"My Diagnosis Story" Campaign

Jeanette Terry
By Jeanette Terry Latest Reply 2011-12-02 20:43:57 -0600
Started 2011-10-05 15:43:57 -0500

November is National Diabetes Awareness Month. This year Diabetic Connect would like your help in spreading awareness about this disease. What better way to help someone understand the disease than to tell your own diagnosis story?

We plan to raise awareness by sharing real life personal diagnosis stories contributed by you the members of Diabetic Connect. So many people don’t understand diabetes or how it can flip your world upside down. As someone that lives with it every day, you are the best advocates there are to help raise awareness about the importance of getting checked early and the dangers of complications if you don’t take control.

Share your story here! Who knows who you might be able to help by sharing your own experience.

You can also visit our awareness page for more ideas on how to raise awareness. visit : http://www.diabeticconnect.com/diabetes-aware...

62 replies

JillianP33 2011-11-29 12:10:05 -0600 Report

I was diagnosed with Type 1 diabetes in July 2010 at 21 years old, so I've had it for almost a year & a half. I was living without knowing I had it for about 4 months. I remember it was my 2nd semester as a junior in college and I was extremely stressed with finals and other problems. I wound up loosing 20 pounds. Everyone would ask how I lost so much weight & I would say I have no idea but I'm eating just as much as I normally do! I had a terrible diet, I hated vegetables and would constantly eat candy, cake and bread. Besides loosing all that weight, I was always thirsty (thankfully I would drink diet drinks or water for the most part) I was barely sleeping because I would be up all night using the bathroom and I was ALWAYS tired. I specifically remember walking to my job (about 10 blocks in NYC) and I did this all the time but I began getting tired half way and having to take a break or I would wind up taking the train.

I knew something was wrong, but had absolutely no idea that it was diabetes. I wound up getting blood work done & having to go straight to the hospital until my sugars were controlled. This was a very emotional time in my life, I didn't know how I would cope and it has taken a lot, but I have adjusted a lot and changed all of my eating habits. I go to The Naomi Berrie Diabetes Center at Columbia University and they have been so wonderful and helpful. They offer various classes here and also give you a diabetes educator/nutritionist, which is so helpful. I really love it there!

Although I have my days were I’m aggravated with having to live this lifestyle of worrying & needles & diets, I know things could be much worse and am focusing on keeping myself healthy.

huffer 2011-11-26 12:42:13 -0600 Report

My Doctor diagnose my type 2 Diabetes at age 52 with no family record of diabetes, I was stumped as to where it came from. I weighed 165 pounds and at 6ft. tall and well exercised there was no explanation.
After a few years I became aware that Vietnam veterans had a larger than normal diabetes type 2 diagnosis. I filed a claim with the government and was instantly refused. Two years later my claim was approved as the government then recognized Agent Orange exposure a cause for type 2.
After being care was transferred To a V.A. hospital I was given several type 2 medications, most of which only had an effect for about 60 days and then quit working. After running the gamut of oral medications they added Lantus and found this was no help. After several Doctors my case was given to a nurse practitioner who sent me to a regional V.A. endocrinologist.Upon sending 3 vials of blood to the Mayo Clinic, it was discovered that my pancreas was treating the oral meds as a virus. At that time I became an insulin dependent type2. I now have full control of my diabetes and am monitored weekly for insulin dosages.
It has been a long road for proper diagnosis and treatment but finally at 68 years of age I control Diabetes, it does not control me.

Caroltoo 2011-11-26 14:06:43 -0600 Report

Thanks for sharing this. It is so sad to realize that so many of our vets suffer lifelong issues as a result of their commitment to taking care of the rest of us and our safety. Thank you so much for the things you have sacrificed for us and our country.

ChrissyJustin 2011-11-25 11:15:35 -0600 Report

My long story:
My mom was considered "borderline" all her life and when she was pregnant with me, she couldn't even eat a cookie or her sugars would go to "high". As a kid, I was tested all the time for diabetes, and I ALWAYS failed 1 hour & 3 hour glucose tolerance tests,my randoms always showed up higher than normal, especially my fastings, but my A1C's were always under 7. Tried the "diabetic diet" and it did not affect my sugars. Doctors told my mom I was fine.

Fast forward a few years to age 19:
I was pregnant with my first child, and my doctor told me I had Gestational Diabetes because my fastings were high and I failed my 1 hour and then 3 hour glucose tolerance tests. I told the doctor no, I have always run higher than normal, he didn't care. Nor did endocrine. Doctor put on insulin, started at 3 units a night, maxed the pen out at 60 units at night before bed. My sugars just went higher! Insulin made me so sick the entire three months before I had my daughter, I could barely work. Daughter never moved during pregnancy. She was born healthy, full term at 7 lbs, 8 ozs. Sugars went back to my normal range after had child. (Fastings 130)

Fast forward two years to age 21:
I was pregnant with my second child, I researched my family on my moms side, we have diabetes everywhere on her side. Turns out that there was some research at the University of Minnesota that they had participated in. About Maturity onset of Hyperglycemia in young adults. I got a copy of the report and took it to a new doctor that I picked out. Gave him the info, he read it, I told him I have MODY2, he said probably, he's never heard of it in the 25 years hes been an obygn, and sent me to GENETICS. Not endocrine. Confirmed through Genetic testing that my genes mutated, and that I have Mody2. There are many different types. It stands for Maturity Onset Of Diabetes in the Young. Son was smaller during all of ultrasounds(23 of them during pregnancy) until I went on insulin the last 5 weeks. I only took 5 units of insulin a night, any more or any less and my sugars would go back to being as high as they were without insulin.(Weird huh?)He then gained weight like a Gopher! He was born Healthy, full term at 8 lbs, 5 ozs. Sugars went back to my normal range after I had child.

Next I was pregnant with my third at 22:
Doctor from second pregnancy let me take control of this pregnancy. We did not do Insulin until 3 weeks before I had my daughter( I only did it because my sugars went from 130's in the morning to 160's) Daughter was healthy, full term at 6 lbs, 14 ozs.

When Pregnant, I only did insulin the last trimester. I do not use any insulin at all now or pills or any medication. My doctor has now figured out and diagnosed some of his patients who dont fit the "gestational, type 1, type 1.5, or type 2 diagnose with Mody and he has been able to treat them correctly now.

I have now unfortunately passed it on to all three of my children. Even though each child should only have a 50% chance of getting theh mutation.

There are lots of people out there who are actually Mody patients but their doctors don't know what it is, so its not caught unless the patient figures it out. But hear this, If normal treatments don't work, and your body doesn't make "sense" then consider it. It doesn't even necessarialy have to run in the family, All that causes it is a genetic mutation!!! And some mimic type 1, 1.5, and 2 very well.

Caroltoo 2011-11-24 23:20:54 -0600 Report

I was diagnosed with T2 in 2003 while on a business trip in Canada. My BG was 396 at the time I was diagnosed. I was suffering (really) with two grossly infected toes which had caused me no end of pain while there (think closed toed shoes and stockings in the Canadian winter). That all equaled lots of stress, so may have triggered a higher than usual reading.

Whatever, I came back to Hawaii from Canada and saw my doctor who said, no worries, then called me two days later to say he had consulted with a endo who wanted me on 4 shots of insulin/day. I declined, but agreed to an appointment with a diabetic educator.

Meanwhile, I bought Dr. Whittaker's book, Reversing Diabetes, and embarked on major lifestyle change: exercise, careful monitoring of my food consumption and portion size, addition of supportive nutritional supplements, and major effort to reduce my stress level.

I saw the D.E. about 2 months after diagnosis (I had put it off to see how much I could lower my readings on my own and had gotten into the pre-diabetic range). The D.E. told me the doctor had asked her to teach me how to give myself injections (she showed me how to inject on an orange—:)), then said she wanted to discuss my diet because she thought she could suggest to the doctor that I not use insulin since my BG was so much lower than it had been. I shared what I was currently doing (exercise and dietary changes and supplementation greatly influenced by nutritional information in Dr. Whittaker's book). She was impressed. I did agree to take on oral medication for a while, until I was able to maintain reasonable levels on my own without feeling too deprived of the food I love to eat.

I am now gluten-free and managing my BG levels with a combination of careful food choices, reduced portions, and regular exercise. I walk 3 miles a day, I do some strength training, I bicycle and swim; I eat organic foods and cook from only whole foods (not packaged or processed); I make reducing my stress a daily focus (exercise, read, swim, play with my cat, enjoy nature, get massages, sit on the beach, etc.). I've lost 60 pounds. Survived a "mild" heart attack in 2005 and now have 3 cardiac stents opening 5 places in my arteries. Subsequent check-ups have shown me to be in excellent health. I am on NO medications, feel great, am upbeat and always looking for the next good thing to happen to me, and am in better health than I was 10 years ago.

I don't like being diabetic, but I see the dx as a turning point in my life and I am thankful for the changes that have followed. The things I should have been doing for myself, are now the things I am doing for myself. My biggest stressor, at the moment, is that my husband is 10 years into Alzheimer's and I am his only caregiver. Tis challenging, but we are doing ok with it. I do get out to walk, run, swim, etc. I have friends here in my town and townhouse complex that are supportive of us. He does not wander because he physically cannot, so that simplifies the care giving. I try to maintain my sense of humor and see the light side instead of focusing on the impending losses.

I am also very glad to have discovered diabetic connect because it and my Doctor are my only support system of people who understand the disease. I am cherishing the friends that I have made here.

Thank you for being here.

medic673b 2011-11-18 00:25:38 -0600 Report

let me correct myself i see at least 6 of my friends here i am sorry i did not mention you all by name. Also i just wanted to say how i feel at home here like i have a safe place i can come too

medic673b 2011-11-18 00:00:24 -0600 Report

I was 1 week shy of my 44th Birthday. I had went to my mothers to visit, i had been there about 20 minutes when my cell phone rang. As soon as i heard my Dr. voice on the phone, she said I am sorry but you have Diabetes you need to go to the pharmacy i have phoned several things for you and i need to see you in the morning. She knew that as a Paramedic and ER specialist that it ould hit me really hard. I am not ashamed to admit we shared a few tears together than she said i will be here for you and you will make it through this. After reading some of he other post here, i dont really remember having any signs leading up to my diagnoses and i was working on the ambulance as a paramedic you would think i would hav picked up on something. maybe i was just a lousy paramedic.I am also grateful i found this sight people have let me get things off my chest when i felt i needed to and as far as i know none of them bear me any ill will. i have learned alot like if your going to vent try and be respectful and do it in an non beligerent way i hope i have a long stay on here although i am finding it hard to make friends here although i see 2 off the here "Gabby" who has been my greatest supporter and "jayabee52" who also has been a good friend on here than you both

misseymoo_2 2011-11-17 02:34:44 -0600 Report

As a 13 year old in 7th grade I had never even heard of Type 1 Diabetes before April 2001! I remember going on a school trip to a broadway show and missing most of the show (and watching the rest from a chair by the doorway) because I had to run to the restroom and to drink a gallon of water every 5-10 minutes…Every day at school I would get a mind numbing headache within 15 minutes of lunch and get such bad dizzy spells that I could barely make my way back to my classes, and of course embarrasingly enough I would ask my teacher permission to go to the restroom and get a drink the second i got back from doing that very thing, as suspicious as my teacher was she still allowed me to leave (and I still think she's one of the best teacher's in the world for that!!) My mom noticed that something was very wrong when she could hear me walking back and forth from the bathroom all night for a week so she started to call me at school everyday at lunch, and when I started speaking to her my speech was very slurred and I had a hard time concentrating on anything she was saying and finding the right words to say back, she told me to go to the nurse immediately and tell her to check my blood sugar, the nurse didnt have a meter but there was a small medical center across the street from the school so i was sent over there. The first test they did read as an error because it was so high the next read as HI then finally they got a number near 600 they told me to go lay down in one of the rooms until they could get my parents there, I was so confused and freaked out that I sat on the couch and cried and cried. It took a while to be admitted into the hospital but once I was there I was poked and prodded until I wanted to scream, I was told my ketones were very near a lethal point and it was a good thing I came in when I did (although in my childish brain I didnt think so because A: it was the weekend of easter and I KNEW I was not going to get candy that year, and B: it was a weekend!) There was another girl my age who had been admitted for the same reason so they put us in the same room together which was very cool because my parents had to go home (about an hour away) to take care of their younger kids, so I had an immediate friend that knew just what I was going thru. I wasnt allowed to leave the hospital until I knew how to do my shots myself. I wish I could control my disease and not let it control me, and I think I will make that my new years resolution that by this time next year I will have obtained 1 year of complete control!!

koryhanson 2011-11-15 22:24:22 -0600 Report

I was diagnosed with type 1 juvenile diabetes on June 3 of 2005. I was just a freshman in high school just about to take my finals and finish before summer. For two weeks I was drinking a lot of fluids and I didnt know why. The bathroom also became my best friend during those two weeks lol. My mom who is an RN asked me one day to smell my breath I laughed inside thinking how strange. Later did I find out that when your Blood Glucose Levels are high your breath has a fruity smell to it. After having these symptoms for about two weeks my mom took me to the doctor where my blood glucose was tested along with my ketones. My blood glucose was so high their meter couldnt even read it. It just said HIGH. My ketones were also high. I was then sent by my doctor to the ER where I was "officially" diagnosed with Type 1 Juvenile diabetes. I spent a total of 4 days in ICU trying to get my glucose levels under control and to get my body hydrated again. When i was diagnosed i was told my A1C was 12.9%. After 4 days i made good progress: I started giving myself my own injections after two days and learned how to test my glucose levels. It was hard getting diabetes so young but I guess I can use the phrase "When life gives you lemons make lemonade" lol. I had such a great handle on my diabetes that I was able to get a OneTouch Ultra "Ping" insulin pump which made life a whole lot easier. So no matter how hard it can be sometimes to live with diabetes you just got to remember its your life make it the best you can no matter what kind of health issues or other issues may have and enjoy it fully.

t2peakbagger 2011-11-14 14:45:54 -0600 Report

I was diagnosed with type 2 diabetes three years ago in my mid 40s. Although I knew there was a history of the disease in my family, I was surprised at the diagnosis. I considered myself relatively fit and thought I was eating a pretty good diet. Looking back, though, I can now see some of the warning signs. My BMI was slightly above 25, I enjoyed my share of pizza, beer, and rich desserts, my job involved sitting in front of a computer for hours on end, and beyond some hiking in the summer, I wasn't really engaged in regular exercise. I was also very tired, especially after lunch, often irritable, and frequently felt like I was walking on pins and needles, especially upon waking.

Though the initial diagnosis was pretty depressing, after several years of battling the disease, I have decided that type 2 diabetes is in some ways a gift. It has made me become more active, shed some pounds, and lean toward a mostly vegetarian diet, which combined with my Metformin, can bring my blood sugar below 100. My energy, mood and concentration are up, and I am now looking for ways to help others find meaning in the disease and use it as a catalyst for living a healthier life.

Fighting diabetes is not always easy, but if you look at it as a much needed lifestyle change, adhere to a good diet and exercise regularly, you too may end up being able to view it a life-changing gift.

Young1s 2011-11-08 12:13:53 -0600 Report

I was diagnosed with Pancreatitis close to the beginning of this year, due to many years of drinking heavily. After checking my levels, it was suggested by my doc that I purchase a home meter and keep track of them 2-3 times a day, as well as, stop drinking of course. She wanted to see if my readings would change after some healing time and they did. I followed her advise for a couple of months and then backslid on everything. I started, drinking again, I stopped checking my blood because the readings never went above 140 and I even stopped seeing my doc regularly because I assumed all was fine again. Needless to say, I was more than wrong.

Somewhere around the beginning of August I started noticing that my appetite was insatiable, my vision was often blurry, my ankles were swelling, and my feet were in constant pain, even just after rising from a nights sleep. I knew deep down that something was wrong, but I guess I was in denial because I didn't decide to make an appointment with my doc until the middle of September. One week before my appointment, my body shut down on me. I was hospitalized with a severely inflamed pancreas, the pain was unbeleivable, and a serious deficiency in vitamins and minerals; I was sure I was on the verge of dying. The focus was mainly on getting my pancreas to rest and settle itself but they checked my blood often. The numbers were always in the high 300s to mid 400s, so the topic of possibly being diabetic did come up. But it still didn't feel real until I got out of the hospital and my doc agreed with their suspicions.

So I am now on insulin and Metformin, along with a host of other vitamins, and meet with my team, at least twice a week. It took a few weeds but I am happy to say that my numbers have come down considerably and it has been almost a month and a half since my last drink. But, I am now in a daily struggle with the urge to drink and the will to live. My continual prayer is that my will remains stronger. I am not a regular church goer but I do keep a running dialog with God. He has always worked in mysterious ways in my life, so why should now be any different. Unfortunately, it took being hospitalized and becoming diabetic to see that I was killing my own self from the inside out. I have a second chance on life and I don't plan to piss on it. May Gods grace be with us all.

BandonBob 2011-11-08 11:08:55 -0600 Report

22 years ago I was diagnosed with type 2 diabetes after a routine physical as I had showed no symptoms are had any problems. It was amazing because my A1c at diagnosis was 14! I also 2eighed 240 pounds and am only 5 foot 9. The docotor told me to lose 15 pounds and I felt so good once I changed my eating habits and started exercising I just kept it up until I got down to 155 pounds. Today when I got on the scales I was 156 so I have kept it off. I can never stree the importance of exercise enough. I really feel bad for those people who are unable for other health reasosn to exercise as their gaining control is much more difficult to accomplish. The bes thing about having diabetes is that losing my big stomach gave me my golf swing back and my golf game improved an average of 10 strokes per round.

SCLWKR 2011-11-25 11:44:25 -0600 Report

Great story! I agree that exercise has a huge impact on D. My motto: Move it or lose it" Remain as physically active as you are able and don't surrender to the sedentary lifestyle! After my initial diagnosis 9 years ago I lost weight and actually completed the Los Angeles Marathon at the age of 46.

BandonBob 2011-11-25 12:00:54 -0600 Report

That's great. I am always happy to hear of people who are successful and my heart goes out to those who have other health problems that prevent them from enjoing the benefits of exercise.

SWEETYPIE123 2011-11-08 10:30:20 -0600 Report

Last november i was diagnosed with type 2 diabetes not sure how long i had diabetes because the doctor's always brushed it off or they would tell me to change my diet , but i was officially diagnosed November 29th 2010, i didn't have any of the symptoms the only thing was i was over weight and this doctor gave me all kinds of test and she talked with me and got to know me and i think so many doctors don't develope relationships with their patients so that's why so many folks hold back on their problems and sit there and say nothing, but i am blessed to have a caring doctor and because of that i feel comfortable sharing my problems with her, so find a doctor that has compassion it makes it easier to share your concerns while you're on your journey to recovery, please support your local Diabetic organizations.

Caliafiosgram62 2011-11-07 18:36:28 -0600 Report

This may end up long and drawn out. I will try to simplify. 34 years ago when I was pregnant for my second child, they did a glucose tolerance test because my first had been very large (9 lb 3 oz) I was told that I was probably borderline diabetic. The baby weighed in at 8lb 11 oz. Everything went back to normal after he was born.

Then in 1996, when we were planning a wedding for our oldest, I went to the DR for a check up. I felt fine. No problems - just a yearly check up. The Dr called me the next day and said to come into his office. I was diabetic. He put me on pills and I went through all those that were available at the time. Nothing worked. So insulin was the only route left to take. (I reached this point after about 6 months.) Immediately I came under better control. Now, we know that I am not type two but LADA. That's why the pills didn't work. I've been on the pump since 2003. and I've used a CGM since last year. It has all helped.

Now I try to take it as it comes. I have to live with it and I really want to see me grandchildren grow up and at least graduate from high school. I have to keep going and all of the new tools out there will help me to that end.

BelleLorrae 2011-11-03 13:21:49 -0500 Report

I was just diagnosed with Diabetes Type 1B (1.5) in August. I had started slowly showing signs that something was wrong back in January, but the doctors ignored it saying it was nothing. I was overweight, working two full time jobs, eating a terrible diet because I had no time to cook, and did not know that I had PCOS(polycystic overian syndrom).

About the time June hit my body couldn't handle it anymore. I went from being pre-diabetic to diabetic. One day everything seemed fine and the next I was drinking 8 gallons (literally) and peeing about every 30 minutes to an hour, I was opposite as far as hunger though. Where normally I could polish off a large plate of food, and make a second round, I was hardly able to eat half a plate.

My boyfriend's niece, who is also diabetic, recognized the symptoms. We bought a monitor just to be sure and then ignored it for a couple weeks thinking it was broken because it kept saying it was over 600 and couldn't be read. The replacement said the same. After not eating an entire day because every time I did it came back up the meter finally gave us a 450.

Oh… the meter wasn't broken? Oops… I was hospitalized August 3rd. I have my good days and naughty days, I just have to adjust. At 20 years old I've managed to screw up pretty bad.

jayabee52 2011-11-04 13:17:36 -0500 Report

Well, Belle YOU DID NOT SCREW UP and give yourself 1.5. Something in your genetic make up Screwed you. Yes you might have handled your early days better, but for most of us who are Persons with diabetes (PWD) didn't handle our early days with the conditions better either.

Most of us PWDs didn't know HOW to take proper care of ourselves. That only came for me with a lot of experience. I thought I was eating healthy after I was first Dx'd when I stopped eating donuts and ate rice cakes instead. I didn't understand about carbs, and I had to be corrected. I learned things peacemeal, even though I had the advantage of a diabetes instruction class. But there was so much information being thrown at me in 2 days it seemed like I was trying to take a drink from a firehose turned full on.

I learned some more things peacemeal but until I signed up for DC here I learned a lot. I am still learning a lot here after 3 years of being here.

I want you to see you did not screw yourself up. It is an often repeated misconception from newly Dx'd PWDs and sometimes Non Pwds will say it too.

Blessings to you and Yours, Belle


GabbyPA 2011-11-02 19:16:55 -0500 Report

Tingly toes and always running to the bathroom were the signs to me that something was up. Diabetes runs in the family and I was the only one in the family that didn't have it yet. So I knew the signs and unfortunately, I ignored them for a while. Eventually, I knew I had to find out what was going on.

Easter Sunday in 2008 I self tested and was shocked to see a 301 on the meter. Not surprised, but shocked. I always joke and say that was even before any chocolate bunnies. It was a jolt and here I had prepared a feast that was not fit for any diabetic. DANG....

Over the course of 9 months I submerged myself into this new lifestyle. A membership here on Diabetic Connect was a window to this new world, and I am so glad I found it. I am not insured and I could not find a doctor so I knew I had to do what I could for myself until I was able to find a clinic I could get into. I changed my eating habits and eliminated junk foods and stopped diet sodas after I learned about the perils of sugar free foods. What was I to do? I had to learn to eat smarter and eat more close to the way our bodies were made to eat.

Testing was a fascination for me. I tested constantly to find out how foods affected my levels. It was frustrating sometimes, but at the same time a tool that I really learned to use to my advantage.

The results of my diagnosis were a paradox. Here I was fighting a new disease that was threatening me all the while I was gaining more health and more confidence. I lost a lot of weight and have kept it off. I eat much better, though I do have my moments. I exercise more now and have learned so much about how incredible my body really is.

So that Easter was a bitter sweet day. It is what it is, but it has made me stronger and for that, I am grateful.

stingersbaby1203 2011-11-01 15:25:03 -0500 Report

My son, who is now 14, was diagnosed with Type 1 Diabetes in July 2010, just a couple of months before his 13th birthday. I started noticing warning signs such as excessive thirst, excessive urination, and wetting the bed. I knew those were key signs to being diabetic, so I made an appointment with his pediatrician to be tested just to be on the safe side. It's a really good thing that I did, because when he went in for a Fasting Blood Glucose test, his sugar was almost 400, and when they did the urine test, he had high amounts of ketones in his urine. He sent him immediately to the Children's hospital where we learned how to manage it, learned how to count carbs, etc. My son has had to completely change his lifestyle because of this, and I think that sucks for any teenager!

medic673b 2011-11-18 00:18:48 -0600 Report

i am so sorry no young person should hav to deal wit this. I have made friends with a 15 yo that goes to the school where my mother works and he just makes jokes about it and eats all the junk food and regular drinks

Mpwife99 2011-11-01 14:44:19 -0500 Report

I just found out I was Diabetic last month I am Type II, I'm 53 (oops had myself a year older than I am) and over weight. When I went into the ER my fingers were tingly on my right hand side I wasn't sure if I was having a stroke or what.. My Blood Sugar was 695 I was in shock after the Dr. told me it should only be between 80-120 and I was lucky I wasn't in a coma. Well they put me on Metformin and Januvia. Talk about overwelming, my husband is stationed in Korea right now and dealing with all this on my own has been just horrible I didn't know what end was up… As of today a little over a month from being diagnosed my Blood Sugar is now between 80-100 and I've lost 22 lbs and things are starting to look up. A friend of mine told me about this website and I am so glad I joined…

policeofficer 2011-11-08 07:15:38 -0600 Report

I can relate to your story. I went thru about the same. I was in the AIR FORCE and know what it's like to be overseas. I know you will do great. I pray for you. Officer Mitchell

jayabee52 2011-11-01 14:58:58 -0500 Report

Howdy MP wife, WELCOME to DC, I'm glad you joined too.

That is quite a frightening diagnosis account.

I am glad to hear that your numbers are going the right direction now, and that things are starting to look up.

I pray you'll find the support and the information you need to help you manage the behavior of this beastly disease,

Should you need help please don't hesitate to ask. Here the ONLY foolish question is an HONEST question which is NOT ASKED.

Blessings to you and yours


PS a friend request is coming. please accept it.

Mpwife99 2011-11-01 15:47:22 -0500 Report

Thanks James… If I could find where the friends request thing was I would accept.

jayabee52 2011-11-17 23:56:33 -0600 Report

it shows up as an email posting on DC mail (red oval with a number on it) click that and then in the header there will be a red number under friend requests. click that and a page will show up with a link button to accept or a link to deny the request.

I just checked SweetyPie, and for some reason I hadn't requested your friendship, but I have done so now.

troublemaker27 2011-10-25 10:51:00 -0500 Report

well it all started in december 2008 just before christmas as my doctor was checking me she noticed that my blood was acting funny she told me i had type two diabetes i was shocked.
so i was upset that i freaked out.
but my friend werner said just be calm and cool tori it will be allright.
before i got some help for my diabetes i was up the meter way high on my blood sugar.
but thank god i got help from friends and family.
and i thank everyone else on this site.
now these days i take good care of myself.
and i thank you and god too.

Pearly Gates
Pearly Gates 2011-10-24 15:48:09 -0500 Report

I injurred my back which made me inactive. At one time I did hard manual labor, lifted rather heavy weights, always acive, but afte the injury, I got little exercise, put on weight,developed hypothroidism, then high blood pressure and later Type II Diabetes. I believe that my back injury started the whole process. Now I have bought flippersgoggles, and ear protection with the intention of swimming to strengenthen my back, loose weight, and help control my blood sugar, Also I h ave ordered berberine to use with garlic, Alpha Lopic Acid, Chromium and a few other vitamins and minerals to control my Bld. Sug.

Caroltoo 2011-10-26 22:25:09 -0500 Report

Ohhhh…this has a familiar ring to it. Mine was an auto accident that broke L5 in two places. Thank God I was not paralyzed, but had years of pain before I got to where I could manage it. Yes, suddenly going from active to inactive does really change our metabolism, shape, function, etc… You are making some good choices. I've taken Alpha Lipoic Acid for about seven years now…but it depletes your bodies supply of Biotin, so do suppliment it also. Biotin is one of the vitamins that helps keep your hair growing among many other things it does. If you would like to chat more, feel free to email or friend me. Good luck. Carol (Caroltoo)

russellstamets 2011-10-24 15:10:59 -0500 Report

Who knew that this ugly little organ, the pancreas, hidden in and around and behind a bunch of other guts, was such a big deal? The more I learn, the more I realize this thing is pretty underrated. Heck, the heart always gets the limelight, but it’s just a pump. The pancreas is an entire multi-function chem lab!

I certainly had no clue of it’s importance in the spring of 2009, at age 49, when I lost 8 lbs in just a few weeks. My weight hadn’t varied more than a pound or so from 155 in many years. So I went to see my family practice doc, a really smart DO. After a couple of fasting blood sugar measurements in the 300’s and then an A1c test of 11.1 to confirm, he uttered the word “diabetes”. I said WTF? I’m a skinny guy — I don’t feel anything — I’ve never heard of it in my family… Then my education began. I learned you don’t have to be in puberty, or overweight, or old to get diabetes. I learned there’s a whole spectrum of “Types” in between “1” and “2”, including Late-onset Autoimmune Diabetes in Adults (LADA), which my doc told me he suspected I had in May, 2009.

My shock and depression was short-lived. I’ve always been a lucky guy, and the unknowns in the science allowed me to hope to that I could squeak by on oral medications and lifestyle changes. I was cautioned though. My DO said he believed the pills would only work for a while (probably months) before my blood sugar rose again. He also offered to send me to an endocrinologist. That conversation was critical. Through the questions I asked it became clear that he believed that any endocrinologist would put me on insulin immediately. But I knew how extremely passionately evidence-based he is and trusted his opinion that good evidence for any better outcomes for immediate insulin use wasn’t there. I admit, I liked that opinion! And his prognosis for me was right on. The pills brought my blood sugar down to “managed” levels by summer 2009. This honeymoon lasted longer than predicted, perhaps due to my significant, phase 1 lifestyle changes. I Dropped beer and rum in exchange for a couple of glasses of wine. I added 20 minute daily moderate activity. I began to eat regularly, including much more of the good stuff: fresh vegetables, nuts, fruit, fish, etc. But by late 2009, spikes were common, and a steady upward trend, as predicted, was underway. In late 2010, my A1c was back up to 8.8 and the only road appeared to lead to a shot in the stomach. It was time to get even more serious. I began phase 2.

I researched intensively and in January, 2011, added an acupuncturist and nutrition expert to my team. She immediately advised quitting all alcohol. I ditched the wine that day. We looked for supplements to control cell damage and to boost the immune system. I added meditation to the acupuncture. I boosted moderate activity. I tracked morning fasting blood sugar measurements and my food, activity and stress intake. This proved helpful. I found good evidence that I needed to cut caffeine and animal fat. As of October 2011, I’m in great shape. After gaining weight back to 158 in 2009, I’ve slowly settled to 148 on this lean diet. My current morning fasting blood sugars run very stable about 114, equal to an A1c of about 5.4, which is pretty amazing. There are side effects, albeit all good. I haven’t had as much as a cold since last year. My body seems rather happy with all this.

I may not know for sure for years if I’ve really reversed an “irreversible” autoimmune disease. But the fact is, no matter what happens, this diagnosis is probably the best thing that could’ve happened to me.

Ann Wambui
Ann Wambui 2011-10-26 08:54:04 -0500 Report

i have enjoyed reading your story, its really touching . Oh my God! thanks for sharing.

russellstamets 2011-10-26 14:43:34 -0500 Report

You're welcome Ann. I know I'm not the only one who can make this thing a source of motivation and use it to get to a better than place than before.

medic673b 2011-11-18 00:23:28 -0600 Report

it has motivated me to be more active and watch what i eat i have lost 30 pounds in 2 1/2 years and managed to keep it off also i recently was told that i no longer need to take BP medicine may not seem like a biggy but i have felt better these last 2 months

scottish girl
scottish girl 2011-10-24 02:04:48 -0500 Report

When I was 39-yrs old & pregnant w/ my one & only child, I went "carbohydrate intolerant" in my 3rd trimester & immediately placed on insulin. All of this happened very rapidly & was very overwhelming…even though I am a RN. I went from eating anything & everything I wanted (I was eating for 2), to eating a diet meant for a Little Bird!!! :-(( Labor & delivery was induced 2-weeks early for failure to thrive & high risk for fetal demise. I can report a healthy birth of a son, although his birth weight was low @ 5.5 #, but he was very long at 21-inches. I knew after my pregnancy that my risk was higher for developing Diabetes 2, yet I hoped for the best. Fast forward to 52-yrs old & diagnosed w/ Diabetes 2. I am pleased to report that with changes in my diet, activity level & oral medications (Metformin), my A1C's have been in the 6.6 to 6.8 range. For anyone who thinks Diabetes 2 only strikes the 'significantly over-weight', so very NOT TRUE!!! I weighed 150# (height 5 feet 5 inches) when I was diagnosed (yes a bit heavy), lost 20# with hopes of changing my Diabetic status…sadly, did not work for me and my Endocrinologist advised me that even if I went down to 120#, I would remain Diabetic. Researching back at least 3-generations (maternal & paternal) there is no history of Diabetes in my family. A mystery!!! So this is a way of life for me. Do I go off my diet? You betcha, as sometimes I just cannot resist, but I get right back on my diet. I have spent much time researching Diabetes 2, feel that I am very well informed & find your site very informative. About 6-years ago (age 54) I was also diagnosed with 'early onset Alzheimer's', so Diabetes is a 'cake-walk' for me.

azdutchman 2011-10-22 11:46:55 -0500 Report

I was 48 years old when I was diagnosed with Type II diabetes. I am 6' 2" and at the time, weighed in at about 250 lbs. (down from about 265 lbs.), I had a job that didn't require a lot of physical exertion but involved a lot of stress. I started feeling more tired and run-down by mid-day. I hadn't had a physical for a couple of years, so I thought perhaps I should have one. The doctor told me I was in good condition — except for one thing, I had Type II diabetes. I was totally unprepared for that. I was shown how to test my blood glucose and told to watch my diet and get more exercise. And lose weight. I followed their advice. I joined a health club and started working out every other day. I lost about 20 lbs. (doctor said that wasn't really enough but it was a good start). Over the next several years, I kept my blood sugar level under control with diet and exercise. Then I decided I was safe and kind of slipped off the diet and gained some of the weight back. Next thing I know I am taking pills (Metformin, Glyburide) to control my blood sugar. I lost the weight I had gained and then lost some more. I actually got down to 195 lbs. Things were going well and I quit watching my diet as closely as I should. Then, about a year ago, at age 72, I was put on Insulin. That has made me a bleliever in checking my blood several times a day, watching my diet a bit closer and getting my weight leveled out. I am at 205 lbs. now. So now I can take my Insulin and speculate about what might have been had I folllowed a stricter regimen from the start.

Cattwood 2011-10-23 12:28:27 -0500 Report

Hello! Your story is very similiar to mine, tho I was recently diagnosed (8-22-2011) with Type II…I didn't watch my diet either. When I married 32 yrs. ago I became a couch potato once I wasn't at work. Not bad until I hit 50, then I became VERY sedetary and all heck broke loose! My doctor sat me down for a 3 hr. talk about diabetes, gave me a glucose meter and showed me how to use it. Took me off Metformin and now I am on Kombigylze. But his words 'I don't want you to have a heart attack' scared me…I have lost 15 lbs. so far and I have made BIG changes in my diet. Exercise is hard for me at 311 lbs., but a friend and I will start mall-walking on Wednesday. She's a Type I diabetic, from childhood, and we both want to be healthier. Thanks for sharing your story!

azdutchman 2011-10-23 19:48:43 -0500 Report

Hang in there, it's well worth the effort. I wish you well.

Cattwood 2011-10-25 10:39:39 -0500 Report

Thank you! At my doctor's visit last thursday, I have lost 15 lbs.!! Start walking tomorrow at the local mall with a friend. Thanks for the encouragement!

terrilynnmerritts 2011-10-22 10:11:59 -0500 Report

It was Christmas Day 2003. There was diabetes on both my mom's and dad's sides of the family. I was 44. I had two giant kidney stones that day and was taken to the emergency room in severe, unbearable pain and with terrible nausea. I had to wait for a long time in the emergency room to even see the triage nurse and other patients were complaining that they were making me wait and taking turns holding a garbage can near my head so I could throw up. They finally saw me and the triage nurse was both hateful and uninterested. They did all sorts of tests, including taking blood and x-rays, to try to find out what was wrong. Finally I was told in a very disinterested way by another nurse that I had two kidney stones, a tumor in my adrenal gland, a level 1 heart block, a heart murmur, and oh, did I know I was a raging diabetic? I did not know. I had no insurance nor money and was fortunate that a kind emergency room doctor called a Jewish urologist who wound up doing three free surgeries on me to fix the stone problem and finding a clinic to care for the diabetes. Unfortunately, the clinic is staffed by people who just finished med school and I found that I had to buy books and magazines and learn all I could about my disease . I am now a walking diabetes expert after 8 years and I continue to learn more and keep up. I even help those who are newly diabetic or just discovered they have the disease. No wonder I had trouble healing from infections and lost some of my teeth in my 30's! No wonder I had numb toes. I am always ready to help newbies with info, encouragement, and comfort.

Heather44118 2011-10-21 18:43:09 -0500 Report

I had been pre-diabetic for 15 years. I monitor my blood sugar 1-2 times a month. Never really that concerned. I got my A1c done every 6 months. I ranged from 5.2 - 6.4. So we knew I was getting close. Since this is something I am aware of I saw my husband slowly changing. His mood, getting up at night… I checked his last glucose from blood work and it ws 93. So I thought ok not diabetes. I checked him 2 hours after a meal. I was in total shock when his numbers were 484. I called his doctor and they recomended an ER trip. There we found out his A1C level was 11. This was not expected. His doctor saw him two days later. This was at the end of Sept. He had broken his leg in Feb which required blood work for surgery. So we talked to his doctor and said that it had to be after that. He doctor pulled his records and found that his BG was 237 before surgery and had been flagged. Also all other lab work was also flagged as high. Made me mad that he should have been diagnosed earlier.
This made me get off my bottom. I was overdue for my A1C test. So I got mine done while he was at the dotors. 2 days later I got the news. I had gone from pre-diabetic to diabetic. My A1 was now 8.
It has been a change for the whole household. It is very expensive. As I am sure you all know.
My doctor told me about this site. It has been a great help. Thank you all for all the advice you give and for just being there. Heather

Uncle Lew
Uncle Lew 2011-10-20 20:57:12 -0500 Report

I was hospitalized in 1994 for congestive heart failure and was given the “good news” that I was diabetic. I was told that I would not need insulin but could control the disease with oral meds, diet and exercise. I am fortunate to have a sister-in-law who is an RN and a CDE. She gave me a highly personalized education in diabetes management. She also provided me with a meter and a MedicAlert bracelet.
As I became better educated concerning diabetes I realized that I had symptoms as far back as 10 years before my diagnosis. That was more frightening than the original diagnosis. I feared that complications had already set in (they had) and I was powerless to combat them . It was a depressing time for me. After a few months of feeling really down I decided to say ‘the hell with the past. I am going to live for today and for tomorrow’.
That’s what I’ve done ever since. It is a struggle at times but when I get a “well done” from my endocrinologist after my quarterly A1c test (my last 6 A1cs have been between 5.8% and 6.6%) I feel the work is worthwhile.
The worst scare I have had since my original diagnosis was November of 2011 when I was again hospitalized with congestive heart failure with pneumonia to boot. The doctors informed me that I would have to start using insulin instead of the oral meds because the oral meds were affecting my kidneys. I felt like I had lost the battle. Everyone I knew that went from oral meds to insulin would quickly develop serious complications. I believed it that I would soon develop complications or even die. Life became came instantly depressing. I did not want to use insulin and told the doctors so. It was at this juncture I met my current endocrinologist. She had a very long talk with me where I explained my fears. With a respect not often received from doctors she explained to me my situation in detail. The one thing I had forgotten in my depression is how well I was controlling my blood glucose levels. She comforted me with the fact that I was doing real well with the diabetes and that insulin would continue that control if not improve it. I relented and started to use the insulin (Novolog before meals and Lantus before bed).
She was so right. My control has improved and am on track for an A1c of 6% or less. It’s a hassle sometimes calculating carbs and the correct dosage of insulin to use. I currently use syringes but will be changing in November to FlexPens with BD nano-needles for my Novolog. They will definitely be more convenient to use especially when away from home and improve my numbers.
I keep a blood test reading log on an MicroSoft Excel spread sheet that includes day, date. time BG reading, estimated A1c and comments. It is a magnificent tool to track my BG readings. My current log stretched back to march 31, 2010 and includes almost 3,470 readings. It is a treasure trove of information on my diabetes. If my numbers are out of line, high or low, I can look back to the past to see what the possible causes of the problems are and what actions I can take. It also provides me with charts that track my progress and visually show my trends. My endocrinologist likes the sheets as she get a clear, concise view of the past three months and the charts, dating back to my first visit with her, shows her the progress I am making and where I am heading. It is a lot of work but it helps me and my doctor decide on a course of action based on facts and not conjecture. .

Type1Lou 2011-10-20 17:10:08 -0500 Report

I was 27 and working 10 to 12 hour days in an insurance office supervising a unit of 12 people. I had been separated from my 1st husband for about 5 months. I found myself having to empty my bladder increasingly often. At night, I would wake up every 10 minutes to go to the bathroom. I also went from weighing 120 pounds to 110 pounds in about 2 weeks. I scheduled an appointment with my doctor who gave me a glucose tolerance test (this was back in 1976) which consisted of drinking this icky GLUCOLA and then drawing blood at repeated intervals to test how high my BG rose. I wasn't surprised when he told me I had diabetes. I had seen my Dad treat his diabetes when I was growing up and Dad always had pamphlets noting the warning signs of diabetes…excessive thirst, frequent urination and unexplained weight loss. Dad had developed diabetes when he was in his mid-50's (I was 5 or 6 at the time). I was started on insulin soon after my diagnosis…back then, I used NPH, then moved to MDI of Lantus and NovoLog and finally started on an insulin pump on August 16, 2011. I'm convinced that the stress in my life at the time, my bad eating habits (e.g. pie or a candy bar for breakfast), and a genetic predisposition were probably all factors in my developing diabetes when I did. I'm not aware of anyone else in my family, other than my Dad, afflicted with diabetes. I don't feel that diabetes has drastically changed the course of my life although it has drastically affected what and how I now eat. I enjoyed success in my career, was active in several sports (downhill skiing and golf), am happily married again and am thoroughly enjoying my retired life. As a retiree, I'm busier now than when I was working. I'm focused now on achieving better BG control to avoid aggravating some of the complications that are beginning to appear.

ganz1960 2011-10-23 19:19:55 -0500 Report

My story is somewhat similar. I was diagnosed at age 28. Six months earlier, I started a new, high-stress job in advertising.

Soon I noticed that I was tired and asleep on the couch by 8 PM every night. And I was losing what little weight I had (I had always been thin). But I attributed all that to the new job: long hours, regularly missing lunch, not eating or sleeping well.

Then gradually I became increasingly thirsty. I plotted how to get fluid on my short commute between my home and work. I couldn't go 20 or 30 minutes without wanting something to drink. Of course, I drank lots of Coke to quench my thirst. Little did I know.

Then I bought new dress shoes for work. One started a little rubbing on the top of my foot. Nothing out of the ordinary…usually. But this rubbing soon escalated into an open wound as bacteria thrived on my high blood sugar. I was hobbling around, the top of my foot bleeding, and I was constantly at the water cooler at work. A coworker noticed all of this and said I ought to get myself checked.

My blood sugar was 680 when the doctor checked it. And now, nearly 24 years later, I'm fairly well controlled on an insulin pump. But I will always say that a high-stress job was a big contributing factor. Especially since no one else in my immediate or extended family has ever been diagnosed.

Type1Lou 2011-10-24 08:21:12 -0500 Report

My ex-mother in law used to chide me that I would develop diabetes because of my poor eating habits…sadly, her prediction came true…but I think I would have developed it sooner or later…maybe later with better eating habits and less stress…but who knows? It is what it is.

Charles1944 2011-10-20 16:53:22 -0500 Report

I just went to see my doctor on a regular checkup. After my blood tests came back, he told me I have diabetes type 2. Taking Metformin, chck my sugar 3 times a day, and following a strict diet. This all happened around a year or so ago. Trying to add additional exercises to my walking rountine I do on a daily basis. Basically this is how I found out I had diabetes and does run in my family.

SFDiane 2011-10-17 08:43:05 -0500 Report

I went on my first trip to London in 2001. Despite being on vacation, I woke each day fatigued and had to force myself to take walks, which I have always enjoyed doing. When I returned home, I had to face the reality that my ongoing feeling of everything requiring effort was not normal. I had blamed many of these feelings on an 80-hour work week (although I loved the job), a 100-mile daily commute and chronic sleep deprivation. So I went to my internist and had a blood panel done with results being normal except for my anemia and a shockingly high (400 something) blood glucose level. Thus began a journey I am still on. I spent the first month buying diabetes books, taking glipizide and eating more salad than I can total. My next blood glucose level (a month later) was only marginally down. So, much discouragement and anger settled in for a siege. I've learned then that having rage at the disease is mostly counterproductive. Eating in defiance,for example, will only kick your butt more. As impossible as it sounds when you are newly diagnosed, the sooner you get through the torrent of emotions and find acceptance, the better off you will be in dealing with this disease. There are not any easy answers, but there is abundant hope. Bless you on your path.

TsalagiLenape 2011-10-17 06:49:55 -0500 Report

Here is my story: I knew that I ran the risk of Diabetes. Had tried for years to lose weight after having three children and excess weight gain. The highest was at 225 not pregnant. Well I finally figured out my own change of lifestyle for myself. This is where I lost 60 pounds. I actually kept it off. With sensible eating and working out six days a week. Then I had my bad rotted teeth removed, by the way was due to lack of calcium to my teeth. Well then I became sick. Longer than the normal sick days for myself. Walking around town I saw a free blood screening for diabetes and thought to have it checked out. I felt fine! No symptoms whatsoever. Well that was September 25, 2007. Now I am pro active on my diabetes like I am on my health. The last few years my life has been chaotic and the abuse with neglect from key persons was making this worse. Now tis not in my nature to sit cry and etc. That makes me want to smack myself up the head with a two by four. So now I am here and thus making my life better and learning more everyday! Yes I have my rough days i.e. Ignorant people. However tis my choice to take a negative and turn it into a positive! Lets see what we can do. How we can change the world for another. How we can be positive ROCK STARS! So lets ROCK this world and find our cure.

Bogy 2011-10-05 16:44:50 -0500 Report

My community name is Bogy aka P2putt.Looking back,I recall taking 3 mostly 4 sandwiches to high school lunch.After dinner, i would often have a few sandwiches around 7:30 -8:00.My family was not well off so many meals were high in carbs.I had no problem with this as I was quite atheletic and was a strappy 155lbs. Then I went to college, where studying increased and exercise decreased. I was in college 9 yrs. and the pounds just kept coming on. I noticed,during my last year ,when I finished eating my Tasty Cakes,Pies or a heavely loaded carb meals, I would go to sleep.Years passed and my weight would vary.In 1987,my family visited my sister,who made one of her "endless meals".Five hours later I was in the ER with a bs of over 600. My suspicion is that I may have deen diabetic prior to being dx.I was put on some meds.,Years later,much later I sit here with many complications as a result of non-compliance.I have mutiple neurapathies, protein leaking ino my urine and more.I was either in denial or just foolish to think that the effects of non-compliance would not catch up with me. I would think,"It's not hurting me now.I deal with it down the road. Well I'm down the road now .It has caught up with me and bit me hard in the behind.So here I am,69 yrs. old still struggling,hoping I have more years than I deserve. Pete

saber32 2011-10-17 02:56:41 -0500 Report

I got diagnosis in may of 2010 that i was a pre diabetic now .
I my docter told me about the diabetic connect web site and I am learning a lot from this site since i been told about it im still not use to getting my fingers prite still by im getting uset to that

Bogy 2011-10-18 06:48:48 -0500 Report

I'm learning a lot also. saber. Reading some of your replies,you seem to be managing your diabetes well. Best to you. PS keep in touch,Pete

medic673b 2011-11-18 00:28:34 -0600 Report

i feel like we are a family its to bad we had to meet under these circumstances but i am thankfu for you all

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