Six months later...

Amber Farber
By Amber Farber Latest Reply 2011-10-15 10:26:24 -0500
Started 2011-10-14 23:13:49 -0500

Well its been six months since my last post and I have relocated myself back to california because i have been so utterly ill. My life has taken a total turn and i am now going through a series of testing..When i was diagnosed with a viral infection six months ago I thought that this would all stop and i would go back to normal..WRONG..well it didn't stop it got worse. I changed my eating habits again and my life and still nothing changed. I have had a series of test done CtScans ,xrays,Gastric Emptying study,Upper GI with a small bowel follow through..both containing large amounts of Radiation medications..UGH..anyhow,I am still experiencing extreme amounts of diareha and vommiting and since I moved from illinois in june i have lost 60+ pounds.
I Cant leave my home to go out and eat or do extreme activities without starting to feel weak. I have a new doctor who is trying her best to be ontop of it all and is at her last links ,so she is refearing me to a specialiest either at stanford medical center in palo alto california or to University of San Fransico in Sanfransico california.
I finally got some medical insurance so people (doctors)are actually listening to Doctor thinks that I may have a seveare case of Ulceritus colitus and some pancreas problems. We are talking about an inulin pump being put in soon because my blood sugars have not been stable in almost six months..I am now insulin dependent and have to take shots three times a day.Lucky me!! Anyways I am back and feel the need to have support from people that know what i am going through..thank you to those of you who respond to this post..

4 replies

Mickey/CCHT 2011-10-15 01:58:39 -0500 Report

My goodness! It sounds like youv'e been thru the ringer! I'm sorry to hear about the problems you have had, but it defintly sounds like you might start heading in the right direction. At least with getting answers. I've been sick recently and was off work for a month. They didn't know what was going on. That drove me nuts! Not knowing is almost as bad as being sick. I pray things keep moving in a positive direction for you. I have found this is really a good place to find the help and support we need. Shout out anytime! Keep the Faith!

jayabee52 2011-10-15 01:29:40 -0500 Report

Howdy Amber
Sounds like you're been really through the mill. That is a REALLY tough way to lose weight.

I had lived in the SF East bay community of Hayward between Mar 2009 and Dec 2010, I had moved there to marry my bride "Jem". Since we both had a lot of "medical challenges" we got to know some of the places you mentioned. Jem was a member of Kaiser, and I became one also. I really liked the way we were treated by the medical staff there. Jem remarked a few days prior to her passing that her heart (transplant) clinic in Santa Clara has been serving her well for 20 years. Unfortunately her medical condition became very "brittle" and she passed peacefully at home in her sleep.

She was talking to a friend on the phone and she drifted off to sleep. We had been out to her Rhumetologist that day for a cortisone shot to combat her Lupis or her RA (symptoms very similar) She had exerted herself during the day and I was not surprised that she was tired or fell asleep peacefully. But to my surprise and dismay I couldn't wake her in the morning, as she wasn't breathing.

I have a lot of good memories of those months in the East Bay with Jem.

I was impressed with the level of medical care in that area. I am acquainted with medical care because I was a Certified Nurse aide here in Las Vegas for 10 years.

I pray Amber that they get your medical challenges sorted out and at least stabilized or corrected.

Blessings to you and yours!


Mickey/CCHT 2011-10-15 01:59:50 -0500 Report

Sorry to hear you lost your wife. I pray you are doing ok. Was it recently?

jayabee52 2011-10-15 10:26:24 -0500 Report

Thank you Mickey.

She passed July 23 2010. My current proile pic was from July 24 2011 where I buried her ashes in a family plot where I will join her when it is my time to go to heaven. I am doing well emotionally, I still miss her because even though she was only in my life for nearly 3 years and we were together nearly 24/7 for about 15 months I knew this day would come sooner or later because she had SO many potentially deadly medical conditions.

I was hoping it would be later, unfortunately it was sooner than I would have liked. But I have many good memories of her and the good times we had, and even some of the not so good times are precious to me now.

Next Discussion: Pre-Diabetic..Really? »