Who belongs to a Diabetes Support Group?

MEGriff1950
By MEGriff1950 Latest Reply 2014-12-03 12:53:31 -0600
Started 2011-09-17 20:38:27 -0500

I live in a rural area and there are no support groups here. I asked who belongs to one because I have some really important questions to ask. #1 Is the support group lead by a medical professional? #2 Does a support group need to be sanctioned by anyone such as ADA, local Health Department etc.? #3 If you belong to a group will you please find out what it took to get it started?
I am not an organizer but was thinking if possible those of us that need support groups might be able to start our own. This would take a lot of time, printer ink and paper. Every state, county and city has different laws concerning this type of activity. If we can start a group it will take time to get it going. Word of mouth, advertising etc.
I would like honest opinions here.
Thank you,
Mary


32 replies

Carol2x
Carol2x 2011-09-24 00:03:20 -0500 Report

When I was first diagnosed -it was over 7 years ago and my husband and I were living in Florida. I went to our hospital (where I worked)-it has a Joslin Center. But, with us working nights all I can do is go to online support. We sleep during the day.

MEGriff1950
MEGriff1950 2011-09-24 20:10:16 -0500 Report

I worked swing shift for a while and graveyard for 2 weeks only. Those night shifts are killers. By the time you get home and settle down to sleep 2 to 4 hours later the whole neighborhood is waking up. Someone mowing lawn, the car without a muffler running for 15 minutes to warm up, children playing or fighting, and that idiot who cannot see your sign do not knock or ring the doorbell. Oh and lets not forget the telemarketers. It is so good that you found DC. A great place to come and find out how others handled your situation or just people to listen who understand.
Maybe you could start an early morning or late afternoon group in your area?

jayabee52
jayabee52 2011-09-25 09:15:38 -0500 Report

I worked as security for 12 hour shifts 7 days a week for about 6 months straight. After a while it didn't matter what was going on outside. I just slept. And then when that particular post was done, I worked 6 days a week on 2 days on days, 2 on "swing shift" and 2 on "graveyard". That was a real killer, but our little family needed the income so I hung on to the job until I found something better.

Uncle Lew
Uncle Lew 2011-09-23 21:08:43 -0500 Report

I belong to a support group at a local hospital. The hospital has a Diabetes Management Center. The Center is accredited by both the ADA and the AADE (American Society of Diabetes Educators). The group is conducted by a RN/CDE.

It would always be good to have a CDE in the group to make sure the information exchanged is accurate. Without such a person the group could only be an in person version of this web site.

You will have to decide the goals of the group. Will it be a gathering of diabetics. Will it be a group where accurate health information is also exchanged?

You must also decide where you will meet. Will you have a permanent meeting place or will it rotate between locations?

The best place to start may be with your doctor or local hospital. They may know of information and funds available for such activities. In fact they just may be looking for someone to start a diabetes support group.

Good luck in your venture. :-)

MEGriff1950
MEGriff1950 2011-09-23 21:18:04 -0500 Report

Thank you very much for your information. From what I can gather there is only one certified diabetic educator in the area, 35 miles away. I learned much from her class but my medicare hmo paid $600 for me to attend the class so I greatly doubt she would volunteer. I am hoping to find 2 meeting locations in seperate towns. I am hoping to advertise to try to recruit at least 2 or 3 other people to help me organize this. I will travel to Spokane, 65 miles away and visit an ADA office to see what help they have to offer for this undertaking before anything else. Yes I am hoping to get a professional speaker at least once a month, and the other meeting would be much as this site is.
Thanks again Uncle Lew,
Mary

Uncle Lew
Uncle Lew 2011-09-24 19:47:18 -0500 Report

Good luck Mary. A good support group is as valuable as a good doctor. Keep plugging away, current and future diabetics will ge thankful. :-)

MEGriff1950
MEGriff1950 2011-09-24 20:12:43 -0500 Report

I will definate do my best. I got so many great ideas here. I know there was a support group here years ago but I was not diabetic then and the disease is spreading way too quickly.

margokittycat
margokittycat 2011-09-20 09:06:07 -0500 Report

I BELONG TO A DIABETIC SUPPORT GROUP RUN THROUGH THE LOCAL HOSPITAL. WE DO HAVE PROFESSIONALS THAT LEAD EACH MEETING, BUT IT IS NOT A MANDATORY THAT IT HAS TO BE BACK BY ANY CERTAIN SOMEBODYY OR ORGANIZATION. I ALSO RUN A LOCAL ONE WHERE I LIVE AS I TOO LIVE IN A RURAL COMMUNITY. I THINK ALL YOU REALLY NEED TO DO IS ADVERISE IT OR TALK TO LOCAL DIABETICS WHO WOULD BE INTERESTED IN BEING IN ONE. WE ALWAYS DO A SPECIFIC TOPIC FOR EACH OF OURS SO I DO A LOT OF RESEARCH ON THE INTERNET FOR WHAT THE TOPIC IS. I PRINT A LOT OF STUFF OFF AND THEN A DIFFERENT MEMBER OF THE GROUP LEADS THE MEETING EACH TIME USUALLY THE PERSON WHO WANTED TO DISCUSS THE TOPIC FOR THAT MEETING.

MEGriff1950
MEGriff1950 2011-09-20 11:28:00 -0500 Report

Thank you so much Margo, Great idea! I have unlimited long distance which will be helpful plus hoping to find 2 or 3 others interested in forming the group. I also plan to ask anyone interesred in attending to assist in research, transportation for those that need it, locating places to meet etc. if they can. Feeling needed in a group I think will help.

margokittycat
margokittycat 2011-09-20 15:30:41 -0500 Report

I agree. It is great to be in one and if you are in more than one that is great. I have two just because. I love my DC family though.

grandmaducky
grandmaducky 2011-09-19 16:12:45 -0500 Report

i dont go to support group but in the small town i live in they do have a group lead by the hospital head dietians and some cde maybe you could contact the hospital close to youm and see if it something that could be started up maybe once a moth or every other month

MEGriff1950
MEGriff1950 2011-09-19 16:38:09 -0500 Report

Nope, they rely on the hospital that is 35 miles away to have a monthly class and there is a charge because it is connected with the ADA.

grandmaducky
grandmaducky 2011-09-19 16:46:13 -0500 Report

do you have a libray you could see if you could meet there and have guest speakers

MEGriff1950
MEGriff1950 2011-09-19 20:38:25 -0500 Report

Great idea Grandma Ducky,
This being a rural area I think it might have to be a traveling group. There are many small towns scattered throughout out area. My town is the second largest with a population of 2,600. This will be a very big challenge for me. Like Roy said not everyone has computers and I will add internet here.
Mary

shoulders
shoulders 2011-09-19 00:10:44 -0500 Report

Hello, I just wanted to remind everyone that we are already on a Diabetic Support Group!!!!!!! Isn't that why we are shareing and reviewing our situations and giveing some good advice too. Hello!!!! I would like to start a support group of our own. Diabetics Unite… Lets start now. My name is shoulders and I'm a diabetic for more than 20 years. At times I just want to run to the kitchen and eat that cake, pie, ice cream. But, I just stop myself. Thank about that fresh carrot or fruit or something thats good for me. Alright now its your turn. Go ahead… This is what happens in Diabetic Support Groups. And sometimes they might have a speaker and some free samples of iteams from meters, tooth paste, and some other exciting iteams. Then you might get some fact sheets about feet issues, meter information, coupons, exercise classes offered at the Hospital. Hope this helps… Might be able to call our Diabetics Unite to meet on Sunday evenings at 8-9 p.m. on this site? see ya later

MEGriff1950
MEGriff1950 2011-09-19 09:39:46 -0500 Report

Shoulders, Thank you for replying. It sounds like you have attended one or more support groups. My goal would be to reach out to the diabetics in my area who like many here were handed meds, told to lose weight, eat right and get their blood sugar under control and booted out the door. Of course I will suggest DC and other good support forums. I went 8 years before attending a class and finally getting control. Living in eastern Washington we have few resources to help us other then the millions of websites that become confusing.
Keeping that in mind what do you think would help to make a group not sound like AA, keep it fun and at the same time let me to help others though I am not a medical professional?
For me this would definately be getting out of my comfort zone. It will be time consumming and costly. I would love to help others get on track as this site has done for many.
Thanks for your help Shoulders,
Mary

Beata2
Beata2 2011-09-19 15:14:12 -0500 Report

Hi neighbor! Living in small towns can be a challenge. Does Republic sound familiar? I have to go into town to get wifi. But the up side is that we are not tempted by all those restaurants! If your strong when out shopping it's not in the house. There may be a dieting group in town. You may find that their there because of diabetes. Good luck

Roy531
Roy531 2011-09-19 10:56:08 -0500 Report

Have to remember also, not everybody has a computer, so therefore they cannot get on the internet and checkout everything that is available to diabetics.

jayabee52
jayabee52 2011-09-18 16:03:48 -0500 Report

Mary
A support group to which I go here in LV is called ADEMS Adult Diabetes Ecucation and Support group. Chris and Theresa Moore are the leaders. Here is the ADEMS website: http://diabetes-lasvegas.org/

if you go on the website and click on the C on the circle you'll find contact info for Chris and Theresa. You can either email them or phone them. Every meeting Chris puts their phone number on the whiteboard and says that they can be reached at that number 24/7. Chris works as (I believe) a nurse-practitioner and Theresa is a RN. They both work at a local hospital in LV. Chris's mother was a type 2 (but she has passed from this life) and Theresa is a Type 1 and is on an insulin pump.

I suspect that they'd be a wealth of practical information for you in starting and maintaining a support group. If you do contact them, let them know that James Baker referred you to them.

I pray you have success in getting yours started and that it "flies"

MEGriff1950
MEGriff1950 2011-09-18 16:44:25 -0500 Report

James thank you so much for this information. I will be going away for a month starting on the 27th but intend to do some serious research when I get back. I am going to copy and paste this into an email so myself so that I do not lose it. When I get started I will be praying a whole lot more. This will be a very big undertaking.
I will need all the help I can get.
Mary

gbc43
gbc43 2011-09-18 15:46:26 -0500 Report

I do too, U.of M. in Ann Arbor MI.

MEGriff1950
MEGriff1950 2011-09-18 16:49:18 -0500 Report

Hello GBC, that is great. When do you have your meetings? I am going to be in MI for a month but will be north a ways staying with sis in the Pinconning/Midland area. Attending a meeting somewhere would be the best experience for me.
Thank you,
Mary

gbc43
gbc43 2011-09-19 12:27:57 -0500 Report

Its the second Saturday of the month at 9:30 till 11:00 AM.
Its at the U. of M. building where Us 23 and Ford RD meet.
Let me know and I will do a map …

MEGriff1950
MEGriff1950 2011-09-19 15:44:19 -0500 Report

thank you gbc, I will most definately let you know if I can attend one. I learned to drive in MI in 66 but since 67 have only been back 4 times for brief stays. I will be totally lost.
Mary

Roy531
Roy531 2011-09-18 11:20:54 -0500 Report

I attend a support group, it was started by our educaters right after I was diagnosed, right now we are in charge of it. You don't have to have a medical professional to start one. We also ask around and have medical professionals come in a give a presentation, like a heart specialist, eye doctor and a foot doctor, would use the proper names for them but can't spell them, but it is very helpful and I have learned more about how to properly take care of my body and the signs to look for to avoid problems. It is also a way to learn from others about food and other things that are helpful. All it takes are some people who care about learning.

Roy

Type1Lou
Type1Lou 2011-09-18 10:31:53 -0500 Report

When I lived up north, I was friends with a very conscientious diabetic retiree who'd been president of the state ADA. He got me involved in the ADA Walk for Diabetes and in a local diabetes support group. I did go to several meetings of the group which were somewhat helpful to me. Most there were type 2 diabetics which is a reflection of the 90% Type2 to 10% Type 1 distribution of diabetics in the US. That group in central New Hampshire was led by another diabetic, not a health professional. They can be a great source of information, inspiration and support, especially for those who are newly diagnosed. Since moving to Florida, I haven't joined any support group although one is available at a local hospital. Does your University have a medical/nursing/nutrition school that might be able to give some direction? Good luck…there is a need out ther!

MEGriff1950
MEGriff1950 2011-09-18 10:43:50 -0500 Report

No this university is an agricultural university, they do have a very good psychology department. I worked at that university for 22 years. Spokane (60 miles awat) has an ADA office. I think after my trip I will call them or go to their office and see if I can get help in getting a support group going.
I have complained here too often about being in a rural area and very little places to turn. Maybe I should do something about it. I was thinking about putting an ad in the local papers asking if others would like to help me get one started.

MEGriff1950
MEGriff1950 2011-09-18 10:45:47 -0500 Report

PS Lou thank you. Do you think that you could put me in touch with these people. I will be leaving for a month starting Sept 27th and have no internet access but on rare times.
Mary

Type1Lou
Type1Lou 2011-09-18 12:14:42 -0500 Report

The NH man who was my friend has sadly passed on and I don't remember the name of the person in charge of the support group I attended up there. There is a support group that meets at the Citrus Memorial Hospital in Inverness Florida and I will try to get you contact information from them if you think that will help. Also, I next visit my endo in October in Tampa and will ask them if they have any contact suggestions.

MEGriff1950
MEGriff1950 2011-09-18 12:23:49 -0500 Report

Thank you so much Lou that would be a big help to me. I am an idea and research person not an organizer and any help I can get will be terrific. My email is on my profile and I welcome emals from anyone who would be willing to help me.
God bless,
Mary

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