With all the information floating around here....

By RedmanChronic Latest Reply 2011-10-20 17:56:23 -0500
Started 2011-10-10 17:36:59 -0500

How can one be sure if any of the entries are made by 'know it alls' who just want to get involved in these discussions?? I have a lot of questions. I am in a peculiar situation that includes the VA, Medicare and my health insurance policies and find myself quite confused about the treatments I receive or have received. My medications for diabetes have varied since I was first diagnosed (1997) and I met with situation that caused my kidneys to fail. I was told that the cause was from being over medicated for my diabetes. The VA had me using Metformin and Glipizide until January 2010. About that time, I was told I needed to start injecting insulin which was also provided by the VA. After a month, while in the hospital hospital for kidney failure, I was told that I should never have been given Metformin, glipizide AND insulin at the same time. The VA then informed me to stop the glipizide and continue with the Metformin and insulin. Later I was informed by my commercial physician that I should also not be taking Simvastatin and Gemfibrozil for my cholesterol. Again, when called on it, the VA said …thats right…we will put you on crestor instead. Since the VA sends claims out to my health insurance for the medications they provide to me, should these concerns have surfaced when paying those claims?? I feel I am at the mercy of my medical situation and the costs of treatment. What I need to know is, does anyone screen what is being said in these discussions to ensure accuracy?

4 replies

GabbyPA 2011-10-10 18:54:57 -0500 Report

The discussions are just that...discussions about our experiences and our thoughts, even our feelings. They are meant to provide the support you may need. We are not doctors and nurses. We are people with diabetes and we share what we are going through every day.

If you need "expert" advice you can use our "living with diabetes" and "health center" tabs on the left of your screen. Those are more in the range of "expert".

Unfortunately, diabetes is a very complicated disease and the treatment for one patient is by no means the treatment for every patient. The best way to watch out for yourself is to research what they are giving you and to listen very carefully to your body. It will tell you when things are not right if you listen and pay close attention. It cannot tell you everything, but it can tell you a lot.

My doctor insisted that I take a statin drug. I told him that my mom had a very bad reaction to them and I was worried. He said to try it. I did, and I listened to my body tell me to stop. I did. He tried a lower dose, and the same thing...so next time it is flat out no way. Sorry, but that drug is hurting me more than helping.

Being here helped me find my voice to speak up to my doctors. Helped me find sites where I can do research and get some answers. Or at least find more questions to ask my doctor.

No one has all the answers. Not even the doctors. My doctor learns from me now as I share with him all kinds of things I would never have known if I had not spent some time here with my friends who have encouraged me and helped me along the way.

Mickey/CCHT 2011-10-20 17:56:23 -0500 Report

Very well said. We are all here to support one another. I know i have taken things i have learned from here and other places and people and am using this infor to make a plan that works for me.

RedmanChronic 2011-10-10 22:05:47 -0500 Report

Well, Gabby; I thank you for your words and help. I am dealing a with a lot of frustration and having two or three medical professionals give conflicting treatment and medications, I have become very wary. I just found the forums on diabetic connect and plan to spend a lot of time here. I have several related stories that I want to share, maybe they can be help to others facing the same pitfalls as I have. My kids are all calling to see if I am all right…and I get different emotions from each of them when I am telling them I have a doctor's and/or a VA appointment. Sometimes they are scared, sometimes they are supportive and sometimes they remind me to ask the doctors about things I had recently complained about. A little support can come from anywhere.

akamonie 2011-10-10 18:14:12 -0500 Report

We all have diabetes and our own problems, I can see you have had alot of problems and im very sorry about that. You came to this website for help and answers and support I imagine now your not sure of the information you are getting , well we aren't doctors and don't claim to be experts, we are trying to help each other and give support. We can be there for you but you have to give it a chance. If you still don't believe in the information maybe this isn't the place for you.

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