I am on 400mg 3 times a day. It's not working. My dr keeps upping the dosage every time I see her. She also gave me tylenol #4's for pain. They're helping a little bit that's all. She said if I wanted anything stronger I would have to ask the pain specialist next time I see him…Then my doctor tells me that when she got my report from the neurologist that I have something called "poly neuropathy" not "diabetic neuropathy". Diabetes causes poly neuropathy too and a host of other nice things going on in your body that would take me another hour to type. When I asked the nurse at my dr office what causes this she just said "I don't know." "It's just all happening in your brain Sharon." Geeshh, these doctors make me really laugh. I've been going to my family dr for over 16 yrs now and I came to the conclusion she really dosen't care about my problem. …My arm muscles ache now andI get sick and dizzy alot and feel like throwing up and I wonder if I was even diagnosed right. Last time I saw my family dr it was a Friday and I was the last patient of the day andeveryone in the office was in a hurry to get out 'cause of the weekend and when I kept asking her questions and telling her things it seemed like she wasn't even paying attention to me…she just kept shaking her head yes and no and typing info into the laptop she had. She was in a hurry too..I could tell…she acted like I was a pain in the a$$ with my feet and dosen't want to see me for another 8 weeks. I was hoping to see her in another 4 weeks with the problems I am having…I don't know how you works 2 jobs Anne with the pain you are in. When you were on the anti-inflammatory drugs did they help your foot? I haven't read anything about them helping nerve damage only anti-seizure medication. What else do you do for your foot to help it? I can hardly walk on mine so forget about exercise and my nightly walks. I loved them. I would walk for hours. That is how I lost 35 pounds. Now with no exercise I have to worry about my cholesterol and believe me heart disease runs rampant in my family. If your foot is getting that bad I would definately go back to your dr. and tell him. Because if you do have nerve damage you need to get it detected and your sugar down to stop it before it gets even worse. This pain we are in is AWFUL…every day I wake up and think Here we go again. I don't know what diabetic ketoacidosis is…haven't read about that one yet but I'm sure it's terrible if it has anything to do with diabetes. …My cholesterol was bad for YEARS… Since I was 40…had a hard time getting it down…even with med's and exercise 'cause it's genetic, but I finally did with all the walking I was doing…when it was first checked it was over 350 and my triglicerides were over 1,500…yes that high…the lab re-checked it 'cause they thought they made a mistake but the numbers were right. I know diabetes and cholesterl go hand in hand and this is something I wonder about too. My doctor always checked me for cholesterol for years…not sugar until I asked her for a thorough blood test and it was diagnosed. Why didn't she checke it at least once or twice a year. I am so sick of doctors and pain. Just sitting here typing is burning the tips of my fingertips. What now? Spreading to my fingers? This is moving fast whatever it is. Please let me know how you make out Anne. Maybe they can find something to help you with your pain if it is nerve damage. …Glad u found me, Sharon :)

annesmith 2011-11-09 22:34:14 -0600 Report

Thank GOD I found someone I can relate to. I am 41 years old, and a brittle diabetic…I had years of untreated childhood diabetes. My LEFT FOOT is SHOT—-I mean, I am actively continuing to treat it myself, but, it was diagnosed originally with an ulcer inside of one of the veins 6 years ago, and an infection——ANTIBIOTICS are the ONLY thing that clear mine up—-it may be different for you, but, I was given a strong anti-inflamatory by a really really good doctor about a month ago, and after taking it, I discovered not only was that one foot in bad shape, but I obviously had inflammation throughout other areas of my body…that's scary. I have early heart disease…have had one light heart attack at age 35…ever since then I cut back on caffiene and I added running to my workout. My left foot however, now that I am out of the anti-inflammatory drug, is right back to where it was…I am in so much pain with it , that I have to LEAN up against the wall at my 2nd job—-I work 2 jobs. I can't believe this pain. This week for sure I will go back to the doctor—-this is serious—-this foot has been bad since I was 2 years old…not good. The last thing I want is amputation…so, I am going to bend over backwards now to get this foot fixed, no matter what it takes. I suspect nerve damage…the last doctor said it was definitely my diabetes—-I was almost admitted for diabetic ketoacidosis 3-4 times in the last 5 years. What is BEYOND frustrating for me is, everytime I need a correct diagnosis, regular doctors don't even want to TOUCH me—-then, eventually , I land in the emergency room, and they ALWAYS find everything…good GOD. I am tired …PLEASE write me back…sincerely, ANNE

sharonb55 2011-10-27 22:00:21 -0500 Report

Also there goes my good cholesterol reading all shot to hell now with no exercise after all that hard work to get it down.

Mickey/CCHT 2011-10-20 22:20:01 -0500 Report

Sounds like it could be neuropathy. Do you have a health dept? Alot of times they will help on a sliding pay scale. No money and you don't have to pay. Also the Red Cross helps out alot. They helped my mom with testing supplies and insulin. I hope this helps. Good luck and God Bless.

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