My baby has been recently diagnosed with Diabetes Type1

Amy Henry
By Amy Henry Latest Reply 2011-10-15 20:34:18 -0500
Started 2011-10-05 08:30:11 -0500

I am the mother of a beautiful seven year old little girl. She was diagnosed with Diabetes Type 1 on September 13th. This is a disorder that I knew nothing about until that day. She has always been infection prone but otherwise healthy. My son was born when I was 18 years old and she is 9 years behind him. I have been treated her as my second lease on life since her birth. We are still learning every day how to take care of her. It has been a very dramatic change in her lifestyle. I get the response that soon it will all seem routine and normal a lot. It appears that she is adjusting better than I am and I feel guilty for even having feelings of despair for her. I feel like this is all a nightmare or misdiagnosis. How long will it take for me to accept this and stop feeling like we could lose her at any moment?


5 replies

SylviaWhite
SylviaWhite 2011-10-15 20:34:18 -0500 Report

I know how you feel and it does get easier. It never goes back to normal but a "new normal.". I have 3 children, two of which were both diagnosed in 2006. My daughter was 6 and my son was 12. I had just finally adjusted with my son when my daughter was diagnosed ten months later. After 5 years, I still have "I hate diabetes" days but I've developed a routine. I learned to keep snacks that don't melt for lows in all car glove boxes, I had to get a bigger purse for carrying two meters and snacks. I keep emergency syringes in cars and purse plus extra infusion sets in all cars. So you will learn what you need and get a routine. The hardest thing is watching everything they eat to cover it with insulin. The best way with kids is let them eat what they want and cover the carbs with insulin. That way the food is less if a stress. And like someone else said, babysitters are a challenge and going to friends' home. Get as much education on your own and try and find some support that are familiar with diabetes. There are several other online communities like d-mom and Children with Diabetes. The kids seem to accept it sometimes better than the parents, maybe because we know the dangers and protect them from knowing too much. You will be in my prayers. I have a few blog posts about kids and diabetes at http://ParentingDiabetes.com
Hang in there, and it's ok to cry! I had lots of days with tears. You are grieving the loss of a childhood without diabetes so it will take some time.
Sylvia

rachaeltype1
rachaeltype1 2011-10-06 01:51:49 -0500 Report

The truth is, never. I am 20 years old and have had type 1 diabetes for 2 years. My parents and siblings are the number one support in my life through this. I would be crushed if they ever stopped caring to the point that I could go at anytime. For your daughter being as young as she is, she will need to be able to recognize her level symptoms and tell you when she feels them so you can help her correct it. She is still in your care and has quite a ways before adult hood, so she depends on you to act accordingly. I, myself still have days where I don't accept it, and fear for my life.. but then I wake up the next morning to a new day, and the next day, and the next day. before you know it, your daughter will be in highschool then college, then married with her own children.. diabetes will not control her. she will control her diabetes.

Jim Edwards
Jim Edwards 2011-10-05 12:28:04 -0500 Report

Hi, I will let some of the folks that have young children with Type 1 answer your questions. me, I just want to share some thoughts. I feel that you are in a good place here on DC. You know, that for the next 15 years or so, this will be your condition also. You can gain a lot of info and support from here and you know that you are not in this battle alone. In less than a year, this will be routine for both of you. Children do better adjusting than us older folks. You and your family are in my thoughts and prayers. Jim

Heather44118
Heather44118 2011-10-05 11:55:59 -0500 Report

Hi,
Diabetes does get easier to understand. And will become routine.
Liz said something really important. When your daughter is not in your care whoever is watching her needs to know what to do. I am diabetic ( 15 years of pre-diabeties, and just got my full blown diagnosis Friday). My sons best friend is type 1. When she comes over to play she had her "D bag". This is her take along bag. It contains a "sidekick meter $20 at walmart, glucose tabs, a bottle of water, and a couple of slimjim packs tht have the cheese with it. Also a list of medications with doses and times. All emergency numbers. Its like anything else with kids they take it in stride. It is scary and i understand the fear. My son has a condition where his ribcage is fused and does not flex. This took 2 years to diagnose and many trips to the ER. When he over exerts himself his lungs irritate and he coughs up blood. I never wanted him to do anything. Now it is routine. If he overexerts and this happens he calls me I talk to the adult his is with ( most know before he goes over) but places like church, camp.. where there are a lot of adults it is had to inform everyone.
I am a person who researches everything. If you do this too dont scare yourself. If you have any questions ask someone. There is good information onine and bad information. Good luck and it will get easier. sorry about any typos :)

lizmyers81
lizmyers81 2011-10-05 09:15:34 -0500 Report

I can totally understand how you feel, My 9 yr old daughter was just diagnosed early August, and we knew nothing about diabetes either. It was and still is all so scary to think about her sugar being too high or worse too low. It is a very dramatic change, we have learned that her numbers stay more normal when she eats at the same time everyday, having a routine everday can be your best friend. I too have found that my little one has taken it better than I have, she can even give herself an injection if I pull up the correct amount of insulin. But I am always worried because it is a constant watch on our part to make sure she tests regularly, to watch her carb intake, and count it correctly, to prepare food on time, and to instruct others about it when she's not in my care. I do know that it gets easier as time passes, but you will always worry about your little one, because this is a lifelong disease, and controlling it can be tricky. I too wish that I could wake up tomorrow and have her diabetes free. I pray every night that she is healed, I will do the same for you, and if you need someone to talk to, I'll be more than willing

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