Type 2 & Gluten Intolerant - anyone else????

lisosu
By lisosu Latest Reply 2012-07-30 23:36:11 -0500
Started 2011-09-30 19:54:44 -0500

I am both type 2 AND gluten intolerant, along w/a whole host of other food allergies. is there ANYONE else out there like me?!?!?!

I am having a HORRIBLE time getting my blood sugar under control & all I hear about is compliance. I am limited on what things I can eat, even when I went to a nutritionist, she was even overwhelmed by what I could & couldn't have. She agreed it was VERY difficult due to my allergies & my 6 yr old's allergies (I call him Monkey here).

Looking for any advice, help, someone to talk to who understands what I am going thru.

Lisa


40 replies

Mamanancy
Mamanancy 2012-07-27 14:59:27 -0500 Report

I'm a caregiver. My sister Leslie is currently a houseguest of a friend (and former student) who is now an RN, after her stroke in May earlier this year. She'd been uninsured, so her gluten intolerance and menapause were easy explanations for the symptoms of her diabetes and then high blood pressure, the likely culprits to her stroke. She is being weaned off insulin shots, and being moved to two oral medications to help her sugar levels.

Leslie is also lactose intolerant. She can't have peanuts, since eating way too much peanut butter in her impoverished years as a PhD student. She's not big on salad, unless it has a small soup bowl of dressing, thus eliminating the benefit of having a salad.

Our family has a history of addiction, and this process has brought to light the roots to our emotional eating, mostly carbs.

Leslie's food limitations are hard for me to wrap my head around. When Leslie is no longer her friend's, she'll be moving in with us. A friend of mine is vegan, which I doubt Leslie will want to, or even can stick to. However, the substitutions are helpful. Another friend has celiac disease, and has warned me off making gluten-free bread, as it is inconsistent, in her experience.

http://vegweb.com/ seems to be a good resource. Unfortunately, the only legumes Leslie likes are overcooked green beans and hummus. (Will my challenges cease?)

I'd like to go on a cleanse of some kind with her, since she went years with elevated blood sugar. Any suggestions for that?

I was wondering, after reading this thread, if anyone else knew whether what I've read (lord knows where) it's not uncommon for diabetics to also be gluten-intolerant or develop celiac disease is true.

DragonDreams
DragonDreams 2012-07-30 17:05:27 -0500 Report

Hi,

If the food can't be found in the produce or meat section, then don't buy it. That is the easiest way to cut out gluten. Some people can't have corn or oat gluten as well as the wheat, rye, and barley. (I am one of those.) I also am a type 2, lactose intolerant, and allergic to the metal used to make cans (so, no canned food for me).

As for a cleanse, just eliminating the problem foods will do more in the long (and short) run than any cleanse. (Most of which can be expensive, and some are unable to live up to their claims.)

Hummus or salsa on salad can help change things up, and prevent using too much salad dressing. You can also switch to vinaigrette. There is a very tasty raspberry one in with the refrigerated dressings, and the flavor is stronger than a standard dressing, so you don't have to use as much. What you put in a salad can also make a difference in the taste, like adding dried cranberries, or non-dairy cheese.

Helping her to look at what she CAN eat will help her not to focus on what she can't have anymore. This is especially important if she is the type to cheat on her new eating habits.

I hope this helps you!
Ashen

Mamanancy
Mamanancy 2012-07-30 17:16:38 -0500 Report

That really does. I have always tried to focus on what's on the outside aisles of the grocery store for the bulk of our food… why it hadn't occurred to me in this case, I have no idea. Frazzled much?

DragonDreams
DragonDreams 2012-07-30 17:24:02 -0500 Report

The corn is a recent removal (Mid-June). The other gluten stuff was removed in August of 2011. It can get interesting when at family functions, or when invited out to eat, but I am getting better at it. Eating gluten free has helped me keep my bs levels down more than anything else. I am more frazzled by being a single parent than by what I can and can't eat.

Caroltoo
Caroltoo 2011-12-15 01:41:12 -0600 Report

I have type 2 diabetes and am gluten intolerant. I also have allergic responses to food additives and other chemicals in our food and water.

I was having a hard time about 4 months ago with some unruly and unexplainable BG spikes. I realized I was having gall bladder stones when the pain started. I traced this back to gluten intolerance, and then learned the combination sometimes causes pancreatitis and at least situationally can reduce insulin production.

When I went on a gluten free diet, my digestion improved, the pancreas started working more efficiently, and my gall bladder began to recover. I did do some gallbladder specific dietary changes which reduced that inflammation within a week or so. When all this got calmed down again, by BGs dropped to the normal range which is a good thing because I haven't used any meds for the last 18 months.

Some things I have read in the last six months implicate gluten intolerance as one of many things in a precursor role to diabetis, pancreatitis, and hypo/hyper thyroidism. If even a fraction of that is true, the diet is where we have to put our focus to be able to get the rest of this under control.

jnblair
jnblair 2011-12-15 08:17:13 -0600 Report

Lately searching around they have a lotta glutten free products and its sounds real good its working for you.

Caroltoo
Caroltoo 2011-12-15 11:30:32 -0600 Report

Yes, there are many more on the market and some are good. I have dealt with it by cooking from organically raised vegetables and meat. I rarely use anything from a can, only occasionally something that I have not frozen. I'm just doing what my grandmother used to do and bypassing all the prepared foods.

tokkle
tokkle 2011-10-03 22:57:48 -0500 Report

It is hard, when I gave my food allergies to my nutritionist, she looked at me "like a deer in the headlights" she had no clue how to help me. Since I am allergic to most meats, dairy, artifical sweetners, and My husband has a very sever form of chrons my diet is frustrating. Sometimes I feel that I need to have them just put in a feeding tube so I can forget the hassle.Right now I have a severe sinius infection so I can't eat any meats, cause of Asthma I can't have salads, and all I had before was rice, but that will raise my bs. So I understand how frustrating it is. Since I have been newly dignosed I eat allot of chicken, and not much else. Well I think I have eaten so much chicken that I'm waiting to lay eggs or grow feathers.

roshy
roshy 2011-10-03 07:21:39 -0500 Report

type one and celiac!! foos is no longer my friend!! the only way to make sure your safe is only to eat what you know is safe. cooking your own food and preparing your own meals is a sure way you wont be affected by gluten! i have a question for others. is there a high chance in becoming lactose intolorant if you have celiac disease and diabetic?

DragonDreams
DragonDreams 2011-10-03 12:04:04 -0500 Report

I did an elimination diet, on my own, about 4 years ago. After two weeks without lactose I drank 2 sips of milk. Immediately I had nasty stomach cramps, and a need to visit the porcelain throne. My daughter got a stomach ache, and cramps in her legs. After telling the doc this info, she ruled it as being lactose intolerant. The testing that is out there is not always accurate. Your best bet is the elimination diet. Make sure to communicate with your doctor/nutritionist, because you might need vitamin supplements.

A couple of sites to check out about diabetes and lactose intolerance are: http://spectrum.diabetesjournals.org/content/... and http://www.mealplansite.com/lactoseintoleranc...

Here's some general lactose intolerant info: http://www.decodeme.com/lactose-intolerance

I am a type 2, and lactose intolerant. Currently I had the doctor run the celiac panel. I haven't gotten the results yet, but have cut gluten from my diet (3 days and counting). I feel better, my bs levels are in the range my doc wants to see, and the blisters I've had on my hands for the last 2 1/2 months are going away! On top of that I'm down 2 lbs in that 3 days, where before it took me 2 weeks to lose 2 lbs. I'm going to see where I am in 2 weeks. I don't think I will go back to eating gluten, but I may change my mind, or do a food test.

I hope those sites may give you some food for thought. (since that's 100% safe. lol)

roshy
roshy 2011-12-15 04:18:15 -0600 Report

Thanks a mill for the info!!! When is was dx celiac i was advised to take calcuim supplements, and ill be on these for the rest of my pleasant time on this earth!

The reason why im asking about the lactose intolarance is because lately my stomach isnt the best and because im so good with my celiac disease i cant put it down to that! (i make a much better celiac then a diabetic)

I guess i probly sgould ake an appointment with my diatitican!!

Thanks again for your advise! i really appriciate it!

dietcherry
dietcherry 2011-10-03 22:47:44 -0500 Report

My Endo said my bloodwork showed I had antibodies for gluten but said a biopsy administered by a Gastroenterologist is the only really definitive test for Celiac; have you had a biopsy?

roshy
roshy 2011-10-04 12:33:40 -0500 Report

i had an endoscope which came back positive!! its not a pleasant procedure but at least it enabled me to come to a conclusion!!

DragonDreams
DragonDreams 2011-10-04 00:11:30 -0500 Report

No, I haven't. The doc said the first step is the blood-work. After that, depending on the results, a biopsy and/or an elimination diet. There are celiacs out there who have had repeated negative lab results, but have eventually been diagnosed. Unfortunately, however, not until there has been irreparable harm done to their bodies. If I am gluten intolerant (but not celiac), the only effective way to diagnose is an elimination diet.

Here is an interesting story I found, about a woman that found out by drinking a beer! (http://glutenfreeeasily.com/dr-delise-dickard...) The comment from Heidi was of special interest to me.

Considering my family medical history, and my own medical problems, a diagnosis of gluten intolerant (or celiac) would make sense. Many of the symptoms associated with a gluten intolerance are rampant in my immediate family, and in myself.

http://gluten-intolerance-symptoms.com/ Is a great site to get a better idea about what the differences are between a gluten intolerance, celiac disease (sometimes called celiac sprue), and a wheat allergy.

Ether way I'm feeling a whole lot better without the gluten. I lost another pound (since yesterday), and haven't seen any new blisters today. The rash I've had for the last 2 1/2 months is barely visible. I'm gonna stay on the gluten free diet unless my doc wants to do a food reintroduction test.

dietcherry
dietcherry 2011-10-04 09:22:56 -0500 Report

Thanks so much for these links! I loved the beer story and have some of the same symptoms as she when I drink it-and I adore beer! I need to find the gluten-free stuff STAT! lol
Ive been slowly eliminating gluten from my diet but its easy to get tripped up!
Dont know if youre aware that we have a sister site, Celiac Connect, that can be accessed by the Visit Another Community menu in the upper-righthand corner of any page.
Again thank you for the links! :)

dietcherry
dietcherry 2011-10-04 20:54:36 -0500 Report

I will check these sites out soon and youve got me thinking about trying my hand at the beer kits!! What a sweetie you are!!!!!!!!!!!!!!

DragonDreams
DragonDreams 2011-10-04 22:04:48 -0500 Report

Well not exactly a doh moment. Just because it's sold at whole foods doesn't mean it's gluten free.
Yeah, I'm too sweet, that's why the doc said I have diabetes, and the mosquitoes LOVE me. lol
Have fun with the shopping!

dietcherry
dietcherry 2011-10-05 10:29:29 -0500 Report

I was mostly thinking out loud wondering where in my town to even look for gluten-free beer; Whole Foods never crossed my mind-thats my Doh! Thanks for the hug!

lisaloo2429
lisaloo2429 2011-10-05 12:40:44 -0500 Report

I am so glad I am not lactose intolerant as I love milk and now that I've discovered almond milk - OMGosh it's soooooo good. I need to find a nutritionist here in Lubbock.

DragonDreams
DragonDreams 2011-10-06 18:19:37 -0500 Report

I love almond milk too. It's not really milk. It doesn't have the lactose that I can't have. It's cow's milk I can't have.

dietcherry
dietcherry 2011-10-05 14:20:56 -0500 Report

Yea! Bless your heart you have so much to deal with! Im looking forward to trying the almond milk; I like soy but have heard too many conflicting warnings about it so I quit it. 1 of our members, Kirla, likes making his own almond milk!!

wooly283
wooly283 2011-10-06 20:42:09 -0500 Report

I love Quaker Oatmeal Squares, just watch the quantity, and Kashi has some high protien lower carb cereals. Good luck.

moon2
moon2 2011-10-01 12:19:06 -0500 Report

I'm type 2 and not gluten intolerant, though I had mostly given up wheat because of diabetes (along with most other high-carb foods). Am reading _Wheat Belly_ which talks about the re-engineering of wheat and how it's not the same food as 50 years ago. It had led me to going gluten-free which I'm in the process of doing and I feel so much better!

Judy(JP)
Judy(JP) 2011-10-01 10:56:43 -0500 Report

Hi there. I have Type 2 and Celiac Disease so I guess I am in the same boat (gluten intolerant) as you are. I started the gluten free diet last November and my Diabetes got better. I am off meds now and doing fine. I also have food and drug allergies along with this.. It's not fun, like orchestrating an event every day . I also saw a dietician after the Celiac diagnosis and my doctor attended with me and I think the dietician was more overwhelmed than I was about it. I also have hypoglycemia (low blood sugar) and I've had episodes of it since I was 6 yrs old. I now know that it is a sign of Celiac, which I've had all my life in a mild form and was just diagnosed officially in Nov 2010. I'm 54 yrs old so it's been a life time of being sick and being told 'go to school you're fine'.. There are many gluten free options out there and a whole foods diet is going to be your best bet. Packaged foods are poison to us because wheat starch is added everywhere. Rice Krispies and Corn Flakes that sound safe have Barley Malt in them. If you'd like to discuss further privately let me know.. :) Hang in there, there are many things you can eat you just have to find them.
Here is a great site where there are many people with the same allergies as you have… corn soy etc… Lots of help
http://www.celiac.com/gluten-free/index.php?

berrykins0
berrykins0 2011-10-01 19:38:51 -0500 Report

your right about celiac disease is gluten intolerants which is a automunne diesase that diabetics can gey easily

berrykins0
berrykins0 2011-10-01 19:37:12 -0500 Report

sorry to hear your gluten intolerant. i know this is autommune diease diabeties can get this very easily.your not alone on this one. i'm not gluten intorerant myself.

DragonDreams
DragonDreams 2011-09-30 20:55:54 -0500 Report

I am type 2, severely allergic to nickel (yes there are a lot of foods with nickle in them), and lactose intolerant. On top of that I just had the doc run the celiac test. I haven't gotten the results yet, but many of the gluten containing foods cause me stomach pain and a general feeling of yuck. I call my little girl monkey too. She's 8 and also lactose intolerant. I found a site where the person is both a type 2 and a celiac. http://www.diabetesmine.com/2008/05/suddenly-... Feel free to vent to me.

lisosu
lisosu 2011-10-01 00:04:14 -0500 Report

I have problems w/metals too… can only wear surgical stainless; silver; gold & titanium. I am allergic to: gluten; soy; poppy seeds; peas; pork; tomatoes; corn; almonds; Brazil nuts; hazelnuts; Macadamia nuts; walnuts; pecans; peanuts (but for some reason no one understands not peanut butter). Monkey is allergic to: gluten; caesin; soy; MSG/glutamate; nitrates/nitrites & ALL artificial dyes.

Monkey's specialist has him on coconut milk which I have learned to make from scratch & thankfully he LOVES. So MUCH cheaper!! We have difficulty having "regular" milk products on hand because he used to like it. He understands it makes him sick & as time goes on, he is getting better @ avoiding it. We are just @ 7 mos. since all this started for him.

I have been grinding our own grains as much as possible to reduce costs - make all our food from scratch - still can't find a good cracker or cookie recipe, we like.

My husband doesn't have ANY of these issues & doesn't understand the need to eliminate all contamination possibilities. Causes problems when he doesn't put them up & Monkey gives in to a craving. He symptoms are both GI AND behavioral!!

Thanks for the vent. Have no one to talk to…

DragonDreams
DragonDreams 2011-10-01 00:33:22 -0500 Report

Nickle allergies really stink. My daughter was a c-section, and I got blisters from the surgeon's tools (stainless steel contains nickle). The tool used to hold my belly open gave me nasty blisters that lasted for about 2 weeks. Now I'm afraid of having to get surgery. Who knows what will happen? As for recipes have you tried Gluten Free Easily? http://glutenfreeeasily.com/ Or Adventures of a gluten free mom? http://www.adventuresofaglutenfreemom.com/cat... Both have some tasty recipes.

lisosu
lisosu 2011-10-01 01:26:43 -0500 Report

No, I never found either of those. 1 I did find was http://www.artofglutenfreebaking.com/, she is great. The cakes are out of this world!! If you want chocolate she has several - I made 1 for my b-day for Monkey & me w/homemade fudge-y topping & unless I told people, NO ONE knew it was gluten free!

Cookies call for things like chocolate chips - which all but 1 I can find have soy, milk & the 1 I can find is almost $6/12-oz bag!! They also call for margarine/butter, some hard "oil" - palm shortening is great BUT expensive.

jayabee52
jayabee52 2011-10-02 17:38:33 -0500 Report

OH MY! I just spent 10 minutes browsing the entire catalogue.

DD, shame on you for putting that temptation out there for us!

Seriously, Thank you! I was not aware of those folks

DragonDreams
DragonDreams 2011-10-02 21:07:06 -0500 Report

lol. I love chocolate chip cookies! My daughter yelled at me the other day for smelling one. lol I had to tell her it was ok for me to smell one, I just couldn't eat it. She rescued me by eating it herself. I think she's enjoying this new diet for me. She gets to eat the food that I can't that's still in the house. She's been begging me to cook some of the foods that I used to enjoy, but can't eat now.

Sorry about tempting you. I am tempted every time I go grocery shopping now. Since I don't order stuff online, I didn't think about how hard it might be for someone else. Usually if I find something online that I want I talk to some of the local stores. Some of them will order stuff if they think it fits with the other products they sell, and if there is an interest.

Your welcome for the new info.