Chronic Pancreatitis, Diabetes

By Kf6krc Latest Reply 2011-10-08 10:49:38 -0500
Started 2011-10-04 04:09:23 -0500

I have been diagnosed with chronic pancreatitis, with this I also have diabetes. In the beginning I went from about 250lbs to about 148lbs in less than a year. I had no energy and was sick all of the time. Just getting out of bed in the morning took everything I had.
My Doctor tested my A1c and it was so high that it would not register. So I started with pills and insulin to try to get this under control.
I was going to my doctor several times a month and each time I was down about 5lbs and she was getting worried over the weight loss and the fact my blood sugar was getting worse.
So she recommended that I go to a Gastro doctor and after several test it was determined that my pancreas does not work. I was to the point that I would not eat at all because it make me sick to eat and there was a lot of pain due to this condition.
After all the test and the diagnoses they were able to get me on some meds to help me digest food and get the nutrition from the food I ate.
Not to drag this out to long the end result is I have to take very expensive pills to be able to digest food, I take 2 different pills for diabetes, and 2 different insulins.
It was a rough year last year but I made it though it and as of today I got my A1C down to 8.1 and my weight is back to 187lbs.
I now have the energy to work and do other activities.
The only problem I have now is I get very tired of all the pills and shots I have to take daily. There are days that I just won't take them because of this. How do I get over this and stay on all the meds I have to take daily? How do you get over the depression of all this?
My life has gotten better but the fact I have to take all these meds every day gets to me.
Any advise would be nice!!!!!!!!

14 replies

pixsidust 2011-10-04 14:20:07 -0500 Report

Its hard to know what to say when your plate is so much more full than mine. Get plenty of sunlight as it helps the mood. Give yourself something for Joy each day. Set small goals and as you do them be proud.
Give something of yourself to others, even if its replying to discussions here. Talk to your doctors about the fatigue, maybe your meds can be adjusted.

You are brave and as you approach each day remember you are a survivor. You are loved and this day has no mountain you can not climb.
Its alright to rest and smell the daisies along the way. Perhaps plan for a well placed nap in the day. Accomplish in intervals and then rest. No one has to be go go go all the time. I think if you plan your day with rest periods, you might not feel so disappointed.

My great great Aunt Bertha told me at 87 "I like my life". "I can't do what I used to do but I do what I can". Do what you can. Its OK.

I will pray for you.

Kf6krc 2011-10-04 15:33:08 -0500 Report

I have talked with both doctors and the bottom line I need to stay on course and keep up with my meds, since I will need these the rest of my life, and that if anything they would have to increase them as I get older.

lacat87 2011-10-06 12:37:59 -0500 Report

Are you taking a pancreatic enzyme? I have to take those everyday at every meal and snacks for the rest of my life because I don't have a pancreas anymore. Think of them as saving your life or like taking a vitamin everyday.

Kf6krc 2011-10-06 15:42:17 -0500 Report

Every single day every meal and snack. I also had my prescription increased due to they stoped working, and I was told that this will happen from time to time.

lacat87 2011-10-06 15:57:37 -0500 Report

I'm sorry to learn your meds. increased. News to me that it stopped working and it would happen from time to time. What are you taking for enzymes? I'm taking Zenpep.

Kf6krc 2011-10-06 21:01:27 -0500 Report

I take Creon, can't afford Zenpep and my prescription plan won't cover it. My Gastro Doctor told me that this would happen and he was actually surprised that I have put on the weight that I did.

lacat87 2011-10-07 07:49:12 -0500 Report

I started with Creon but changed to Zenpep because they were causing problems. Can't recall what it was, but Zenpep took care of it. Wish I could put on weight. My surgeon told me earlier this year that there may be a new enzyme that would put on weight for me. Unfortunately, the medicine never made it past the trials from Europe so it didn't make it to USA at all. Hopefully that will change so that I can take the enzymes to put weight on me! So are you now worried about putting on too much weight?

Kf6krc 2011-10-07 11:13:55 -0500 Report

I was but as of my last doctor appt my weight has stayed the same now! She also said that I have Most likely maxed out now. I feel so much better and I have energy now, about my only complaint is the frequent pain I get and the constant bathroom trips!

lacat87 2011-10-08 10:49:38 -0500 Report

Yay about your weight! Good job. And happy that you're feeling so much better and have energy now too!! Good stuff. Keep up the good work,hon!

Dan360 2011-10-04 14:14:23 -0500 Report

I think the best way to avoid the burn-out from having to take all the different meds is to remain actively involved in your own diagnosis and prognosis. Doctors don't always take time to explain to their patients what is going on with them and how best to deal with it. They just prescribe and send you on your way. They don't bother to tell you that taking certain meds can cause some depletion of certain nutrients that you need to stay healthy. The only way you can stay up on all of this is to read and seek out answers on your own. The act of doing that helps to avoid the blues that comes with the feeling of victimhood.

robertoj 2011-10-04 04:51:51 -0500 Report

You have a lot on your plate and you are doing quite well. It is understandable that you would suffer from diabetes burnout. has an article on it.

Kf6krc 2011-10-04 05:10:18 -0500 Report

I think that is my problem, Burnout. Most of the time I am good with all of the shots and pill taking but there are day that I do not want anything to do with any of it.

lacat87 2011-10-06 12:39:23 -0500 Report

I have also had those feelings. It's tough, but what's the alternative for you? I just know that I have to take my meds and shots to live.

robertoj 2011-10-04 17:14:43 -0500 Report

I suffered from depression for a very long time and the techniques I use also help me avoid burnout. One of the things that helps me is to not take myself too serious. I think this is something we all deal with and you should find some techniques that work for you from the members in this community. Good luck and God bless.

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