Diabetes attacking the nervous system ?. Has anyone ever eaten and felt as if the food has gone directly into your blood and there is a struggle taking place inside your body?

By nzingha Latest Reply 2011-09-25 05:15:02 -0500
Started 2011-09-15 08:08:47 -0500

I keep getting this sensation as if as soon as I swallow the food, it has gone straight to my blood and gives me a nervous feeling all over and light headidness? I cant explain it any other way but I amgetting to the point where I am afraid to put food in my mouth. Has anyone ever had this feeling. also as soon as I inject the insulin, its almost as if there is also a struggle going on inside my body. This feels like not just insulin resistance but insulin WAR with my cells… so I feel high when i eat! Its a nervous, high feeling and most of it takes place in my legs and arms too…but generally all over!

36 replies

jladytiger1979 2011-09-21 07:59:53 -0500 Report

I sometimes get a "high" after eating also. I have to make sure what I eat is right on target with the # of carbs I should be having. If I go over it is REALLY bad. Like WIDE OPEN 2 YEAR OLD CHILD BAD! Then I crash. Plus WHAT I eat matters. If there is more sugar in something it is worse. It doesn't happen all the time so I attribute (in myself) to eating too many carbs, my blood sugar was too low/I waited too long to eat or whatever it was I ate made my blood sugar go up too fast. JMO …but I don't use insulin (on Metformin)…

mebetty 2011-09-21 03:29:56 -0500 Report

nzingha…carbs does that to me. Whenever I start my meal with a carb I feel the nauseating rattling feel in my stomach. I found having a small protein drink before I begin my meal, and combining protein with my meals prevents that.

MarkieMarkie 2011-09-16 13:44:38 -0500 Report

I've experienced this too… I call it the traveling disease… sure wish it would purchase a suitcase and move out… I get lightheaded, nervous and jittery as well and it feels like I can feel the disease crawling in my veins… very unnerving to say the least. I have people ask me… do you feel okay.. I say… "As good as can be expected," because I will never reach their definition of "feeling good," however some days are better than others. And to mention this to someone who is not diabetic or experiencing this problem, they look at you as if you are from outer sapce.

Hope you are feeling better soon.. or at least I hope the war calms down a bit… take care of yourself and let us know what we can do to help.

nzingha 2011-09-21 06:54:27 -0500 Report

thnks for ur responses. u r right some days its not so bad. but it does happen.. feel like i'm on a high at times. sometimes its because my sugar is high sometimes its because its low .. but i get the same sensations either way so unless i test I cant tell the difference. anyway, the levels are under better control now but its just thyat I am doing it with the use of insulin which I do not like at all.. it makes me feel like on my last lap with this disease although I know people who have been on it all their lives and they r fine. But u know when I told my mother she was like 'oh my God, ur father only got insulin on the last lap, the last 3 yrs of his life. y r they putting u on insulin now. u r too young to be taking insulin'. can u imagine what this did to my head? but i've gotten over it and i am doing all the right things now, better late than never. I eat right and i make excercising fun. I do Beyounce's dancing videos when i cant get to walk or swim and i walk around my house with weights on my feet..I take time for me now.. and try to cut back on my very busy schedule although thats very difficult.. but i still have the challenge of this weak nervous feeling in my legs…guess the damage was already done before the changed lifestyle…

Uncle Lew
Uncle Lew 2011-09-22 14:21:14 -0500 Report

Hello nzingha.
You are not on your last laps. It may seem that way but its not. I felt the same way two years ago when I had to switch from oral meds to insulin because of my kidneys. I have a very good endocrinologist who took the time to talk with me at length on how switching to insulin is not a sigh of failure but a chance for a better life. And she is right. I currently use vials and syringes but will be switching to insulin pens in November. Using pens will make using insulin less conspicuous, make it easier to take my insulin when I am out and add to my control. Insulin will prove to be a blessing rather than a death sentence.
We all know people who have gone on insulin and died a few years later. They died because they avoided dealing with or refused to deal with their diabetes. The prolonged delay is what shortened their lives. They came to face reality at a point where insulin could only extend theirs lives a few years rather than aid them live full, long, productive lives.
You are never too young to take insulin. Type 1 diabetics are proof of that. I had a roommate in college who has taken insulin from the age of two and is now 58 years old. He is a successful architect with three children and 2 grandchildren. He is living a long happy life.
Don’t let anyone badger you or embarrass you into not doing what you have to do to live. It is very hard having family and friends redicule you, look down on you and make you feel like a worthless failure. Remember nzingha, YOU ALWAYS HAVE US, YOUR FELLOW TRAVELERS, IN DEALING WITH A MALEVOLENT DISEASE, YOU ARE NOT ALONE. Count on the millions of us for support. We all have had similar experiences, fears, emotions, problems while dealing with our disease.
Be of good cheer and God speed. :-)

Abby888 2011-09-16 06:02:12 -0500 Report

I get very, very tired if I eat too many carbs (i.e bread, pasta, rice). When my blood sugar gets too low I get super jittery and anxious and even when I bring my sugar up to a respectable number I still have that feeling for at least an hour. I often times feel like I'm riding a roller coaster and its no fun. Good luck with everything :)

nzingha 2011-09-16 20:12:56 -0500 Report

i think breads of all sorts no longer like me…its good sharing these experiences because now i know i am not going crazy and other people r experiencing some of these weird symptoms. Thnks for sharing everyone

besther414 2011-09-22 15:14:34 -0500 Report

Bread and milk don't like me! Even the whole grain one with lowest possible amount of carbs and sugar spike my bs too much!!! I love me some milk!!!! :( Going play with portions and see how my body reacts to less milk at a time!

MetalCohen 2011-09-24 15:11:42 -0500 Report

I switched to 1% milk. I love my bread tho that may be my achilles heal !
I miss candy , although the calories are there , I found sugar free candy (Expensive tho)
Best wishes to you !

nzingha 2011-09-24 17:55:21 -0500 Report

I know how u feel about that candy for me its choclate and ice cream .r I used to get them at the expensive chocolate stores in England but they are closing down now and really I can do without them. I use low fat milk all the time.. right now I have decided I will not be deprived of the things i like in this life.. except sugar itself.. I just cant touch it.. as I write I am baking a banana bread and bread pudding. I have used nuts and raisins to add flavor and of course cinnamon, vanilla and nutmeg.. no sugar, no salt..lets see what they will taste like.lol!. I also plan to cut them in small pieces and freeze them so I can have a bit for desert.. that might last me for 2 months… DWL… I cant believe I have come to this at this stage of my life.. food is no more to be enjoyed…?

MetalCohen 2011-09-24 23:53:19 -0500 Report

mmmmmmmmm I freeze everything ! Pass me some of that Banana Bread. My neighbor went on a baking spree…3 days in a row he brought me cakes! I get my fix at rite aid's sugarless reeses cups.
I found if you use 1/2 Splenda what calls for sugar in recipes is good too.

I miss ice cream but cheat with the mini Blizzard, somehow eating banana, pineapple, & pecans makes me feel I'm eating healthy !

nzingha 2011-09-25 05:15:02 -0500 Report

I must tell you that both my banana bread and bread pudding are deliicious.. I had a small piece with my dinner and it was like heaven…the taste.. I dont need splenda . I have gotten so used to not adding sugar or any other sweetening that the natural taste of food, fruits etc, work for me. So I had added almonds and some raisens and low fat milk..I am going to enjoy every bite and I am going to cut them up and freeze them so i can pull them one piece at a time for my desert.. I deserve some desert..lol!

Ceunei 2011-09-16 00:17:03 -0500 Report

When my blood sugar is high, I feel it rushing around in my veins, too. Sometimes it is like a worm wiggling through…blobs of sticky glucose traveling through the veins
. Ick. Today, I ate a serving of raisins and knew immediately my blood sugar spiked because my hands started hurting. I usually feel it more after I've been well controlled for a time. The first time I took insulin, I was pregnant, it felt like winged horses galloping through my veins vanquishing the excess glucose. I am down to mainly eating proteins and vegetables, now, because going high really quickly is a painful experience now that I've been more controlled for so long. I only have to take minmal insulin, now, and it feels like a cool rush rather than the winged horses… Frankly, I get the freaks more when I remove the needle for some reason.

realsis77 2011-09-15 12:40:53 -0500 Report

Oooh yes! I have a huge problem when I eat (and I can never tell when this will happen) I get very sleepy and drunk feeling and when I fall asleep I can't be woken up, I see double and its awful! As long as my insulin is given on time I can prevent this but if its not this is a terriable battle I go through.

rebeccaeagerton 2011-09-15 13:46:27 -0500 Report

This would happen to me when I ate bread or pasta. I am insulin resistant and my physician said that happens a lot in diabetics who are insulin resistant. I no longer eat bread, pasta or anything high in carbs and I no longer get that feeling after eating.

nzingha 2011-09-16 20:14:36 -0500 Report

I think my new way of eating now will be soups, salads and porridge and even with porridge I have to eat those low in carbs.. ah well.. fish and vegs also work for me.

nzingha 2011-09-24 18:34:27 -0500 Report

I see they have found a name for this meditarrean style diet.. its working for me,…fish, vegs, nuts, fruits… in small portions of course.. and I am losing the weight.. and I am adding my own desert to this.. my bread pudding and bread pudding.. I shall choose which one to go with which meal…lol!

realsis77 2011-09-15 20:31:54 -0500 Report

Wow this gives me something to think about??? I take insulin daily and I'm wondering how I could tell if I'm restaint or not?? Any ideas?

MEGriff1950 2011-09-15 17:36:54 -0500 Report

Rebecca I thought carbohydartes were my enemy. The more I cut back on them the worse my blood glucose testing were. I went as far as eating whole plates of fruits once a day. My sugars hit the roof with that one. After attending a diabetes education class I learned that as a type 2 diabetic I need 45 grams of carbs with every meal, this is figured into the meal plan the dietician drew up for me. I also found out at the class that fruits are very high in carbs. Fruit juices are so high in carbs many of us use juice to bring our sugars up when we go hypoglycemic. I do not do well with bread or pasta either but potatoes work well for me. We are all different and what works for one might be totally wrong for another.

rebeccaeagerton 2011-09-15 22:42:57 -0500 Report

I eat fruit in moderation, very small amounts of moderation…lol; I do not eat anything in cans or drink processed juices because of carbs, sugars and sodium. I get made fun of by my in laws (not in a bad way) because I make a strict meal plan for each week, which consists of proteins and veggies. I limit my intake of sweet potatoes to one a week. I have been doing well on it. I do not drink anything but water, mainly because all diet sodas make me nauseated because to me they are too sweet.
I am happy that your system works for you…keep doing what your doing!

Ceunei 2011-09-16 00:24:49 -0500 Report

For me, pasta is out, rice is out, and anything with more than 13g of carbs in a serving is now out. Fruits and sweet vegetables very limited. Drink only water or coffee w/cinnamon. Lemon water, too. My diabetes keeps changing the less I nurse, so, I've had an interesting ride. Dropping more and more carbs each time nursing changes, but, blessedly using less and less insulin…replacing it with exercise…

Ceunei 2011-09-16 00:30:24 -0500 Report

Nursing as in breastfeeding. I am one of those crazy full term breastfeeders, and, everytime the nursing demands lessen, I have to retest for a week for the new diabetes pattern. Just went through it after dropping the night nurse, good thing I decided to go to the dr this year…my fatigue wasn't iron related…my diabetes had changed and I wasn't testing enough because of the insurance limitations on test strips…once we drop the last morning nurse…I expect one more round of testing and another change…

rebeccaeagerton 2011-09-16 09:14:43 -0500 Report

Wow…bless your heart! That is a lot of planning and re-planning. I learn something every day, I never once thought that breastfeeding would have an impact on blood sugar.

ShellyLargent 2011-09-15 09:49:41 -0500 Report

Have you been tested for any food allergies? Also, are you newly diagnosed? New to insulin? It could be phsycological… If you're newly diagnosed and frightened about food consumption, it's amazing what the brain can make your body do and feel… I just recently had to go to the ER because I was convinced I was having another heart attack… I had one in 2008 that was pretty severe and was told that if I had another one, it would most likely be fatal… I starting having some chest pains at work and before I knew it, I was also lightheaded, had shortness of breath, my left arm started to tingle, I felt sick, dizzy and actually started to pass out. My coworkers called an ambulance and I was taken to the hospital where they tested me and found out that it wasn't a heart attack. My heart is healthier than it's ever been. Most likely I was slightly dehydrated, had heartburn and a severe panic attack that mimicked heart attack symptoms because that's what I thought it was…

I'd talk to your doctor or an endocrinologist about what you're experiencing. It's definately something worth having it checked out.

Jan8 2011-09-15 09:40:20 -0500 Report

Give yor doc a call. You may need to have your insulin changed. I use to itch like crazy and my doc told me"No one is allergic to insulin" I had a fit and said Oh yes there is. Well,he changed my type of insulin to another and no more itching. He also told me it was in my head. hence I am going to go to another endo.

MEGriff1950 2011-09-15 08:22:06 -0500 Report

Nzingha, this does not sound good at all. Have you talked with your doctor about these feelings? How is your blood glucose readings before you eat or inject?
For me I hate eating when I am not hungry. I think this is because I have thought of food as my enemy for so many years due to being so overweight. If my sugars are low I do feel a bit strange sometimes when I eat but nothing like you are experiencing. When I was on insulin 20 units twice a day I do not think I ever felt a reaction.
My opinion is that you have a discussion with your medical professional might help you find the answers to these feelings.
God bless,

nzingha 2011-09-16 20:19:16 -0500 Report

going to c my doc on monday… I was even wondering if part of the problem is because I use the pen to inject my insulin ( short term one Humolog (sp?) and I was told it does not need to be refrigerated. But when i bought it last week from another pharmacy.. it said refrigerate.. is it necessary to do so?… I keep them refrigerated when they r not being used but once i open a vial.. its in the pen and i keep it with me in my hand bag? does anyone else do this?

MEGriff1950 2011-09-15 08:34:14 -0500 Report

Wow I found out what an Endocrinologist does.
What is an endocrinologist?
An endocrinologist is a specially trained doctor. Endocrinologists diagnose diseases that affect your glands. They know how to treat conditions that are often complex and involve many systems within your body. Your primary care doctor refers you to an endocrinologist when you have a problem with your endocrine system.

What do endocrinologists do?
Endocrinologists are trained to diagnose and treat hormone imbalances and problems by helping to restore the normal balance of hormones in your system. They take care of many conditions including:

thyroid diseases
metabolic disorders
over or under production of hormones
cholesterol (lipid) disorders
lack of growth (short stature)
cancers of the endocrine glands

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