Sigh, do you have this problem?

By riquelskyy Latest Reply 2011-10-15 01:28:32 -0500
Started 2011-09-13 04:08:28 -0500

Okay where do I start? Well I was diagnosed with type 1 diabetes in February 2005 then put into foster care in August 2005. I won't go into detail but if you want send me a message and I'll tell you what happened. Any who when I was put into foster care I had no medication. The system didn't care at all so for about 3 years I had no medication. So I started to loose weight like crazy to the point where I look like a corpse. The lowest I ever weighed was 90 pounds. Everyone thought I was either anorexic or bulimic. I was hospitalized numerous of times. They started me off with Novolog and Lantus. Then they switched my insurance so I am now on Humalog. Well I am on my way to gaining weight so I can be healthy. So basically NO INSULIN=LOOSE WEIGHT and that's very unhealthy. Does anybody else have this problem or had or even know somebody with this problem? Thanks for reading this.

-Alannah :)

21 replies

Mickey/CCHT 2011-10-15 01:23:25 -0500 Report

I'm so sorry to hear about your story, but so glad you found a site that will give you support and knowledge. We are all hear for you. God Bless

annesmith 2011-10-13 00:34:36 -0500 Report

HI…am I ever glad I heard from someone that can relate to 2 big lifetime situations…the first: I know a man that is 84 years old now, and when he was 4 years old he started having terrible seizures. He would get sick a lot, and his parents were very very very abusive. He had all the symptoms of type 1 juvenile diabetes, and his parents brutally punished him for it. They locked him up in his bedroom every time he got sick, and told him he was NUTS…they went so far as to force him to see a psychiatrist, they lied to the psychiatrist—-by age 10, he was forced to take 10 or 11 different kind of psychiatric meds…By around age 17 , he was forced to get shock treatment—-He told me it was AWFUL—-and back in his day, the DEPT of Human Services was different. He kept having diabetic seizures over and over again, and the parents threatened him with COMMITAL if he did not keep quiet about his diabetes. In the meantime, he never got the insulin he needed from age 4 all the way to age 21. He ran away from home at age 21, got a job, and his own apartment, and went to a regular doctor right away—he said he knew he was diabetic the whole time. The doctor said he was VERY very very lucky to be alive, and found him to have untreated type 1 diabetes. The man had been seeing angels and the whole nine yards. He was put on insulin right away, then. I feel sorry for you, too——-hope your situation has gotten better. I am 41 years old and a very brittle diabetic…I have had insulin , too——-because of maybe my family members reading on this site, I can't share with you my second story—which is about my diabetes. What I can tell you is I had untreated childhood diabetes all the way to age 35…WRITE ME BACK PLEASE, PLEASE if you have time——as, I cannot find ANYONE hardly at all that can relate —————I was diagnosed at age 26 with type 1, but I am so brittle, another doctor found me to be what is called COMPLEX diabetic—-it's really hard to explain——PLEASE, if you have time, WRITE ME BACK!!!——-I'd love to be friends!!!!!———-SINCERELY, ANNE

Mickey/CCHT 2011-10-15 01:26:27 -0500 Report

My goodness. What a tragic story of your friend. It just hurts my heart when i hear of how people treat eachother, and for a parent to do that to their child, is in my eyes, just evil. Thank God he was able to get help, he defintly had someone watching over him. I sound like you have had a time of it as well. I pray for your strenth. Keep the faith.

jayabee52 2011-10-13 03:26:58 -0500 Report

O WOW! What a account! It is a surprise to me that he survived his childhood!


annesmith 2011-10-15 00:33:52 -0500 Report

Thanks…yes, I too am very surprised he survived his childhood…very surprised. He said he saw angels many many many times, before and after having the diabetic seizures———ANNE

PharmaTree 2011-09-13 14:36:42 -0500 Report

Thank you for sharing your story. You are a survivor, and by sharing your story you have helped spread awareness about the lack of medical concern there is for foster children. I never knew about the difficulties there are for foster children to get the medical attention they NEED. Thank you for shaking me of my ignorance.

Marytea 2011-09-13 10:41:25 -0500 Report

Thank you for sharing your experiences. I pray you will continue to speak out and perhaps advocate for better health care for foster children. Your message made me think and that is powerful. Shout it out.

riquelskyy 2011-09-13 10:54:00 -0500 Report

Thank you for noticing and aknowledgeing my opening thoughts on my problem :)

Doryian 2011-09-13 13:20:23 -0500 Report

I'm sorry you went through what you went through. I had a messed up childhood as well. I used to feel sorry for myself all of the time. But one day, I woke up and acknowledged I had no power over what all happened to me so I had no ownership of what happened. It allowed me to forgive myself for what I perceived to be my fault and also opened up my mind to begin to love myself. I am a brave, strong woman now. A lot of my strength, endurance and courage comes from surviving my childhood. I'm not perfect - sometimes I get down… And when I fall, I seem to fall to the bottom of the canyon. But since I've climbed those canyon walls so many times before, I have faith in myself that I can do it again and again. Hugs to you. Thank you for sharing. I'm a shoulder if you ever need to cry… <3

riquelskyy 2011-09-13 13:32:52 -0500 Report

Aww thanks. That is very sweet. I see a therapists and I am on anti depressants (hoping to get off of them soon) so that helps. But getting diagnosed in Feb. 05 then put in to foster care in August the same year really took a toll on me and my body. I too felt sorry for myself. I didnt care anymore and just let myself go. Ended up in the hospital numerous times with DKA Hirt me and my family as well. So getting back on track is getting real hard on top ofthat I have nueropathy so I can't walk for a long period of time or stand for a long time. It sucks i can't do anything with family or friends. Such as going to theme parks walk the mall parties. Any who thanks for yout words of encouragement :)

annesmith 2011-10-13 00:39:49 -0500 Report

I was almost hospitalized for DKA 3-4 times over the last 4 years…I have neuropathy, too, and for the last 3 and a half months could barely walk on my entire left leg…I have an ulcerated left foot——and arthritis even though I am only 41——I hope everything will get better for you——-how old are you? Are you 16? Or, younger? I know when I was in high school, I had diagnosed pancreatitis that left me in bed for 2 weeks, and an infection in my left leg. ANNE

MEGriff1950 2011-09-13 10:32:11 -0500 Report

I pray that God will watch over you. I have not had that problem but when my grand daughter was put into foster care her medical needs were ignored. She has Williams Syndrome and is asthmatic. She almost died too.

GabbyPA 2011-09-13 09:52:02 -0500 Report

The reason there is a weight loss like that is because there is not insulin to open up the cells to give them the energy that is in our blood called glucose. If the muscles cells don't get any energy, they start to use what they have stored up. When that is gone, they start to use up the actual muscle. This is why undiagnosed Type 1 can lead to death by starvation basically, even while you are eating. You are fortunate to have survived all of that.

Here is some more reading on it and how it works:

eristar 2011-09-13 06:45:41 -0500 Report

I lost a huge amount of weight shortly before I was diagnosed last year, which I attributed more to the pain I had and the pain meds I was on for another problem. I was also on Humolog and Lantus (now just taking the Lantus) and have put back a lot of weight, some of which is unwelcome. The doctor told me yesterday that injected insulin can definitely cause weight gain, especially around the mid-section. I hope you find yourself nice and leveled off soon!

riquelskyy 2011-09-13 10:43:38 -0500 Report

Thanks yeah I noticted the weight gain part in my stomach. I was told to do it only in the stomache because it obsorbs faster then later found out to rotate the sites. Thanks.