Invisibile Illness Week

By JDCA2025 Latest Reply 2011-09-22 18:48:58 -0500
Started 2011-09-21 14:51:44 -0500

Hey ya'll,

Anyone participate in Invisible Illness Week?

For those who don't know, it was a week trying to make people aware of "Invisible" Illnesses, chronic diseases that often go unnoticed by those who don't have them ( diabetes was only one of the disease highlighted). While it was last week ( making me a bit slow on the uptake) I was wondering if anyone else filled out the 30 question interview sheet? I thought they were pretty interesting.

I'll post mine below, and see if I can find the link to the blank questions later.

Interviewee: Nick

1. The illness I live with is:
Type 1 Diabetes
2. I was diagnosed with it in the year:
3. But I had symptoms since:
No clue.
4. The biggest adjustment I’ve had to make is: Worrying about my health at a very young age.
5. Most people assume: 
I used to be fat, or my mom fed me spoonfuls of honey with every meal.
6. The hardest part about mornings are:
 That it’s morning. Why can’t the rest of the world go to bed at 4am and wake up at noon everyday?
7. My favorite medical TV show is: I hate to be this guy, but I don’t really watch tv. Games? That’s another story…

8. A gadget I couldn’t live without is: My minimed pump. Literally.

9. The hardest part about nights are:
The realization that morning is coming. Barring that, peeing every hour, on the hour when your blood sugar is high before bed and you don’t want to overcorrect.
10. Each day I take FLINSTONES pills & vitamins.
11. Regarding alternative treatments I:
Have given them some thought, but quite frankly, the pump has given me such good control I have little reason to change habits.
12. If I had to choose between an invisible illness or visible I would choose:
Invisible. Quite frankly, if I had to get a chronic disease, diabetes was the one for me (I’m a control freak).
13. Regarding working and career: Just graduated college and started writing for the JDCA. Also freelance on the side, and just sold a new short story.
14. People would be surprised to know:
Hmm I don’t know. In life? I’m a good cook. In diabetes? That it’s not a struggle for me anymore.
15. The hardest thing to accept about my new reality has been:
Nothing as far as I can remember. It’s weird—I may have been diagnosed in 8th grade, but I don’t really remember a “before” diabetes anymore.
16. Something I never thought I could do with my illness that I did was:
 Hmmm I don’t really know?
17. The commercials about my illness:
 All star Wilford Brimley.
18. Something I really miss doing since I was diagnosed is: Not being connected to a machine at all times.

19. It was really hard to have to give up: Nothing really.

20. A new hobby I have taken up since my diagnosis is:
A ton. It’s been nearly a decade so of course I’ve done quite a bit more then back then. I play the bass, write a ton, travel, and have started trying to learn some programming languages.
21. If I could have one day of feeling normal again I would: Diabetes is normal for me at this point, so I’m not quite sure how to answer that, except there would be less worry.

22. My illness has taught me: Responsibility, something it seems to teach many diabetics.

23. Want to know a secret? One thing people say that gets under my skin is:
Oh, you can’t drink? That’s terrible! ( Truth be told, I think all alcohol tastes like crap and refuse to swallow the stuff more than I worry about it’s sugar content).
24. But I love it when people: Know a bit about diabetes. There is a lot of misinformation out there.

25. My favorite motto, scripture, quote that gets me through tough times is:
 Que Sera Sera.
26. When someone is diagnosed I’d like to tell them: You’ll get the hang of it.
27. Something that has surprised me about living with an illness is: I don’t know. I didn’t really have any preconceptions about what living with an illness would be like.
28. The nicest thing someone did for me when I wasn’t feeling well was: Probably all those times when my parents stayed home and dealt with me throwing up all over the place ( I was a sickly kid.) Diabetes wise? Cooking me a large dinner because my blood sugar was low, even though at that point it didn’t matter anymore lol.

29. I’m involved with Invisible Illness Week because:
More people should speak out about their experiences with illnesses like this.
30. The fact that you read this list makes me feel: Validated.

5 replies

catsissie 2011-09-21 23:20:33 -0500 Report

Reading your list gives another person something to think about. Long before I was told I was prediabetic, I finally found out I had epilepsy. At the same time they tested for that, they gave me a fasting glucose tolerance test, and it came out okay. Anyway, I was so relieved to know why I'd been acting so strangely—and nearly dropped my baby—and that finally we could get with some treatment, that I just went home and did what I had done before, only safer. And then did a ton of research at the library (precomputer days, this was—back in '71, Fred Flintstone cars!).

jayabee52 2011-09-21 17:04:26 -0500 Report

Actually I had seen these 30 questions posted last week on some of the other connect sites I am also on. I believe one of those was the Arthritus Connect site.

Thanks for bringing it here. I didn't even think about it.

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