Are you type one or two?

By aclover2010 Latest Reply 2011-09-07 17:09:15 -0500
Started 2011-09-04 00:51:10 -0500

I would like to tell everyone a story…I am wondering if anyone else has the same story as well. Six years ago they diagnosed with me type one diabetes. I took about five insulin shots daily…this seemed to work for me for about five years…Near around year five I was getting alot of lows and would wake up in the middle of the night with BS of 50 or so..I told my endo that I needed to be retested and that I was taking too much insulin and perhaps I am not truly a type one…She refused and I found a new endo…He was willing to retest me and found out that yes I was type two…I am not taking only one small insulin shot and two oral pills a day…I am feeling much better and my BS control is much better…I now know that your body changes constantly and that if you feel that you might need to be retested…listen to your body and do so!!! I am sure I am not the only one that this has happened too…AC PS..if you are type two please dont be afraid to take insulin…the needles are soo small and it helps so much…pm me if you want to talk!

23 replies

aclover2010 2011-09-07 17:09:15 -0500 Report

WEll you are very lucky…My mother is someone that makes special meal arrangements at the hospital for me without my consent and then I have to eat that!! I also have had people take back food after they found out I am a diabetic…ridiculous..I am just really concerned mostly for the people who are not very honest about how they handle their diabetes…and they can be causing serious damage to their bodies..I know of some women in their nineties who have had type I Diabetes their entire lives and are still doing well. They tell you how they used to use glass needles..YIKES!…but that is why also being in a support group is soooo important…I needed to be switched because I have ignored this site and now regret it..I was soo concerned with my MS it's like i forgot I have diabetes..duh..anyway…i did ask you to be my friend I hope that is okay…have a good rest of the week …AC

TRUCKMASTER 2011-09-06 15:36:42 -0500 Report

sometimes i think about getting retested, but fear the needle. i have highs and lows. in may my A1C was 9.3, last month it was 8.2 its coming down. i always use to be in the 6.5 to 6.9 range. but i think its just me, i have to get my diet right again and back to excersise. i put it all in Gods hands, thats the best medicine.

aclover2010 2011-09-07 00:10:51 -0500 Report

well yes but God asks us to do all we can for ourselves and sometimes that is things that are hard for us and that is why he asks to challenge us..I know that is true in my case especially the closer i become to him…He deceided to throw me the MS curve ball too…fun stuff :) but it helps me to meet new people and has given me a trust in Him that I never had before…I could tell you my whole story but I try not to be someone that goes on and on in a public forum…pm me if you want to know more! God bless…AC

Caliafiosgram62 2011-09-05 14:11:21 -0500 Report

I'm glad you listened to your body - 20 years ago I was diagnosed as type 2 because people my age (42 )don't get type 1. Well, within a month I was on 6 shots a day. My gp said he knew all about diabetes and I didn't need an endo. I insisted and finally got a referral. The endo ran all the tests and I was right - I was type 1. Now at 62 I'm type 1 on an insulin pump and CGM system. Listen to your body and fight for what you feel. You know more about your diabetes and what it is doing than anyone else.

GabbyPA 2011-09-06 11:20:49 -0500 Report

Did they find out why you had such a late onset of type 1? Was there damage to your pancreas? Or was it something else that triggered it?

Caliafiosgram62 2011-09-06 19:36:23 -0500 Report

They never did figure it out. Just for some reason, autoimune kicked in and knocked it out of whack. Lately I've been reading some on something they are calling type 1 1/2. Type 1 for older people. I guess I seem to fit into that category.

annesmith 2011-09-04 22:44:17 -0500 Report

I had the OPPOSITE happen to me…and, by the way, I think it is wonderful that you were able to get an accurate diagnoses…I'm surprised the 5 units didn't throw you into several severe lows…but, I am not the doctor, ha, ha, ha. I was originally diagnosed type 2, then type 2 severe severe brittle, and I was given Metformin originally, but my pancreas rejected it…it actually threw me into SEVERE lows—-yet, I almost died when I was on it, too. Then, one night, I went from 63 up to 701, and I was given insulin and my body responded beautifully to that…it bumped me down to 144. I have NO idea why my body would REJECT the pill, and respond so nicely to insulin…to me, that is WIERD, ha, ha. I am unofficially a type fastings were always 300, 444, 280, etc, BUT, when I was on the Metformin it completely screwed up my whole system…so, I guess it is kind of humorous in a way, but yet, very very serious for both of us…glad you got the correct diagnosis…ANNE

aclover2010 2011-09-05 07:48:50 -0500 Report

Yes Anne, everyone's body reacts differently to all medications. Most doctors dont recognize these and think they are one size fit all meds. I am glad that you were not afraid to go on the insulin. I have someone at church who could really benefit from this and he refuses. He has a mental block about but I know that it would make him feel 100 percent better. This the frustrating part. Sorry If I am making an mispellings, I am having a MS double vision day or week…yuck..Have a wonderful Labor day!

annesmith 2011-09-06 00:35:01 -0500 Report

Thank you…I actually am a very healthy type 1, as I walk and run, too. They had a prescription for insulin for me at the internists, but what I failed to explain to you is at the time, I did not take the insulin…I actually said " NO" and went home, because at that time, I was so so so poor, as I was unemployed for 6 months, that my body was shaking and tremoring terribly from the lows I got from the Metformin, and then I got really scared of the insulin, even though they had to give me a shot in the hospital ( when it hit 701). What I mean is, is that I have been given insulin whenever I almost died…but, unfortunatley, I am just now able to ride on a higher plane…it's hard to explain. The internist said I would be just fine on 1-5 units a night, but I now regret not taking it. That is entirely my mistake. So, I am not on it right now…why? Because I will feel fully confident to take it when I still have just a little bit more food coming in…I now work 2 jobs, and my income has come up a pretty good amount, but, my biggest fear is taking insulin and having even just ONE night with little or nothing in my refrigerator…maybe that's what the guy you go to church with is worried about…my biggest fear is an insulin reaction…I am almost petrified of any low below an 80, as my body does NOT handle lows well AT all…I can be at 400 and feel on top of the world…but, the few times I do go low, when I stupidly skip a meal, and then go for a big run…then I will fall down to 83, and it just is not good…So, just to explain it better to you : I had insulin given to me because I would have died otherwise, but, the Metformin which I turned out to be allergic to, and my pancreas rejected, it set my A1C WAAAAY down…to the point where it gave me a light heart attack…so, that's why I still do not feel fully comfortable with insulin everyday…sooner or later I will be on it everyday…but, I am putting it off…so I can keep making sure I have enough to eat first…it is amazing what one bad experience will do to a person…Since that Metformin, I still have never been the same, and it's been a whole 6 years—-it almost sent me into a diabetic coma I found out—-and I took it for a whole year and a half——so, it put my body into a state of low shock——-I am just very very very relieved that I responded so beautifully to the insulin, as I thought the insulin would make me go down lower yet—-it did not——it actually stabilized my blood sugars …I hope all is going well for you!!!!!!!——-ANNE

aclover2010 2011-09-07 00:06:50 -0500 Report

Yes it is..and through education I learned to control my type II…I know excersize for sure brings my BS down..but right now that is out of the picture..I take one long acting shot once anight maybe twenty units…it works for me…everyone and i mean everyone is different…and our bodies change over just be wary of that fact..:) ..

annesmith 2011-09-07 00:31:03 -0500 Report

Yes…this is so true…thank you for reminding me that everyone is different. I have a tendency to forget that, what works for one person does not necessarily work for another person. Many people that are not diabetic sum us all up and say " Oh, diabetics can't have sugar at all." This is not true. Moderation is the key in my book. I have improved on how I communicate with nondiabetics in the workplace and other places…I respectfully say " Yes, I can have sugar, just in moderation, and yes, you just saw me eat something super sweet…I could have done better than that, but I am human. " Not all nondiabetics are that way…but, I just happened to run into quite a few in different places that seriously think that we can just all reverse it completely by eating zero sugar, zero fast food, and all vegetables…not quite. I mean, they are partly right…but, I guess a person can't really understand fully until they are in our shoes. I understand that. I rarely get personally attacked over my diabetes, but, the rare times it has happened, at Thanksgiving dinner or whatever, I just calmly tell them " You don't know until you are there…" ANNE

realsis77 2011-09-04 17:26:59 -0500 Report

Hi!I'm happy to read your comment about insulin! I'm a type two and take insulin. One 24 hour shot and another type for after meals. I tried the pills they did NOTHING for me I was running 300 to 400 but on insulin I'm under perfect control! I wish I more people would understand that insulin is an excellent option!

MewElla 2011-09-04 13:58:22 -0500 Report

Happy to hear that you stood up for yourself with the Dr…I am T2 diet/exercise controlled, no meds or insulin…You get a HiFi for this action…Good Luck to you..

aclover2010 2011-09-04 17:52:57 -0500 Report

thank you …I know we all must be our own advocates..Dr's are usually not so good at this…unfortunatley and what they think is a "small" or no problem can sometimes be the key to a lot of pain and suffering that could be cured with something simple or a surgery..that is another story!! XXX

GabbyPA 2011-09-04 09:32:16 -0500 Report

What I like about your story most is that you stood up for yourself and you did listen to your body. Too often, we just take what the doctors give us and never assert ourselves. Good for you! You did great and in the process made your body much happier. That is what it's all about.

RAYT721 2011-09-04 07:57:08 -0500 Report

Type 2 here! I'm not on meds though. So far so good with diet and exercise but also with the education, inspiration, and motivation from the awesome people here… you know … people like YOU!

aclover2010 2011-09-04 17:54:22 -0500 Report

Well it is good info especially if the time comes that you need any of that..our bodies change over time and we need to know what is out there and how it can help us…and geee thanks!! XX

robertoj 2011-09-04 00:59:09 -0500 Report

I'm a type 2. Your story is interesting and backs up my belief that 1: every body is different and 2: sometimes something is clarified when you get a different doctor.

aclover2010 2011-09-04 17:57:23 -0500 Report

Yes sir…don't worry about dr. shopping…sometimes we are not a good fit and someone else would be better…Especially with endocrinology!! I have a great book I wish I could loan you…I recieved it from one of the nurses at the diabetic education is geared towards kids but wonderful non the less..if you are interested I will get you the title etc…let me know…XX

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